Louise

Hi Kerry

Warm welcome to the site, so glad that you found us.

thank you for sharing your story. oh positive thinking. that the thing, good on you.

take care.

Hi Ruth

warm welcome to the site, glad that you found us.

You have done very well getting back to work, just remember to rest as often as you can.

take care

Hey Chris

welcome to the site, glad that you found us.

wow! well done you one the running, like mine they don't know what caused it, I could have been born with it, it could have happened through time, or I had a few knocks  to my head, could have been that I'll never know - it happened, I survived and that is the blessing.

Hope you find the site useful, take care and if not running walking is great form of exercise.

Take care

Congrats on your first ani-versary (sorry I'm late on this) the first year is the longest and toughest I think.

Hey Andrea

Think they normally ask that - at least you didn't have to travel to Edinburgh Western which by the way there is nothing wrong with they were great with me.

But do think they all say standard things...

Hi Neil

Warm welcome to the site, so glad that you found us, and glad you have posted.

It all takes time to slot into place so to speak, I've noticed through this page and my own experiences that It takes a long time not like a broken bone the brain is so complex, but It does happen you find that if there's something you cant do then you find another way of doing it..

Confidence and determinations are great tools good for you onward and forward...

take care..

Hey Andy

Welcome to the site so glad that you found us.

It is early days things improve if slowly remember its not like a broken bone the brain is a complex thing.

Rehab is good help and support there (been there done that)

Yes its the toughest thing, but you'll be so much stronger for it...

take care and try to find time for yourself.

Hi Ashley

warm welcome to the  site, so glad that you found us.

As well as leaving hospital with normally little info they the doctors that do wonderful things in repairing us, all have to hone their skills in communication I feel, I've had that too, don't worry, get on with life etc, but it's not as easy as that is it, and they chat amongst themselves forgetting your sitting there, taking 'everything thing in'

Can't give medical advice out here, but maybe make an apt with your GP see if they can help in any way maybe just your wife having a chat will help...

Hope you find the site useful..

take care

I Irene

Welcome, glad you found us.

Not heard of that either (to my knowelege) but sometimes someone comes along who has.

When your at your appointment voice your thoughts on things that trouble you, my suggestion though is write your questions down and get someone to go along with you and they can jot down the answers.

Baromitar head that's what I call mine changes with the weather & its been bad bit of relief today though...

Its nice you have the support of them its something that's lacking for me...

Think we all suffer from the engery thing, but swimming - yoga and 3 grandkids hey there's your engery...

Well done for rebuilding your life though a pleasure denied by many and welcome cant think if I've welcomed you or not glad you found us.

take care.

After waiting a very long time and hearing horrendous stories on TV about the assessment I finally got called in April to say I was worried and nervious was an understatement but it was ok and nothing like I had imagined..

No sure about the audio recording, & I don't think you'll get an answer there and then they have to asses it, & yes if you happen not to get it then you can appeal.

Take any letters or medical stuff with you, always point out 'fatigue' and like filling in the forms us your worst sanario as answers.

oh and if possible take someone along with you...

I had a reaction in hospital to drugs but NO idea which drug did it....Again if your at all really worried speak with your GP...

Hi Gilly

warm welcome, glad you found the site...

Another one here who's GP knew nothing (unless your GP has done a stint in neuro I think most are the same)

Yes your body will let you know when its tired and you really have to heed that and rest up.

if you are worried go to the GP and ask to be reffered back to the neuro team if nothing else it will put your mind at rest..

Deep breaths

Brilliant news Myra in the pool and the insurance, the hydrotherapy is really warm and helps the muscles....

great to hear from you take care and keep improving..

I would honestly say that I was still recovering 3years plus why I always don't think this is 'it'

I don't think any of us have a full battery now, our batteries are damaged & a challenge to adapt to that like a child we learn by our mistakes and find out what works and what doesn't.

Hi there

I was actually in Rehab hospital but know exactly what your talking about...

Yes balance does vary due to stress or fatigue or just general tiredness, much as I understand the OT saying get the bus to visit a friend, it is your 'day off' perhaps your just doing way to much....

Hi Susan

Warm welcome to the site so glad that you found it.

Great news I dont drive but can appreciate it.

It is a grey area the DVLA thing I think, and recently there was the bin lorry crash in Glasgow, so even more an issue now to be sure people can drive...

Congratulations on your 7th Ani-versary Sarah, sorry to hear your having some problems though life does throw us some curve balls doesn't.

whatever your up to day just enjoy...

hugs.xx

Hi Kieran

warm welcome, my you have been lucky well done you.

I'm with Daffodil on it though take things easy after all it was the head but I hope that you just keep improving well done.

take care..

Thank-you all for your lovely words..

If only my family were as caring..

Dave, Mull of Kintyre, well last night the Mist was defo rolling in from the sea...

As to sleep, well Ronnie never says that it bothered him or not (but for me it didn't happen in the night) it was lucky though that he was in, because he was meant to be working, so for a while it was tough for him going out and leaving me.

Well, that's good, because the first step to cure is getting help well done her...

Its harder I think, for others, because they don't know how we feel & will never know, unless they are unfortunate for it to happen to them.

Yes councelling is a very good thing, and like Tina I cant multi task anymore was angry and guilty about what happened to me - but then thought why should I be guilty it wasn't my fault it had happened, it had and there was nothing I could do about it...

Take care and make the first step see the GP and think about moving forward..

Thanks everyone your words mean so much to me...xx

Well I wasn’t going to post but the way life is at the minute not me just general just thought I would.

Its 16 years today (well not till around 7pm tonight) that my life changed, I don’t celebrate it after the first year because the day before my second Ani-versary my Dad passed away so that kind of put celebrating it in the shade, but I do think about it and am so grateful for the life that I have now, the things that I am able to do now.

At one point tying my trainer laces or brushing my teeth were both things that I couldn’t do for myself things that we all take so much for granted.

Recently there has been someone on here that is finding great difficulty in accepting his Shunt and that it will malfunction you know I never gave it a  single thought maybe because thinking was just too tiring with me, I don’t know but I have never thought of it malfunctioning it works it keeps me alive because without my Shunt and my tube I wouldn’t be here they have made me who I am.

Anyway this year my Dad’s anniversary 14yrs on 31st Oct and my SAH  16yrs on 1st Nov, then my Mum’s anniversary on 6th Nov 24yrs for Mum time heals makes it easier but this year it’s different my Dad’s brother has cancer and has be diagnosed also with early dementia my Auntie also has been diagnosed with dementia so its brought all those thoughts back to the front again but although I’m sad and hurting I am no where as fragile as when my Dad was in hospital dying with leukaemia so I know that I have gotten mentally stronger (even though you wouldn’t think it this week from time to time I have been keeping Kleenex going).

But with the years unknown to me I have come to accept things & that I thought would never happen.

I don't know if this makes much sense but just thought I'd share...