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ClareM last won the day on August 7

ClareM had the most liked content!

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About ClareM

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    Super Moderator
  • Birthday June 23

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    Portsmouth UK
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    NASAH Feb 2015 with Hydrocephalus and EVD

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  1. Hi Margaret I work as a health professional for the UK NHS. I moved into this employment after my NASAH 4 years ago, as working in community was too stressful. I have never worked full time hours since my bleed, I think I would find it very hard. I started back doing 34 hours a week and currently do 30 hours a week over 4 days with a day off mid week as a recovery day. I am currently contemplating dropping another day...... In answer to your question does anybody work full time in the health profession after a NASAH - I don't know. I have been told that not many people return to full time work post bleed which I find hard to believe. However, in my experience, and I have made a good recovery, I think it is hard. Long hours may not be your best friend, how many hours at a time have you been doing so far? You would need to factor in regular breaks and a good work schedule which allows recovery. I hope you manage to come to an acceptable plan with your employer, keep us posted! Clare xx
  2. Hi CM Behind the Gray is a UK based online support group but we have members from all over the world. There are lots of tips and advice on the site and hopefully some members from Canada will see your posting and get in touch. You are still very early in your recovery, please don’t rush back to work, 3 months is quite soon. Phase back slowly and consider reduced hours. What is your employment? Feel free to ask any questions on the site there is always someone there to help with their own advice and experience. take care Clare xx
  3. Hi Lori, thanks for sharing some of your story. My bleed happened too when I was exercising but I have been told that it would have happened without. I have actually found exercise to be my saviour in my recovery so when you are feeling better and your vision has improved speak to your healthcare team about getting back to it. Take things slowly you are very early in your recovery, and drink plenty of water it really helps with the headaches. Clare xx
  4. Happy anni-versary Colleen, hope the tooth extraction was painless! xx
  5. Hi Ami, I too have eye twitching, not very often though. I had it pre my SAH so can't relate it to that. I do get it when I am tired though and as fatigue is such a legacy of SAH maybe that's why it is happening to you. It may be worth a check up with your optician, hopefully he can put your mind at rest. Clare xx
  6. Sorry I missed your anni-versary yesterday Louise, a lovely posting from you. So glad you found BTG and are part of the family. Hope you and Ronnie had a lovely evening and you are enjoying the champagne and chocolates. Clare xx
  7. Hi Sarah I too have problems with attention deficit, it is one of the most lasting legacies of my bleed. I have difficulty paying attention which means I forget things. I thought it was my memory and while this plays a part, more importantly for me, if I am distracted I have difficulty refocusing which is all to do with my ability to pay attention. Get your Gp to do a simple blood test, that will tell if you are perimenopausal (in the period prior to menopause) and may give you some of the answers you are looking for. I think your fatigue may well just be something left over from your bleed. I still suffer now, 4 years post, and find I have to rest more often. It is one of those symptoms that people who haven't experienced a SAH find it hard to recognise. When you see your GP to discuss your medication change, I suggest you ask for a test for the menopause and also for other diseases that cause fatigue such as thyroid. Hope you get some answers. Clare xx
  8. Glad you managed to get through the procedure Sarah, though it sounds very stressful. Hopefully the results will concur with what he has suggested, I am sure that will be a relief to you. Keep us posted and in the meantime relax xx
  9. Yes Sallios, I too don’t remember dreams. Have noticed that for the last few years. I also don’t remember what I have read if I read a book in bed at night. Takes me ages to get through a novel nowadays. Clare xx
  10. Hi Locotex, welcome to BTG, glad your wife found us and that you decided to join too. I had a very similar story to you and am now 4 years post bleed. I hate to tell you this but I couldn't drive 500km over 2 days even now, the concentration would probably leave me floored for a few days. I presume you are not in the UK as if you were your licence would have automatically been revoked for a minimum of 6 months after the EVD (temporary drain) placement. I actually didn't drive for 10 months post bleed and even now don't drive much. To put it into perspective I drove 20 miles (admittedly in very heavy traffic on a motorway) a few months ago and actually cried when I got there. It was just too much concentration needed and when I got there I spent the whole day worrying about getting back! I think you need to stop expecting so much of yourself, take things a bit slower and don't push. Start slow and gradually increase what you do. Expect to feel floored on a regular basis and try and learn from your mistakes. I went back to work after 6 months but over the last few years I have changed jobs twice and reduced hours too. Even now I think I push myself too hard and should do less but I am a very driven person and it doesn't sit well with me cutting back. On a positive note physically I have re gained my fitness and regularly run 5 miles three times a week with no problem, in fact it helps with the stress. Good luck with your recovery just don't push too hard! Your brain won't thank you.
  11. Congrats on your 4 year anniversary Chris. Good to see that you can still see improvements, I hope they continue. Keep on running my cross Atlantic run buddy. We are proof that you can get back and better to fitness! Clare xx
  12. Go for it Bri and enjoy that feeling! 😀 clare xx
  13. Sarah I do feel for you having to make such a decision. You have lived with this uncertainty for many years now and now it seems it’s crunch time. The only advice I can give is to trust your neuro team. They have kept you safe so far and only have your best interests at heart. I have a patient who needs a procedure that has a 15% mortality rate which he constantly focuses on. I have suggested he focus on the 85% he will get through it. Surgeons have to give odds so you are well informed and patients always fixate on the failure % not the success which in your case is so high. You survived the original event event that had a much higher risk of mortality so have trust. I hope your angio is soon so you can get a full picture to enable the team to help you with your decision. Take good care Clare xx
  14. Ben when you apply for travel insurance make sure you call them rather that doing online. Have you had an MRI since your bleed? I to had a NASAH and had one at 3 months post bleed. It found nothing and no cause for the bleed. I was given to go ahead to fly 3 months after my bleed by my neurology team and travelled to Spain soon after. Because my risk of a bleed is actually less than most other members of the public - due to a clear MRI - I have never paid anymore for insurance and have travelled far and wide since with nor problems other than fatigue. I am not saying your case will be the same but check. I think a lot of people who have had SAH with aneurysms that were clipped or coiled fall into a different category as I suppose there is always a chance theirs could rupture again. If there is nothing to rupture there is no more danger than anyone else who has never had a bleed. Or in my case less as they have looked at my brain and not seen any aneurysms. Phone around and see, I'd be interested to hear how you get on. Clare xx
  15. I had the same thing Bri and waited 10 months to get my licence back. Never heard it was due to possibility of seizures just knew it was automatic 6 month ban. You wont be be able to challenge it so unfortunately it will be a matter of acceptance. Hope your job doesn’t depend on a licence. Small consolation but you may be entitled to a free bus pass through your local council. Good luck Clare xx
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