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maggie

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Posts posted by maggie

  1. Hi Sandi I think your question is a good one! 'How long did it take you to stop fighting the recovery time?'.........

    I learned that there is an easy way or a hard way.

    I choose the hard way. In retrospect I would choose the easy way but life is easier lived retrospectly as they say.

    The facts are one day being healthy, independant with plans and ambitions, the next totally dependant and a wreck basically, is a shock to the system.

    No matter how many experts told me to listen to my body, or that recovery would be slow like ' baby steps' I thought I knew different. I would be up and running as per normal in no time at all!

    In short by fighting recovery time I was fighting myself .But coming to terms with the new me was difficult and like my recovery was like taking 'baby steps'! But I had to learn for myself that by not listening to my body I was making things a whole lot worse, so I learned the hard way. In many respects 2 years later I still am learning!

    Lynn said it all in her reply earlier, amongst other things " I had to become assertive. I started telling people what my limitations were". The sooner we accept our limitations the better. Give yourself permission to take time out for your recovery and don't be rushed.Its your time!

  2. Hi Sandi and a warm welcome:-D

    You sound like your doing really well and hopefully you'll soon adapt to the fatigue and manage it rather than it manage you!

    Be kind to yourself and give yourself permission to take regular rest,its the best thing you can do for that brain of yours.

    Looking forward to further posts telling of your continued recovery.

    Best wishes

  3. :-D Hi Pete and a warm welcome to this wonderful online community. Your doing really well as Gill says 3 weeks and back to work! WOW!

    If you follow the posts one thing is sure for all of us and that is there are so many ups and downs during recovery and seemingly at any stage we can expect fatigue to plague us and it wipes us out. It takes different forms but the result is the same.

    I was very lucky with after care and left hospital with fatigue managment leaflets after having it explained thoroughly but it still hits you like a tonn of hot coals when it happens.

    You'll find your 'joie de vie' ;-)than lose it again many times :crazy:but don't despair be patient and keep talking especially to the doctor and don't be afraid of not being able to do things same as before. It will happen eventually but just not yet!

    Look foward to hearing more. And since it's starting to become customary to give out hugs have a BIG HUG frm me.x

  4. Hi Tracy sorry your having such a difficult and confusing time.It sounds very much like anxiety as well as getting over tired . Your so early into your recovery. I do hope you are going to see your doctor and get professional advice simply because he/she can ref you to the right people for councelling etc. Big Hugs xxx

  5. Hi there, I can relate to what your saying but agree totally with Vivien.I think you are so right Vivien .......

    ' reckon that it is because I am actually doing more as time goes on, so have more stuff to remember ( or forget!) and also I probably don't listen to my body enough and rest when I am tired.'

    I really do think that as time goes on we are so busy gettting on with our lives we forget to rest as much as we need.I know that I am the biggest culprit.

    Please go see your doc and get checked out though. Good luck and all the very best for a fab 2011.

  6. Hi Karen and welcome to this wonderful site.Your no longer alone and can share all your fears or anxieties here.

    It's perfectly normal for us to worry about what happened ever happening again but I think the further away in time from the occurrence then the more confidence we have that it won't happen. And you need the reassurance from your hospital appointments as well as your GP that your doing ok too! And don't be afraid to ask for help.

    The way I look at it is that they fixed that problem!And hopefully it won't happen again! But thats after months of panic attacks (in the early days) and after sessions with a neuro pshycologist who was wonderful. Good luck in your recovery. Maggie xxx

  7. Hello Bay poor you, your really going through it right now and you are in the right place for real empathy so a warm welcome to you!What your going through just now is pretty much the same as alot of us survivors and somehow we muddle through it but there is no easy way. Keep talking both on here and with your doctor,it's important. In time and with the right help these feelings and symptoms of yours will ease.

    If you read the posts on here you'll see that life does get better and does improve! The first few

    months are the worst.

    I wish you all the best and send my love .

    Maggie.... BIG HUGS xxx

  8. Hi Ann well done and thank you so much for posting such positive words. This is just what I needed to hear. I am a year behind you and have felt a huge impovement this year. But still not what i'd expected or hoped for and sometimes I get really sad and frustrated and others I am resigned to the fact and that things could be alot lot worse!

    Only yesterday I threw a wobbly because I had a bad bout of fatigue after doing too much. I'd felt well for two days and hit a wall! So reading your post has given me hope and thank you for being my inspiration.

  9. Hi Painter, little wonder your feeling the way you are. There are others here who can relate to what you have been through and hopefully will respond soon. I had coiling following an SAH due to a burst anni and haven't been told I have any others.

    But the fear thing is a tough one to overcome,in time it will fade but for the present the panick that comes with it can be crippling.Learning how to cope is difficult but can be done with the right help and relaxation technique.All I can offer is that when your overwhelmed with the fear try to think of a happy time spent with your horses and familyl.Train your mind to go someplace else before the panick sets in.

    Please go back to your doc and tell him/her that your having dificulty and need to see a neurophsycologist they are the ones who can point you in teh right direction.

    Best wishes Maggie xx

  10. Hi Jane ,really sad that you and your new husband are having to go through this.

    It is a very difficult time for you too.Understandably you are bewildered with the changes in your husband and I hope your are getting support from your families and friends.And hopefully eventually you will get support from your doctor who you need to get right back to and yell until he/she listens!

    It's such early days for your husband.He is no doubt totally bewilderd, devastated and scared.The best way you can help him at the moment is by not letting what he says to you wear you down and believe you will get through this.

    You have been through a very frightening experience as well, unfortunately your husband won't be able to help you with this - not for some time!

    Often the carers get neglected,taken for granted and are in such a difficult place.Do remember look after yourself and try rest and stay strong.

    Best wishes and come back soon. Good luck,

  11. Hi Jimbo,one of the wonderfull things about this site is that you can almost always be sure someone will have similar if not the same symptoms as you are experiencing.I have heard others talk about similar feelings as yours although I personally don't have exactly the the same.

    I am 22months post op now and often get a tingly feeling running across my head and a bruised feeling around the area of my coiling as well as other little pangs now and then which are uncomfortable!

    Whilst it's comforting to know you are not alone Jimbo I still think you should go and speak with your doctor just so he/she is aware and like Jess says it may be that you are experiencing extra stress or anxiety!

    Hope you get the support you need.

    maggie xxx

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