Desy

Might just get that scan now while I'm waiting in casualty lol Only joking, went to the doctors today and she sent me packing of to casualty for a ct scan. Have been getting big jerks, milclonic jerks for about a month now and it's a nuisance just, but last night while lying I. Bed around 4:30am I took what she thinks is 3 epileptic fits (break dancing to you and me they were pretty bad so she wants me checked out ASAP which in nhs terms is about 8hours god bless them lol I got the big E maybe just maybe Just another we set back we will soon see Tis all a bit boring seriously honestly Will stand up tall and kick it In the goo.... Does it know who I am Why I'm the miraculous man No stroke no blood no sah Twisted muscles, pain and when the confusion reigns Just This big mess Ive been in Ill defeat it, declare victory, hold my hands aloft You can not stop me another victory you'll see Sorry just bored here. Ps them fancy blood moniter machines can't take my bp as my heart is dancing, old school finger on the pulse stylee lol

Cheers guys, should be able to drive home and pick her up for her scan then, and listen to her yakking (jokingly lol) "At least I've an excuse, AGE whats yours" lol

Hi Diane I also tell my self many times a day "wow I'm alive" and I feel so good knowing that while I have a few physical side effects my mental state is 101 percent due to the fact I am alive. Keep telling yourself that and when your physical conditions improve your mentality and mood will be great. Good luck.

Hi guys, need to pick your brains lol Got my 6 month check up which I was told by the doctor would be an mri angiogram to check coils are doing there job. Got letter yesterday which said I had to go for an mri, no mention of the angiogram side it of, sorry it said on small print on a different page that if required they will inject dye through my arm. Would this be normal nhs practice to just say "MRI" when it will be an angiogram have any of you guys experienced this. And the next bit is, the reason that I want to know is my mum has an appoiment, wait for it, on the same day, wait for it, in the same hospital, wait for it, in the same department, wait for it, for the same scan, not yet for the same illness, ok ok I'm milking it, yes she has aneurysms, they are micro ones behind the right eye found by an optician. She has been told that they are not dangerous but they need to check the rest of her out to make sure thats all there is and I would like to drive her to the hospital but my appointment is two hours earlier and I'm thinking a scan is slightly different from the angiogram scan and I might not be able to take her. And no I'm not making it up lol thanks in advance!!!

Went great oh no actually it didn't go great as it didn't happen, yet lol I see that many doctors now that I sometimes think they are confused let alone me, but the jest of it is that the physio does the dry needling but as I'm being transferred to the spasticity clinic because the physio can do no more they think it will be better if I get it done there. Spoke to the physio about it and he says its similar to acupuncture only the needles are longer and go right into the muscle pressure points to try and relive some of the tension in them, and that its not sore and most people find it relaxing as the muscles release a bit. It apparently has mixed results and will probably not be much use to me now as my toes are rigid meaning they have welded in a certain position and now won't move, but the surgery is so invasive with such a long recovery time and is not guaranteed to work that they will try anything first. At the minute my two small toes are clawed and rigid, the next two are hammered with slight flex and the big toe is lifting up pulling sidewards into the others which really puts a lot of pressure on the ball of the foot which gets quite raw, the foot muscles are so tight that my leg muscles are going spastic which makes me walk like a clown hehehe. All in all can be quite sore and on a bad day my foot and ankle swells up so much I can't wear my shoe (get some strange looks walking around in your slippers lol) and the whole foot gets so tense/tight that it feels like a sledgehammer that could knock down walls.

Hello sir. Don't know if it will be any help to you but can only tell you my story on food and my SAH While in hospital I lost two and a half stone in less than two weeks and was very gaunt looking, now bearing in mind I'm 5 foot 9 inches and a healthy fourteen and a half stone (I've a big frame due to football and work lol) but dropped down to twelve stone so quick, I looked Ill, I know I was ill but looking it is slightly different I think. I was constantly told to eat, that I need to build my strength back up and slowly I started eating again and that's when I noticed my taste buds had either multiplied or became hyper sensitive but my god did everything taste so good, so good in fact that I would tell my partner to tell me that I'm eating too much because it just tasted so good I did not want to stop eating, certain things were worse, potato crisps and a certain brand of wine gums literally made me drool they tasted so good, to name a few. I'm now 15 stone and need to watch what I eat but im still slightly over the weight I'm comfortable with, I'm only playing football once a week and not working so hard so really need to keep tabs on it or I will expand rapidly. Don't know how mobile your wife is but you could consider water aerobics as its good at supporting weight and taking pressure of joints, or maybe a short walk with a balance aid, I'm sure your wife's physio would recommend better exercises. Try different foods with your wife more healthy ones, ones that are maybe not a stable diet for most folk maybe instead of potato crisps maybe thinly sliced root veg done in the oven to crisp them up served with a dip, maybe a chilli one or sour cream big on flavour but not cals. to put a bit of flavour in an otherwise boring food. In terms of dinners try cutting down on portion sizes and have a snack later on like little but often so you feel as if you're eating a lot when really your not. One thing I have done is ditched the sweet snacks like chocolate and buns and replaced them with savoury snacks, still not the healthiest but better than the sweets, I think lol Even better why don't I take on some of my own advice and lose a bit lol Sorry not much help but best I could do, good luck

