Eruditedk

Thank you for your replies and kind words.. Like you said also Claire I was, and I hate the phrase as it sounds conceited but it is based on 49yrs of life....very high functioning both mentally and physically...I thought I was Peter Pan who never aged past 15.. played tennis at a high level could do 16 + hour days of hard physical work long after my younger staff had fallen away... survived on 3-4 hours sleep and for fun trade cryptocurrencies and forex balancing exchange rates in my head as I enjoyed mental gymnastics.. I am finding the new me to be a shadow of my former self and I am frustrated, bored and quite lost... I can't face physical tasks nor the mental games I did before which then brings my mood down.. All I want to do is rebuild and out up a greenhouse something I woukd have tackled in a day yet it has mocked me for 3 weeks from the garden... I have never been a believer in therapy but am considering some kind of help which is why I hope this group of far more experienced SAH survivors is a great step forward... With the rubbish weather a lazy weekend ahead which I am actually frightened of, watching the clock slowly creep by... Again thank you for your advice so far I will go and annoy my cat and fiancé for a while:)

Hi thank you for your replies and kind words it's more stressful for someone who thinks like I do to have a No cause SAH as I need answers to process things.... I am also finding the after care support less than required, though as i have said the urgent care treatment was out of this world... I will keep reading the forums and hope my mood stops being as changeable as the UK weather.. Have a lovely weekend Daniel x

Good morning, I hope everyone is feeling well, its sunny outside in the UK for a change, we are all happy to be alive... Genuine question in need of explanation please.. What are Post Stroke Fatigue or the actual Post stroke recovery pains and what could be something else that needs investigating I suffered my SAH at the end of January, I was told I would suffer lower back pain as the blood dispersed but never did... I am vastly weaker physically than I was for sure and have the energy levels of a 300 year old which has presented in my evenings being uncomfortable rather than painful after a day of doing very little.. Then a month ago I had to move house and the old me kicked in and my fiancé and I did the move ourselves, packing renting and driving vans unpacking the whole thing and although I was tired we got through it.. Then trying to settle I decided 3 weeks ago to buy a greenhouse on ebay, it was an incredible deal but 2 hour drive to dismantle it so I booked a van and off we went at 7am A strenuous 14 hour day plus 4 hours driving and a greenhouse in peices is in our new garden Since then, I feel like I went 12 rounds with Mike Tyson... I hurt everywhere from my toes to my nose.. aches, pains sore and it will not go away... it has lessened a bit in 3 weeks but I am still feeling quite broken and don't know what to do with myself... I had always been very physically fit and strong with incredible recovery powers... Is this Post stroke fatigue..?? Did I just break all the rules and advice I am reading on this forum of being good to myself... Is this the way my body will behave if I push too hard.. for the first time in my life I feel my age and its really depressing me My doctor admitted she knows very little about SAH and the recovery process, she has called me in for blood tests on Monday so see if I have infections or viral markers.. I have increased my fluid intake and have done next to nothing in 3 weeks, the greenhouse is still in pieces in the garden like it's mocking me for being weak Should every part of me hurt after 3 weeks.. apart from not having major headaches I feel worse than when I left hospital 3 months ago... Any advice or thoughts on what I have done to myself or what help I should be seeking please let me know... I am desperate to do things without being busy or being able to self medicate with "herb" I am driving myself and everyone around me nuts.. The one positive if it is a positive is I stopped smoking herb after 30 years of heavy use in a heartbeat... the day my SAH happened was it... so I do wonder if I am suffering other kinds of withdrawal... All ideas and opinions welcome, as said at the beginning the Sun has come out and I want to go out and play, not just sit around like a lump complaining of my aches and pains, that is not who I was or who I want to be... If its sunny where you are I hope you can enjoy your day and the weekend coming.. D x

Hello BTG forum I have just found this group and am posting for the first time so please forgive any fopars... If this introduction is too long winded I am sorry, I am having a very difficult time coming to terms with what has happened and am struggling to find any useful feedback from my doctor... I don't want to burden my family with my worries and found this group and read some threads and hope maybe I have found somewhere and a group that will understand what I am going through and be able to offer me meaningful guidance for this journey.. As an introduction I am a very lucky survivor of a no cause SAH which happened on the 23rd Jan 2021... 4 days before my 49th birthday.. My life prior to the SAH had been a wild adventure, numerous businesses and a rewarding career, 19 years overseas in the Gulf and Asia, some extraordinary experiences, several scrapes and situations you could not make up as stories, and I truly felt like I was Batman...invincible... Wow was this SAH a rude awakening and why I am now truly lost.. My SAH story.. I was sitting at my desk at around lunchtime trading cryptocurrencies and forex which I used to do daily, very relaxed smoking "herb" my chosen vice when a sudden onset "thunderclap" headache arrived... Unusually for me I knew something was not right as said having lead varied life and being through many scrapes my "gut" told me this was not something to ignore or self medicate for.. so I took myself to lie down, pain killers didn't work and after a couple of hours I called the NHS line to get advice.. I ended up having to take a taxi mid afternoon, alone to Southport Urgent Care hospital where they conducted CAT scans, chest XRays, bloods etc. and told me they believed i had had a brain bleed... Luckily for me I was very lucid, I was in fact still trading online on my phone which the doctors thought was unusual but I was really just trying to distract myself and prove to myself my brain was working.. Due to COVID I went to hospital alone, my fiancé is from overseas and didn't understand what was happening and was alone at our home, my 78 yr old mother was alone in the midlands and my sister alone in London...I had to make them all aware what was going on which was a decision I struggled to make to be honest, not fully understanding what I was going through and not wanting to cause my family stress They decided to send my in an emergency ambulance to The Walton Specialist Neuro Centre in Liverpool.... the nurses in Southport and ambulance staff were incredible and kind and started to try to explain to me the severity of what was happening ... All I can say about the care I received from the NHS is that it was incredible, many of the nurses and doctors are indelibly written into my memory... A 2 week stay at the Walton Centre, CAT scans with dye... 2 DSA procedures, not able to have MRI as apparently I have metal in my eyes and for someone like me, who understands through facts and data, the most frightening and stressful diagnosis... No cause SAH.... So, you nearly die, are incredibly lucky you are not physically or mentally impared, after 2 very invasive DSA procedures they have no idea what happened or why... is it just me that finds this more difficult to deal with than something that could be pin pointed as the cause... A separate "incidental" aneurism in my brain that they at this time do not want to treat.. So 3 months on having had to find a new house to rent as our landlord had sold where we were, the stress and physical exertion of the move and my own stupidity taking on too much I am now in need of advice and support ... I am willing to share my experiences and happy to be an active member of this group and truly hope as I learn and progress I can pass some insights to others in need.. However, at this time it is I who is in need, maybe a delayed reaction or realisation that I am not who I was before it happened I feel quite lost and alone in how to deal with the cards I have been dealt.. So I thank anyone who has managed to wade through my introduction and thank in advance anyone who provides advice either directly to myself or to others that I find reading through the forum posts.. I am happy to be here, and look forward to learning and participating where I can Thank you all again I am sure I will ask many questions moving forward... Best wishes to all... Daniel..