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Im sorry if i am posting in the wrong place. Some of you may know that I am new and have not posted anything except my introduction here. I have done so much research on SAH but I can not ever seem to find a real answer to the chances of it happening again. I even asked my neuro surgeon but since he does not know why it happened you couldnt say. Has anyone here had it twice? It is frustrating as fear gets me down sometimes. Thank you for reading.
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Hi, I am very pleased to read the posts on here. Very helpful. I had nasah august 2022. Started with some headache, then really bad headache and spasm in the neck and back muscles. Was lucky to have had an ambulance come out pretty much straight away. I was feeling very sick and lost consciousness whilst on my way to hospital. Was diagnosed in 2 days and spent two weeks in hospital. My main problems were light sensitivity ( unable to look at phones tvs and could not read or focus with my eyes) and was really bothered by noise. Pain was horrendous (head and back). Slowly slowly recovered from most symptoms and felt well enough to start work this January( phased return- complex job). First I was coping well, but a month down the line it's starting to take an effect on me - headaches are back ( need meds) and so tired unable to do anything - just wanting to sleep. I guess my question is 5 month after the incident has anybody felt like their progress went backwards and after starting work again has anybody requested sick leave again. Also, I forgot I started to get brain fog again. Sometimes mid-sentence, I am unsure of what I was talking about. Which causes frustration and sometimes makes me emotional. Hope you all have a good day. with love, Denise -
Hi there my husband suffered what the doctors are calling a non anuerysmal subarachnoid hemorrhage (because they couldn't find a reason for it) Oct 4 at about midnight. We had just finished being intimate when he started to have an intense headache the worst he's ever felt. About a couple minutes later he had passed out on me for 2 minutes. In that time I was screaming for him to respond as I was calling emergency. He came to as I was giving operator our address. By the time he medics came he was drenched in sweat. Sitting down his BP was 118/70 when he stood up for them it dropped to 96/60. They took him in and found a subarachnoid haemorrhage near the brain stem on CT scan. They transferred him to a different hospital that could better help him. They did ultrasounds of the brain and an angiogram as well as a second angiogram the same day he was discharged. He was in the hospital 7 days went home the 8th. It's now been 13 days since he first passed out on me and went to the hospital. He's on pain meds, nimodipine every 4 hours and his regular meds he was taking prior to for blood pressure and such. He had been on brilinta for 6 months prior to this happening due to a stent in his lad artery. They stopped brilinta and have him on plavix now because less risk of bleeding. I dont know if the brilinta caused him to have nasah but I have my suspicions. Not asking for medical advice on this just curious if anyone else was on brilinta when they had a sah or nasah. my reason for writing this is he's been having major severe pain in his lower back and butt and hip area.. also noticing he is having really bad sweats every time he goes to sleep. Has anyone else dealt with the severe pain in lower back, butt and hip area? And have you had really bad sweats when sleeping? What is your story? I'm still really shook up over the whole thing because it happened after being intimate. Any advice, testimony etc would be helpful. Blessings to all of you and I look forward to getting to know you and any help through this. -Crystal- 11 replies
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- Subarachnoid Haemorrhage
- NASAH
