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Swishy

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About Swishy

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  • Birthday 06/11/1952

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    Female
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    Boston USA

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  1. Hello, so glad you found us, My goodness you and your hubby sure had a difficult time, so sorry to read of all that happened. Sounds as if you had a great team getting him to where he needed to be. Happy he is finally home and has all his cognition, memory and and speech in tact. As you said it is early days for him but he sure sounds like he is doing well for all he went through. How are you holding up through all this, it is so traumatic for family. I was the one who had the SAH, but I know my husband was floored and probably in shock for a while. It took his feet out from under him. Thank goodness I have done well, am now 2 years out. It is an event that takes time to recover from and I still feel it is very close not two years ago. I want to let you know there are so many wonderful people here for support, I feel like I fell into their arms 2 years ago. I have much support and understanding here...My best to you and your husband as he continues his recovery. jean
  2. Hi there glad you found BTG. as Subzero said you are among friends. Friends that in one way or another share some of what you are going through. I love that you sound as if you have kept a good sense of humor. Humor can get us through a tough day (sometimes)... I had my SAH followed with Vasospasm just 2 years ago. I feel as if I am better now that last year so I am going to keep working on getting better still. Each inch of improvement may come slowly, so slowly for me that I can only see it when I look back. BUT it keeps coming. We are all survivors here, and we help each other. So Welcome, please keep sharing here, I think you will see what others share is often heart warming and inspirational... Jean
  3. Hi Chelle, Congrats on being 5 years out...You sound like you are doing very well and well also in realizing when something is getting to the point of seeking help. It is not always an easy thing to recognize in ourselves. I speak from experience. I agree with you 100% that this site is God send. Having this place with people that just know what I am talking about, "without being judged" as you said... I wish you all the best in the future...I try to remind myself this is all a journey not a race haha sometimes I believe it and sometimes not. I try. xoxo Jean
  4. Hi Rosie, I am lucky that headaches have not been a huge thing for me. I do get one on occasion but I quickly know it was not the thunderclap headache that started the whole thing. I do worry in general about it but work at trying to not let my worry rule me. I worry when I go away from my medical sources, especially if I leave the country. I wish, oh do I wish I could leave it (the worry) someplace...abandon it. but my body reminds me with the gifts it has left me. Day by day, I say, it is less than it was and I keep on working to make this my best life. You are for sure not alone in your fear...we have you❤️ Jean
  5. Hi Ruth, Welcome to BTG. I am glad you are doing well. I am sorry it took you so long to find us, there are so many wonderful supportive people here. I had my SAH followed by vasospasm 2 years ago. Like you I had a thunderclap headache,my initial bleed was small and I felt like I had dodged a bullet...but my vasospasm was severe and I spend 8 days in ICU and had to go to rehab. I am doing pretty well these days also, some ups and downs but we are so very fortunate. I enjoyed reading your first blog post very much. I find the support here has in many ways been my saving grace...I felt and still feel the need to be understood and coming here helps me with that. Glad you joined us, looking forward to reading more of your blog. Jean
  6. Hi Melissa, I had my SAH just 2 years ago now. I also had a severe vasospasm just a few days later. No stent, no surgery but did have a angio that put verapamil into the vessels in my head to help stop the vasospasm. I also have energy problems, making frequent stop and sit periods while trying to accomplish a task. If I don't allow myself time to rest I end up in a bit of a state feeling mixed up and anxious. I try to recognize when I need it but sometimes life just moves too fast. Looking at the bright things in life is so positive, your daughter graduating and a grandchild...congrats The lingering effects of SAH is so difficult, but we are so fortunate. Melissa I struggled with not remembering what happened to me, I still do. I kept thinking I would remember but now after 2 years I know that is not going to happen. I keep thinking I should be glad not to remember, perhaps it is a gift that I don't. Best wishes Melissa, Jean
  7. Hi Everyone, I guess I really can't believe that 2 years have gone by since my event. I had a thunderclap headache which was diagnosed as a SAH, a small one, that stopped bleeding on its own. I spend 3 days in the hospital with a lot of testing. They were hesitant when they discharged me as a student doctor had spotted something on my MRI but after several hours and multiple doctors checking it out they discharged me. I felt as if I had dodged a bullet...but the worst was coming...Two days after discharge I was taking a shower and again I felt that massive thunderclap pain in my head and my hands and feet lost feeling...I was able to get out of the shower, dressing quickly and called emergency help as I was alone.. I don't remember anything after this...I awoke only briefly in ICU where I spent the next week. I was fortunate as they didn't have to open my head, they were able to do a type of angiogram that injected medication into the vessels in my head, verapamil..the days after that were in and out on day 5 I felt like I was able to stay awake more. They sat me up and I realized my core strength was gone. I couldn't hold myself up, I could stand however. I went to rehab for 2 weeks and it got me walking, pretty well and the core still weakened but better. I struggled organizing my thinking, feeling mixed up. These feelings have pretty much gone. So here I am, 2 years out and very thankful for the extra time I have been given. My core is still an issue, seems to be a factor in a back issue I now have. My thinking is pretty good, a lot of new or multiple pieces of information gives me that mixed up feeling but I can deal with. My balance is not the best but I do get around pretty well. I feel like I fell into the arms of this group and I am thankful for all the warm, helpful posts I have gotten from you all. I desperately wanted a support group and found nothing near me. This group has been vital to me and even as I move on I find myself looking for your support when things arise. The old saying "there is strength in numbers" rings true my friends. xx Jean
