andyp

Hi all-I am really intersted to know how long you suffered from tiredness after your SAH-I had a good 6 months and it has never really gone totally. I still have to get to bed around 9pm and I am 2 years on...What about you?? I would like to know how long..what type of SAH you had (aneurism or not).your age..if you don't mind! And any other factors.. Thanks Andy P

Hello-I am also part of your 15%..I had an SAH 2 years ago..what is your spiritual group then and where in the world are you?? Andy P

Hi Andy-well from my view point I wanted to share as much as I could because it seems there is a lack of info out there that is readily available. I think sharing your experiences and concerns with kindred spirits is a therapy in itself! I think that it is important to be totally honest with everyone and offer encouragement-I find the support from others is fantastic. There is now input from across the globe which is wonderful-yet I feel part of a community of really nice folk whether it is fellow sufferers or their carers. I like the articles-thought provoking and inspirational and encouraging! Best wishes Andy ps Sorry we didn't get to chat the other night-it gets difficult when there are several in the room..but still fun!

Thanks Sami..I think that confirms it..I am a freak!!!!! No seriously thanks..I would be really interested to hear from any others..it is just so odd that it all happened around the SAH! Take care Andy P

I am interested to know if anyone else suffers from Geographic tongue (random patchy moving bare areas on the tongue-red and sore sometimes..or just large swirls that can be painful) It is a strange question but I noticed it after my SAH-I have recently discovered another person who had an SAH then got this too. I think it could be stress related..any info would be appreciated. thanks Andy P

Hi Jeanette-i am interested that your SAH was 5 years ago and you need 3hrs nap in the afternoon. The reason I ask is that I had one 2 years ago i had real bad tiredness that got a lot better after 9months then over the last 3 months I am getting tired early afternoon again. i just wondered if it can recur or if it is related to other stresses in my life. Any thoughts?? Andy P

Hi Barney..Mine was similar to yours...but it happened in Bed on a sunday terrific sudden pain and within 3 hrs I had lost my marbles..sick..etc...2 angios later /CT they said it was a genetic weakness.... Mine was nearly 2 years ago...I still have issues but we were very lucky not to need surgery.. Take care mate Andy P

Hi Melissa-If you are happy to send me your address I will send a copy of the Southampton booklet which will help-It is good for family and friends. A friend of mine often goes to South Korea to work there-don't worry I won't send him to deliver it! You can E-mail me at work on andrew.peryer@hants.gov.uk if you like. All the best Andy P

Hi to both-Yes I have struggled recently ..I think a combination of stress and physical problems. I have had 2 physio sessions which i think are helping the headaches but it is a question of eliminating things.A 3rd planned for Friday. Strangely something kicked off after a dental hygeinist hit a nerve on a tooth where I had major nerve problems last year..it all seemed to go downhill from there! Went to a funeral today which i have to say wasn't sad...the chap was a family friend..but having reached 94 and mostly had good health I thought he was very fortunate! Of course the immediate family feel a sense of loss and i am not negating that but when you have faced death in the face as it were and know of many who never got to 30 or 40 then it has a different perspective. I am keeping an eye on your posts and hope all goes well for you. I am also hoping David can update on the DVD??? Speak soon Take care Andy P xx

Hi you two-I have been struggling with very bad headaches-not sure why which is why i went to a physio a few days ago-I have been under a lot of stress for various reasons...my wife thought they could be tension type??The physio said it would be worse for a while..Phew..not half..yesterday was really bad!! I got in the sports injury place sat down next to a woman..."are you Andrew Peryer?" "I could be" "should I know you???" "I am Lyn, I worked with your mum 25 years ago" ..phew..she looked a lot older..hence i didn't recognise her!!..Small world! Anyway..to the physio.."I see you had an SAH...My husband died of brain damage in an RTA 6 years ago..he was 40" turns out my wife remembered him on ITU!!!! It really is a small world. I won't rabbit on..just hope things ease up a bit! I have another appointment on tuesday..but I need to eliminate what is going on. Best wishes to you both Andy P xx

Sami-I took a peak at this-it is very good..I noticed it mentions a self help group near Nottingham..have alook! Is this the one you are likely to go to? There was a contact there... All the best Andy P X

Lori-I am so sorry to hear of your sad and so sudden a loss. When the dearest person to you is apparently taken away without any reason it must be the absolute hardest thing in the world. I can speak with some experience in my family and my wife's of tragic loss. My dad died very quickly of leukaemia when he was 30 and I was 2 leaving mum with 2 young kids to look after. My wife's husband died very suddenly of meningitis he was 30 and left a young daughter-they switched off hie life support system as he was brain dead. My wife's twin brother committed suicide in a very violent way- he was 36. What were the reasons? I really don't know..Life seems so unfair at times doesn't it?..Why do bad things always apparently seem to happen to good people? All of us on this site know how brain injuries -particularly bleeds are very serious and over half of those who experience them just don't pull through. This is a very difficult time for you-my heart goes out to you...but time does help to heal such terrible loss and tragedy..It doesn't seem like that at the moment ..it is not until you look back on events that you sometimes see that you have moved on..you have got stronger..Yes it is still really hurting ..but I see those in my family who have eventually come through the other side. Have you got other friends at family around you? I do hope so..because their valuable support will help pull you through. Lori-my prayers are with you and whilst no-one can give you the reason that this terrible thing has happened-you will come through the other side. Big Hugs Andy P

