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Jan

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Jan last won the day on July 5 2016

Jan had the most liked content!

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About Jan

  • Rank
    Senior Member
  • Birthday 30/04/1964

Profile Information

  • Gender
    Female
  • Location
    Congleton, Cheshire
  • Interests
    Sewing (I make collectable teddy bears), gardening and reading

Recent Profile Visitors

1,460 profile views
  1. Congratulations on 14 years. You are a beautiful lady inside and out.I will never be able to thank you enough for creating BTG..You have brought together so many people who need help, support, inspiration,a good moan or even better a good laugh.😀THANK YOU KAREN. A great big well done on travelling 14 years on this bumpy road that we’ve all found ourselves on. Love Jan xx
  2. It was 4 years last Friday 7th June that my brain let me down so very badly and changed my life entirely. This has been my worst year by far.I have words and their meanings in my vocabulary now that I never thought would apply to me, for example....... depression, anxiety, ptsd, fear. I have little self confidence.I have got into a rut that I need to find my way out of. This next year will be a year of change.It has to be. First step ( The BigOne ) is underway, selling the house and moving somewhere new. John and I realise now that there are only the two of us on this journey so the destination is OUR choice without having to consider others and what they might think. We have no family support at all so we need to hold each other’s hand very tightly and walk our own path to wherever it leads us. I try to be upbeat about the changes and challenges ahead but that finger of fear still taps me on my shoulder and by doing so has the unique ability to darken a day. I can only keep trying to try which is my intention. I am lucky, so lucky to have 3 people in my life who I love dearly and can rely on ALWAYS. My wonderful & very patient husband John. My darling Mum, and of course my very best friend Michelle who has helped me every step of the way and I hope will continue to do so because I’d be lost without her.Thank you Michelle for everything, for always being there for me. Love you. I’ll finish here, I didn’t know what I was going to post here so I’ve been typing as I’ve thought. Jan xx
  3. Michelle, Huge congratulations on your 5yr anniversary 😀 I could almost ditto your post when I do mine later!! You are a very strong and resilient woman who keeps on doing well, I have much admiration for you. More than that You are a very caring and loving lady always happy to help or advise here on btg. Btg is a better place because you are a part of it. Wishing you an absolutely brilliant 5th year 😊 Jan xx
  4. Hi Coleen, Huge congratulations on your 10 year anniversary I hope you have a truly lovely day ? As you said. . . Keep on keeping on!! Love Jan xx
  5. Congratulations on both of your special Anniversaries Macca, you are a very special man, I can’t thank you enough for always being here for me, I love your ‘way’ with words, your understanding and showing me how to look at things from a different perspective. Thankyou, thank you thankyou Jan xx
  6. Hi Joe, Thank you for starting this topic, reading the above comments has made me realise how much my tastes have changed. I’m 3yrs post SAH. I used to love a Macdonalds or Burger king occasionally, can’t stand them now, they just taste of grease. Bizarrely, I love vegetables now, I’d eat them before but it’s like I can actually taste them now. Like Win, I don’t like tap water but a Brita water filter jug kept in the fridge fixed that !! My taste for prosecco/Pinot hasn’t altered at all !!! Like everyone has said, it’s all down to the T word (time) keep trying your old favourites now & again Jan xx
  7. Well . . I did it!! What was I worried about? My physio Emma explained what she was doing and kept me talking to keep my mind off what she was doing. I only felt 2 of the 7 needles and they didn’t hurt.I was aware of her putting the needles in the top of my arm but only because I could feel her hand holding my arm! (I didn’t watch) until she put one in the back of my wrist I saw that one and it hurt. I’m sure it only hurt because I could see it, if you know what I mean? When it was over, I asked why I hadn’t had any needles in my shoulder considering that my shoulder is the major problem. Emma smiled and said that I’d had several needles in my shoulder all around the rotator cuff. Brilliant!! I didn’t feel any of those?Anyway I have another appointment in 2 weeks. I’m not sure yet if it’s helped with the pain but it’s no worse so here’s hoping? Jan xx
