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Shanti

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Everything posted by Shanti

  1. Dear Mollie Thanks for replying. Makes us all feel better knowing we are undergoing the same experiences. Don't feel a failure or useless, we survived a huge health problem, so we are wonderful survivors and little by little we are all in recovery and getting there. Its just basically we have to be more aware and concentrate more when we are doing tasks that we used to take for granted. Put simply, many people set their flats alight and they haven't had a SAH or anything like as serious happen to them. (An example, my partner Paul left the gas flame lit on the top of the cooker for 5 hours yesterday! he'd made some hot milk, gone upstairs and forgot all about it - and I'm off to Switzerland on Mon for a week , so a little worried about leaving HIM Home Alone!) Love and hugs Lesley xxx
  2. Hi Maureen Welcome to BTG. Its a wonderful site for information and feedback. I was 60 when I had my SAH and I've recovered very well. So you are not the eldest on here. Sorry to hear about the mini strokes, hope you get some proper feedback after the MRI scan. Good luck to you, Lesley xxx
  3. Hi Anne Its amazing how many of us have had the same problems. I too overfill cups of tea sometimes. Nice to know its not just me. Big hug lesley xxx
  4. Hi Michelle, Blondie I too forget sometimes that I've started something. I wander off and totally forget until, suddenly something kicks in and I remember. To date not done too much damage thank goodness. I also keep knocking my limbs against furniture, walls, the staircase etc. You know it never occurred to me before that it was a depth perception issue. Gosh it really is amazing on here. And as you say, thank goodness we're not going through all this alone. Love and hugs lesley xxx
  5. Dear Myra I've flown twice since my SAH and coiling. Had no problems, not even a headache from the altitude. Always have lots of information such as: hospital details, operation details etc in my handbag in case I did collapse or something. (In fact always have info in bag even when shopping or driving just in case). My dentist refused to treat me for a few months post SAH but I contacted the hospital to get permission for her to give me an anaesthetic and she accepted that. Had no problems with physio since, but wouldn't dare go back to yoga and am very, very careful washing my hair etc, stooping down to pick stuff up from under tables or anything like that. Hugs Lesley xxx
  6. Hi Caroline Interesting comment from Blondie about the leg used for coiling. It was my right groin (and subsequent problems with right leg since). Thanks Lesley xxx
  7. Thanks Janet and Laura So its concentration and misjudging distance. Think Karen mentioned impaired depth perception somewhere on here. Oh well, have to just take my time and try to slow down when doing things Big hugs Lesley xxx
  8. Hi Tina, Penny, Evelyn, Lynn Oh thank goodness, I thought I was loosing more marbles than I've already lost! Oh it was you Lynn who dropped the knife. Hope you've stitched up nicely, bless you! (Its a wonder I haven't hurt myself so far too). So it looks to be a concentration issue doesn't it. Just take our eyes off the ball (as it were) for a second and we drop things. Feel much relieved. Will have to make sure I concentrate more when handling risky things like kettles, hot water, hot cups of tea, pans etc (and yes, knives!) Puts the slight mockers on a life time of multi tasking doesn't it! (My smilies don't work by the way, hence so many exclamation marks!!) Much love all round Lesley xx
  9. Hi Komodo and Zoe Welcome both of you. You've come to a grand place to get some support and share your experiences. We've all been through the mill on here! I haven't heard of Tersons either. Don't go doing too much too soon. Take your time. It takes a while to get back on your feet properly. Like Karen and Janet I had a third nerve palsy of my right eye and had to wear an eye patch for 3/4 months post SAH. If I do too much reading or on the PC my right eye starts to go a little hazy so its best to take things slowly. These things take a long time to heal. Hope you both continue to get better. Big hugs Lesley xxx
  10. Hi Evelyn Yes, mine was quite bad post SAH and operation. It did get better over time though and don't remember it happening for a while. John: so sorry you are still waiting for your operation. Hope you get called in soon. Big hugs Lesley xxx
  11. Hi Caroline Yes, me too. It was terrible post SAH and operation. I couldn't lift my right leg up to go up the stairs and had to pull myself up on the banister. Did a lot of damage to my shoulder and neck which took the strain. It did get better over time though. Now and again when I've overdone things, my right leg can be definitely weaker. Hope you improve with time. Yes, and like Donna, it does help if you put your feet up and rest when it gets bad. Hugs Lesley xxx
