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Daffodil last won the day on October 17 2020

Daffodil had the most liked content!

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About Daffodil

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  • Biography
    Mum of two daughters, married living in leafy buckinghamshire. I had a Grade 4 SAH and presented with acute hydrocephalus in March 2012 when I was 39 but the bleed was was successfully coiled ( just a teeny neck left) and a drain fitted to balance fluids. I spent a long 7 weeks in hospital before discharge with a fair stint in HDU . Unfortunately my hydrocephalus reoccurred post the SAH and I was readmitted with flashing blues and ended up spending another 4 weeks eating the hospital food and having an adjustable shunt placed in July 2012.

    Now nearly four years on and life is more steady for me ,I'm back working part time for a large consulting firm in HR strategy, my neuro folk check my coiled and the second uncoiled anni yearly and despite there having been lots of bumps in the road with some grey days ( excuse the pun) throughout it all this forum has been a very helpful and reassuring place to come for help.

    I'm mostly enjoying some better days now and am now privileged to be a moderator. I also started blogging whilst in hospital having my shunt placed and still blog occasionally about my experience .
    If you want to read my more Personal account of my SAH recovery you can find it at http://popgoestifty.blogspot.co.uk/
  • Location
    Bucks, UK
  • Interests
    Swimming and baking
  • Occupation
    HR Consultant
  • SAH/Stroke Date

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  1. Hi Dawny, I am hoping you feel somewhat reassured that how you are feeling is entirely normal but that yes members have come through who have required similar treatment of additional coils being placed. It sounds like they are saying the impaction of the coils could do with some topping up, so not a threatening issue but one that would benefit from that extra coiling. The view Clare shares is so true in that coiling in a non emergency situation is dramatically different and carry’s a different risk to when we are coiled to stop a bleed and that should be a little comfort. But keep
  2. Kathy , really touched by what you have written so thanks for sharing how my blog made you feel and I’m really glad it helped at a time you felt was useful. We all keep on keeping on. And yes the art of possibility is a good skill to practice , that and curiosity. keep being kind x
  3. Welcome Ilse, sounds like you have a great attitude and I applaud your talking about your wishes , I did likewise after mine and updated my will and talking about death is not a taboo in our family, although obviously not a cheery subject. Glad you plan a phased return and to delegate more, and the extra sleep and rest will help
  4. Hey everyone, so it’s my nine year anniversary today. I collapsed at an event I was running for over 300 colleagues in central London, should have been my day off and which was the saving of me as a friend with me whose husband died from a SAH realised what was happening and insisted on calling 999. A paramedic fast responder doc was a neurological SME, I got rushed to UCL after a Grand Mal seizure and was at the National hospital for neurology and neurosurgery and in the operating theatre within 6 hrs of being admittted. I had a grade 4 SAH with acute hydrocephalus an
  5. I was really nervous too and understand why you might wish to delay or avoid completely. But like Chris I felt it was a good milestone opportunity, like it would indicate if I was in good shape and on the right path, yes there’s risk as with all procedures but you are surrounded by folk who know exactly what to do. One thing I remember vividly is I got sent the link as a joke from a friend to the hair remover for men reviews and my MIL read them to me afterwards in my ‘lie flat for six hours’ phase. We cried with laughter I felt I was going to do some damage. So it’
  6. Hi there. I am not on blood thinners only blood pressure tablets but have a shunt placed. I experienced some sudden eyesight changes which resulted in my requiring a full ophthalmology assessment but my experience was very similar to yours, sudden loss of vision in one eye on a number of occasions. Every time MRI, the neurological checks etc revealed nothing , my shunt and SAH consultant happy nothing related to the SAH or hydrocephalus so I got referred to a neurologist and we established for me it was a migraine now presenting itself differently as a result of the br
  7. Ann. Just a big WOOHOO 🙌 from me . So pleased , it’s a nice feeling when everything just sits tight
  8. Hi, some lovely kind advice above and hope you are seeing you are not alone. The truth and reality of our changed brains is a hard one to explain to others , how that feels, the loss and adjusting let alone accepting it is even harder. A lot of the early days is about surviving really, getting through the day, the pain, the fog and slowly slowly clawing back what we can manage and seeing what is else is possible. But my goodness we are hard with ourselves along the way, I mean no one handed us a manual of how to live after an brain injury , and so here we all are muddl
  9. Hey Gam, just glad it was helpful. Try and give yourself that gift of space and silence each day if you can, even if it’s just 10 minutes 15 can help , genuinely your brain will thank you for it. As a society ‘busy’ is worn as a medal but your brain is always busy, doing all this unseen work and yours is healing and trying to adjust to the damage from the bleed. So giving it some ‘quiet’ time is a great way to allow it some time off from all the other processing. Even now as far out as I am in healing if I am in busy situations I have to step away and give my brain ti
  10. Jean that is kind of you. ( I don’t do colouring either !! ) So one of my things of finding ‘new’ version Daffodil post SAH was I decided to train as a Business Trainer of Mindfulness. Gosh it was hard on the brain, I wanted to see if I could do it , I did and qualified if that’s a thing and I now do it for self reward really but it’s a way of my practising using my work day... I offer sessions each week for colleagues and it means I get to take that pause too! 8 years on I still need that and actually I’m finding lockdown hard as everyone is back home in my work space and so the
  11. Hi Gam Glad you checked out ok. Tinnitus when it comes on or ramps up is horrible and of course the more you notice it the more you notice it. It’s exhausting and we are fatigued enough. And there is the brain providing commentary ‘ what’s that’ ‘ what’s happening ‘ and of course the natural responses for the worry to creep up on us that something is wrong, that could it be another bleed, and then the fireworks really start going as this all spins together and can easily create the perfect anxiety storm. First thing to say is you are not alone o
  12. Hey Phil. no apology needed as we all know the fatigue fog and how heavy that can be. It is hard for others to understand really how this feels for youand the everyday hard and struggle and of course as time passes from your event people have an expectation that you are ‘better’ now...and of course in their eyes you are, back at work , able to function to an extent as before. Of course what they can’t see, know , is the toll that effort takes and actually the sacrifice of then other activities just to be able to allow you to work. Paying the bills is al
  13. Vincent, these strange times we find ourselves in have no doubt complicated what is already a head scratching, somewhat mysterious process of decision making at DVLA. the missed opportunity to take tuition was maybe a factor but the fact your assessor felt with tuition you could be reassessed May be the avenue to follow up here , that and speak / write to your Neuro consultant and ask for a specialist ophthalmic consultation maybe as their assessment may bear weight? things beyond our control are hard to accept but you let no one down, it was how it played out on the da
  14. Hey there Seleh, So my simple and quick answer to head and neck pain is yes, but there is no exact ‘normal’ . The blood takes a good while to fully disperse from a bleed and that tracks down spinal column and of course you also have a Shunt I think you mentioned which means you have surgery scarring and healing to contend with as well. Main thing is when faced with pain is to make sure you are properly taking any prescribed medication and then make sure it’s not escalating,so if symptoms are getting worse then do something, seek help, but if there is constant then it’
  15. Brenda, I am so sorry that your husband has had another stroke and you are both apart at this time. I imagine seeing him was a relief in one way but hard as well with the enforced restrictions making visiting difficulty but yes I hope he will Be able to come closer to you and home and get some rehab help. i hope he is receiving good care and was able to talk to you but one day at a time is probably very sensible. be kind to yourself and do ask family or friends for help or just to talk if you need support. That’s ok. And if you are worried or just want to v
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