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Posts
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Joined
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Last visited
Reputation
10 GoodConverted
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Location
Greater Manchester
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Interests
Love walking in the mountains and the dales of our beautiful counry.Gardening, being with my family
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Occupation
Lady of leisure
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SAH/Stroke Date
07/01/2009
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Just had a wonderful day!
maggie replied to johntaras's topic in Subarachnoid Haemorrhage Discussion
John what a truly inspiring and encouraging post. Am really, really pleased to read that things are so good and wish you all the very best for your future. Fabulous reading how well your doing. We all know the challenges and struggles you have had to get to this point. It's a long time since I posted too, although I think about you all often and keep up to date with you all as best I can. Love to everyone maggie xxx -
'Now I feel vulnerable, unable to remember things as well, harder to concentrate so much that it tires me to the stage of switch off like a mobile phone when the battery runs out. My zest has gone and I doubt myself so much always thinking I have made a bad choice or said the wrong thing' Di I feel exactly the same one day I was a strong fit and healthy young 58 with a whole lot of dreams and new experiences to be fulfilled, the next i'd been thrust into old age and am constantly reminded that I am old not getting old! So I have developed my own filtering system and thats to ignore any of these negative comments and not react,of course deep down I am seething:devil: but don't give anyone the satisfaction of knowing this.Cos people just seem to love putting others down! Bad enough we live in an ageist society:roll: The only advise I can offer is to go back to basics and as you say a short simple response to those who you suspect really dont want to know and concentrate on those who do. This way it avoids the frustrations and hurt that often accompanies the innocuous phrase 'how are you'! Your not alone Di,its so hard to keep positive when there are so many hurdles to jump, and when others don't seem to understand but we're all here and we do understand:-D When I get really sensitive about the ageing process I just recall some one telling me (for the first time in my life) ' after all your not a spring chicken now!'...... I was 28yrs old! ps. Good luck in your search , if you find the fountain of youth, you will share it won't you? Hugs Maggiexxx
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Maggie May lol You could try this one Win.... oh she robbed those lime juice sailors and the captains of the whalers Than dirty, robbing no good Maggie May... BUT, I like this one best .... you may search from here to china,you'll not find any girl thats finer that is finer than my darlin Maggie May lol:lol:
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CONGRATULAIONS TO MY LOVLIE WIN so pleased for you and in your honour am going to smile all day , think happy thoughts and sing Love Maggie xxx:biggrin::biggrin:
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Caregiver burnout, and the impact on SAH patient
maggie replied to minan's topic in Subarachnoid Haemorrhage Discussion
Oh Win don't ever change you always make me smile and help me re form a positive aproach to my condition! :confused:it may not always be possible to acheive a positive outlook but it certainly helps knowing that others have overcome difficulties worse than mine and managed to bring joy back into their lives even if it is often overshadowed by illness and difficulties from time to time!! Such as life! -
Caregiver burnout, and the impact on SAH patient
maggie replied to minan's topic in Subarachnoid Haemorrhage Discussion
Minan Welcome I hope you find some peace here and someone who you can relate to so as not to feel so isolated. Since this wonderful site started none of us are ever alone Minan, there is usually someone who has had similar problems to deal with as yours what ever your problem may be.Your not alone anymore Minan. I am glad you are healing and the depression is lifting. Keep talking here, good that you found this site! Hugs xxx -
Depression and moving forward
maggie replied to winter's topic in Subarachnoid Haemorrhage Discussion
Bill I think your very brave, you write with such poignancy and honesty I am sure your touching a chord with many of us in one way or another. I have grieved for the life I once had and the promise of a life I had planned for the past two and a half years! Your post has helped me realize that I am actually still grieving! Having to face up to what I have lost and move on is something that I have avoided doing for far too long , avoidance has almost become a comfort blanket.I have been too scared to make changes - that would be an admission that all the things I had planned for my retirement could not be fulfilled. I had forgotten my resolve that whilst I knew i'd never be the same as before I could be as good as if not better! I just have to tweek my plans and try to make a compromise that would fulfill my dreams. THANK YOU for your honesty. -
Hi Steven and welcome! What a story you have to tell and how fantastic that you have made an amazing recovery.Am so happy for you and agree,GO GET A LOTTERY TICKET!!!!! It just goes to show how very diferent we all are and how diverse an effect an SAH can have,no wonder the experts are baffled as to how any one recovery will progress and little wonder we are told so little on leaving hospital. We just have to wait and see what we - as individuals - are left with and some do alot better than others. Wishing you all th best Maggie
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Vivien, your photo is wonderful it portrays a really strong message as well as speaking volumes. Thank you for sharing. Maggie
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HAPPY ANNI VERSARY RHIANN :-D:-D Cogratulations Rhiann you made it to the first post! I know exactly what you mean, I felt nervous all day on my 1st anniversary so happy to say am now on my way to my 3rd. Try to embrace the day and get some chocolate before win gobbles up the world supply
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Hi Kelly welcome to our exclusive club with only the best folk as members! Am sorry your experiencing lots of difficulties since your SAH but like Skippy says keep trying to improve, don't ever give up. It is a slow process and often takes its toll and gets us all down but your here amongst friends now and we know exactly how you feel. Look forward to hearing more from you x
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Hi Michael, special welcome from a fellow Northener:-D Don't wory you didn't ramble at all! We're an inquisitive bunch here, we all can find something to relate to in everyones story! Thanks for posting and sharing. I too am one who totally empathises with you although I can offer no help or solutions. I suffered RLS prior to my SAH although certainly not as severe as it is now. I found it helped to drink plenty of water in those days! These days I would be a nightmare on a long haul flight! It is so acute and made worse when I am over tired. My legs seem to take on a mind of their own ! Will keep you posted if I wind anything helpful. Good to hear from you and that your recovery is going well.
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Good you went to the GP John. Take time to recover and take it easy! Hopefully sooner rather than later you will start to feel better. I am falling into the trap of thinking I am (or rather should be) better. On my good days I can't imagine feeling so tired as I often do! And that's why we need our pals on here to remind us that we are still recovering. And whilst it may be several years since the event and not just months we are still vulnerable and need reassurance from others who like ourselves have a blip now and then. Maggiex
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Hi John, I am the same. Am two and a half years into recovery and was doing really well managing fatigue.........Or so I thought! Recently I have experienced an overwhelming tiredness which doesn't respond to a 'duvet day'! Its really knocked me for six. My batteries simply won't recharge like they used to do. My thermostat is all out of sync...... am extremly hot one minute and extremely cold the next! And my legs feel like lead has been poured into my bones. Am seeing the doctor and having tests done. Hopefully you'll get some answers when you see your neuro and your GP. Keep us posted. Good luck John hope things improve soon x
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Hi Montana and welcome! What a shock, you must be totally overwhelmed by it all (as we all are when it first happens to us!). Well at least your here and glad to be so,its hard at first but drink plenty of water for the old brain and keep calm try not to worry .... its 'baby steps' all the way for the time being! Take each day as it comes and look after yourself the head aches do pass just keep drinking plenty of fluids thats the best you can do. Good luck and look forward to you joining us in the green room.
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