Skippy

A fantastic legacy in honour of a fantastic man who has left a huge hole in so many lives xxx

Hey there Congratulations on your 1st anni-versary My first was the hardest to deal with and, like you, I probably felt worse that day than I had in a long time. Possibly the anxiety and irrational thought that it was going to happen again on that same day didn't help. I totally get the feeling of wanting the inside of your head massaging and its the perfect way to describe how it feels - I still get that feeling occasionally - especially after a busy day at work. Thanks for popping in and telling us how you're getting on and I hope your recovery continues

Loobie Lou WOW!! Congratulations sweetheart. It's a privilege to know you and watch your journey as you have, literally, gone over, under or around to reach your goal. You've done amazingly well and have come so very far, especially with all the hurdles you have faced along the way. When I first joined BTG I was so very frightened and had not idea what had happened to me or what it meant. You joined shortly after and it was seeing your determination and bravery that spurred me on too. You're an amazing woman, with a heart of gold and we're lucky to have you xxx

Hi JH I believe when they say "without cause" it means the absence of an aneurysm. Any type of SAH is technically classed as a stroke as its a disturbance of the blood flow to the brain. My SAH was caused by a ruptured aneurysm and I was paralysed down the right hand side of my body until after surgery. 14 years on it is still weak compared to my left side. I know that all these tests will be exhausting for your mum and you'll be feeling very protective of her and not wanting her to be poked, prodded and scanned but they wouldn't be doing anything is if it wasn't nec

Hi JH A very bizarre sequence indeed. As Tina said, your mum is in the best place and I'm sure the Drs will be doing everything they can to find out what has happened. We cannot give medical advice here, but we can offer support and experience. All I can personally deduce from this is that your mum has had a NASAH (and that is not to say I'm right and is something you MUST ask her specialists) - which is rip/rupture/tear of an artery wall without the aneurysm. There is a section on this forum for NASAH and it might be worth you having a look arou

Hi there As Super said, we cannot give medical advice and this is something that you should discuss with your surgeon. I have had two operations under general anaesthetic since my bleed and have not suffered any after effects at all.

Hi there I've got people that I don't see that often anymore but more to do with life than my SAH. I have two really close friends who were there before and have been there since. If they're seeing as a "burden" then, sorry, but they're not really friends. Do you know that they didn't invite you because they'd see you as a "burden" or did they not invite you so as not to make you either 1. feel guilty about not being able to go or 2. feel that you had to? Is there one of these friends that you're closer to than others that you can maybe ask??

Hi Shaw I had headaches for six months prior to my bleed and were especially bad the day of it - constant pressure pain in the front of my head and eyebrows. Mine was caused by an aneurysm though, and I've been told that they're not related to the bleed. Hope all goes well with your scan x

Happy Anni-versary Jess Agree with all - you've come soooo far since I first "met" you - and it was great to actually meet you in the flesh those few times. You're a fantastic mum, a good friend and a wonderful person to know - proud to know you xx

Macca - happy anni-versary and wedding anniversary You're a wise and compassionate man who has been there for anyone and everyone who needed you and you never fail to have the time to pass on your wise words - it most certainly is a pleasure knowing you

Sarah, absolutely beautiful and spot on with the singing. Sat here with tears streaming down my face xxx

I found this line did the trick "I look well from afar, but I am far from well". The problem is you can't put a bandage or a plaster on your brain for people to see. Explain to them that if you'd had a heart attack, then people would be telling you to rest and take things slowly. Well the fact of the matter is, your brain has had a "heart attack". I soon realised that the best thing for me was not to worry about what people thought, but how I felt. I'd tell people that I was fatigued as this was a result of the SAH and that I needed to rest - it really is up to them

Fear it will happen again is perfectly normal . As for living more freely, well, that depends on your state of mind. My husband loves nothing better than to tell me that I recovered so well because I'm as stubborn as they come - I tried not to let it stop me doing the things I wanted to do. There were times when I paid for it after - exhaustion, fatigue, headaches etc, but I was determined that I was not going to let it stop me living my life. My aneurysms are referred to as "doo dabs" by my Dad and "monkey" by my daughter ( who was 9 at the time and is now 23). Three months after mine I w

Hi Carolyn I was discharged from hospital with absolutely no information on what had happened to me, what I should /shouldn't be doing or what I could / couldn't do. My "physio" before I was discharged was walking up and down half a flight of stairs and being able to take myself to the shower and the toilet. A pile of tablets were pushed into my hands and that was that. This was 14 years ago and no sign of COVID anywhere! Like you, I got more information from this site than from anywhere (and there were only 9 members when I joined!). In the last 14 years I have had

Congrats Andrea - but what a way to be reminded!! Love your scenery pics - keep 'em coming!!