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Skippy

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Skippy last won the day on January 18 2023

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About Skippy

  • Birthday 15/04/1971

Profile Information

  • Gender
    Female
  • Location
    Nottingham
  • Interests
    Liverpool FC, MotoGP, Reading, Gardening

Converted

  • Biography
    Happily married to a wonderful man, have an amazing, beautiful 21 year old daughter and a gorgeous Springer Spaniel called Buddy
  • Location
    Nottingham
  • Interests
    Liverpool FC, MotoGP (Valentino Rossi), Music, Reading and Football (Liverpool)
  • Occupation
    Administration Officer
  • SAH/Stroke Date
    25/08/06 Right Posterior Com Artery

Recent Profile Visitors

2,689 profile views
  1. Hi Charza Totally sympathise with the jerking awake. Mine was caused by the meds I was put on for the pain. It might not be the same for you, but it's worth asking your GP - I was put on Tramadol and it didn't agree with me at all, so the GP took me off it. Don't stop meds prescribed by your GP without their say so, but definitely speak to them.
  2. Hi Charza I suffered from exactly the same and it was down to the medication I was prescribed for after care. For obvious reasons I can't state which one, but as soon as I stopped taking them, the jerks stopped too. Talk to your GP if you're taking pain meds and you think they might be having a side affect - they may be able to prescribe something different. 3 months is early in recovery so it may have nothing to do with meds etc, but definitely get it checked out.
  3. Congrats on you're anni-versary. Mine is 17 yrs now and yes, there are days when it feels like yesterday - but there are also days when I can almost forget it happened at all. Well done and cheers to the future xx
  4. Congratulations Loobie I remember when we all first joined - you weren't that long after me. I'd only just had my SAH but you were already years ahead and were a massive help. You've been through so much since but you've always fought and have continued to support anyone here who needs it. You're amazing xxx
  5. Hi Jim That's generally the problem with SAH and NASAH - GPs don't know enough to be able to help and we end up referred back to the specialists. There is also the issue of the the number of SAH / NASAH patients who are able to discuss the after effects to widen their knowledge either. You are definitely not alone - and for me realising that was also a revelation that I wasn't going mad and the ailments were real!!
  6. Hi Jim Please bear in mind that we are all different and so is our recovery - having said that, yes, the back pain was awful and was also told that it was the blood dissipating through the spinal column - the pain is due to the fact the blood shouldn't be where it is. I don't remember the being hot one minute and cold the next, but since my SAH (17 yrs ago) I've not been able to regulate my body temperature. I have to physically warm up or cool down - my body can't do it itself.
  7. Congrats Jess xx You've come so far and have been a fantastic help to all on here!! You're an inspiration for what determination can achieve xxx I can remember the Notts meet when your youngest was just a toddler!!! You're a star xx
  8. Jo, it was one of the hardest things for me too. Once I realised the "old" me was never coming back, I stopped fighting and accepted that this was it. It did get easier after that, and I can honestly say that I am 98% back. I work full time in a very busy school office and have multiple roles within. There is never a day when I'm twiddling my thumbs. Staying positive and good sense of humour help I'm nearly 17 years post SAH and it took a while to get where I am - though I still can't tolerate high impact exercise (I used to love running and step aerobics) as it's giving me a thumping headache for days after. Please do keep us updated, it's heartening to read of people's recovery journey and to know that we've been there with you and for you xx
  9. Hi Jo I can relate to everything you've said above. A good thing to say to those who don't understand?? "I look well from afar, but I am far from well" My friends stopped inviting me out for a while purely because they either didn't know what to say or they were worried that they were putting me under pressure to come out by asking. If you're particularly closer to one friend, message them to ask them to let you know next time you're all going out, but not to mention it to others in case you're not up to it on the day. That way you can let that one person know at the last minute if you change your mind, rather than having to let loads of people know. As for the emotions - I used to cry at the drop of hat. I've always expressed how I feel and could control the tears, but after - nope - I was a wreck. The best thing I did was speak to my GP and be referred for counselling. I was diagnosed with PTSD and had a few sessions with a therapist! Worked wonders in all areas of my mental health. Don't get me wrong, there are days now when I'm over emotional and days when nothing bothers me - but I think that's more to do with the menopause than the SAH. I declined the meds in favour of trying the therapy and it worked for me - but there is no stigma in taking meds for anxiety. If you have a headache, you take a pain killer - no difference for me - if it helps you live your life to the best fulfilment you can, and it works for you, then go for it. Take care lovely xx
  10. Hi there - you definitely need to take regular breaks. Its the fact that you're concentrating whilst looking at the screen that causes the headaches - I'm on mine from 8am to 4pm every day and I take a few minutes every half an hour just to get away from the computer. Might be worth looking into an anti-glare screen to sit in front of the monitor too.
  11. Hi there I used to do intense cardio 3 times a week - never into lifting weights though. I'm nearly 17 years post SAH and I still cannot tolerate high intensity cardio - it makes my head pound too much - but I have two coiled aneurysms. For about 18 months after I could feel a pull up into my neck and head when I lifted a heavy shopping bag too. I'd speak to your GP to see what they suggest - but don't rush straight in - might be better to build gradually from light weights after the 6 months, but get the OK from your GP or Specialist.
  12. Hi Gareth I agree with the others - don't rush back to work. Personally I think even 15th May is too soon. Think of your brain haem like a broken leg - it needs to rest as much as possible - and bearing in mind it can't ever completely rest, it's not like putting your leg up whilst the bone heals. If you really have to return to work so quickly, see if you can work from home - at least then you can rest when you need to - and your body will definitely tell you!! Plenty of water to help the brain heal too! Please don't rush back too quickly - there is a saying that fits us perfectly "I look well from afar, but I am far from well"
  13. Hi there So sorry to hear about your mum. Unfortunately there is nothing "normal" when recovering from an SAH - everyone has, and will, experience something different. The lack of response could be due to the infection, but you'd be better speaking to her specialist / surgeon. Have they put her on anti-biotics for the infection?? Write down all the questions you want to ask her care team and write down the answers they give you. We can't offer medical advice as we're not qualified to do so - all we can offer is experience and comfort. I have everything crossed that your mum makes a full and speedy recovery x
  14. Hi Dave So glad to hear that things are improving for you. 16 years on and I can do everything I did before, apart from high intensity workouts. I used to do step aerobics three times a week, but when I've tried since, my head pounds and I get the most horrendous headache. Not been able to return to running either; something I only did a couple of times a week and not for great distances, so well done you. Take it steady and build it up. Really pleased for you.
  15. Hi Dee Mine was very emotional too - plagued by irrational thoughts that it was going to happen again on that day. We ended up turning the day into a "second birthday" for years to help me get past the anxiety it always caused. Sixteen years later I hardly think about it now - enjoy and celebrate xx
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