Tash Posted September 22, 2023 Share Posted September 22, 2023 I have been diagnosed with the above. This is a very rare diagnosis most people do not survive if they do they are severely brain damaged. I am finding it difficult to get the support because there are very few experts who specialise in this area. Quote Link to comment Share on other sites More sharing options...
Tina Posted September 23, 2023 Share Posted September 23, 2023 Hi Tash A very warm welcome to BTG. Sorry to read you are finding it difficut to get support. Have you tried Headway if you live in the UK? They may be able to help. Please find below a link : https://web.behindthegray.net/index.php?/articles.html/useful-websites/useful-websites-r10/ I do hope you are doing ok ? You have not mentioned when this happened. Wishing you well. Take care Tina xx Quote Link to comment Share on other sites More sharing options...
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