Hello guys. Just wondering if any of you folk have had dry needling done. Will be getting it in a weeks time for my claw/hammer toes brought on after footdrop, as the physio and podiatrist recommend it and if it fails its surgery. Four piggys to brake, steel pins inserted and big piggy to be realigned, so hoping it works but have my doubts after all the physios and orthodontics I've tried lol

Today I done the same thing I have been doing from my SAH "lived" and loved doing it, and all with a smile, a few tears, some laughs and lots of songs. My foot was sore today but choose to ignore it, plus learning to stand on one foot helps lol Went to work, knocked my pan in to finish early, then got the family into the car and just drove, ended up doing 76 mile around lough neagh, the fields beautiful, the sky amazing, the water sparkling, the smells lovely (sometimes lol) doing it with my family priceless Great to hear your stories and how we are all trying to be positive, remember its not how long you live for, it's what you live for!

Well guys, didn't really think it was high blood pressure as I've never had it before or after SAH, at least that I know off but believe they were abnormal looking so bad that my mate panicked and offered to drive me home as he thought something really bad was wrong. Well gone now and on the other hand it will be handy for Halloween, I'll just play a game of footie then paint my face green and hey presto I'm a big scary green bulging hulk Thanks!

Hello guys, had a good hard game of football today, indoor 5 a side and with the weather I would say it would have been maybe 30 degrees in the hall, thing is after my shower I went to get into the car when I noticed the veins in the side of my head were bulging and I mean really sticking out, all around both temples and I mean in a weird looking way. I called one of the other boys over and he looked at it and was worried due to my history, reassured him I was fine which I was, felt really good especially after a good workout and only had the usual tingly sensation and a few panic attacks that morning which is pretty normal for me, if I had not seen them I would not have know they were sticking out. Only explanation I have might be high blood pressure due to the workout which made the veins bulge so much and as I need to keep an eye on my blood pressure I was wondering if there was any specific symptoms to it or are we all different, I've never had blood pressure issues before so don't have a clue so any advice would be great. I'm desy the football man, I'm desy the football man, I'm bulging n throbbing My veins are a swelling I'm desy the football man Is me blood pressure high Is me head gonne go bang Is me worryin bout nothing And just need some chillin Think chasing young bucks Who are much faster and fitter Is doin me no good Instead of getting me fitter But I just can't stop playing Never learn me lesson Cuz I'm desy the football man Sorry but me loves Popeye, 'twas me child hood lol

Cheezo please don't take it, you have to stand up and be counted or else you will be just another number in the nhs I know this as my partner and most of my friends work for the nhs and as good as they are you can and will get lost in the system. I can remember when I was in and they forgot to feed me and give me my meds for the day, I had lost three stone in weight, could not get out of bed and refused to use the buzzer and had a pumping headache, my other half came in at visiting time and when I told her she went out and went through them, she was not cheeky or disrespectful but just made sure I was getting the care I needed, she always said that when you get put in a side ward you tend to be forgot about especially if you do not speak up like me. After my second stint in I was due to be released but had to wait on the neuro doctor speaking to me, the registrar called this meeting the reassurance meeting, well four hours later was told he could not make it and I was being let home, well there was a few things I wanted answers to but hey ho off ya go lol oh and got most of the answers, off this forum. I can tell by your post that you are upset about this which will do nothing to aid your recovery so please get on the phone and demand that someone speaks to you at the least and puts your mind at ease, like I say my other half has 13 years in the nhs and knows how it works, which is, if you don't get on there case they won't be to quick to get on yours.

