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Daffodil last won the day on October 17

Daffodil had the most liked content!

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About Daffodil

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  • Biography
    Mum of two daughters, married living in leafy buckinghamshire. I had a Grade 4 SAH and presented with acute hydrocephalus in March 2012 when I was 39 but the bleed was was successfully coiled ( just a teeny neck left) and a drain fitted to balance fluids. I spent a long 7 weeks in hospital before discharge with a fair stint in HDU . Unfortunately my hydrocephalus reoccurred post the SAH and I was readmitted with flashing blues and ended up spending another 4 weeks eating the hospital food and having an adjustable shunt placed in July 2012.

    Now nearly four years on and life is more steady for me ,I'm back working part time for a large consulting firm in HR strategy, my neuro folk check my coiled and the second uncoiled anni yearly and despite there having been lots of bumps in the road with some grey days ( excuse the pun) throughout it all this forum has been a very helpful and reassuring place to come for help.

    I'm mostly enjoying some better days now and am now privileged to be a moderator. I also started blogging whilst in hospital having my shunt placed and still blog occasionally about my experience .
    If you want to read my more Personal account of my SAH recovery you can find it at http://popgoestifty.blogspot.co.uk/
  • Location
    Bucks, UK
  • Interests
    Swimming and baking
  • Occupation
    HR Consultant
  • SAH/Stroke Date

Recent Profile Visitors

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  1. Those less sad day so are the ones I celebrate the most. Things seem sharper and more colourful on those days, youve been such such a great advocate on here Chris. Keep on running x
  2. Bev i think you are doing amazingly. It’s hard the letting go of who we recognised ourselves as and the anchors of jobs, purpose and all the other markers which we built our life navigations around. Those fall away and then it’s an adjustment of what next, what’s possible in today, in tomorrow and celebrate the good and small things amongst that. so a few things that help, still help me. 1. Mindfulness. I practiced before and I practice now but harder but with more gentleness. So I’m not rigid in my practice and can find mindfulness in many things I do, it helps me stay pre
  3. Hey Bev what a time you are having with this and I feel your pain as this is a hard time, I recall it too well. We cant give medical advice as you know but what has served me well is if something doesn’t let up or Is getting worse then go get checked out or at the least call your Neuro Team. i had a lot of piping discomfort early on after my VP shunt was placed , they put it to the pipe work settling down , I also had a lot of nerve pain under my shoulder and under rib cage which took my breath away, heat definitely helped with some relief for that as did baths wi
  4. Hugs and healing vibes. Let us know what the team meeting outcome is xx
  5. I have friends who just think I’m boring because I don’t drink but also I think having me around scares them, makes them think how fragile life is. i don’t worry, they were decent friends and we had good times but understand they want the old version of me and I can’t bring that, so I just let them drift and new friends appear when you least expect it
  6. Macca hope the anniversary was special. You always bring words to situations that offer realism, hope and comfort and I know you continue to look forward to the possible of what’s in each day so I am sure it was a lovely day. Thank you for your friendship and help on BTG. You are a wise warrior indeed. X
  7. Hi Claudette, thanks for coming back to site and sharing how you are doing and wow what great news on the new study and seeking a new profession. I always think the anniversary posts are often where people first visit and read after they come to site. It’s that hope of things getting better, that there Is still life to be had post SAH, fulfilled, interesting and always progress. Yours a great example x
  8. Jess. Happy anniversary and have a great day at work. You have inspired so many people in the time since especially those I know who had concerns about having kids post SAH. So a big hurrah and well done for all you have weathered. Onwards x
  9. Welcome DD . Glad to hear you are doing well in your recovery and also that you are journalling how you have felt at times. That can be very helpful indeed. Sounds like you got fast help and be sure to post if you have questions. MK is my local hospital and I have been there a few times for Shunt investigations although I remain an outpatient at Queens in London but have found the local team for the most part very responsive and they get better each time. Go steady Daff
  10. Ann. Bless you, what a time you have had. It’s a no guarantee thing any of our fixes I guess and if you need a stent in future then I'm sure you will face that with the same courage as you have faced this set of circumstances Go steady and pace yourself. Recovery with young children is challenging but they can understand how they can help you and will Be more empathetic as a result of their life experiences. Don’t push a return to rush but enjoy the enforced world quieter pace, find time and way to be in nature and just go steady Take care Daff
  11. I found early on the best way to explain was to simply explain I now need to give my brain some time out and space to heal carefully and that means being quieter than I was before, avoiding over stimulation and ask for their Help and consideration. Say to people you are going to need to take regular breaks , don’t worry about giving yourself timeouts essentially, and to be honest cut yourself a break of whatever anyone else thinks. Who cares. You are here and just celebrate that and yes, be kind to yourself. The shock of this event, forced upon on takes a long while to
  12. Fatigue Is so different to anything , it’s hard to explain unless you know it as we all do. It can creep up on you, then bang you find yourself losing words,balance, cognitive function, appetite , the list is long and inglorious. It’s hard for families to witness and they can often just want it to go away after time passes. ‘You’re better now right?’ ‘ you’re back at work why do you need to rest so much’ or the one that used to kill me each time , ‘ why are you always too tired to play?’ I can only say educate the entire family. Let them know this rest, this complete lock away fr
  13. Majella, agree with all that has been said. Sah is a fine tutor of patience as go too fast or push too hard and your brain will let you know the signals and it’s time to reign in, steady yourself and rest. It means you have over stimulated the healing nerv3 Centre that controls everything, that takes a bit of getting used to. try to see it as an opportunity to be curious about what is this new possible, what can you do today you couldn’t yesterday. Celebrate every small success. Know some things out of reach today may return but only at the pace that’s possible, not the pace you mi
  14. Rajdeep, welcome and I am sorry for your trauma but also happy you got treatment whilst visiting your parents but can understand it has been difficult , but your family must have been so relieved that you were at least able to get the help you so desperately needed and I hope having your family around you is comfort even though travel home to Australia is not yet possible for you. take time to be gentle with yourself, no stress if you can, let others help you , eat well and allow time to rest your brain , if you can meditate or have quiet space that will help you rest your hu
  15. Lynne , agree I would speak to GP and ask them to refer as well but definitely speak to the consultant in June i think we all are wary to be in hospital inthese times but equally I think if the procedure was deemed to require surgery and now things are not improving but actually new symptoms it’s time to have the conversation. Stent diversion is less invasive people have reported than being clipped, so through the groin as per coiling I think but I’ve not had that experience of a stent. Others may be able to reply on that. Good Luck, keep us posted x
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