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subzero last won the day on September 13

subzero had the most liked content!

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About subzero

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    Senior Member

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    Sport-(watching rather than participating now)Football, Golf, Athletics

    World travel

    Reading-Gardening-Having a latte as often as possible with my wife (she had SAH 5/2011)

    Late learner for Washing & Ironing, Hoovering, Dusting, Washing up-

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  1. subzero

    Headaches after SAH

    Hello and also a warm welcome to BTG. So sorry to hear that your husband recently suffered from a SAH. While we do not provide medical advice, you will find much help and support from the members of BTG and from reading the personal recovery experiences within the various Forums. It is very early in your husband`s recovery and during those first few weeks and months, the extent of any post SAH issues start to become apparent. This will depend on the severity and positioning of the bleed. As you read the Forums you will discover that there are other side effects such as fatigue, memory loss, personality issues and low tolerance threshold. Please be aware that should he display some of these, time and patience are so important to ensure a best outcome. SAH recovery is likely to have many challenges and few survivors make a complete recovery. You mention headaches, and by coincidence, the Forum below this one has a current discussion on the subject which I am sure you will find helpful. http://web.behindthegray.net/topic/7185-headaches-and-nasah/?tab=comments#comment-129762 Please ensure that you also have plenty rest and support as you take care of your husband in these early months Subs
  2. subzero

    Headaches and NASAH

    Hello Charlie Sorry to hear that these headaches are giving you no relief. As already mentioned in your earlier thread, there are many members who suffer headaches of varying degrees of severity and length post SAH and NASAH. Are you keeping well hydrated with plenty of water, and are you resting well throughout your day? Don`t ask too much of your brain and body in these early days. The following link gives you access to many comments on how others have dealt with constant headaches. I hope some of the content will be of help to you. http://web.behindthegray.net/search/?&q=headaches&search_and_or=or Take care. Subs
  3. Good morning Joe, and a warm welcome to BTG. You are in good company here, and while we do not give medical advice, you will benefit from the wealth of information within the various forums. Reading the experiences of how our many members have faced their SAH recovery challenges will be invaluable to you in understanding how to deal with your own recovery. Sorry to learn that your SAH was caused by an accident. The many issues you have mentioned are common to post SAH survivors. The severity and location of your bleed will obviously play a part in the extent and speed of any improvement. You are young and your age could well be a help and a hindrance. It is understandable that you want to focus on getting back to where you were before the accident. You would naturally expect to recover quicker. Had your injury been a broken leg or arm, this would have been the case, however your damaged brain does not recover in this way. The harder you try in these early weeks and months the more frustrating recovery can be and these headaches, fatigue, memory issues and lack of self control will all become more prominent. Leading to longer set-backs and disappointment and yes perhaps even depression. How quickly did you return to work and did you phase your return over a realistic period while being flexible if things were getting tough for you? During the first year post SAH, having patience and getting plenty rest are so essential to your progress. Your brain and body need that healing time. Did you have Occupational Health support from our employer? Did you discuss your situation with your colleagues. So often it can be the case that because you look ok to them, they are totally unaware of the major issues going on within your head as you deal with the pressures of work both physically and mentally. Getting them on your side can make a great difference. For example ask them to tell you when they feel you are showing signs of frustration at your work. Keeping well hydrated and taking that time to rest when you feel you are putting too many demands on your brain and body … these are so important. Do you have a good support from family and friends? Sharing your anxieties and fears with them will also help. I am sure other members will share their thoughts with you. Please take time to delve into the various forums and also look in to the Green Room for some light hearted banter on things other than SAH. It helps put everything in perspective when you know you are not alone in your challenges. Take care, and don`t think of giving up. The more you understand about SAH the better your chances of dealing with it positively. Have the courage to accept that some things will take time, and other issues may require you to accept them and adapt your circumstances accordingly. Subs
  4. subzero

    My experience - Mandy

    Hello Mandy and a warm welcome to BTG. While we do not provide any medical advice you will find much support as you read the various experiences of our members who share their personal recoveries. This link will help you find those that relate specifically to an SAH caused by an accident. http://web.behindthegray.net/search/?&q=accident&page=3&search_and_or=or So sorry to learn of your involvement In the serious car crash that caused your SAH. Trauma to the brain results in many and varied after effects. You have listed several. Changes in emotion, mood swings and fatigue are common to survivors. Many of our members do make progress although every situation is unique. When your doctor states that the damage in your case is irreversible, perhaps you can talk to him about the reasons behind this rather `final` diagnosis. How long is it since you had the accident? Have you seen any positive changes since you were discharged? Please talk about your feelings and concerns with your partner and friends We look forward to hearing more from you. Subs
  5. Hello Valene. You mention your sight difficulties. Mrs Subs had reduced vision when she was discharged five weeks following her SAH. She was advised to visit her optician to have her eyesight professionally checked. The optician was able to see blood in her eyes (caused by her SAH) and made an immediate referral to the hospital Eye Clinic. This was a very thorough `One-Stop` clinic where all checks and results were done and results acted upon immediately. It took several hours to complete all the tests and receive the professionals` advice along the way. The outcome was that they felt that her eyesight would improve over say three months and she was asked to return then. Pleased to say that on the return appointment, her eyesight was much improved, and the blood particles had cleared allowing much improved vision. Everyone is unique in the aftermath of SAH but we were delighted to see this improvement in her case. Hope your own vision improves in time. Subs
  6. subzero

    1 year today!

