sallym25

Hi Noah,

How did you do on Wednesday then? Hope you have decided it was a good thing. I was like Ern, scared to think about it. That said, I'm now thinking, perhaps I should make it a day of celebration. Lets face it.. you never know the minute, .. and we got through that minute. Let's just be glad about that, :-Dfor the next fifty years:-D. xxx

Ooooh....

You've scared me... I wont read this now.... Not before anger management anyway. Last thing I need is a criminal record.

Hi Maddi,

Welcome to the site. I do feel for you young ones. I thought I was too young at 45 when I had mine. Each case is different and we have all sorts of issues to deal with afterwards, but to date I've never heard anyone say they don't have the tiredness. Lots of short term memory issues around too. You're still in the very early stages of recovery and need to give yourself time to get through it all. Be kind to yourself and rest as much as you need to. That could be a lot, but it helps the brain heal. Hope you will sign in regular and chat to the people here, they're a real friendly lot and someone always knows how to make us feel better. It's been a great help to me.

Take care,

Sally xx

Hi Tracy,

No way do you sound nuts. I've had a similar feeling in my little finger for months now. Over time it has become constant and is now up as far as my elbow. Saw the gp who sent me to the local clinic and it seems it could be a trapped nerve in the elbow area. I'm now waiting for word to have some sort of scan on it, which will determine if it needs operated on. If it persists I would recommend asking your gp about it sooner rather than later. I waited ages and think I could have avoided the possible op if I'd gone to him earlier. Hope it's something and nothing. Fingers crossed.

Sally xx

Hi Lynn,

Welcome to the site. Sorry to hear you're sister has suffered a haemorrhage. You will find lots of people here who will be able to help with your questions. We have all either had one ourelves or care for someone who has, and we are all at different recovery stages. I hope you will call in again and let us know how she is doing. Look forward to hearing from you again.

Take care,

Sally xx

Hi Zoe,

It's good to hear yesterday went well, But what a huge load you have on your shoulders here. Do the social services intend to supply people to help with round the clock supervision. Surely they wouldn't expect you to do this by yourself. With regards to the smoking, I do it too. I feel exactly the same cravings as I always did and am ashamed to say I am back to the same quantity now as I was on before my op. It really is difficult to give them up. I also wonder if the people at rehab will rethink their decision to send Richard home as soon as they have said. Surely they will know that would be too much for you. That said, hopefully he will improve enough in the coming months to make coming home easier on you all. We are all behind you, whatever you decide. Best wishes. Take care, and love to the kids.

Sally xxx

How lovely of Julie to write this for you. I have lots of lost memory from the hospital too.

I will ask my hubby to read this tomorrow and ask if he can write one for me... on second thoughts, I will ask one of my sisters. I don't think John will want to do it. Hopefully they will miss out the bits of me throwing water on nurses, thumping the wee doorman and chasing smokers down the street shouting for a ciggie.

Well done to you John!! The hard bits are behind you now. xxx

Zoe,

This is so sad. I am sorry you are having such a difficult time. As you said " he probably doesn't mean what he says". I know I did a lot of things I now regret. Most of them I dont even remember doing. Try to keep remembering his brain is not working properly for the moment and the Richard you knew will hopefully take control of it at some time. It's also possible he's thinking that life for all of you is not good this way. I remember asking myself if it was fair to keep my husband "tied" to our situation, and told him if he wanted to separate I wouldn't blame him. Richard may change his mind on this more than once I would think. It's so hard to know whats the right thing for everyone. Perhaps you should talk to your own doctor to see if he can provide any help to get you through this. You might find if you get a chance to discuss this at length with him you will both feel better afterwards.

Thinking of you. Take care.

Love Sally xxx

That's brillliant news Zoe,

Must have been wonderful for all of you. A major step forward:biggrin:

You remember to relax now. Hope Saturday goes just as well. Perhaps you should enlist someone to help you manage on the day. It must be a little diffucult to mind the children and occupy richard at the same time. Have a fab time.

Sally xxx

Hello Kim,

Thanks for telling us your story. I do like to hear from the people who are further down the line. Though I am a little concerned now that the fatigue is still with you after such a long time. Your photos from the bbq are great. Forgot to pass the camera on, so we could see one of you. I dont like having pics taken either now. Am sure the hollows under my eyes were never this bad. If I had my wits about me before the op I'm certain to have told them "just tighten that up on the way back out". good to hear you had a good time on Saturday. Wish I could have been there too. I'd love to meet up with th folks on here. Maybe next time.

Thanks Sally xx

Erin,

I have a big eyesight issue too. I have a fairly large chunk missing from the visual field in both my eyes. I didn't actually realise it myself till I was almost due to be released from hospital. My family tell me the staff told them the day after my op though.

I think I was unaware of it because I still had the rest of the vision there. I did make a lot of silly mistakes though, saying things like " someones cut that car in half!". I had the double vision for around 5 months. And as Gill said my eyes both looked in different directions. Fortunately that has straightened up now. ( makes me a wee bit less geeky looking:biggrin:)

The doctors said the name for the blind area condition is Quadrantanopia.I'm told it will not improve and I will just have to wait till my brain learns to compensate for it.

I do see slight progress with that but it's a long slow journey.

