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Swishy

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About Swishy

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    Established Member
  • Birthday 06/11/1952

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    Female
  • Location
    Boston USA

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  1. Thanks Win, I will keep up the fight and I know I am lucky as I can get up and move about and even go to work a few days a week...Sometimes I pay a price for it but...worth it to be living my life...Actually have a vacation planned next month...I always get a bit nervous when I go away but I will go..and I will have some fun Your recovery is so inspirational and the good humor you share with us all, well I love it... Who ever said to you "what makes you think you can walk again" perhaps is in the wrong occupation. Hope is what gets us all up in the morning, it is what makes the a rainy day bearable...because we hope it will be a good day and that the sun will come out... Hope you enjoyed your garden walk and thank you for the words of encouragement...needing them xxx Jean
  2. Hi Daffodil, Thank you so much for the words of encouragement. I feel like I am doing well but I do know the topple over feeling. I am so encouraged by the fact you are still improving and still working on improving. I get stuck sometimes....some days....I know I need to keep going and working on it...The good weather will help. A dog is great as they have to go out rain or shine haha...I live near a pond and am hoping to see the owls that are reported living there, a bit of a bird geek I am Thank you again...I tell myself everyday "I am a survivor" xxJean
  3. Hi All, So here I am coming up on 2 years ago having my SAH followed by vasospasm. Quick recap...8 days ICU 2 weeks rehab then home..ended up in rehab because I couldn't sit up due to core weakness...balance was also off, somewhat better but still a bit off... I have some vestibular issue which probably contributes to my balance. The core weakness seemed good enough I guess. So I recently attempted another round of 6 weeks of Physical therapy which began for back pain and quickly came back to my core weakness. The core weakness seems to be contributing to my back pain.. Anyone with this going on? I don't really feel any difference in strength after 8 weeks of exercise. I will be getting an injection to try to help my back pain and been referred back to neuro. Truth I really didn't even want to open this up again and look at it but am going to do my best. Any thoughts or experiences? Thanks Jean
  4. Love what your doctor said to you....I will go for being part of the wall...as survivors it is a good place to be...be well❤️
  5. Hi Alison, Congratulations on 4 years...sounds like you are doing well. I think the fear of this stays with many if not most of us...I will be two years out in May and like you no cause was found, perhaps making it more worrisome. You are right, I think, that not everything in life has an explanation. My thought is that there is a reason but the doctors don't know everything (they know a lot, but not everything)....they continue to learn. Mine happened when I was 64, it was the most frightening thing that has ever happened to me, it will stay with me always. I agree with you not wanting to live in fear...I think it is a day by day thing, everyday pushing a bit further back, so it will become something we don't think about everyday. Working on it also Best wishes as you move on enjoying your life, you have lots of life in front of you...My best wishes for a happy healthy life. I liked reading your thoughts, remember you are a survivor, we all are. xx Jean
  6. Wonderful posts Frmertd and Win you inspire me so...thank you, thank you all... Subzero love the God grant me the serenity prayer also, I say I say it often.. We are survivors and it took me a while to stop feeling like a victim....Can't say I am 100% there, some days closer than others, all your words help so much with that.. xx Jean
  7. Hi Paula, So glad you found BTG. I am sorry to read of your aneurysm. Sounds like you had great care. You are doing so very well so early in your recovery. Be so kind and patient with yourself, this is a major trauma to your brain. There are so many wonderful people here all so willing to share their experiences as they recovered. We are all survivors here. Wishing you well as you continue to recover xx Jean
  8. I flew 5 months after my SAH and vasospasm... I was very worried and I got a "have a good time" from my team here in Boston. They did not hesitate to say i could fly. In saying this I realize we are all different and for sure check with your team and follow their suggestions. I was afraid but all plans had been made. It was a 5 hour flight. I had no surgery, one week in ICU and had to go to rehab...I am still nearly two years out nervous to leave the country, insurance worries, but I do worry . Your doctors will be your best guide..best wishes, you sound like you are making a very good recovery. Jean
  9. Hi Nikki, So happy you found this site. I have been following the conversation. I am sorry to hear you are feeling a set back. Our brains, I think, heal differently from anything most of us have experienced. I like to think of my brain as the air controller tower at the airport..(crazy right) but it has all these different things to watch and hear and smell and on and on... so when injured it is functioning like a couple of people called out sick...makes it hard and then there we are expecting 100%.... Time has been a miracle for me, and I was very impatient. I will be 2 years out in a few months...I feel I can still improve..I like you did not have surgery, I had a small SAH but then a few days later had a severe vasospasm, this knocked me into ICU and rehab... I hear determination in your entries Nikki. I wish you well. Jean xxx
  10. Hi Norma, Best wishes on your surgery and for a great recovery. This site is a wonderful resource. so many with such insight and words of kindness. Please let us know how you are doing. {{{hugs}}} Will be thinking of you... Sincerely, Jean
  11. Hi, I returned to work after about 8 weeks. I was not a full time employee working 28 hours, but on the overnight shift so that makes it harder. I started back working half shifts for a few weeks then went on to 24 hours, let 4 hours go. Saying this I must tell you I was 64 years old at the time of my event. I really didn't realize I went back too quick until I looked back later at it. At 4 months...6 months...a year I was so much better. Fear of losing my job was my biggest reason. Just be kind to yourself, it is a big deal and the brain needs time.. My best wishes as you continue to heal. Jean
  12. Hi Joe, You have my empathy working 12 hour shifts. I did this for sometime way before having my SAH. More than half the people I work with do work 12 hour shifts. Most of them are younger than me...25 to 55...it is difficult for them, even the younger ones. Also doing 4 12's in a row is murder...Can you split them? Another thought , the computers we use allow us to stand or sit, I find this helpful..I hope you find a solution, it is a tough schedule. Best wishes as you move forward, Sincerely, Jean
  13. Congratulations Super Mario...I am repeating but truthfully you are such an inspiration...15 years...wow, makes me more hopeful...You were one of the people writing me when I first came...I feel like I fell into the arms of all those that reached out to me. I send you best wishes for good health and happiness, .. xoxo Jean
  14. Hi Zoegrove, Welcome to BTG...So sorry to hear about your terrible experience. You sound as if you are making a great progress, our bodies are amazing. I too experienced tremendous guilt after my SAH and Vasospasm. I kept telling my husband "I'm sorry" I remember him telling me to stop it wasn't my fault. This continued for maybe several months and then I began to get a better sense of the whole thing. I work in the medical field so I am always on the helper side of the fence, but there I was being the one who needed help. It is so difficult to accept it sometimes (sadly perhaps when we need it the most)...I did get there ... The whole experience is a traumatic not just for you and me but for all those who love us. It takes time, your experience is still so new. Give yourself the gift of time, it made such a difference for me, I wouldn't have believed it. I will 2 years out in May, I am so much better with all these feelings. Best wishes for you and your family as you move forward and remember you are a survivor...it is a big deal Sincerely, Jean
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