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Everything posted by Tina

  1. Congratulations Noah on your nine years post SAH this week ! Thank you for sharing your experiences and hope this week goes well for you. Take care Tina xx
  2. Hi Sue With regards to driving and your driving license, when you find out any information for Australia, would you mind updating us here on the link below. We would be very grateful and it would really help others in the future from Australia. Good luck & many thanks. Tina xx
  3. Hope all is ok Michelle, take care xx
  4. Hi Susanne Here is the link to 'A letter from your brain' that the lovely Win mentioned :
  5. Hi Sue A very warm welcome to BTG. Well done for getting back to work so early. Working with 25 toddlers cant be easy ! As you say your are still in the early stages of recovery and have gone back very quickly. Maybe you could cut down your hours and gradually build them up again. Re your headaches, as Super has said, we cant give medical advice but definitely go and see your GP. Listen to your body, slow down and take care. We look forward to hearing how you get on. Tina xx
  6. Hi Susanne A very warm welcome to BTG. The first thing i was thinking as i read your post was, wow, such very long hours ! I think your husband is just doing too much and that is why he is sleeping on his days off. He needs to slow down, listen to his body and be kind to himself. Could he consider cutting his hours down? Gradually building them up again at a slower pace. It will give him a better quality of life and not be so frustrating for him. Extreme fatigue will make any short term memory so much worse. Hope you are doing ok? Wishing your husband well. Look forward to hearing more from you. Take care Tina xx
  7. Joan glad you managed to get back on and wishing you all the best for 15th October. Well done on getting your blood sugars down xx
  8. Hi Susan A very warm welcome to BTG. I cant help you with regards to a Chiropractic adjustment, but 3 months is still very early in your recovery from your bleed. At 3 months i still had very strange sensations in my head and bad headaches. Your brain is working overtime recovering from a massive trauma. Try to rest up as much as possible and drink plenty of water. It is very normal to feel freaked out and anxious, but this will improve with time. Listen to your body and be kind to yourself. It's good to read that the forum has been helpful. You are not alone in your journey. Please feel free to post any questions you may have. We cant give any medical advice, but can share our experiences. We look forward to hearing more from you and feel free to join in the daily banter in the Green Room, we are a friendly bunch. Take care Tina xx ,
  9. Tina

    Mary-Clare. My SAH story so far........

    Hi Marie-Clare A very warm welcome to BTG. Thank you so much for sharing your story. So pleased members posts have sustained and inspired you. Wishing you well with your ongoing recovery and look forward to hearing more from you. Please feel free to join in the daily banter in the Green Room, we are a friendly bunch. Take care Tina xx
  10. Tina

    8 years for me today!

    Congratulations Macca on your 8 year SAH Anni-versary and your 6 year Wedding Anniversary! Double celebrations enjoy, you deserve it Macca thank you for all of your positive, inspiring, caring, informative posts. As Super Mario has said, you have helped and will help so many here with your beautifully written wise words. I also want to thank you personally for all your support, so very much appreciated. Huge respect for you young man Have a fabulous day. Love Tina xx
  11. Hi Michelle a very warm welcome to BTG So very sorry you have had all this stress and worry to cope with, so very frustrating, really feel for you. It's not surprising you feel very let down by your Doctor & HR. I personally would also go back to your Doctor and explain all you have above and that you certainly need a gradual phased return back to work as he first stated and work with him and your HR. Your Doctor should give you the support you need. My Doctor had never come across someone that survived an SAH and this is very common. Try and keep calm, easy to say i know, but just thinking of your health, Stress is not good for you and you are still in the early stages of recovery. Good luck with your new Neurosurgeon and hope you get some answers to give you peace of mind. Here are some links may help with the constant ringing in your ears and your return to work : http://web.behindthegray.net/topic/7097-tinnitus-after-non-aneurysm-subarachnoid-bleed/?tab=comments#comment-128489 http://web.behindthegray.net/topic/6263-tinnitus/?tab=comments#comment-117586 http://web.behindthegray.net/topic/2711-returning-to-work/?tab=comments#comment-37718 http://web.behindthegray.net/topic/6863-worklife-balance/?tab=comments#comment-125146 http://web.behindthegray.net/topic/7091-fatigue-tiredness-1-year-after-sah/?tab=comments#comment-128401 You will find lots of helpful information and support here. Wishing you well and please let us know how you get on. Take care Tina xx
  12. Tina


