Seeking other RCVS survivors, post-partum

[BethB]

My NASAH happened nine days after my daughter was born in July 2016.  

 

I then had severe cerebral vasospasms while in the ICU and   twelve days after that, many pinprick strokes.

 

This was diagnosed as hormone-induced RCVS, or Reversible Cerebral Vasospasm. 

 

I'm a year out now, and am still struggling to conquer aphasia and rebuild muscles while raising two small kids (three and one).

 

Are there any other RCVS survivors out there? I'd really like to connect.

 

Thanks,

Beth

 

[subzero]

Hello Beth, a warm welcome to BTG.

 

You will receive much support from members and also from reading the comments on the various Forums within the site.

 

As far as your immediate RCVS question is concerned, please use this link which you may find helpful.

 

http://web.behindthegray.net/search/?type=all&q=RCVS

 

Another way to find this information is by keying RCVS in the search box at the top right of the home page.

 

Please continue to ask any questions which you feel might help you on your recovery journey.

 

 

Subs

 

 

 

 

 

 

[BethB]

Thank you, Subs!  I have just now found someone with a story very, very similar to mine.  It's extremely encouraging to be able to connect with this community.  I deeply appreciate this site and your help.

[subzero]

Thanks Beth .... it makes such a difference when you know you are not alone in dealing with a condition that only those who experience it and their carers understand.

 

Take care

 

 

Subs