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Hi all🌺 Thank you for sharing all your stories- you have NO Idea what a help And comfort It has been the past few Weeks. 2 weeks ago my husband- Sam-had a bleed. He is 56, fit and bit of a “health freak”. He was at the gym, early morning session, feeling great, when he felt a “pop” in the back of his head (while doing chest press ) followed by intense discomfort. It was quickly followed by dizzyness and nausea. He did not pass out. He managed to get a hold of me, telling me he had probably pulled a muscle badly in neck, and could I drive him home. As I got I him, the nausea, pain and dizziness was bad. But we drove home! Can’t really believe we didn’t go straight to hospital. At home this LOUD convulsive vomiting started. It Was different from normal vomiting. It went on and on. With so much neck pain every time he vomited. We were talking about what to do. Sam wanted me to examine his neck (I am a physio). I didn’t want to. Thought perhaps he had a badly herniated disc. Or meningitis. or even a broken vertebrae. I never thought he had a bleed. There was no neurological sign. No loss of strength. The GP came to our house. Pretty much took one look at him, and called an ambulance. At the local hospital they did a scan- and SO MUCH to our shock and surprise- it showed a subarachnoid bleed in the brainstem. Quickly he was airlifted to Much larger hospital. More Scans. And also an operation- which showed there was no aneurysm. After that everyone seemed a lot calmer. He stayed in intensive care till the next day-and in the hospital for a further 4 days. His early symptoms In the first days was nausea, still some vomiting , headache, neck pain, tearful, and pain in his buttocks. Over the next days he was given pain medication, fluids, rest and monitoring. Hospital was great. And it quickly became clear- that he was so so Lucky. He can think, and talk and move freely. For that we are gratefull. It has been a crazy ride. The first scare, supporting our sons, comforting my husband in this scary time. He was just SO brave and strong though. Back home he is still on painkillers. In the first days mainly for headache. But that is so much better. He forgets a few Things.. misses a word occasionally. .. struggles with too much noise or screentime. But.. we know it could have been so much worse. His absolutely biggest struggle right now is an INTENSE pain in his lower spine / sacrum Area. It takes his breath away. Makes him cry out in pain. Makes him uneasy in standing and walking. He is very anxious to find out what it is- but doctors don’t seem to agree. One doctor thought it was residue from the bleed in the spinal fluid. Another totally dismissed this, said it was the lying down/ inactivity. He DOES move around - Sits in chair, goes for short walks. Has any of you experienced this?? How long did it last? What did you do ? Hope someone can share their experiences and advice. Much Iove Tanja
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Hi all, I have become very interested in finding out the reason for my NASAH. Probably a vain hope I know but previous concussions affected my life significantly and after the NASAH I find myself wanting answers more than ever so I just have to try. My query is this: While I was in the Neuro ward in hospital I chatted with other patients. I mentioned that I have had two quite serious concussions in my life, the last around 8yrs ago. Three of the four men I chatted to had also had concussions previously. A very narrow poll I know but nevertheless... I wondered if any others here have suffered this sequence of events and would like to contribute to my very unscientific query? Many thanks Mike -
So my 72 year old dad had his NASAH June 19th while working in the yard. He has no prior medical history and had never been hospitalized. Angiogram didn’t show aneurysm. Was talking and standing 3 days after with PT/OT. Developed pneumonia on day 4, went on the vent and just yesterday weaned to trach collar. Has a peg tube. The pneumonia was a wild ride with fluid overload, hypernatremia, increased renal values- this has resolved now. He was on fentanyl/propofol/precedex on and off through this period. He’s been completely off sedation for 3 days. Moves to pain only, will open his eyes when he’s repositioned on bed. Repeat CTA shows no secondary ischemic stroke, there is a subdural hygroma. Docs unsure why he is slow to wake. EEG showed possible seizure activity but not confirmed. He had been on keppra prophylactically and they increased this dose. Now has 2 stage 2 pressure ulcers on sacrum and perineal area. Any other slow to wake experiences? Many thanks.