Yeah David I had one just the day but usually only happens two to three times a week, after advice form folk on this forum I have learned to read the warning signs and try to head it off. Today around 3ish I was checking something out online, reading a letter while referenceing it on line and at the same time my three year old was talking to me when my brain just ceased, couldn't think, i got really frustrated, took a panic attack and was ready to snap so had to get off side before I did. Took myself off to the bedroom and just sat down for ten minutes which is all I need to come round, I have told my partner to just stay away which I know is hard as she gets really worried but she now does keep her distancewhich helps. Can't tell you if it gets easier or does go away, only advice I can say is to try and avoid information overload, try to read the signs and act on them, explain to those around you that if you just walk away for no apparnt reason it's because your brain is not functioning and if left alone for a short space of time you might be fine, works for me and can only hope it gets easier for you. Good luck.

Mary I thought it was my CDs to, singing along to them lol sorry couldn't resist that hehehe

Mary it's just a strange one, mind it's probably nothing to do with sah bt never happened before it and seem to get it at least once or twice in a fortnight from it, never lasts more than a day and its gone now not even a dry throat or hoarse throat, completey gone as quick as it came. Thought about singing as I can be quite loud when it's noisy but only sang need my breath yesterday, my only meds is an asprain everyday, can't see it being that, I'm off the smokes three months, possible connection. Next time it flares up will just do a walk in appointment in the doctors. It's not that bad, but just want to know what's causing it.

Hi guys, from my sah I've been taking random sore throats, and just within the last half hour it's back. The first time it happend I put it down to the fact that maybe when they removed the breathing tube it may have damaged the skin, maybe it stuck to the skin as my mouth and throat would have been very dry, but it cleared up in less than a day with some over the counter meds. A few weeks later it happened again but the strange thing was it moved, it was sore on the right hand side for hours then just stopped and straight away and the other side hurt but then cleared up on its own with in a few hours, and now its back It never lasts more than a day and is not really sore until I swallow then its really painful, and its surprising how many times you swallow without eating or drinking. As I say, very random and very annoying.

Yup it is a miracle gel, well at least when your 3 year old daughter washes down your foot with a baby wipe then gently rubs in the arnica

I have a very similar sound, mines is more like the noise made while sucking the last bit of juice out of a cup through a straw, evry time my head moves it makes the noise and it started a good few weeks after I was discharged from hospital. It was that noise the headaches, which I had not had in a while and the feeling of fluid in the head that got me admitted back in. Three tests, two doctors and a hell of a lot of wasted money they came told me don't know what is causing it and sent me home. Absolutey baffled by this I searched the Internet and after all of about ten minutes I found the answer "survivors of brain injurys often have a feeling of fluid in their head and also feel like they can hear the fluid moving" and where was this little snip it of information, on the NHS website lol Actually forget the causes and prognosis so must go look it up again. So we can click and slurp togather, if not a wee drop of wd40 in the earhole should do you. Lol

Cheers folks, say may be right seems to be good stuff and if widely used by professional athletes for muscle pain and inflammation according to a few websites, well hey surly cheaper than buying 5 new pairs of shoes lol Thanks.

Hello folks just wondering if anyone can convince of the wonders of arnica gel lol,my partner talks about like it a miracle gel, my foot gets badly swollen and she keeps telling me to use it either to soak my feet in it or rub it in. Well I'm a just not convinced so just wondering what you guys think.

Iola don't mention the heart tis broke too hehehe waiting on an appointment from the mater hospital for an mri as I have an erratic heartbeat and suffer from palpitations lol Strangely what annoys me is I have been waiting on this scan for about 6 months and yet had one about 6 weeks ago for my head think that's why the nhs has no money, i have no problem waiting on it but surly if there was a bit more communication then the one scan would do both checks and a lot of money would have been saved.

Yup, I get them to, just like a very low frequency noise so low you actually feel it as amexdm says like an eletrical current, it happens to me just around the top of the jaw right next to the ear canal on the opposite side of my SAH and does appear worse in bed when just falling asleep but put this down to a silent room and me at my most relaxed state, like yourselves it always seems to happen while relaxed. Would love to know what causes it and what it is but it really doesn't bother me, like all the other little weird feelings I like the feeling lol Also get titinus from my SAH which never happend before.

Oh I'm so glad to hear that as felt very selfish saying it as I know it's so hard for others.