  8. I phoned N Staffs again yesterday. Switchboard couldn’t put me through to a nurse specialist as they don’t have one on their list!! She asked if I wanted to be put through to ‘the ward’ Which ward I had no idea but said ‘yes please’ As it turned out it was the ward that I was in 3 years ago. A lovely nurse answered and I asked my question re acupuncture, she seemed to understand my concerns and immediately went to find a doctor to ask. She came back to me with. . . . Yes Jan, it’s safe to have acupuncture after a bleed on the brain.??? Relief?? I can’t tell you ! So, I’m off to do my impression of a pin cushion this morning. I’ll pop back later to let you know how it went. Thank you all again for your advice and support. Jan xx
  9. Clare, Thank you, I will try again, I was actually told that there was only a nurse specialist for patients with cancer!!! Odd? Yes. There was a neuro nurse specialist when I was discharged 3 years ago I will try again, Thank you. Jan xx
  10. Tinaw, I think our posts crossed! Thank you for your reply, That helps to put my mind at ease ?
  11. SM, Thank you, I have tried to phone my physio this afternoon but can’t get hold of her yet, she is aware that I’ve had a SAH so I’m sort of assuming from that it must be ok, To be honest, I think that because it’s something totally new to me I’m being over cautious. I was ok until I read the leaflet she gave me and this sentence jumped out at me . . . . . . Research shows that acupuncture stimulates the brain to produce natural pain relieving chemicals - Endorphins............... It’s the ‘stimulates the brain’ bit that had me worried. I am just being a great big Wuss!! Jess, I was treated by Mr Tzerakis ( Not mis spelt, I just checked)!!! John and my sons referred (& still do!) to him as Dr Nik, much easier!!! Jan xx
  12. Hi Sis Thank you for your quick reply and advice. I have just spoken to my consultant s secretary ( my consultant/ surgeon is on annual leave) I explained what I wanted to ask and asked if I could perhaps talk to another consultant or nurse specialist? Short answer was NO . . Advised to ring my GP which would be a waste of time as they won’t answer anything without speaking to N. Staffs hospital first ?. Back to Dr. Google!! xx
  13. Have any of you had acupuncture since your SAH? I am currently having physiotherapy for my shoulder pain (rotator cuff damage) My physio has suggested acupuncture as the muscles surrounding my shoulder are so knotted that the manlipulation that she’s doing isn’t relieving the pain. I know that everyone is different regarding pain threshold and how far they will go with a particular treatment etc.I just wondered if anyone has had acupuncture and could share their experience? By the way, I don’t have a fear of needles!! I suppose what I’m really asking ( in typical ‘Jan the Rambler’) fashion is . . . . . iS IT SAFE?? Thank you for reading Jan xx
  14. Louise, Well Done You!!! Thank you for sharing your experiences and feelings, Like you I didn’t enjoy flying before sah but have always said since sah that I need to conquer my fears and get on a plane again.We used to go to Nerja in Spain every September.Ive just applied for a new passport (change of name to married name).so that’s the easy part done!! Just need to find my confidence and courage!!Thank you again for sharing, You are a courageous lady ? Jan xx Ps, forgot to say. . . . . . Beautiful photo xx
  15. Where do I start? The last 12 months have been more difficult than I expected, full of highs and lows. . . . The Best day , it goes without saying (but I’ll say it .anyway. Remember Jan The Rambler’s typing this!!) was my beautiful wedding day . It truly was the best day of my life so much so, I want to do it again ( with John of course!) I’m digressing already. I see things differently this year. Relationships with family and friends change.I have felt abandoned and isolated.The isolation is mainly my doing, I think my confidence went down a different path to the one I’m on. I’ll keep looking, it’s there somewhere. On a ‘good’ day I feel great, full of energy etc so here’s hoping there’s lots of those on the horizon. I’m still struggling to accept all that I’ve lost but more importantly I try very hard to appreciate all that I have. THANK YOU BTG for being here Jan xx
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