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Swishy

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    125
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About Swishy

  • Rank
    Member
  • Birthday 06/11/1952

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  • Gender
    Female
  • Location
    Boston USA

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  1. Swishy

    12 Hour shifts

    Hi Joe, You have my empathy working 12 hour shifts. I did this for sometime way before having my SAH. More than half the people I work with do work 12 hour shifts. Most of them are younger than me...25 to 55...it is difficult for them, even the younger ones. Also doing 4 12's in a row is murder...Can you split them? Another thought , the computers we use allow us to stand or sit, I find this helpful..I hope you find a solution, it is a tough schedule. Best wishes as you move forward, Sincerely, Jean
  2. Swishy

    15 Years Tomorrow 4th February

    Congratulations Super Mario...I am repeating but truthfully you are such an inspiration...15 years...wow, makes me more hopeful...You were one of the people writing me when I first came...I feel like I fell into the arms of all those that reached out to me. I send you best wishes for good health and happiness, .. xoxo Jean
  3. Swishy

    Guilt

    Hi Zoegrove, Welcome to BTG...So sorry to hear about your terrible experience. You sound as if you are making a great progress, our bodies are amazing. I too experienced tremendous guilt after my SAH and Vasospasm. I kept telling my husband "I'm sorry" I remember him telling me to stop it wasn't my fault. This continued for maybe several months and then I began to get a better sense of the whole thing. I work in the medical field so I am always on the helper side of the fence, but there I was being the one who needed help. It is so difficult to accept it sometimes (sadly perhaps when we need it the most)...I did get there ... The whole experience is a traumatic not just for you and me but for all those who love us. It takes time, your experience is still so new. Give yourself the gift of time, it made such a difference for me, I wouldn't have believed it. I will 2 years out in May, I am so much better with all these feelings. Best wishes for you and your family as you move forward and remember you are a survivor...it is a big deal Sincerely, Jean
  4. Julian, I had a similar experience at a baby shower I was at last week...not from the noise ... seemed to be with all the motion (people walking back and forth) and when I began helping to clean up (also walking back and forth)...I was very overwhelmed and feeling mixed up (an old feeling I thought I had left behind)...but I sat and regained my sense of stillness... I think ear plugs are a good thing to have in my bag...I guess we keep on learning how our new brain works...Sounds like you are making great progress Julian...babies to hug...so wonderful, mine are all grown, I miss it.. Win you always make me smile, would love to hear you sing Jean
  5. Hi Penny, I was told not to take too much Tylenol as it can actually cause more headaches. I had what I would call pains in my head, more than an aching head. It has improved significantly but not totally. I will be 2 years out in May. I feel what I term "swishy" sort of feel like I am walking on a boat. I still have this, truth, doesn't seemed to have changed much. I will say I have gotten to tolerate the feeling mostly, so I am not as bothered by it as I was. I am so sorry to read you have these symptoms, they are bothersome as well as worrisome. I hope as time goes by they get better for you. As Skippy said water is so important, make sure you get enough. best wishes, Jean
  6. Swishy

    One year today

    Hi Angela, It is a long road that gets us to one year out. It was an ever changing year for me and I felt I had reached a mile stone when it arrived, still realizing I still had a journey before me. As I get close to my second year in May I realize I am still making strides and also that I am getting to accept some of the changes within me. You are doing so well working to improve with brain games and keeping a diary. I hear your struggle with self confidence. I struggled with that as well but have gotten so I can go to the store alone but it can be too much when busy and I have to rest when I get home. It is all one foot in front of the other everyday. I hope all goes well for you and you recover quickly. Take care and please know you have a place here to talk, vent or just to say HI... Sincerely, Jean
  7. Hi Todd, Welcome to BTG...So sorry to hear about your PSAH. It is a game changer for most people I think. Keeping good contact with your doctor and a journal on how you are feeling is great advice from Casey. It can be stressful when you are put on the spot in an appointment to remember everything you wanted to discuss. The water and rest for sure help. 6 weeks is a very short time in terms of your brain healing. These events take time and patience with yourself. You sound like you are recovering very well. Best wishes as you progress and please check in and let us know how you are doing. Jean
  8. Swishy

    SAH, 14 years on.

    Thanks so much Macca, your words have been so inspirational to me....I can't even explain how much I appreciate it. Sincerely, Jean
  9. Swishy

    SAH, 14 years on.

    I too have struggled with feeling it is easier to just stay home. I think some of it has to do with the fact that when I am up and moving around I am a bit off balance (just doesn't feel like it use to feel) I am 18 months out from my SAH followed by Vasospasm. I must also say the more I encourage myself to do it the more comfortable I have become. Is it the same as before, no it is not. I am searching for my new normal, having accepted the old one has changed. I give myself permission to refuse certain things but I am a social person and know I won't be content spending too much time alone. It does get old trying to educate people about what happened to me. I don't spend much time trying unless the person is someone who is close to me or someone I will see frequently. I am the only one who really knows how I feel, and that is ok. I am better and happier than I was a year ago and looking to be my best self possible. Everyday is a challenge but I am up to it (mostly haha)... Jean
  10. Congrats Johntaras on 9 years. Your post gives those of us who are way earlier in our recovery hope. Working 3 days a week is awesome, never say only. You are doing it, you survived . Best wishes for 90 more. Best wishes Jean
  11. Swishy

    New Member: Rook

    Hi Rook, So happy your mom is home..she is defying the odds everyday...remember, stay greedy, she already surprised everybody. Nobody can say for sure when someone will stop making progress. She is so lucky to have such a wonderful caring and supportive daughter. I send you both good thoughts and prayers... xx Jean
  12. Swishy

    Ten Years Today

    Hi Coleen, Congrats on 10 year. That is a milestone for sure. I like what you said "keep on keeping on"... great words of inspiration. Be well and best wishes to you. Jean
  13. Swishy

    Confused

    Hi Chris, Wow what great encouragement/information...I wish someone would have given me a piece of paper with those words on it when I left the hospital. I am also in the USA..Boston.. Thank you Jean
  14. Swishy

    Shona

    Hi Shona, Welcome to BTG. I had a SAH with no cause found followed by severe vasospasm which put me into intensive care for a week. I was fortunate to be very close to a 1st class neuro center who took very good care of me. My event is different from you but I think the thing we all share here is worry, concern and even fear. I know when I came here I so much wanted to find that person who had exactly what I had. My event was 11/2 years ago, I haven't met that person, but, I had met through BTG people who share part of my story and people who understand the emotions these events leave us with. I like you struggle with unbalance, hence my name Swishy, as that is how I feel most always. I too have sensory loss on one side but am fortunate that my strength is good, not like before but good. So sorry you broke your arm, getting hit when your down is very hard. One day at a time, Shona, there are great people here, willing to support you as you move forward. It has helped me more than I can say. Take Care, Jean
  15. Swishy

    Confused

    JoJo I am still wrapping my head around it as well. It doesn't seem to come all at once, and sometimes I think I have it and it gets away from me again. Trust me you are not alone, there are so many people here with so much inspiration and strength to share. You have found a friend Jean
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