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Tina

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Everything posted by Tina

  1. Hi Ann So very sorry you have had to go through this all again, Bless you, what a nightmare. Thank goodness the surgery was a success, so very scary for you and your family. Well done on pushing for a scan in December. I guess with Covid etc everything is all delayed. I agree with you to fight for your yearly scans especially in these unprecedented times. Thank you so much for sharing and know that we are always here for you ❤️ Wishing you well with your ongoing recovery. Keep in touch and let us know how you are doing. Take care Love Tina xx
  2. Carolyn i believe if you have had a bleed you do have to inform the DVLA by law. You will need to get a letter from either your Consultant or GP to say you are well enough to drive. Here is the link for information on returning to driving. https://web.behindthegray.net/forum/23-driving-after-sah/ Loving your attitude onward and upward xx
  3. You may like to read this, i found it very helpful. https://web.behindthegray.net/articles.html/inspiration/a-letter-from-your-brain-by-stephanie-st-claire-©1996-r167/
  4. Hi Carolyn A very warm welcome to BTG , glad you found us. There is a wealth of information and support here as you have found. Here is a link to A Letter From Your Brain. I found it very helpful. https://web.behindthegray.net/articles.html/inspiration/a-letter-from-your-brain-by-stephanie-st-claire-©1996-r167/ I think you just have to listen to your body. If feeling tired, try to rest. You may just need to have a quick sit down, or you may need to actually have a nap. Don't push too hard too quickly. Pace yourself, drink plenty of water, i really does help. Well done on getting back to work, a huge achievement. You are doing all the right things by reducing your hours and gradually building them back up. Recovery is different for everyone, Small steps. Look forward to hearing more from you. Wishing you well with your recovery. Take care Tina xx
  5. Brian all that you have mentioned, many of us here can relate to. I had bad head, neck and back pain for months. I was told it was the blood dispersing though the spinal fluid. I had pain for at least a year. Forgetfulness, brain fog, trouble processing things and also not articulating how you used to, are all common side effects from a bleed. I use post it notes or reminders on my phone. When i am tired finding the right words are difficult sometimes. Also suffer from fatigue. Pace yourself, listen to your body and learn your limits. Your brain has had a major trauma and is working overtime trying to repair and function as normal. Be kind to yourself. If you are feeling really unwell then go to hospital to get checked out. Sometimes though when you get anxious and stressed everything seems a hundred times worse. The positives are you survived. You have sorted an appointment and 2 weeks will soon fly by. Rest up as much as you can and try not to stress. Easy to say i know. Try to drink plenty of water. It really helps. I am sure that others here will let you know their experiences too. Let us know how you are doing. Take care Tina
  6. Hi Brian A very warm welcome to BTG. Sounds like you are going through a really tough time. Sorry to hear about your accident. You are still in the very early stages of recovery and your body tells you when you are pushing too hard and need to take things slow. Being scared is very normal. Things will improve, it just takes time. Sometimes one step forwards and two steps back, but it will get better. You are very young and that is on your side. Try not to google because i think you can scare yourself unnecessarily. You have definitely come to the right place for support and information. We cant give medical advice but we can share our experiences. Perhaps you can share a little bit more about yourself, what type of head injury you have and if you needed any surgery. I hope when you see your neurologist they can give you some peace of mind. As you say, with Covid lots of appointments have been put back and that causes anxiety in itself. You have not messed everything up at all and don't be scared to go to the hospital for your appointment. I have to go this week and i know the hospitals are being very careful to keep everyone safe. When i had my brain haemorrhage I felt very scared and anxious and i went to my Doctor and he put me in touch with someone to talk to, it really helped. Do you have family and friends that can help and support you ? We look forward to hearing more from you. Take care Tina
  7. Congratulations Sally on your one year anniversary. Really good to hear your balance is improving and new pathways slowly beginning to work If worried about the sharp pain get it checked out for reassurance and peace of mind. It is hard in the early stages not to panic or worry of things happening again. Wishing you well with your ongoing recovery. Look forward to hearing more from you. Stay safe and take care Tina xx
  8. Congratulations on your 5 year Anniversary Andrea Well done on all you have achieved and as Subs has said above, thank you for sharing and supporting many here xx Take care Love Tina xx