Win i have complety giving up on tv all i do is sit on you tube listening to music and all music that i can relate to mostly older stuff and tamara (my partner) just keeps saying that im trying to relive the past but im not im just rembering the good times and most of them involved music. Today 60 yards tomorrow 61, and if the third day is hard and is 59 then say to yourself that the fourth will be 62 and if it ain't its not a set back its a pause just a rest and the next day you continue going forward one step after another and if days become weeks even months that's ok as the faster you go the less you see around you and we all get there in the end, defiantly think the tortoise enjoyed life more than the rabbit. Oh and win when you get there dander on down the shops and get me some sweeties lol Hey mary nothing better than a good oul fit when your with your mates and before you know we are all at it but take tonight, went to a remembrance mass tonight been going for 14years to do a reading and the wee priest knows me as he drinks in my local and he likes a joke well dam I had to fight hard to hold that fit in and you might know this the harder you try the harder it is lol but sure tenmins later I was in tears typical hehe Sarah I do feel bad grateful but bad think its just so wrong how I feel compared to most folk with a brain injury, I had a chat with a guy the other day first I seen it from it happened and he was all apologetic and sympathising with me and what I went through well you should have seen his face when I said it was the best thing to ever happen to me lol Never felt so alive feel like I can see every blade of grass and every rain drop fall I'm alive and ready to start living, my confidence has soared I'm just so happy, I do have my moments like that feeling of doom some mornings when I wake up usually, just feels like the world is about to end but it don't last long, also get a fair bit of nausea and my back aches four weeks after a spinal tap, I also get random sharp pains in my head and my foot hurts like hell but it not compared to most people's pains and absolutey no fatigue/tiredness which I think I would struggle with,but for the out look on life and my general happiness it's a very small price. Like a heavy weight fighter I just seemed to fight and slug my way through life until one day I got hit with a sucker punch and I was down and nearly out but I got to my feet recovered and decided that living life was much easier than battling through it. Ah iola your birthday is on my hangover day well at least one of us enjoys the 7th Sorry for the rant but seems that when I start I just can't stop maybe penny can teach me as she seems like a lady with few words lol Bye d bye

Hi guys and thanks for the comments as its so good to hear from people who understand what we are going through especially the mental side of things as pain, for all I get is easy to explain, people looking like gremlins not so easy will explain later lol One thing I should say is that I am useless with names was before my SAH and well safe to say worse now and I can't see the posts while I'm typing my own so don't know the names of the posts I'm replying to but as you read it I hope you know which comments relate to you sorry lol Opps lost already and don't even know what I'm replying to let alone who so out with the phone to log into BTG on it doh. Now I have names and posts lol but honestly I always was a bit for forgetful just a bit worse now hehe Iola my birthday was the sixth of April and spent in hospital but still had a party which I just about remember, funny I remember getting two cakes which brought a smile to the nurses faces lol Hey Mary win was the first name I memorised due to the fact that not only does she sing but also laughs well I take laughing fits and I mean bad sometimes they do get me down as the noise they make attracts every set of eyes and ears in 50m circumference and when it happens when talking to strangers especially doctors, think because they be soooo serious and I'm looking at them then it happens, first the wee muscles at the side of my mouth start contracting then I'm off lol, but as the doctor says as long as you get the good feeling of laughing then its fine as some people laugh but feel no emotion and that's when they said they will be concerned same with the tears as long as there is emotion attached which there is and all happy ones then its fine. Kempse you may be one of the few people that understands the football thing, football just made me so happy and I'm not even a serious player but from the minute I could think straight I was asking doctors and physios when I could play again, am really struggling with it at the minute due to my foot but just buckle down and get on with it, also feel its a massive part of my recovery and also general fitness. Cheezo not that I knew or had a choice but I'm so glad I did not have my head opened cant imagine how bad it would be but by reading a few of your posts you really seem to be doing well as there is a lot more recovery than them going in through the groin area, oh and love the hair cut well I do like the New Romantics lol sorryyyy. Hello Karen it's good to be hear sorry about the off topic stuff, my bad Ah ha the famous win well anybody who has "laughter heels us and singing" is famous in my eyes and yeah maybe someday we can have or own karaoke night in the green room . I can remember lying in hospital after my second stint in and lying there one night crying thinking there was nothing wrong with me and that it was all in my head as the symptoms came and went for hours at a time and that's when the doctor said that denial was another side affect but there is still days now that I feel as if it never happened and have to keep asking about it to reassure my self it did happen also feel as if it wasn't such a big deal basically went to sleep one day and woke up feeling fine bar a headache and a foot that would not move, keep repeating what two different doctors told me "it was like a car crash in your head" and "it was like a hand grenade going of in your head" to remind my self how lucky I was. Still have lots of other weird things to talk about but if this gets any longer it will need hard backed lol so will be back later. Be safe, desy