Hope this will be useful to you. Keep us updated and good luck.

Love Sally xxx

Hi Steph,

I also have visual troubles. Had my haemorrhage in June 09. I have a blind area in both eyes and have been told it will not go away. I am still fighting to get my drivers licence back, but do beleive I will one day. They have told me it's a matter of waiting till I Learn to automatically compensate for not being able to see in that particular area, Just as a person with only one eye does.

I was clipped as opposed to coiling, so I can't comment on that sorry. My opthalmologist wont see me again till November, which is really annoying as the DVLA need him to pass on test results.

Sorry I haven't been more help to you and I hope you get all this sorted soon.

Sally x

Hi Tracy,

It is hard to accept you can't do all the things the way you used to. You are only 8 weeks on so you take your time and let people look after you. Remember to rest lots too.

It is really good on this site as everyone is very supportrive and if there's anything you need to ask about, someone can always advise.

I look forward to hearing more about you in your own time.

Sally x

Hi Alan,

What a shame they have put the idea for a home visit on the back burner for the sake of a step. Is there one at the back door too? I do trhink they should reconsider allowing the children to be there. I'm sure It would be better for Erin if they were there. It can only do good to experience a little bit of "before". They are old enough to want to help her to the best of their ability. I hope you succeed in acheiving that scenario. As for Nosy neighbours. I have one I don't get along with too. Not her business.

I hope they will let you bring her home real soon as I'm sure she will be desperate for that day herself.

Look forward to seeing her here soon too.

Take care Sally xx

Hello Goldfish girl,

sorry, I don't know your proper name. What a horrible boss. I do wish people in his situation would try to find out more about what SAH can do to people. He's probably not even interested.

I am sure the prospect of learning a completely new job is really daunting. I know I wouldn't like to try it. I haven't even tried doing my old job again, because they wont give me my drivers licence back yet. But the thought of such a massive challenge would horrify me. Surely he's not going to be able to "get rid of you" as that would be discrimination. If I were you I'd tell him that. Sounds like he needs to Know that even the boss has to follow standard rules of the law. Hope you sort him out real soon.

Best of luck. Sally x

Go Gill!!!!

Do you know how to go about that? It's so long overdue. If we manage to get it done, who would be the person to present it to?

Angela,

Please just present yourself at the Southern. If you are there, in front of their faces you're less likely to be fobbed off with them passing the work to others. I recently saw my own gp about numbness in my little finger. He said he'd refer me back to them, then called me an hour later to say "they said i'm to go to orthopaedics! Never had anything to do with them before. If I were you I'd force the issue.

Hope you get it sorted soon. Sally xx

Gary and John,

I am absolutely livid to discover that they deduct any pension money from any benefit someone might receive. I find it hard to understand how, in this day and age something like this is in any way considered acceptable. This must affect thousands of people and I so wish they could all had the passion to find ways to campaign and cause disruption to the people who make these rules. I feel this way about so many issues in todays system that I now idolise people like Arthur Scargill and Emily Pankhurst. I wish we could all take a leaf out of their books. WHY does the world not agree with me?

Hi John,

Isn't it just the most frustrating thing. They make you feel like they think you are a benefit cheat. I had the same thing happen at my last "medical". They awarded 6 points for my blind area and nothing for the rest. I coiuldn't believe it! I immediately launched an appeal. They have now reinstated me on a lower amount, pending this appeal which I'm told will take 6 MONTHS to be heard.They don't make it straightforward though, the info you get is a load of garbled mumbo jumbo that confuses the life out of you. I recently considered cancelling it because I can't be bothered with the stress of it. I was at the job centre plus today and the new lady said I'm to persevere as It's been 3 months wait already and they do make a lot of mistakes. If you call to tell them you wish to appeal they should put you back on some of it till your appeal is heard.

Hope you get it sorted.

Best wishes Sally xx

Alan,

Thanks for the update. It all sounds quite promising. Hope you have positive thoughts on it all. It's very true that recovery is so slow it's disheartening. It's when you really look back further and remember how it all was that you realise how far you have come and recover some hope. You tell Erin we all look forward to the day we can chat with her directly.

And as for yourself, you're doing a marvellous job. Keep up the good work.

Take care and best wishes to you both. Sally xx

Hi Paris,

Sorry, we haven't met before. I think you will find there are quite a few of us who have been told we need no further scans etc. I myself was told I didn't need to be seen again at six months post surgery. I do hope your partner is feeling ok. I'm sure it's a really good sign. I see fron your postings you have a new baby. Lots of work for you then:yikes:. Try to take it easy. Hope all is good on the family front.

Sally xx

Thanks Poppy.

My sister and I were only talking last week about how great it would be to not have periods any more. Am asking my GP first time I,m there.

Does anyone know if there's an age limit like with the pill. Is 47 too ancient? :redface:

I've never even heard of it, but ..no periods.. Can't be any bad in that. I will be looking that up tomorrow.

Sally xx

Hi Sonia,

I'm sorry to hear you have this to deal with. But Good for you with the " I got through it all, and will again!" A positive attitude is a wonderful thing. I hope it all goes very smoothly and you will be back letting us know how you are soon afterwards. Keep talking beforehand too as we would like to help try you to try to prepare.

Sally xxx