OK-Tuesday at 1930 then..look forward to it! Mum appears ok at the mo! Yep-I could have got a lot of books for £60 a throw!!!!! Damn! Glad the booklet helped..yes it is important to help family and friends too!!!After all they are going through a difficult time with us! Karen-i had a low dose of Doselupin..but it depends on what sort of depression you have....Anyway you may feel better by then? By the way I recently had a call at work re a flooded shop-I had no shortage of volunteers to take out sand bags..it was a sex shop!!!! All the best you two definitely chat on tuesday..PS Karen I don't want the pathetic icon!!!! Andy P xx

Hi to both-I am getting a quick note from work..I did one to you yesterday and don't know what I pressed but i lost it all!!! I think it would be good to have a "chat" on this site sometime -all 3 of us! Anyone up for it any proposed day/time-7pm is always good but will leave to you to come back. The specialist nurses I referred to were those who ran the SAH support group at Southampton-I assumed that Nottingham was similar??the old boy who has lived with my mum died yesterday so things have been a bit all over the place-He was 94 mum is 70.. I know sami you feel that the nearth death bit is a bit taboo...but hey it is in the past now..you have a future...you have a second chance..well that is what it felt like to me. I never do like dwelling on death but we will have to face it eventually..for me though I found this whole thing challenged my spiritual side and at times I can see a greater purpose in life.... Anyway enough of that..i know it is really difficult..but you Sami are at such an early stage..and doing brill!! How were the 43 pages ??Helpful? Karen/Sami..I think we have all touched on the depression issue..we are all different ..I know you can't just magic up a feel good situation..but do promise me you will see your GP if you feel you can't cope? Re the Cognitive stuff -I had that counselling (£60/hr) got me back to work..but too soon!!!! I think at the time we want all back to normal asap...it is understandable but time is the greatest healer. Must go as I am off to a meeting in Netley..will get back to you tonight!! All the best Andy P xx

Sami-Go to the group.you will be fine and you will talk to like minded people!!! It sounds hard but it will take time to really face up to the reality of what has actually happened...anyway..you can't change it and it is in the past!! Try not to dwell on it..but if you feel real low persistently..see your GP. I remember now ..you mentioning the scar tissue-I was told that could be where I was feeling a weird pain. I still think you are trying to do a lot too soon!!!! Sorry if a I am getting on at you. I hope the booklet helped! I went to see someone for Cognitive Therapy...bloomin expensive..but it did get me back to work..too soon. I wonder if the specialist nurses can point you in the right direction. Like your photos by the way..I think it is great to know who we are chatting to! hANG ON IN THERE Andy P x

Sam-i am sure what you describe is not at all unusual-remember this is a huge shock to the system and you are possibly still only coming around to the reality of what actually happened to you!! I think it really took me months to appreciate it! Life hangs on but a thread at times and you and i (along with most SAH sufferers)have experienced that in a very personal way. I can't help but feel you are doing too much maybe-stick to getting rest as much as you need it and don't push yourself too hard. I remember getting very tearful at times but for me I stuck with it and didn't need anti deps...... until i had a problem a year later! I am no medical expert so I wouldn't like you to take all I say as Gospel..but if your feelings of depression get out of control please see your GP. Your self help group will be good..so try and get to that! Speak soon Andy P x

Karen-How are things-You were talking of antideps? Only you will know if that is really the time for that....But they can help. Do let me know! All the best Andy P x

Hi sami-just wondered if the wadge of stuff had arrived today? How many weeks are you Post SAH?? I Looking at your posts it seems like 5..if so i am absolutely amazed at your progress! I thought i did well to get back working at 12 weeks but you are well ahead of me. Youth does help though..i think a lot of older people were zonked out for months!!! Just don't overdo things though! Do you have a favourite form of exercise? I got myself swimming after about 4 weeks..very gradually!!! What is the business that you run then?? interested to know. I work for Hampshire County Council managing a Highways Maintenance Office ..And we are shorty about to start Winter Maintenance (posh way of saying salting the roads)..It still seems to early and hot for winter!! I bet you get snow and ice more where you are!!! Anyway all the best for now...Have a great meal Saturday ..and accentuate the positive !!! Best Wishes Andy P x

Alison has completed all her interviews and she says she will update all those who took part every 3 months. It is now in a state of transcribing from the many tapes that she has from the 27 interviews. Alison has written many books on some pretty heavy issues including suicide and a quick scan through Amazon will reveal a variety of titles. In our discussion 2 weeks ago Alison thought we may have stumbled on a possible title for the book on SAH recovery...I won't say what it is...but will be interested to know what transpires. Alison if you do get to read this please tell us a little more! I am going to ask Southampton where things have got to with the DVD as it has gone quiet for a few months.

Sami I am sure the support group will be of great help..you need to talk to as many people as you can who have had a similar experience! My daughter was 6 (8 now) and that is a real encouragement in itself to keep going. There will be times no doubt when you may feel really low..but there will be times when you have moved on too! Keep a daily diary and I believe that will help you chart your progress. Family and true friends are so important at this time too-their support will see you through. Above all as Karen says ..listen to your body..don't overdo it and don't be hard on yourself. You will come out of this stronger ..but it all takes time! Best wishes Andy P

Hi all-I remember feeling that I didn't want to be left alone-my confidence went out of the window and my wife says I became like a scared child. With time it does improve-confidence will return-I hated crowds and was so sensitive to noise for several weeks too. I think everyone has varying degrees of depression-some are on pills very early on ,some later and some not at all-Any of these are possible! Best wishes to all Andy P

Well Karen I am not sure what is worse being stuck in the toilet tube or staying at the hotel in the red light area of Bournemouth like poor Alison did! I say that I should listen to my body..but I am not always good at taking my own advice. I guess it still leaves a question mark for you and i am not sure what to advise you. Maybe it was just some freakish thing. Are you feeling any better now? less tired etc. Hope your daughter's party goes ok..tomorrow isn't it? Andy P