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Hi, I am new to this so I apologise if I am not writing in the correct forum. I already have a post in the SAH part. I am a 22 year old non smoking female. Looking for some advice from people who have experienced Permiesencephalic Sah ?? I have recently been to A&E for a severe headache, it started off as a bad migraine. I thought nothing of it as I had a cold and thought it was turning into the flu, I could not walk or bare any light I had pins and needles in my left leg and they would often feel weak. - diagnosis was sinusitis on my left side. However, a consultant noticed something on the CT scan and believe it to be a SAH on my right side. I have been referred to a neurologist and am waiting for an appointment to become available. I have been left in the dark, so to speak, with regards to what is happening and what will happen when I see the neurologist. It's on my right temporal area and I still get pressure headaches and sensitivity to light on the odd occasion, I have also become a bit ditsy and forgetful and zone out a lot. If anyone could tell me what to expect, or what could happen I would appreciate it. Would I be put on tablets? Is this very serious? Do I need an op? Can I travel abroad? Can I have a baby? Is this bleeding on the brain or an aneurysm? The letter from hospital stated this word for word, if anyone could shed some light as to what this means? Subtle areas of linear high density are demonstrated in the right temporal parietal region and could represent a small volume of SAH. Extensive inflammatory changes are demonstrated involving the left ethmodial sinus left sphenoid sinus and the maxillary antrum. GP to arrange urgent neurology appointment for SAH My first visit to a&e was on the 19th December, I was given antibiotics for sinusitis.
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Hello all: I had a NASAH almost a year ago on November 13, 2014. Like many others I had the quick onset of a brutal headache like nothing I had ever had before. Having suffered migraines in the past I knew that this was different. And bad. It felt like my skull was being pulled down into my shoulders and the back of my head felt like it was on fire. An ice pack did nothing but aggravate me and Tylenol 3 didn't even touch it. I had my daughter drive me to the Emergency Room at Lethbridge Regional Hospital. By this time I was slurring my words, what words I could actually get out. I had a hard time concentrating and wasn't able to form sentences. An experienced ER doctor recognized immediately what was wrong and got me straight in to a CT scan which revealed the bleed. It was determined that it was too cold that night for STARS so they put me in an ambulance and within 3 hours of my initial onset I was in Calgary Regional Hospital in the Neuro Sciences ward. There I underwent another CT-A scan, An MRI, an Angiogram and an ultrasound. They couldn't find the source of the bleed and determined that it must have burst and then immediately sealed itself off. I was very lucky in that I required no surgery. The headaches that followed have ranged just like the neurosurgeon said they would. "Your headaches will vary in Location, Duration and Intensity for anywhere from 6 to 18 months" I've experienced the feeling of ants crawling around up there to the feeling of a rusty axe embedded in the back of my skull. I've felt like my brain was a fat guy wearing spandex that was too small to the vice clamping down on my temples. Along with a myriad of other feelings that are just too long to list. I returned to work after 3 months on a graduated return to work but was unable to keep up the pace. I went back on long term disability for another 3 months and went through exhaustive rehabilitation therapy. Physical, mental and emotional therapy ensued until now I'm doing another graduated return to work. I'm now on 6 hour days 3 days a week. It seems to be working but I'm only at the half way point so we will see how it goes. The headaches have evolved to mostly tight pressure headaches and the occasional axe to the back of the head feeling. I still struggle emotionally. I have a very hard time dealing with stress in any form. It causes more headaches and I just lock up and shut down. I can't think and can't even function. Most times I just have to walk away. My short term memory is pretty much shot. Its kind of like throwing Jello at the wall. Some of it sticks... most of it doesn't. I've found a LOT of help already in the forums here and offer any help I can to others going through the same thing. Feel free to message me if you have questions. I'm a pretty open book and can talk openly about most anything. Good luck to all Frank
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Terrified by having a VP Shunt
codewarrior_777 posted a topic in Subarachnoid Haemorrhage Discussion
3 months ago I was at the gym when I had my SAH. I don't remember much being in the hospital for 2 1/2 weeks, but I remember having the SAH. I didn't have an aneurysm though. It just bled, as I was told by my doctor, from the base of my brain. My recovery has been pretty good, but unfortunately I did have to have a shunt put in. To be honest, this pretty much terrifies me if the shunt malfunctions. Maybe I'm overreacting, but what happens to one when the shunt malfunctions? Will I have enough time to get to the hospital? I've looked into getting a Endoscopic Third Ventriculostomy. I'm going to an appointment next week and going to ask the doctor if I'm a candidate for that surgery. Anyway, does having a shunt terrify anyone else here other than me? Paul.
