Guest pam Posted February 15, 2008 Share Posted February 15, 2008 Hi, I am very pleased you have set up this section on our forum I was diagnosed with multiple (seven in total) brain aneurysms in December 2004. I had had visual disturbances for many years which I was told was migraine (and it could well have been migraine). I had also had problems with pain and tingling in my facial nerves- I had had an episode of Bells Palsy on the right side of my face 16 years previous (made a full recovery) and then Bells Palsy on the left side of my face the next year (again made a full recovery)but I would get pain/tingling in the nerves over the years, from time to time if I had dental treatment or had cold etc and I would visit my doctor and get some steroids which would fix the problem. In 2004 following some dental treatment I got the symptoms back, I was also having some dizzy spells and some pain in my ear, which in the past had been connected to the facial nerve problem. My usual GP wasnt there, so I saw a new GP, and fully expected the usual prescription. He said he thought I may need a brain scan but thought it would be wise to refer me to an ENT Specialist. I saw an ENT specialist three months later who could find nothing wrong with my ears so he sent me for an MRI Scan which I waited eight weeks for. The MRI scan revealed two possibly three anuerysms, I was referred to a neurosurgeon, waited just six weeks to see him and he referred me for an angiogram which I had eight weeks later in December 04. The angiogram showed 7 aneurysms. On Feb 16th (yes it is my three year anniversary tomorrow and I will be celebrating life !!!!) after two cancelled operations due to lack of high dependency beds I had the first aneurysm coiled ( 8.5mm) In June 05, after another two cancelled operations I had another two coiled. They managed to totally occlude all three aneurysms and MRA Scans since have shown they have remained totally occluded. I have four remaining anuerysms which are tiny, and which are being monitored, these aneurysms have not changed in size or shape since diagnosis which is a good thing. However, I find it incredibly hard living with the knowledge that I have four untreated aneurysms, my doctors say that the risk of coiling such small aneurysms outweighs the risk of rupture, most of the time I feel ok with this, but there are times when it really gets me down. When I last had an MRA scan in June 2007 which showed all was well, I was told I wouldnt get another MRA scan for four years and they didnt expect any changes within the next four years, but it still concerns me that any one of these smaller aneurysms could change or rupture and I feel a bit let down that the monitoring isnt more frequent (When I was discharged from hospital I was told I would be closeley monitored, I was given a scan later in 05, in 06 and 07, but I dont feel waiting four years for a scan is close monitoring!) Well this is my story. Pam Quote Link to comment Share on other sites More sharing options...
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