  8. Hi Kerry, Welcome...I began my hemorrhage with a thunderclap headache. I was taken to the emergency room and a treated for migraine symptoms...they did do a cat scan which showed bleeding and I was transferred to a major hospital. I am happy for you that you will get the MRI and the doctor not being worried is great but it certainly doesn't change the fact that you are. I hope everything goes well for you, please let us know how you are. I wish you the very best. Jean
  9. Thank you all for just the supportive words I needed...even in the middle of the night Feeling better as I take this in realizing I do want to understand what happened. In reading that I am not alone in not getting the full correct news I have to remind myself that this is a complex thing we share here and we are all lucky to be here and also have had some great medical teams to thank for it. I am off to a vacation in Mexico early next month so I will...I must...get back to my happy packing and listening to some fun Spanish music which always makes me happy... xx Jean
  10. Aww thank you both for your responses...I feel like you all have been so supportive for me and so many others.....this is a family I would have never dreamed I would be part of...I am so thankful for having searched you out. xx❤️ Jean
  11. Hi All, Update on my Neuro visit. I went to a different doctor than the doctors that had been treating me initially as my insurance leaves me with a large out of pocket balance. I figured this was more follow up with questions about my core strength and increasing numbness / tingling on what I thought was not my stroke injured side. This doctor was thorough, getting all the records from my first hospital, making the visit worthwhile. I was floored with the information he gave me.I thought I had bleeding on my right side affecting my left...he told me it was written in my record I had bleeding on both sides, explaining why I have so many crazy symptoms on the other side of my body. Geez, I was thinking I had another issue going on like Parkinson perhaps, it was making me very worried. He also told me to keep taking amitriptyline which he says helps with these symptoms I have, only 10mg. I was trying to wean off. I felt very foolish not knowing what happened to me...wanted to cry and I am not easy to cry. Of course he didn't make much comment as to why I hadn't been given better information (probably wouldn't have remembered) but my husband would have. Soooo anyway, i am happy that I know what is going on...always better to know right? Still exercising for core strength, seems the same...Had the steroid shot for my back, ouch, hoping that helps and moving on. So glad to be able to come here tonight at 3:10 am and vent.... xx Jean
  12. Hi Kim, So happy your found this site...I feel like I fell into their arms as I couldn't comprehend all that had happened to me. Don't forget to breath, one step at a time and remember you are now a survivor...took me some time to realize that...this may not be a group you ever planned to be part of but it is a group of great positive people who continue to live their best lives...so welcome . Jean xx
  13. Thanks Win, I will keep up the fight and I know I am lucky as I can get up and move about and even go to work a few days a week...Sometimes I pay a price for it but...worth it to be living my life...Actually have a vacation planned next month...I always get a bit nervous when I go away but I will go..and I will have some fun Your recovery is so inspirational and the good humor you share with us all, well I love it... Who ever said to you "what makes you think you can walk again" perhaps is in the wrong occupation. Hope is what gets us all up in the morning, it is what makes the a rainy day bearable...because we hope it will be a good day and that the sun will come out... Hope you enjoyed your garden walk and thank you for the words of encouragement...needing them xxx Jean
  14. Hi Daffodil, Thank you so much for the words of encouragement. I feel like I am doing well but I do know the topple over feeling. I am so encouraged by the fact you are still improving and still working on improving. I get stuck sometimes....some days....I know I need to keep going and working on it...The good weather will help. A dog is great as they have to go out rain or shine haha...I live near a pond and am hoping to see the owls that are reported living there, a bit of a bird geek I am Thank you again...I tell myself everyday "I am a survivor" xxJean
  15. Hi All, So here I am coming up on 2 years ago having my SAH followed by vasospasm. Quick recap...8 days ICU 2 weeks rehab then home..ended up in rehab because I couldn't sit up due to core weakness...balance was also off, somewhat better but still a bit off... I have some vestibular issue which probably contributes to my balance. The core weakness seemed good enough I guess. So I recently attempted another round of 6 weeks of Physical therapy which began for back pain and quickly came back to my core weakness. The core weakness seems to be contributing to my back pain.. Anyone with this going on? I don't really feel any difference in strength after 8 weeks of exercise. I will be getting an injection to try to help my back pain and been referred back to neuro. Truth I really didn't even want to open this up again and look at it but am going to do my best. Any thoughts or experiences? Thanks Jean
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