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Swishy

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About Swishy

  • Rank
    Established Member
  • Birthday 06/11/1952

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  • Gender
    Female
  • Location
    Boston USA

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830 profile views
  1. Hi Chris..Congratulations on 4 years...love that you are posting you are getting better all the time...so encouraging for me and I am sure many others that we do continue improve ... My best wishes for many years of good health. Jean
  2. Hi Charming, After my SAH followed by Vasospasm I was told "go live your life...Now I realize that being 64 probably already was putting limitations on it but like you I was left wondering. After my stroke I had a trip booked and paid for 4 months out to South America, the Neuro said have a good trip...I went and I did...very cautiously such as I wanted to walk up the side of a mountain path in SA but I rode up instead worrying that it would be too much... I love to snorkel, and I do but am a bit worrisome doing it (I guess I don't enjoy it as freely as I did before) but i do it perhaps cutting my time.. No doctor gave me limitations...I think I had hoped for guide lines, didn't get that either... Two and a half years out I still am making choices as to what I feel ok doing.. I would not do anything that risks injury to my head...haha pretty obvious I guess...everything else I do as I tolerated...sometimes struggling with something and then attempting it again perhaps after more rest. Depends on how important something is also... Very individual choices all depending on what limitations we feel we have... Time plays in here also...I have regained confidence as time has gone on... I wish you well in all your challenges . Jean
  3. Hi Zack, To repeat Casey, glad you found us. I am so sad reading your story when you are so young. Strokes don't ask people's ages before they strike. I had my SAH with a severe vasospasm. I have been left with sensory issues, balance issue and questioning myself daily...the last is probably the worst...recently (my stroke was 2 1/2 years ago) I have been working with a therapist working on using relaxation techniques...I am realizing i don't think I have been relaxed since this happened...always worrying about what is next, I am way older than you, in my 60's,),,how am I viewed by everyone...on and on...it does get better as time goes on but I am a bit different than before...that is ok...I survived.... Zack there are many many people here that have written about their story...check out the site and I hope you will find some peace here with us as we all navigate our lives. Jean
  4. Hi Sallios, I had terrible pain that seemed to settle at the bottom of my spine around week 3, it was attributed to the blood that was in my spinal fluid and I was told it would take a while for it to be reabsorbed...it was quite painful and perhaps two weeks later it was just gone...so I am hoping for you that it just goes away soon... Everything about this is so individual so please don't take my experience as possibly being your own...we all recover at our own rate...I also had a lot of stiffness and pain I think from being confined to bed and then only walking with the therapist, limiting my activity...once I was home and moving at my own will I began to have less stiffness and pain... My best wishes with your recovery. jean
  5. Hello and another welcome to BTG...My goodness you and your family have been through quite a lot. You certainly had a wonderful support group and wonderful medical health that helped you through all this. Reading that you are able to enjoy your retirement and relax...how wonderful, I know we have never met but I sit here in USA happy inside for you. "I thank God for my stroke"...I am very moved by this...as it let you see what wonderful support you have.... Your letter is very inspiring, thank you writing and I hope you continue to visit BTG...you have much to share . I feel like I am looking for the good that came from my stroke...sometimes I think I see it but it seems illusive and I am unable to hold on to it... I wish you and yours all the best health and joy in life.. Jean
  6. Hi Ami, Congratulation...wow that is amazing, I can only imagine how proud you must feel of yourself...You are doing it...keep going Jean xx
  7. Hi Von, I am so glad you found us. I am so sorry to read about what has been going on with you. Trust me I (well everyone here) understand your struggles. I personally had my SAH followed by Vasospasm when I was 64. I did not have any vision problems, it must be so difficult. But like you I had the "you seem fine" comments which was good in one way but not another. Sometimes I wish people could see that my balance is off and I don't like people walking quickly past me and I struggle in the kitchen , anyway I think you probably understand. I am 2 years 3 months out, it is a slow recovery, sometimes i could only see improvement when looking back. Having a stroke can steal our confidence, making us search it out and reclaim it. As I said it can be slow. I still feel not satisfied with the information I was given as to what happened to me. It seems a little less important to me as time goes on, but only a little. There are so many great people here that are so willing to share and listen...they are great...Has been a big help to me, knowing they know, they get it...Take care and try ( I know it is hard) to be patient with yourself.. xxJean
  8. Hi Ben, So glad you found us. You will be the one who knows if you are ready to go back to work. Having a bleed is so different for each of us, we all have a different time line. I went back to work before my Dr. thought I should, turns out he was right but after a couple of iffy months I was okay and still working. I am quite a bit older than you 66, 64 when I had my bleed. Even though you feel lucky for not having any major impairments when there are things not working the same as they did before in our bodies it is worrisome. You are early in your recovery, our brains are an amazing organ and will keep healing. I wish you well as you continue to recover and get back to your bike Jean
  9. Hi Irene, I found it very comforting to read others stories, I still do. Now that I have my wobbly little sea legs under me I am so happy to reach out to others as they come on board. xx Jean
  10. Hi Irene, Welcome, glad you found this site. So sorry you had that happen to you, happy to hear you are getting good care. There are so many of us here with different stories, we are all survivors I had my SAH 2 years ago...it was a sudden thunderclap headache, no other symptoms...I was so fortunate as it stopped bleeding all on its own and after 2 days in the hospital I was released, counting my blessings thinking I had dodged a bullet (which I really did)...shortly after getting home I had vasospasm which was more complex and required a week in ICU and 2 weeks of rehab... So here I am 2 years out with some invisible issues going on, numbness, off balance but I survived and I am living my life...went back to work even. Good enough to welcome you and let you know we understand. Please go through this site and read the stories of others, perhaps more like your experience..I have found the folks on this site to be so supportive and full of desire to share and support.. So I will say again Welcome to BTG. Enjoy your day, Jean
  11. Hoping the US catches up to you...Flying in a couple of months and it does cause me distress to be with all the people rushing around pulling bags...lots of overhead announcements...I am slower walking and if anyone bumped me I think I would topple (not sure if I would but feel like I would)...
  12. No cause was found for me also...They even gave me a piece of paper saying it... my thought...something caused it..but as Crazy says "all we can do is fight on" we are survivors... Jean
  13. Huge congrats on 14 years, you are beautiful ..You sure do give me comfort...thank you for sharing. Jean
  14. The brain sure does move in mysterious ways...Great we are hear able to talk about it .... still leaves us with why?? I am thinking I will never know... Jean
  15. Hi Subs, Thanks for reminding me to look back over that link... I think I am getting a bit wacky thinking too much about it haha...truth... Jean
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