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ClareM

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ClareM last won the day on August 7 2019

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About ClareM

  • Rank
    Super Moderator
  • Birthday June 23

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  • Gender
    Female
  • Location
    Portsmouth UK
  • Interests
    NASAH Feb 2015 with Hydrocephalus and EVD

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  1. Hi Carolyn I too am a get up and go person and to put it straight I have struggled. Like you I had a NASAH with no physical deficits but the mental toll has been huge. I have gone from being a high functioning individual to someone always questioning my judgement and ability. Changed my job 3 times since bleed and reduced hours from 41 per week to 22. Fatigue is much better now but memory still bad - I appear to have lost the ability to pay attention and therefore often can't remember what I have done 5 minutes ago. My saviour has been my neuropsychologist who has nursed me through the last 4 years - metaphorically speaking. All that said though, I am physically fit and regularly run 15 miles over a week, physical activity isn't a problem. You are so very early in your recovery - take it slow and steady and you will in time find your new normal. To be honest I'm starting to accept mine at last - I think Clare xx
  2. Congratulations on your 5 years Andrea, just behind me. My husband made a collage photo of me for my 60th birthday, including photos of when I was a lot younger and one of ME in hospital - well he said it was a big part of my life. And so it was. Glad to hear your updates, you appear to be enjoying life up there in the isles! Clare xx
  3. Hi Kyle, welcome to BTG and thanks for recounting your story. I too had an NASAH with hydrocephalus as an added complication. Made it out of hospital after just over 2 weeks but I was lucky that it was not during Covid and my family were able to visit the whole time. However my friends husband had what sounds like a very similar experience to you and he spent 3 weeks with no visitors. He appears to be making a great recovery. Must have been very worrying for your family and lonely for you. Mind you if you were anything like me you probably didn't notice much of what was going on - I was asleep most of the time! Glad to hear you are making a good recovery with just a few blips. This is to be expected and will be made worse if you do too much. I think the problem is that as you feel better you do more which can then lead to being exhausted. Best advice I can give you is take everything slowly and leave plenty of time for rest periods. My bleed was over 5 years ago and even now if I push too hard I know about it. Take it easy, be kind to yourself, hope your recovery continues well. Clare xx
  4. No worries Rebekah it's a stressful time. Everyone googles but the advice we always gave our patients in the hospital I worked at was stick to NHS websites or those of charities associated with the diagnosis. 'Headway' and 'Brain and Spine' are good sources of info. The fact they are sending her back to a closer hospital sounds like positive news. Yes a subarachnoid haemorrhage is classified as a stroke. Take good care Clare xx
  5. Hi Rebekah A very scary and uncertain time for you. We can't give medical advice on the site but can tell you about our own experiences. My bleed was a NASAH with the complication of Hydrocephalus. I was in hospital for 2 weeks and remember very little of that period. I was in pain quite a lot of the time with headaches but this was managed with painkillers. Hopefully as mum was seen early in hospital she will recover, as there does not appear to be an aneurysm no surgery should be required unless she develops Hydrocephalus and needs a drain as I did. Have a good look through the posts in the Non-aneurysmal section of the site and read others experiences. However what you need to remember is that everyone is different and their stories vary. It will depend on how alert she is as to when you may be able to speak to her. My husband and family were with me all the time and say I was talking after a few days - however a lot of it was rubbish and I slept most of the time. I presume that due to Covid you are unable to visit? My friends husband had a NASAH in early April this year, she was unable to see him while in hospital but was able to skype call him - the hospital helped with this. He was able to communicate after a few days and has made a remarkable recovery with virtually no deficits, a very lucky man! Feel free to personal message via the site me if you would like more help. Just keep strong, look after yourself and be prepared to give Mum lots of support when she comes home. Be thinking of you. Clare xx
  6. Hi Alexis, it sounds like the after effects of your bleed. Can you tell us more about your event, when it happened and what procedures you had. Maybe then someone with a similar experience will be able to comment. I often had problems forming words post bleed - still do 5 years later - it is a common after effect. I have not had the 'full of water' feeling though I did often feel very unsteady . That has not gone away and I am not good when trying to negotiate narrow or precarious walkways. You should still be able to get hold of a doctor during Covid-19, they usually just do telephone consultations - try speaking to them. Take good care Clare xx
  7. Congratulations on your 6 years Michelle, I'm a few month behind you but understand when you say you can still see small improvements. Lovely that you have got to meet Jan and Andrea - lucky them enjoying your cakes. Hope you get to Lanzarote in 2023. Clare xx
  8. Hi Rajdeep So sorry to hear of your bleed while you were visiting your parents, must have been very traumatic for you and your family. I too had a bleed, 5 years ago. I have made an almost 100% recovery with just some minor deficits with memory and fatigue. I hope you manage to get back to Australia soon, I presume the health system there is better? Not sure what the Covid regulations are in either country but I am sure your husband is keeping an eye on that. Rest, drink lots of water and try not to stress too much as it won't help your recovery. Best wishes for a safe trip home soon. Clare xx
  9. Hi Matthew I am 5 years post bleed and still sometimes hit a wall with the fatigue. It's worse after a busy day at work, not physical work but when I have to use my brain, particularly if a lot of multi-tasking is involved. It would probably help if your wife could read others experiences, so if she could look at the site it may be beneficial. Also do you maybe need to take a look at your working hours - do you need to reduce? If financially possible it may be worth considering, plus it would give you more time with your kids. Maybe worth thinking about, I've gone down from 41 hours per week to 21 - big drop over many years but something I should have done years ago. Take good care Clare xx
  10. Hi Iola congrats on 7 years lovely to hear from you. I am not sure about stress causing a SAH but I am well aware of the effects of stress post bleed. I think Macca is correct with his delegation suggestion and it may be something to consider. I have had numerous problems with my return to work and a lot of it has been caused by stress. My neuro-psychologist has been very helpful with suggestions on avoiding stress and reducing working hours is probably the one that has helped most. Pre bleed I worked 41 hour weeks, since then I have gradually reduced my working hours and am just about to start a new job on 22.5 hours. Hopefully I will manage that until I retire. Although I initially fought against less hours as I considered it 'giving in', now I realise that it makes life much more manageable. Take good care, Clare xx
  11. So so sad to hear of the passing of the amazing Win. Always had a cheery tale to tell and positive words for newcomers. Our loss and a new angel for heaven xxx RIP Win xxx
  12. Welcome to BTG Mark , glad to hear you are recovering and learning the new way of your life. As others have said take things slowly and drink plenty of water. I echo what Subs says that a phased return to work is best. Not sure if you work from home but if you do make sure you are very disciplined when you restart. it’s very easy to overstep things without realising you are doing it when work is concerned. your brain will soon tell you though! Set yourself time limits and stick to them building up slowly. Physical exercise is good too. I have managed to get myself back to running and the gym. Just take it slowly - you’ll get back on that Peleton bike soon! You will get used to the new normal, takes a while but with patience you’ll get there! Keep us updated on your progress 😀 Clare xx
  13. Sad sad news Gem at a sad sad time. My thoughts are with you and your family xx
  14. Congratulations on your anni-versary Kathy. Good to hear that you are recovering well and enjoying the new normal. It certainly does take time and every year brings changes and often improvements. I'm 5 years out now and have forgotten how I was before though my family say there have been changes. Sounds like you have your work cut out looking after your two adopted children however it must be really rewarding - well done! Hope you continue to find support through BTG. Clare xx
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