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ClareM

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ClareM last won the day on June 8 2022

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About ClareM

  • Birthday June 23

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  • Gender
    Female
  • Location
    Portsmouth UK
  • Interests
    NASAH Feb 2015 with Hydrocephalus and EVD

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  1. As Sami says 3 months is still very early in your recovery. Make sure you drink plenty and get as much rest as you can. I do think you should have a chat with your GP though to put your mind at rest. Take good care and keep us posted Clare xx
  2. Hi Charza and welcome to BTG. Sorry to hear about your bleed and also about your sleep issues. I too suffered a NASAH but have not had sleep issues since relating to the bleed. My sleep issues are related to stress that I am prone to now. Possibly a chat with your GP would be helpful as suggested by the Neuro nurse, it is getting easier to make doctors appointments now. You don’t mention how long ago your bleed was. If recent, it could still be the blood dissipating down your spinal column but you should get it looked at. Take good care and come back to let us know how you get on Clare xx
  3. I can’t say that, you need to speak to your GP. Sorry can’t help more xx
  4. That does seem like a high dose of Candesartan. I really think you should give your GP a call. It may be that’s what you need but I’d certainly get it checked out. Do it before Christmas Lynsey just in case it can help at all. Although I am a healthcare professional I’m not qualified to give advice so please call your doctor and ask them xx clare xx
  5. Hi Lynsey just out of interest what blood pressure medication are you on? I’m a pharmacy tech and could ask one of the pharmacist s I work with if tingling is a side effect. I am sure stress and anxiety aren’t helping either. Just try to keep in mind the chances of this happening again are extremely small. Clare xx
  6. Hi Lynseylou welcome to BTG. Sorry to hear about your SAH have you thought about putting an intro in the Introduce Yourself forum? It’s good to hear individual stories and you may get more response there. It is extremely unlikely for people to have 2 bleeds, that said it does happen. However you are on BP medication now which I hope should reduce that risk. The tingling may be a side effect of the new medication, maybe you need to have a chat with your GP. They can check things and give you reassurance. I know it’s hard to see a GP nowadays so if that proves difficult maybe a chat with the nurses at the team that treated you? Anxiety is very common post SAH, I suffered and found talking to my Neuropsychologist really helpful. Don’t be scared to reach out for help, you’ve suffered a life changing event. Let us know how you get on. Clare xx
  7. Hi Holly sounds like you have had a really rough time. But how amazing that you have come through it all! You must be really strong. You are still early days in your recovery and to be honest it’s probably fortunate that you don’t have a job to think about returning to. That was my worst experience post bleed as it took so long to accept I couldn’t do the work I did before. Hopefully you will get back to doing the things you enjoyed before the accident. I’m fitter now than I was before as I have gone back to running and gym. I can’t help with your dizziness but hopefully someone on here will face some tips to help cope with it. Have you tried the charity Headway for some support? Congratulate yourself on coming as far as you have in such a short time. Clare xx
  8. I once had a conversation with a brain surgeon about my NASAH. He said it was more than likely caused by an aneurysm that blew itself out leaving nothing to see on the angiograms I had. My bleed was very large and caused hydrocephalus too requiring a temporary EVD. I have never had any previous history of concussion. Clare xx
  9. Sorry late to the party Jess! Happy anni-versary, you have done really well and should be proud of your family. xx
  10. Sorry missed your anni-versary - congratulations! Hope you managed to get your scan, always good to get some peace of mind. 8 years for me too last February, amazing how time flies! Hope you are well xx
  11. Hi Jo, I echo Sami's words totally. I too lost a lot of friendships post bleed, but I have made new friends. They didn't know me before the haemorrhage so accept me as I am now, not how I had been before. I too looked very well and everyone used to say how well I had recovered. Little did they know what was going on really and how I was struggling. My mood was affected and I have been on anti-depressants for some years now. I hate taking them though I know I need them, but as Sami says if you had a headache you would take a tablet, what's the difference? They keep me on an evenish keel so for the time being I'll stick with them. I'm now 8 years post NASAH and sometimes forget how tired I still get. We went to the IOW recently for a family break and I was exhausted afterwards. We walked and talked so much that it must have just worn me down and I forgot that I need to still take regular breaks. I needed a few days afterwards to get over it! Pushing myself is one of my major downfalls, particularly at work. If you can try and step back a bit it will help but sometimes your characteristic traits are so strong that it's hard to do this. Just bear that in mind, your mind may tell you that 'of course you can do that' while your brain is saying ' slow up - I'm struggling' Hope everything goes well at your follow up, keep us updated. Clare xx
  12. Hi Karin, a lot of my job involved computer screens but it wasn't just that that made me decide to cut my hours. I just couldn't cope with the overall fatigue which I'm sure you're suffering with. You may attribute it just to the computer but have you considered that it may just be work. Full stop. As others have said taking regular breaks may help but it may just be that you need to think if you can continue working these hours. Sorry to sound negative, but once I accepted that I just couldn't cope with full time work things did become easier. I still get fatigued but that's because I push myself so it's almost self inflicted. Good luck with whatever you decide.
  13. Hi, congrats on year 1, you've made it and can tell the story. You are not alone in your struggle, there are many here who will identify with what you have and are still going through. Just remember we will all still be here in the coming years, ready to celebrate with each anniversary! Clare xx
  14. Awww Denise you sound so like me. Yes one step at a time and it will get better - but you need to give it time. I'm 7 years out and still struggle with the cereal dilemma 😂 Clothes shopping is a nightmare, I lose interest very quickly and struggle to focus. Hence online shopping is much easier - not so much sensory overload and I can take my time. I too went back to work too soon but that was due to financial reasons - I was only paid for 3 months. After lots of changes with hours and employees I now work 3 days a week, Tues, Thurs & Fri. Giving me plenty of recovery time, but I will say I'm floored on a Friday after 2 days solid. Things do get better with time but also it's then easy to forget your limitations. Try and accept the new normal and work with that - something I am STILL dealing with. Take good care Clare xx
  15. Hi Jo, as Tina says warm welcome to BTG. You are really early days and I hope you are not thinking about returning to work anytime soon? Most people are recommended to take 3 months and then a phased return. I too was quite fit when I had my bleed at 55 in fact I was out running when it happened. It took me several weeks before I was able to go out walking alone and a few months until I ran again. I am now running up to 5 miles 3 times a week and attend a couple of gym classes too. I really think that the running has helped my mental and physical health though many people ask how I can run after having a bleed during running! Things will hopefully improve with time though maybe your current symptoms are are caused by you doing too much too soon. Try and make sure you get plenty of rest in between those walks! Take good care and keep us updated with your recovery. Clare xx
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