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Bev75

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  1. Thank you so much Clare for your Kind supporting words. There seems to be a few of us who were left undiagnosed with no treatment for many hours. Thank goodness your husband was so persistant, which prompted them to get the care and treatment you needed. Sometimes I think when we don't remember much it can be a blessing, but not nice for our family and loved ones to have to see us so ill. Take care and hope you too are recovering well xxx
  2. Hi CharlieD, I totally get where you are coming from, i'm coming up to the 5 and a half months since my SAH. I too get these strange sensations in my head, which leave me feeling tired and not with it. I've been trying to pace my day as best I can. And also have begun the slow phasing back into work. I had occupational health (a neuro doctor) speak with me and he did a report for my employer giving guidance for up to a year. I'm lucky that I work in the health sector in Pain Management, so i've had good support from my colleague. I started working from home, 3 days a week just doing 1 phone call per hour with a patient and have now gradually increased this to 2 calls in the hour. This is all that I can manage at the moment, I take regular rests in between. My D day is tomorrow, I will be joining my colleague in a Pain Management Program with 10 people. This is a huge step for me, I'm just shadowing, just seeing how I manage the day. The prospect of me standing up in front of people and delivering the program scares the living daylights out of me. I'm no where near that stage yet, i've got a very big mountain to climb. But I know just like you, we have to take one step at a time, rest when you can, taking life at a much slower pace. Sending warm regards Good luck with your recovery Xx
  3. Hi Winb143 That is so very sad to hear this about the gentleman's grandaughter, total respect for her father. And a blessing for you that he was your first responder. Keep singing young man? Thank you for your kind words, Xxx
  4. Thank you Daffodil, for your words of wisdom. This truly has helped to give me a better insight as to what to expect during my recovery. I shall be taking on board your suggestions, I like the idea of a cream tea off the beaten track. That's on my to do list in the not too distant future ? for sure. Daffodil, 39 is so very young, bless you xx
  5. Thank you both for your advise. I've got a neuro appointment with the consultant end of December. I had a cerebral angiogram at the time of the SAH, they said i'd had some blood vessels that had obliterated and then resealed themselves. The blood had also got into the CFS fluid causing irritation to the menengies, where I developed menengitis and also low sodium levels in my blood. Apparently this was causing pressure on my brain, hense being in ICU. I was given Nimodopene for 3 weeks. At the time they told me I would have a lot of pain in my head, neck, upper and lower back as the blood in the fluid could take up to 3 months be reabsorbed. But after 9 weeks, I developed peripheral nuropathy. They didn't tell me about this and it's been getting worse. My speech has improved, I seem to stammer and forget my words when I get tired. So i've been resting as and when I can. I don't know how much water I should be drinking now. My fluid intake previously was monitored to just 1.5 litre per day, due to the low sodium levels. Has anyone had ongoing problems with their hearing and eyesight being very oversensitive. I still am not able to tolerate being in a crowded noisey environment, such as going out for a meal or going out for a drink. It's like all my sensory filters have gone and I feel every vibration in my head and ears. I have earplugs and wear dark glasses as and when I need them. But i'm not tolerating being out in busy environments. Does anyone know how long this can last for? I'm finding that my friends are asking me to join them for meals out etc, but i'm having to decline. Because you look ok, people think that you now ok. But as you know, this is not the case when your brain is still healing. I'm 53 I was a very healthy active lady before the heamorrhage. The neuro doctors can't give me a reason why this happened, they told me I was very lucky to of survived this, especially as the paramedics missed all my symptoms, who scaled it down to a non urgent case in their hand over in casualty and was left in cubical for 5 hours before being seen by a doctor. After the CT scan, they told my daughter that I was being transfered to the neuro unit in Nottingham, they told her not to follow the ambulance as she would not be able to keep up with them. My daughter got to the unit, thinking that I would be there and being treated. Only to find the doctors were still waiting for my arrival. My daughter and family were frantically calling the hospital to find out where I was, they didn't know. Apparently the paramedics turned up 2 hours later with me. Where I went to ICU. I was totally out of it and unaware of what was going on, my family made their concerns to the neuro doctors of the previous hospital's lack of care and early treatment. Thank goodness I was now in good hands and had the Gold Star treatment. The neuro unit at Queens Medical Centre in Nottingham were brilliant xx
  6. Hi, I'm new to the site. I had my SAH end of May this year. I've been reading your blogs over the past months, whilst in my recovery, which have been a great comfort to me knowing that i'm not on my own. I has a Spontanious SAH, the paramedics came after 2 hours, missed every red flag, took me to hospital, saying I was over reacting and just had a headache. Was left for a further 5 hours, was only given Ibruprofen. My daughter said it was so upsetting to see me so ill. When the doctor decided to look at me and send me for a CT scan, all hell broke out. My daughter said they were pumping me with morphine and said I was being blue lighted to the Queens Medical Hospital Neuro unit, where I was placed in ICU After my SAH, I also developed Menengitis, to be honest I don't recall much of what happened, was told I was in ICU for 4 days until stable and was in hospital for 3 weeks. I really did feel like I had been away somewhere, it was like i'd been on another planet and had to relearn everything I took for granted. I had experienced sensory problems, hypersensitivity with hearing, photophobia and had lost the sense of smell and taste. This has slowly started to resume, leaving me with hypersensitive hearing and sensory overload, which makes me feel quite sick and disorientated at times. After the first 9 weeks I started getting different pains developing in my feet, then my hands and now it's also gone into my elbows too. The pain is like a burning sensation, my hands and feet swell and get sore and stiffen when resting. I find the mornings and evenings the worst. I'm also finding that my hands are starting to lock when I try to open and close my hands. I've been put into Pregablin 600mg whuch has eased the symptoms a little. I'm worried that these symptoms are here to stay. I know I am still very early into my recovery. I still get the weird sensations of cold running water in my brain and still have lapses of concentration, with fatique. But has anyone else had this pain develop in their hands and feet. My doctor thinks it could be central post stroke pain. Could anyone give me advise about this or share their experience, I would very much appreciate any support or advise please. Warm Regards Bev x
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