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ClareM last won the day on August 7

ClareM had the most liked content!

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About ClareM

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    Super Moderator
  • Birthday June 23

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    Portsmouth UK
  • Interests
    NASAH Feb 2015 with Hydrocephalus and EVD

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  1. Go for it Bri and enjoy that feeling! 😀 clare xx
  2. Sarah I do feel for you having to make such a decision. You have lived with this uncertainty for many years now and now it seems it’s crunch time. The only advice I can give is to trust your neuro team. They have kept you safe so far and only have your best interests at heart. I have a patient who needs a procedure that has a 15% mortality rate which he constantly focuses on. I have suggested he focus on the 85% he will get through it. Surgeons have to give odds so you are well informed and patients always fixate on the failure % not the success which in your case is so high. You survived the original event event that had a much higher risk of mortality so have trust. I hope your angio is soon so you can get a full picture to enable the team to help you with your decision. Take good care Clare xx
  3. Ben when you apply for travel insurance make sure you call them rather that doing online. Have you had an MRI since your bleed? I to had a NASAH and had one at 3 months post bleed. It found nothing and no cause for the bleed. I was given to go ahead to fly 3 months after my bleed by my neurology team and travelled to Spain soon after. Because my risk of a bleed is actually less than most other members of the public - due to a clear MRI - I have never paid anymore for insurance and have travelled far and wide since with nor problems other than fatigue. I am not saying your case will be the same but check. I think a lot of people who have had SAH with aneurysms that were clipped or coiled fall into a different category as I suppose there is always a chance theirs could rupture again. If there is nothing to rupture there is no more danger than anyone else who has never had a bleed. Or in my case less as they have looked at my brain and not seen any aneurysms. Phone around and see, I'd be interested to hear how you get on. Clare xx
  4. I had the same thing Bri and waited 10 months to get my licence back. Never heard it was due to possibility of seizures just knew it was automatic 6 month ban. You wont be be able to challenge it so unfortunately it will be a matter of acceptance. Hope your job doesn’t depend on a licence. Small consolation but you may be entitled to a free bus pass through your local council. Good luck Clare xx
  5. Hi Ami Congratulations and well done for completing the half! I know how hard that would have been, my max is 10 miles. I din't complete that until 18 months post SAH so you've done brilliantly. I can only imagine how you felt when you crossed that line - I am sure there were tears. You should be really proud! Now have a good rest because I'm sure you'll be feeling it tomorrow xx Clare xx
  6. Hi Irene, statins and blood thinners are often prescribed after a stroke. If you are concerned go and have a chat with your GP. Welcome to the site. be good to hear more about you. Have you considered doing your story in the Introduce yourself forum? Clare xx
  7. Happy Anni-versary Andrea, always mixed emotions when that day comes around each year. Hope your scan goes well next week, must a a bit of a trip for you! I’m sure your mum will be with you in your heart. Clare xx
  8. Glad to hear you are making a good recovery. Take it slowly, the fatigue will be the thing to watch out for. It’s hard when you seem to be fine on the outside - on the inside your are still recovering so beware. Good luck with your appointment in September. Is there a nurse specialist at the unit you were treated who you ask about some gentle exercise before then? I can understand how frustrating it is not to be able to run! Clare xx
  9. Hi Bri welcome to BTG glad you have found us and are finding the site useful. I too too am a jogger, actually had my bleed whilst out running 4 years ago. Like you my bleed was non aneurysmal and I had an evd for 8 days - so a very similar experience. I was 55 at the time of my NASAH in Feb 2015. I started running again about the end of May 2015 by joining a C25k group building up slowly. This was after having an MRI and all clear to run from my neurovascular team. I gradually built up distance again taking it slowly as it was obviously a worry I would have another bleed - although the mri said I wouldn’t! I now run approx 5 miles, three times a week, with a group or friends. Have completed the Great South Run twice and intend to do it again this year. To me running is my saviour. It helps with stress which I suffer from at work and I feel I do it more for my mental than physical health. I can be brain dead after a working day but always feel much better after a run so I can understand how you miss it. Get the all clear from from your team, make sure you drink plenty whilst running and get back out there. Good luck, feel free to ask any more questions. Look forward to hearing how you get on! Clare xx
  10. Hi Sheila, welcome to BTG , glad you have found us and are finding the site useful. Sounds like it was lucky someone called that ambulance! You will find lots of like minded souls here on the site, all with different stories to tell. But the common thread is fatigue which could well be an ongoing problem. I am 4 years out and still suffer from fatigue when I push too hard, work being the main culprit. Take things slowly and you will find your new normal. It may be a bumpy road but hold on tight and you will get there. Be good to hear more from you. Clare xx
  11. Hi Diane welcome to BTG glad you found us. Out of interest when did you have your bleed? As Jean says we are all survivors and coming to terms with what has happened to us is one of the hardest things to accept. The changes this forces on your life can be difficult to process and adapt to but you will with time. My bleed was 4 years ago and I still daily have to think about the changes it has forced on me. Work has never been the same it’s different now. Not worse but different and not what I ever imagined I would be doing. However many changes I have been through I feel that each one was meant to be and all of them were post the bleed. I too was in a very stressful job and do wonder if that played a part. I know I can’t deal with stress now and avoid it if I can. Take it slowly and don’t rush into working too many long hours. You’ll get there! Clare xx
  12. Hi welcome to BTG, glad you have found us and are finding the site helpful. Mine was also a non aneurysmal bleed and I too was fairly fit pre event. I was actually running when mine started and ended up collapsing and being blue lighted to the nearest hospital. It's a long recovery journey but take it slowly and you will get there. I'm back running again and that helps with the stress I suffer from work. Be prepared to adapt your lifestyle to fit in with your capabilities and accept the new normal. Be good to hear more from you. Clare xx
  13. Well done Rebecca (and Mum as I am sure you have given her endless support). Something to be really proud of, I know how hard it is learning new stuff after a bleed so hat's off to her! Good luck in the new job, I am sure she will be a great asset to the NHS! Clare xx
  14. Hi apart from the prostrate problems your husbands bleed sounds very similar to mine. No aneurysm detected and hydrocephalus drained using an external drain. Mine was 4 years ago, I have recovered well except for the invisible signs - weak memory and fatigue. I have just had a very busy socially active weekend and it has floored me. I too had headaches to begin with but took regular paracetamol and drank plenty of water - it really does help. My nurse specialist did not seem to think that the hydrocephalus would cause any problems once dealt with by draining. I do find though that if I get stressed or anxious that I get headaches and stabbing pains in my head. They pass with time and I use them as a sign now that I have done too much. Unfortunately there is nearly always a lasting legacy of fatigue and poor memory after sah and it can go on for years if not indefinitely. Very hard when to everyone else you look fine but you know inside you're not. Keep up with the exercise, it helps with the mood and fatigue. I can be brain exhausted but after a run feel much better. Glad to hear you have sympathetic employers - they are often few and far between! Take care, Clare xx
  15. That looks really interesting Louise. I may look into getting one for me self as I struggle with all the airport noise. Clare xx
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