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Tecumseh

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Tecumseh last won the day on April 6 2015

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  1. Like a lot of posters...your body/brain will tell you when you are overdoing it, just make sure you listen to it. For many months after my bleed if my HR got too high, my exercise too vigorous I would get a headache. A number of posters have remarked overdoing it makes them feel terrible the next day. I see “crazy” saying getting back 110% my advice is you might not be able to do what you did before and that’s OK.
  2. Want to do a shout out to the monitors and creators of this website. A LOT of people are told you will make 100% recovery and from a very narrow point of view this is kinda of true. In all of medicine there is a HUGE lack of good long term studies. Having said all that (I am an MD) the FEW decent long term studies paint a very different picture, in one study looking at NASAH 5 years out 1/2 were either no longer employed or working in very reduced capacity. Even people who make “100%” recovery if they had thorough pre and post testing I am pretty sure it would show deficits. My personal theory is many of us have had damage to the reticular activating system or RAS an area where these bleeds occur and is poorly understood and this explains some of the fatigue which dogs us. I find I can do things but “activating” getting going is so hard.
  3. OK follow-up. I’ve actually had two surgeries since the post. The anesthesiologists both times thought it was an interesting observation and did the cases with IV (propofol) anesthesia avoiding inhalation agents and I had no problems. So really don’t have an answer was it just a coincidence or did the NASAH change my brain in a manner which would make inhalation agents trigger a headache?
  4. I am a retired/disabled ophthalmologist (it’s actually my glaucoma vision loss which disabled me) I had a NASAH five years ago and the onset was heralded by a terrible headache, like many I struggled with headaches but I was lucky and they pretty much went away after 6 months. 2 1/2 years ago I needed cancer surgery, general anesthesia, and when I awoke I had a terrible headache not as bad as the acute bleed headache but really bad and worse than anything other than that. I need eye surgery next week and it needs to be done under general anesthesia. Has anyone else had this problem? General anesthesia triggering headaches?
  5. Tecumseh

    Denial

    The week before Christmas I was at home with my son just waking up laying in bed while running a bath when suddenly I noticed a severe headache in the back of my head. I also noticed I suddenly had diarrhea and sweating. I went upstairs and told my son I was not feeling well and he might have to drive me to the ER at the very least he should check on me in an hour or two. OK I opened my emergency travel pack took, Zofran, Vicodan, Pepcid, Tylenol and curled up in a fetal position for 18 hours. I remember thinking I had a stiff neck thinking should it be worse in flexion or extension for meningitis? and I did think I should go to the ER but they would ask me a lot of questions and it would be noisy with bright lights, I did not want to move from my dark bed, soft covers and fetal position. After 18 hours I felt a bit better and for the next 6 days went about the Holiday stuff, we even had a family of house guests. I did have a pretty bad headache this whole time and lots of trouble sleeping. I did hear a little voice from a neurology professor of mine from medical school saying "a person who has the worst headache of their life deserves a CT scan". Now the funny thing before I became an ophthalmologist I moonlighted in the ER and if a person came in with a stiff neck and severe headache I would have been very concerned, funny what denial can do. So finally went to ER and told had bleed transferred to University hospital and had angio negative and NASAH perimesencephalic hemorrhage though that is with an asterisk because initial scan was a week after bleed. Only kept for two days because so far out. Recovery still that denial thing, went back to work after one week home and it was way too soon. Fatigue, headaches, insomnia were the big issues with me also photophobia and phonophobia. But much better now 6 weeks out mostly things have returned to normal but endurance still lacking also my sense of taste is altered and with it much of my appetite. There was a good review article in World Journal of Neurosurgery about these types of bleeds and although most people do very well I think if people had extensive neuropsychological testing before and after a bleed (if people had a baseline to compare) it would show that usually there are a few deficits somewhere though these might not be clinically relevant. This is the conclusion of the authors. One example for me is scanning behavior, if I was timed in word search puzzles I am sure I am a lot slower than before. Driving in multiple lanes of busy traffic is something I am sure I would find quite fatiguing. The one thing I think I share with many posters here is there is really no way to know what your limit is until you have passed it, so this a source of frustration. Since I have recovered well I view this whole thing as sort of a blessing, I realized I have a very supportive and loving family and realize my 20 year old children are adults but more importantly I got a view into what aging is and while denial can be healthy, really it can be overdone, part of getting older is slowing down. It did force me to take a look at my life and what I want to do before I really have to slow way down for good.
  6. What kind of altitude are we talking? If you are skiing in Colorado where the skiing is above 10,000 feet this could be very possible. One also needs to consider adjusting to altitude, if you come from sea level and than are skiing the next day this give a lot of people problems. I would consider in the future planning on not skiing the first couple of days and giving your body time to adjust to the altitude. Also if you are in the states I would say consider skiing in Utah and not Colorado. Even before I had a bleed I would get altitude headaches and last couple of years I just never skied the first day and it definitely made a difference.
  7. Elizabeth This is my first post but I am a surgeon also who recently had a bleed, the big difference is my practice was winding down and was already much lighter, I am late 50s. Your husband has to realize is that guy who he was pre bleed died that day he will never come back which is not to say healing won't occur, as a previous poster noted he had a life changing event. OK specific advice. You and hubby have to decide if he is going to take disability and this depends I suspect on whether he has specialty specific coverage, heroic efforts on his part to get back to work can be used in the future by insurers to deny coverage. Need to be careful here. Naps are a wonderful thing, I went back a little over a week after getting out of the hospital and it was way too soon. I have a couch I can lay down on and take a ten minute timeout and it really helps. You say your husband's specialty is one in which he HAS to take call, I question the validity of that. This might be true in your city but the US has a significant physician shortage so older physicians are finding and creating low intensity niches in all sorts of specialties. Maybe one of these low intensity niches is what your husband needs. Financially perhaps it is better to consider a lower income maybe plus disability and your income in jobs that can be sustained until you are 70 vs him going back to work full time and burning out in a few years. Stress, I am with you on this one but one thing you have to realize stress is a very, very difficult thing to study in medicine, it is very subjective and hard to measure. Then even if you know it is a problem what is the intervention?
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