    Hi Anne At 18 months i also got so very tired doing the smallest of things. I think it is because you are trying to do more each day and forget to rest up. I now have learnt how to pace myself, sometimes still catches me out . If i have my Grandchildren, the next day i have to rest up. Like you, i just cant say no to them, they bring so much joy As for the dizziness i get that too. Sudden movements can put me off balance sometimes. It is still early days for you and things will hopefully improve. Wise words from Jess, go steady, rest up plenty and remember to drink lots of water. Take care and let us know how you are doing xx
  13. Tina

    Kay - new member

    Congratulations such wonderful news, so exciting xxxxx
  14. Tina

    Night sweats

    Hi Crazy Thank you for sharing your experience and a very warm welcome to BTG. Good to hear you are recovering pretty well and have a great support network. We look forward to hearing more from you. Take care Tina xx
  15. Good luck for Thursday Joan, thoughts are with you and wishing you a speedy recovery. Love Tina xx
  16. Tina

    1 year today!

    Congratulations Clare on your 1st SAH Anni-versary hope you have a good day at work and have the energy to enjoy a wonderful meal out tonight celebrating being alive !!! xx
  17. Tina

    13 years post SAH today.

    Karen Happy 13th Anni-versary You are such a huge inspiration and have helped me and so many so much. Thank you for being you and all that you are lovely lady 💓 So pleased you had a wonderful day celebrating. Thank you for sharing. You look amazing ! Be very proud Love you loads Tina xx
  18. Tina

    New - Reassurance Needed

    Hi a very warm welcome to BTG Wow, you really have been and are going through it and as Clare has said, both coping amazingly. It is such a struggle when the whole world as you know it turns upside down and inside out. Very hard for you if your family and friends are not close to support you. Did your GP mention counselling to your wife for when she feel up to it, there is normally a waiting list, but i found it very helpful. A self help link not at all helpful at this time, i agree ! Unfortunatley most GP's dont know how to help survivors of SAH. My GP admitted he had never come across one that survived before me and i have been a learning curve for him. Headway normally have face to face support groups. Maybe something you could look into, also ask your local hospital if they have any support groups, some do. When your wife feels up to it, she will find a wealth of helpful information, reasurance and caring friendly support here, as we hope you will too. BTG was a life saver for me, i found others that understood all i was struggling with. I realised i was not alone. Good days, bad days, we are here for you. You have been an amazingly strong caring supportive loving husband, dont be so hard on yourself. I shut down to close family and friends in the early stages, i guess it was my way of trying to cope with things, plus your brain goes on shut down when you are tired. Please dont feel you cant comfort or make her happy any more, it is such very early days. Keep being the wonderful caring loving thoughtful husband you are. Things will get better just takes time and patience. Its very normal to feel so frustrated with all that you are going through. We look forward to hearing more from you. Take good care of yourselves. Tina xx
  19. Tina

    New Member RoseGarden - looking after Dad

    Hi RoseGarden, A very warm welcome to you and your Dad to BTG. Glad you found us. So sorry to hear about your father's fall causing an SAH, it will be a very confusing time for him, but very glad to read he is recovering well. You will find lots of helpful information and caring support here. Please feel free to ask any questions, we can share our experiences but not able to give any medical advice. We look forward to hearing more from you. Take care Tina xx
  20. Joan i will message Sarah (Kempse) to check she is ok xx
  21. Hi Joan, wishing you well for the 2nd August and as Jess says, when you feel up to it please let us know how you are doing. Take care and wishing you a speedy recovery. Love Tina xx
  22. Louise, so pleased all went well & you had a special time with your family, well done you I love the picture of you both, looking fabulous Thank you for sharing, it will help many. Love Tina xx
  23. Tina

    Kay - new member

    Kay, congratulations to you both, so exciting and such wonderful news xx
  24. Tina

    Jase - New member.

    Hi Jase a very warm welcome to BTG. Some great posts above from Clare, Daff, Win & Chris. At 18 months i felt very much like you do now. It does get better, just takes time to adjust to such a life changing event. There will still be good days and bad days along the way, but you survived and sounds like you are doing really well. Be kind to yourself and be proud of how far you have come and all you have achieved. Take care and let us know how you are doing. Tina xx