  9. Hi Packcuz A very warm welcome to BTG Glad you found us. You have really been through it, also your family. Not surprising you are feeling a little sad and depressed, it is very early days in your recovery. Things will get better, it just takes time. Sometimes one step forward, two steps back if you push too hard. Be kind to yourself, listen to your body, rest up as much as possible and drink lots of water, it really helps. The dizziness will improve, but even now if i over do things i get a little dizzy. Your body has a way of telling you when to slow down. I totally agree whatever doesn't kill us makes us stronger Well done on getting back to work so early. You should be feeling very proud after going through such a huge traumatic trauma. Wishing you well with your recovery and we look forward to hearing more from you. Feel free to join in the daily banter in the Green room. Take care Tina
  10. Hi Kyle A very warm welcome to BTG. You will find a wealth of helpful information and caring support here. Feel free to also join in the daily banter in the Green Room. https://web.behindthegray.net/forum/9-the-green-room/ We look forward to hearing more from you. Take care Tina
  11. Hi Majella A very warm welcome to BTG. You are still in the early stages of recovery. As Louise & Casey have said, things do improve and get better. Just takes time and we all recover differently. So glad you found BTG. It has been a Godsend to me. Lots of helpful information and caring support from others who understand what you are going through. Look forward to hearing more from you. Take care, rest up lots and pace yourself. Tina xx
  12. Congratulations Michelle on your 6th year anni-versary Great to hear your news and exciting plans for your 60th. You are a lovely lady and have been there for Jan Andrea and all of us, thank you xx Hope your 7th year is a good one in every way xx Lots of love Tina xx
  13. Hi Rajdeep A very warm welcome to BTG. You are in the very early stages of recovery. Some good advice above from Catwoman. It is very normal for your emotions to be all over the place, i was very much the same. I got very frustrated with myself. My children were grown up, i cant imagine how hard is is to cope with two young children, i found it exhausting doing the smallest of things. Maybe you can get a second opinion re your shunt removal when you get back to Australia. I did not have a shunt but there are members here that have and can share their experiences with you. Things will get better, it just takes time and learning not to push too hard. Your body will tell you when you need to rest. Listen to your body and be kind to yourself. Karen the founder of this wonderful support group told me that when i first joined , Wise words Wishing you and your family well and look forward to hearing more from you. Your English is amazing ! Take care Tina xx
  14. Oh Sarah, such very very sad news. God bless our lovely Win, who gave so much joy and made so many smile. So sad & gutted too. She will be missed so very much by us all. Thoughts are with you, sending much love to you, Al & Tilly xx
  15. Hi Brenda A very warm welcome to BTG Glad you found us. Great news to hear your husband is doing well. Your husband is still in the very early stages of his recovery, His brain will be working overtime trying to mend and recover from a huge trauma, as well as doing the normal everyday things. All that you mention is quite normal and many of us here can relate to. There will be good days and bad days at this stage, but it will get better Wishing your husband well with his recovery and look forward to hearing how you are both doing. So hard for our loved ones too. You will find lots of helpful information on the Forum. Please feel free to ask any questions, we cant give medical advice, but can share our experiences. Take care & remember to look after yourself. Tina xx
  16. Gem so very sorry for the loss of your Dad. Thoughts are with you and your family at such a difficult time. Sending much love and hugs your way xx Love Tina xx
  17. Congratulations on your 8 years Daff You have been through so much and still stay so strong xx You really are an inspiration to us all xx Huge respect to you for all you have and are achieving ! Love & hugs Tina xx
  18. Hi Kathy Congratulations on your 2 year anni-versary ! Huge respect for all that you have achieved xx Wishing you well, love & hugs Tina xx
  19. Hola Simone A very warm welcome to BTG, glad your husband found us for you and the site has given you some comfort. Congratulations to you both on your wonderful news, can understand you may be nervous. Others here have fallen pregnant after their bleeds and can reassure you. We would love to hear how you are getting on and as you say will help many others reading your story. Love your picture, is that from your garden? Beautiful flowers Look forward to hearing more from you. Take care Love Tina xx
  20. Hi Dave a very warm welcome to BTG So pleased to read you are doing so well after your non-aneurysmal subarachnoid haemorrhage. I can understand your frustration at not being able to drive, but its the law, frustrating as it may be. Here are links to some other posts that may help you. I do know from experience that the DVlA can be very slow, keep chasing them once you have sent all the relevant information to them. https://web.behindthegray.net/forum/23-driving-after-sah/ https://web.behindthegray.net/search/?q=driving Good luck and take care, let us know how you get on. Tina
  21. Casey what a beautiful inspiring poem, thank you for sharing xx
  22. Thinking of you Sarah and wishing you good luck for your appointment, hope you get some answers and peace of mind. Love & hugs xx
  23. Hi Sarah Congratulations on your 2 year anniversary xx Wishing you well xx Take care Love Tina xx
  24. Its a great feeling when you can finally drive again, brilliant news, well done !
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