    Hello Clare and also well done one year post SAH. Great to hear you are back at work. Take care and treat yourself kindly. Enjoy your `celebrations` tonight. Subs
  7. subzero

    3 years and counting....

    Hi, well done three years post SAH, and thanks for your kind comments about the BTG community. It is great to have you as part of that community and we always welcome your comments too. Best wishes as you continue your progress. Subs
  8. subzero

    New - Reassurance Needed

    Hello, and also a very warm welcome to BTG. While we do not give medical advice, you and your wife will find so much helpful information, support and reassurance from the wealth of personal experiences posted by our members (both carers and survivors). I do hope your wife will eventually take time to read some of the experiences in the various forums. Firstly, as you say, the past six months have been an incredible journey for everyone involved. The emotional highs and lows … the feelings of helplessness, the despair of trying to work out a plan for the future when your `normal` has been so cruelly taken away from you. You have done so well so far by being there for her and your children. It is good that your families have helped you through these early weeks. But now six months on … it is back to you and your family unit … and you are the one trying to piece a seemingly impossible plan for your future lives together. One thing is certain …. your wife needs help. She cannot recover well while trying to keep a home with four young children. Her body and brain need time to heal Being home with so many responsibilities is a frightening experience for her. The damage caused to her brain means her normal thinking and decision making pathways are confused and trying to discover new ways of communicating together. Yet to others she may look ok !! As far as trying to mend her `relationship` with you is concerned …. this will probably be farthest from her mind. She is confused and needs whatever time it takes to try and heal. When she looks exhausted and fatigued …… she really is exhausted and fatigued !! You have done well being there for her, by taking leave from work … but you too need to get back to work for so many different reasons. Is there any way you can find a `live-in` nanny cum house keeper for a year to give yourselves a chance. Please don`t give up …. we want to help and support you from afar. You are all on a long journey and you have survived the initial traumas. Please ask your wife to look in to the site … it will give her that encouragement that she needs from knowing that others have also survived and their different stories will help. Take care Subs
  9. subzero

    Road trip?

    Hello Valene and also welcome to BTG. Life and recovery after SAH/ NASAH is unique to each individual You will read again and again on this site that time and patience are so important so that your brain and body can begin to recover. While having a trip with your young family is nice, you have to consider the likely reaction you will have to the trip. A lengthy road trip can be exhausting in itself and if you are trying to keep up with your family on the holiday, the last thing you will want is to be a burden to them. Ideally when you are only six weeks post bleed, a short break where you are not pressured and can spend time resting while the family do their pursuits, would be a much wiser course for you to take. Depending on the distance ….. also consider advice from your medics who know your condition. On the bigger picture, recovery can be a long journey and for a better outcome always be kind to your brain and body and give them time to heal. I hope you make the decision that is right for you. Subs
  10. subzero

    My flight adventure

    Hello Louise Also many thanks for sharing your overseas wedding experience. Well done, and so glad you had such a wonderful time with friends and family. As SM says, I hope this will be the start of a new chapter for you and Ronnie as you both plan your next trip abroad. Lovely photo of you and Ronnie. Ask Ronnie if it as rather warm in the kilt. I know that in our much milder climate, a day spent in the kilt involving evening dancing can get rather heated. You did great. Subs
  11. subzero

    Post sah

    Hello, BTG added a new forum recently to help answer questions about driving after SAH http://web.behindthegray.net/forum/23-driving-after-sah/ If you have any questions please don`t hesitate to post again. Subs
  12. subzero

    New here, comfort and advise please

    Hello Linda, also welcome to BTG and thanks for sharing about your mum. Glad she is making progress and is in good hands. The situation we find ourselves as `carers / immediate family` is that we want our loved ones to recover as quickly as possible, they also want to get life back to what it was.... however their brain which has been traumatised and their body which has been greatly weakened by the SAH, need time and patience to heal in their own time. Progress has its highs and lows and there are short and long term issues to deal with as they arise. Keep strong for mum … she values your support as she battles to get better. Subs
  13. subzero

    8 years.......

    Congratulations one eight years post SAH Janey. Well done on persevering all these years and finally finding a job and an employer sympathetic to your own stage in recovery. Accepting that you have to settle for what you are able to do rather than what you were very capable at doing before SAH is never easy and most survivors face this dilemma at some stage in their recovery. Thanks for sharing and best wishes in the days … years ahead. Subs
  14. subzero

    Kay - new member

    Kay … congratulations to you both. Subs
  15. Hello Jeff … thanks for your update. Glad to hear your cerebral angiogram went well. Great advice from your consultant on your discharge ten years ago. Subs