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ClareM

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ClareM last won the day on August 7 2019

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About ClareM

  • Rank
    Super Moderator
  • Birthday June 23

Profile Information

  • Gender
    Female
  • Location
    Portsmouth UK
  • Interests
    NASAH Feb 2015 with Hydrocephalus and EVD

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  1. Happy Anniversary Chris, just behind me with your 5 years. Hope you are managing to keep up your running certainly keeps me sane particularly during this time of uncertainty. You have done so well and it's great to hear that your are having less headaches and sad days. Memory has always been my problem and it seems to be getting worse for me so it's good news that yours seems better. Keep safe over there across the pond - interesting times ahead for you and your country Clare xx
  2. Well done on 18 years Jess, you have done an amazing job with your boys - I am sure they are both very proud of you. Clare xx
  3. Hi welcome to BTG, love your Avatar - Snoopy has always been my favourite Your story is remarkable and you should be very proud to have come through your ordeal and still be able to post so eloquently and honestly. I lost 2 weeks so can't imagine what losing 2 months must have been like. I still suffer from mental fatigue, low mood and my memory - well the less said about that the better lol! It's a long recovery so take all the help and support you are offered. I have been lucky that I have been supported well by my family and Neuro-psychologist. Work ha
  4. A beautiful fitting tribute 💕 xx
  5. Congratulations on your anni-versary just behind me, I am 5 and a half years and I echo you totally. Changed jobs 3 times since my bleed and now back to what I was doing before but on half the hours. Memory dire and still get fatigued but 'hey' I'm here Here's to many more years xx
  6. As I said in my last post my Neuro-psychologist has been my saviour. I was referred to her over a year post bleed as I had fallen through the follow-up net when discharged from hospital. I have been seeing her for a few years now and it's all been on the NHS. Her main goal is to settle me into work again but that has involved a lot of mental support too. I believe there is a confidential helpline you can access through Headway. May be worthwhile looking at their website for some info. Good luck xx
  7. Hi Carolyn I too am a get up and go person and to put it straight I have struggled. Like you I had a NASAH with no physical deficits but the mental toll has been huge. I have gone from being a high functioning individual to someone always questioning my judgement and ability. Changed my job 3 times since bleed and reduced hours from 41 per week to 22. Fatigue is much better now but memory still bad - I appear to have lost the ability to pay attention and therefore often can't remember what I have done 5 minutes ago. My saviour has been my neuropsychologist who has nurs
  8. Congratulations on your 5 years Andrea, just behind me. My husband made a collage photo of me for my 60th birthday, including photos of when I was a lot younger and one of ME in hospital - well he said it was a big part of my life. And so it was. Glad to hear your updates, you appear to be enjoying life up there in the isles! Clare xx
  9. Hi Kyle, welcome to BTG and thanks for recounting your story. I too had an NASAH with hydrocephalus as an added complication. Made it out of hospital after just over 2 weeks but I was lucky that it was not during Covid and my family were able to visit the whole time. However my friends husband had what sounds like a very similar experience to you and he spent 3 weeks with no visitors. He appears to be making a great recovery. Must have been very worrying for your family and lonely for you. Mind you if you were anything like me you probably didn't notice much of what was
  10. No worries Rebekah it's a stressful time. Everyone googles but the advice we always gave our patients in the hospital I worked at was stick to NHS websites or those of charities associated with the diagnosis. 'Headway' and 'Brain and Spine' are good sources of info. The fact they are sending her back to a closer hospital sounds like positive news. Yes a subarachnoid haemorrhage is classified as a stroke. Take good care Clare xx
  11. Hi Rebekah A very scary and uncertain time for you. We can't give medical advice on the site but can tell you about our own experiences. My bleed was a NASAH with the complication of Hydrocephalus. I was in hospital for 2 weeks and remember very little of that period. I was in pain quite a lot of the time with headaches but this was managed with painkillers. Hopefully as mum was seen early in hospital she will recover, as there does not appear to be an aneurysm no surgery should be required unless she develops Hydrocephalus and needs a drain as I did. Have a
  12. Hi Alexis, it sounds like the after effects of your bleed. Can you tell us more about your event, when it happened and what procedures you had. Maybe then someone with a similar experience will be able to comment. I often had problems forming words post bleed - still do 5 years later - it is a common after effect. I have not had the 'full of water' feeling though I did often feel very unsteady . That has not gone away and I am not good when trying to negotiate narrow or precarious walkways. You should still be able to get hold of a doctor during Covid-19, they usually j
  13. Congratulations on your 6 years Michelle, I'm a few month behind you but understand when you say you can still see small improvements. Lovely that you have got to meet Jan and Andrea - lucky them enjoying your cakes. Hope you get to Lanzarote in 2023. Clare xx
  14. Hi Rajdeep So sorry to hear of your bleed while you were visiting your parents, must have been very traumatic for you and your family. I too had a bleed, 5 years ago. I have made an almost 100% recovery with just some minor deficits with memory and fatigue. I hope you manage to get back to Australia soon, I presume the health system there is better? Not sure what the Covid regulations are in either country but I am sure your husband is keeping an eye on that. Rest, drink lots of water and try not to stress too much as it won't help your recovery.
  15. Hi Matthew I am 5 years post bleed and still sometimes hit a wall with the fatigue. It's worse after a busy day at work, not physical work but when I have to use my brain, particularly if a lot of multi-tasking is involved. It would probably help if your wife could read others experiences, so if she could look at the site it may be beneficial. Also do you maybe need to take a look at your working hours - do you need to reduce? If financially possible it may be worth considering, plus it would give you more time with your kids. Maybe worth thinking about, I've gone down
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