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It's been almost 2 months, and this week out of the blue, I had a grand mal seizure. Woke up in the hospital and had no idea what had happened. I was sent home on Keppra 500mg twice a day. Hopefully I won't have anymore. At this point, I just want to recover. I'm feeling good, not 100% yet but getting there.     

 

It was on July 17th. I'll never forget. My hubby and I went out to our 2nd date spot. We were feeling romantic and had a blast. Funny though, he had a Martini and I had water with a lemon wedge. We came home and got in bed. Did what in love married folk do. At about 3:30 a.m., I felt this sharp stabbing-like pain on the top left side of my head. It was like no other pain I had ever felt.

 

I sat up in bed and leaned to the other side hoping it would stop. No such luck. So I got out of bed and sat on the couch holding my head. My hubby suggested I take an advil so I took 2 and laid back down. The pain did not improve. It began spreading to my neck. 2 hours later, we called my brother in law and a told him what was happening.

 

My speech had become slurred so he told us to rush to the hospital. A CT scan revealed a hemorrhage on my brain. The E.R. doc told me I would be going to surgery right away. I woke up in recovery after having coils placed in the artery. Spent 10 days  in ICU and was released home on Nimodipine.

 

For about a year prior to this experience, I had been experiencing weird symptoms. I would break out in an intractable itch on my skin, headaches constantly and just feeling weird. Went to docs, allergists, acupuncturist... I thought the symptoms could've been from dental implants one year prior to this. Nobody could tell me why. Some thought I had contracted fish poisoning while others thought I had developed allergies. 

 

After the SAH, these weird symptoms disappeared. Now it's all about recovering! Gotta get back to my old self again...

 

It's been almost 2 months, and this week out of the blue, I had a grand mal seizure. Woke up in the hospital and had no idea what had happened. I was sent home on Keppra 500mg twice a day. Hopefully I won't have anymore. At this point, I just want to recover. I'm feeling good, not 100% yet but getting there.     

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Tina

Posted

Hi Georgia gal :) a very warm welcome to BTG!

Thank you for sharing your story.

 

So sorry to read you have had a grand mal seizure after your SAH.

Really hope that you will start to feel a little better and wish you well with your on going recovery.

You have come to the right place for lots of helpful information and some great friendly support.

 

Glad you found us and look forward to hearing more from you.

Take care

Tina xx

  • Like 3
Georgia gal

Posted

Thanks Tina! So many answers here! So many humans like me! looking forward to hearing and more sharing!

  • Like 4
ClareM

Posted

Hi Georgia gal

You have come to the right place for sharing and answers.

 

Sounds like you have had a hard time of it but are getting there. It takes time, a lot of time, much more than you expect. But you will feel better eventually, you are still early days and also adjusting to your new drug therapy which will take time.

I'm now 19 months down the line and only just now feeling more positive about everything. I have learnt how to deal with the fatigue and darned memory problems but still feel I have a way to go till I perfect that! It's so easy to think  'yes I am fine, I can do that, no problem'. Then the realisation that maybe it's not that simple. But failure doesn't need to be just that, it can be a lesson on how to do it better next time.

 

I hope you continue to feel good and that life returns to near normality. It will take time and you will learn a new normal but you will get there.

 

Clare xx

  • Like 2
Winb143

Posted

Hi Georgia Gal,

I have had epilepsy since puberty, they got less and less but since my bleed the epilepsy has become stronger and they are horrid things to have.

 

Lots have to give their license back but get it back after a period of time. I had my bleed in 2009. age 63/64. (young un lol)

 

Get your medication right first and Good luck on your recovery xx  Epilepsy is scary and I was okay up until Docs  said I needed

a higher dose and I told them no I haven't had a fit for 6 years, they insisted and I felt like a zombie so they took me off them without slowly lowering them and I had a fit !!   My first after 6 years !! I was devastated. even though I had them since 14.

 

Hope you get better and better with each day that passes and any worries or to just give vent,  BTG is the place to be/come.

 

My Surgeon told me never stress so to stop stressing I sing !! Drives family potty lol and that's when you know you are getting better as the "pampering you" stops ha.  Good luck and keep a smile nearby it really helps xxxxx

 

All the Best

Winb143 xx

 

 

 

 

 

  • Like 2
Georgia gal

Posted

You guys are AMAZING!  I don't feel so abnormal now!  I was doing my research and think my problems may be due to my dental implants. Got them a little over a year ago...

  • Like 1
Irene

Posted

Hi Georgia Gal,

Just reading there about how you wonder if your dental implants could have anything to do with your situation.  I am interested in that.  I was a dental nurse and just take all dental issues as normal but I am going to ask my dentist and my neuro consultant about dental extraction.

 

I had a rather difficult extraction from my lower right jaw February 2015, I had constant pain after and in the end got my dentist, (who had been my employer a few years ago), to make me something to go into the space as my jaw constantly ached. He made me a one tooth denture, which gives me relief when I wear it, but aches in the jaw when I don't.  I unfortunately had my Perimesencephalic bleed on September 9th, 2015, prior to the denture being completed, the bleed was on the right side at the back of the head.  

 

On getting a dental check up this year I told my dentist that I still had jaw ache where the tooth was extracted and he said I could possibly have suffered nerve damage due to the awkward extraction.  I can understand that, but have often thought nerve damaged was usually associated with numbness along the side of the face and it generally comes back to normal after a year.  It made me think.

 

I have to have repeated MRI scans due to an area which has shown up as "signalling" in the cerebellum, located around the area where I still get consistent head/neck pain since my haemorrhage.  I am now wondering could this possibly all be linked?  My dentist did offer an implant but I said I have had enough pain since the tooth started it problems until now that I don't want to put myself through anything more at the moment.

 

It does make you think if anything can be connected.  Have you found any good websites to look up information on these matters.

 

I am so sorry to hear about your epilepsy and having to struggle with all of that.  It makes life so very hard for you as I am sure you will be off driving again with it all happening.

Take care and keep checking in,

Regards,

Irene 

  • Like 3
Winb143

Posted

Now we have each other on BTG watch your troubles diminish as a trouble shared is a trouble halved

 

I have come on here all down and left laughing, of course the family think I have lost the plot lol but a good laugh can help us feel so

much better.

 

I had implant as the pills / Epanutin  made my gums shrink,  hence teeth have gaps and some just fell out, I paint a pretty pic of myself  ha

 

Hope to see you in Green room for every day chit chat soon xx

Be Well All. 

 

Win xxxx

 

  • Like 2
Georgia gal

Posted

YES! The most important thing here is that we have each other! Let's BUILD on this! My entire outlook has changed! I cherish every soul! So happy to be here! For the first time post SAH, I went walking. It felt so good and energizing! Gonna continue and build on it.

  • Like 4
Winb143

Posted

Put me to shame lol ..I was going to walk around a supermarket and make it my aim as I wont get an electric one or I'll never walk,

also scared I might hit someone lol xx

 

Keep happy and remember we will have great days and some rough days.  Just when you feel down come on here and we will give you our opinions lol.  Or I'll type one of my Families songs out and we don't want that as I type off key xxxx

Remember be Happy as when  you are smiling you cannot be sad xxxx  Must be true heard it on the net xx lol

 

Love to All

Win xxxxxx

  • Like 1


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