  12. Hi everyone Just wondered if anyone else has been having a similar problem to me. It has happened countless times post SAH and what brought it to mind to mention it on here was on the Green Room today someone (sorry can't remember who - short term memory shot too these days - hope you are okay) mentioned dropping a knife on their foot. Not all the time, just now and again, when I'm doing everyday tasks, washing up, picking stuff up, even filling a hot water bottle its as if there is a brain lapse or something happening and I don't complete the task/movement. One example: filling a hot water bottle, its as if my mind jumped off to the next task in hand and so I didn't complete the task of putting the stopper in the bottle, then went to push the air out (like you do) and find I nearly scalded myself. Another time, filled up a cup from the kettle and somehow never got the kettle back properly to its cradle and dropped it on the floor (thankfully it wasn't too full and as I leapt backwards I didn't get scalded). It just occurred to me too, that it mostly seems to happen when passing an object from my right hand to my left. Yes, that would explain it better I suppose: if I don't completely concentrate on what I'm doing when passing an object from my right hand to my left, something blanks out and I don't complete the movement. (Hope this makes sense). There have been many other instances too numerous to list. Just wondered if anyone else has had this happening? Love Lesley xxx
  13. Hi Viviene My main aneurysm (coiled) was right posterior communicating artery (not far behind my right eye). My untreated one, is off the middle something or other artery (told would only be able to get at it through my skull. But as its quite small they are going to keep an eye on it. The neurosurgeon also said that most aneurysms are congenital (born with them) and as one has only just ruptured at the age of 60 - chances are the other one won't ever rupture. Also bearing in mind, I did have a really bad blow to the head about 4 months before my ruptured aneurysm. Like everyone else on here: atmospherics (low cloud etc), tiredness, aspartame or any of the synthetic sweetners, caffeine etc are culprits when it comes to the headaches. Just had a bad weekend with leg pains, bad neck pain and the artery on which the aneurysm was coiled pulling and throbbing. (Thank goodness its all cleared this morning, was getting quite worried). Just for the record just realized only this weekend that a lot of the probiotic yogurts have aspartame in them. (Spend a lot of time in supermarkets reading labels - I know, sad isn't it!). Hugs Lesley xxx
  14. Hi Karen I like many on here, slept for England for 3/4 months post SAH. Also had a nap most afternoons around 4pm for an hour. Strangely I hardly seem to dream at all anymore, which is odd. None that I can remember anyway. Although seem to go into a sort of reverie/dream state in the early mornings before I wake up properly. After 3 or 4 months post SAH though, I seem to have developed a sort of anxiety attack quite often just when I thought I was dropping off to sleep. And have to get up, make a drink/biscuit and perhaps read for an hour then before I can get to sleep. After doing far too much with my Mum/Dad etc these past 5 months, I'm back to having a lie in the mornings and a nap some afternoons about 4pm. Big hug Lesley xxx
  15. Hi Karen Mine was Post.Right.Comm.Artery Aneurysm (coiled) The aneurysm had ruptured. No idea what the coil was made of. I was 60 years old. I also have a small aneurysm off a right sylvian fissure arising from the middle cerebral artery (cannot be coiled apparently - would have to be clipped if it ruptured and is in a dangerous place). Big hug Lesley xx
  16. Dear John Can't believe you're still waiting for the recoiling - it seems months and months ago when you first posted about it on here. Sorry to hear about the diabetes too. If its at an early stage I think they can help you to bring it under control fairly quickly. Not sure about Mutti's post about SAH survivors getting diabetes sooner or later though. I've never read that before and believe me I've read just about everything on the internet about SAH and recovery. It was my understanding that diabetes is becoming a big problem in the West because of our diet and that more people are getting it because of that. I also recall reading somewhere that one type of diabetes is age related. But think perhaps you had better get direct information from your GP or here on the internet from a medical website about diabetes. Hope you feel better soon Big hug Lesley xxx