Hi I'm bonkers sorry Desy from belfast I'm 37 and think I've something in common with you folk, yes I survived went toe to toe with the reaper and kicked his butt! Well it all started on march the 28th, went to play football with my friends and all was fine, went to walk onto the pitch and remember saying to a team mate that I don't feel up to it, now I was feeling fine physically just something in my head (no pun intended lol) was telling me I was not up for it, sometimes you get that feeling before a game and it could be anything from a lazy day and just not wanting to bother with it to thinking you are not going to play well but physically felt fine, played away and all was well. 45 minutes into game I was hit very hard on the side of the head with the ball, played away but remember rubbing my head and thinking,hmm that's a bit sore for just getting hit with the ball but it was nothing like the headaches most folk on here have had well that was that collapsed like a house of cards. Ambulance was phoned and on its way, took about 5 minutes as you can see the hospital from the pitch, handy eh, while I was unconscious the contents if my stomach came up and I started to choke on it but my friend and team mate knew first aid and sorted me out by clearing the air ways and putting me in the recovery position, to you my friend I owe you big time. The first that anyone knew how serious it was came when a few of the boys asked the paramedics what they thought to which the reply came "lads find your self a church and start praying" so that was that of to the royal victoria hospital. The next two weeks I've no recollection of, 7 days in intensive care then spent 1 day in the hi dependency unit then another two weeks on the neuro ward from where I was transferred to the brain unit in musgrave park hospital where I spent another 4 days and all due to this wee bleed in my head lol. While at the royal a ct scan revealed that I had an extensive SAH in the right posterior communicating aneurysm and needed coiled but that they would have to wait until the blood disbursed, at this stage it was when my partner was told that I would probably not make it through the night, scary stuff but thankfully she's made of solid stuff,and she never gave up hope and I was duly coiled the next morning but they were not sure if they got enough coils in but must have as it has not leaked, I think lol. At some stage I had a stroke and lost all movement in my left side of which most came back and by the time I was awake and reasonably alert I had got back but still had a weakness in my leg and a dropped foot. Was released from hospital after physio and occu therapy and continued as an out patient for physio in musgrave park hospital for,the dropped foot which came back well but now my toes have went, two have hammered and two have clawed and it can be a bit painful but considering what I went through I feel extremely lucky that I have no other physical things that affect me barely even a headache no fatigue, quite the opposite I sleep a lot less and never feel tired. Was brought back in to hospital for three days two weeks after being freed sorry discharged lol had this weird sensation in my head like water, still have it and loads of tingly sensations and a few random shooting pains in my head, one ct, one mri and a spinal tap later they discovered that I had 5 mini strokes or lesions I think they also called it and that one was near a nerve that operates my arms and legs and one that was close to a nerve for sensations and that was maybe the cause, that was a few about three weeks ago now still get all tingly and head is still buzzing lol. One thing that makes me sad is when I read nearly all the posts I seem to be the only one with no side effects bar a few wonky toes, very slight memory problems and an electrified head, when I read about the fatigue and headaches that most seem to suffer makes feel sad lucky but sad and I just hope for you folk it gets better. Hmmm another side affect I have and it's weird but I love it is I can't stop singing lol morning noon and night I'm belting out everything from Neil diamond to will young to abba do get some strange looks but hey hoe it doesn't enjoy me I also I have some real weird vision problems like things looking funny and not real from people to buildings can all get very weird. I might be the first person on hear to say this but my SAH was the best thing to ever happen to me and I mean that with all my heart, I never been happier so happy in fact I was worried that with these extreme highs would be extreme lows but they never come not that I will let my guard down, just constantly buzzing, singing and talking my out look on life is so much better, a wonderful family who helped me so much even when once or twice my fuse was a bit short. Back working (self employed tiler, always good for advice and now back playing football twice a week, so hard with my toes but bite the tongue and ignore the pain, also strangely it's easier to run than walk with it but the swelling does be bad from ankle to toes. With so little side affects you may be wondering why I'm here, it's simple what little side effects I have I come on here to reassure my self that I'm not bonkers lol and that other people have the same problems, I've learned more on this site and can relate to you folk more than my own family when it comes to this thing we are going through, not easy to say that but it's true. I truly wish that we the survivors can move in the right direction with health and happiness and I will always spare a thought for those you did not make it may you RIP. Good luck Desy.