Bev75 Posted October 8, 2020 Share Posted October 8, 2020 Hi guys, Wanting some advice please. My last update, I had a lumbar shunt fitted in March this year, where I suffered some awful low pressure symptoms due to the shunt over draining. The whole nation went into lockdown, where I had to endure these horrible symptoms until it was safe for me to go back into hospital. CT scan showed I'd developed slit ventricles due to over drainage. The neuro surgeon decided to tie off the troubling lumbar shunt and leave it in as a back up. He added a further Ventricular Peritoneal shunt, having to go in free hand using ultrasound as my ventricles had become constricted. I only found this out after the surgery, I'm now back in high pressure, hydrocephalus symptoms are being troublesome again. And I'm really having problems with stabbing pains in my tummy and right side where my rib cage on my side. I'm feeling the tubing, I'm having to use a hot water bottle everyday to help with the discomfort. Some days I feel tubing in my neck go taught and get pleuric pain in my ribs and right shoulder. I've been trying to put up with it, but after 10 weeks, it's just not settling. I'm waiting for my appt to go back in to have the shunt setting lowered, should I say something and request an ultra sound on my tummy to have the distal end checked out, I'm in so much pain, I literally can't do anything. Would really like to hear your thoughts from you guys in the shunt club xx 1 Quote Link to comment Share on other sites More sharing options...
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