  17. Hi Prue Not been on here for a while been very busy. I'm just had my 1 year SAH anniversary. (I'm 62 next Feb - so no spring chicken). And whilst not totally back to my old self I'm nearly there. Like many on here I had an eye patch on for about 4/5 months I think before I could use my right eye properly. Like Karen and the others are saying: its very early days for you in your recovery. 12 months on, my right eye is fine (although it does get tired at the end of the day). I've been back driving for about 6 months. (Not good driving in the dark though). My balance got better once the eye patch was off and I was using my right eye all the time. I spent hours and hours on this website once I'd found it and there is a wealth of information on here. Good luck with your continued recovery. Big hug Lesley
  18. Hi Karen Fatigue was a big problem in the first few months. Had to lie down after completing a few tasks say like having a bath or washing my hair, washing up etc. It gradually improved over the months. The past 2 or 3 months have noticed I've had the odd day were I've not needed my 4:00 pm nap and gone straight through until bedtime (watching tv or reading in the evening though - not running around). But still think the bad heads and fatigue are effected by the weather were I'm concerned. Bad head today and very tired and its low grey cloud overhead. Love and hugs lesley xxx
  19. Hi there I think everyone has pretty much covered everything here. I'm 10 months post SAH and we went to Dorset last week for a short break. The motorway journey home last Friday was a nightmare with the weather and driving rain etc. It has taken most of this week to recover. Ended up last night crying my eyes out in the back garden. So I think frankly I'd overdone things. Karen sums it up: extreme bone weary fatigue (coupled with being very emotional) is our brain's/body's way of saying STOP. Big hug Lesley xxx
  20. Oh dear John! Hope it gets sorted out promptly on Monday Big hug Lesley xxx
  21. Hi John Hope you get good weather for your 60th combined bash. We're supposed to get an Indian Summer again this year. Bl**dy hope so after the summer we've all had. Hope you get some more positive news from the neurologist at a face to face appointment. I'm assuming that the info that has been passed on to your GP was from the neurologist after a MRI or CAT scan? Re the exhaustion though, it could be the damn weather you know or a viral infection or something. Has your GP actually given you a blood test to see if you are lacking any vitamins or minerals? Big hug Lesley xxx
  22. Yep, me too. If I'm bored I start eating biscuits or cake (or even chocolate!). Think partly its because I stopped smoking and I'm used to an oral comforter when bored or stressed. Might consider getting a baby's dummy Big hugs Lesley xxx
  23. Hi there Yes, I'm in the same club: I was skinny/sinny before my SAH, now have put on 1 to 1.1/2 stone in weight. Have turned into a tellytubbie. I think it was all the lying around in bed, on sofas etc for months when I first came home and eating a lot of sweet stuff, cakes, chocolate and sweeties which I craved when I came back home. Also all my life I've run around like the proverbial chicken: and have slowed down considerably post SAH. Mainly 'cos I go very dizzy and nauseous if I do things too quickly these days. Even getting up off the sofa quickly makes me go dizzy for a moment or two. I bought a hula hoop the other week but haven't tried it yet. Trouble is I don't have a waist anymore to make a start swinging it around. Oh well, just hold on the fact we're alive and kicking and a fat tummy isn't the end of the world. Big hugs Lesley xxx
  24. Hi Donna Everyone's recovery takes a different amount of time. I'm 8 months post SAH now, and still have days when you'd think I'd just left the hospital - had a few the past few weeks because of the atmospheric pressure of low cloud, overcast and grey. (Even though its warm the past few days and this morning, its still very low pressure here and I keep getting piercing nerve pains behind my right eye). Re: returning to work, I really should try and do a few days later in the year 'cos quite frankly we could do with the money. But right now, even having had an afternoon with a couple of girlfriends, the next day I'm wasted, so in the immediate future it really isn't an option. Take your time, see how you go. As Sami says, you are very early in your recovery... Listen to your body, if it starts to do strange things, weird pains etc, you've been overdoing it, its as simple as that. It puts out strange pains etc to MAKE YOU STOP! Big hug Lesley xxx
  25. Hi I was prescribed an epilectic (spelling) fit tablet for my neurological pain behind my right eye/back of neck. I didn't get them in the end, because I just didn't want to go down that route. Also I strongly believe all this stuff has side effects of some sort or another. I find that Neurofen is the best for me. Big hug Lesley xxx
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