sonia

Hi Sarah, Just come back from my doctors, she checked all my notes letters & the MRI scan about my Annie treatment & results. There was no mention of a remaining untreated Annie or that I was not under any such surveillance. She agreed that the letter was not correct. So it has been rewritten. States...... Review of notes & letters from neurology show that there is no untreated aneurysm & further surveillance ceased .Neurology appointments concerning blepharospam continue. every 4 months. The doctor quite understood why I would feel concerned about the way it was written As I have to have injections in my eyelids every 4 months then she mentioned that she was sure if I had a problem I would tell the Neurology department that I attend. I certainly would do. Thank you again Sarah for your support just needed that Push to sort it. Love Sonia xx

Thank you Sarah for your reply. So much so I am going into my doctors in the morning to see about seeing someone concerning this matter. I need it cleared up one way another. Sonia x

Hi All, Thoughts please. I had reason to ask my doctor for a letter about my medical record. It stated about my two aneurysms being stabilised following the embolization procedure. It then went on to say, that I have a remaining smaller aneurysm which remains under surveillance a cerebral aneurysm was embolised.. I am totally confused by that comment. I was never told there was a smaller one. I had the second Annie sorted in 2011 had a MRI scan done 2 years later all being fine. They discharged from their care. All that was ever said to me was if I ever felt unwell then get in touch. I feel fine, but can't get this out of my head now after reading it. The thought that I am not under any surveillance. Maybe it means just what they said to me on discharging me if I don't feel well get back in touch. I just don't know. I really just want to file the letter & go about my daily life. Thanks for reading my post& for being here. I always remember how I found you all just before I had my second Annie dealt with. All the support positive messages you gave me so grateful to this day. I made so really good friends on here.. Sorry if I seem over the top with my post, Thanks Happy Days Sonia xxx.

Welcome Jude, Some great positive comments, from them who knows. Hope you have many Happy days during these sunny days. Love Sonia xxxx

Hi Rachel, Sorry to see your thread this morning. I hope you can find some comfort for you, after all that has been going on for you. Emotions must be all over the place right now. Give things time for all concerned. Take care Sonia xxx

Hi All, I could not believe it yesterday in the post I had my appointment at Bristol eye hospital, to have the pictures of the back of my eyes taken. Going on Mon 8th Oct. The other letter was my appointment for the eye check up next Sept. How's that for service then from the NHS. I think I have to have a two yearly MRI scan, to check the Annies are still sealed. Love Sonia xxxx

Hi All, I thought I would let you know how my appointment went yesterday morning, to find out about my left eye disc being cupped. It would seem it happened due to the two Annies. It was caused more by the first one 11 years ago, resting on the optic nerve.For how long who know's. It was only discovered when I started to lose most of my sight in the eye. He asked if I would go up to Bristol eye hospital, so they can put some drops in and take some pictures of the back of my eye. You will know about that Anne. He wants me back in 12 months time to check that all is well. A letter will be sent to the optician that was concerned about the cupping, explaining to him what is what. But I only pleased with the optitcian to be concerned about me and looking after me. I shall have my eye's tested with him, from now on. As many of you will already know that I have suffered with Blepharospam in my eyelids, to which I have 3 monthly botox injections. I must add not be choice!!!!! My optitcian also had a very good understanding of this problem too. Other places I have been to don't understand what I am on about, thats before I even mention why I lost most of my sight. Well thankyou for your support. Information Anne when I need to know what this cupping was before I had the appointment. Take care. Be good Love Sonia xxxxx

Hi, I went down to my local hospital on Monday afternoon. I had an eye test and went on the machine to test my fields of vision. All the results will be with the consultant, when I go down again next Tuesday morning.It mentioned that they might be putting the drops in again on that visit. Hopefully I should get some answers to why the disc in my left eye is cupped. When I saw them last time, I had not had my second Annie, so I will mention that to him to see if that could have caused this problem with the disc. Thanks Ann for all the information you wrote for me explaining what a disc cupping was. Hope you are keeping well yourself. Love Sonia xxxxx

Vick, As I mentioned to you about coming to Sydney last month. I had to travel by myself, I had never been to Heathrow, always gone from my local airport. I was so pleased with myself that I was able to do it. Many of us here give some thoughts to being able to fly again. What would it feel like in our heads. But I think you will find most of us were just fine. So take your time and find your wings and fly away. Where in Oz do you and the family live? If I were younger then I think its a great place to live. I thank god for Skype, so I can see our family in Sydney. Take care. Night Night Love Sonia xxxxx

Hi , I have not lost any friends due to have annies and a SH. Sorry to read you have. What a shame about your friend being anger with you. It's not your fault it happened to you. Lets hope she never needs someone in her life when things are not good. You never know what is round the corner. I have been back from your wonderful country, for over a month now. I stayed in Sydney, what a great place to be. I love it. You just get on with your life. You have your family, a job. Sounds like you are doing ok. You can't spend your time worrying about others who don't care. Folks on here do. Nice to share happy times with others that care. Take care. Love Sonia xxxxx

Hi Goldfish, Have one hell of a Happy Annie day, thinking of you miss. You always make me LOL with your comments, when I know things can be hard for you some days. You have kicked some asses along your journey. So don't let us down, keep at it and you will get there I have no doubt about that. I am away for a few days. If we can't catch any fish on our trip. I am so glad to have you Goldfish as a good mate of mine, take care of you. Your boys and doggie. Lots of Love and bags of smiles coming your way. Sonia xxxx

Ann, I forgot to mention that both my Annies were found resting on my optic nerve, which caused the loss of most of my sight in my left eye. The first Annie was dealt with in 2001. They said they couldnot tell how long it had been there. I could have been born with it. It was so big, the size of a old 5 pence. They had to think very carefully what they were going to do about it. Because of the size and losing my sight compleatly. The second one two years ago, was a smaller one, which was close to the first one. I think thats why I am thinking could this cupping be another one. As the artery where this all took place must be very weak. Thankyou for letting me tap this out of me. Love Sonia xxxx

Many thanks for your detailed mail about my cupped problem. I was shown the pictures of my left eye on the opticians computer, after he had looked at them and had taken pictures. He did'nt want to send the letter to my doctor,he wrote it there and then for me to hand to her myself. You will understand my concerns. I am wondering if when I had my last MRI scan two years ago to check that my second Annie was sorted, can they see that way about any change in disc cupping etc. Maybe this has occured during the last two years then, or since I had my last eye test? Can this problem be seen only when they put the special drops in the eye to improve what they can see with their light? Sorry for so many questions on my problem. I don't want anyone to think I am hogging the board!!!!! I am off this morning for my botox injections for my blepharospam problem. It has taken me ages Ann to find someone to give me an eye test, who understands this problem too. Hope you all have a nice day and a happy one. Love from Sonia xxx

Hi All, I have been told the disc is cupped in my left eye. Have to see someone in Sept.I am wondering if the damage was caused by my two Annies that were on my optic nerve. Or could it in fact be another Annie forming. It will be nearly 2 years since the last Annie was dealt with. So I will no doubt be called in for a MRI scan in Aug. Before I go for this disc cupping appointment. Maybe they will see this during the scan. Off to have my botox injection in the morning to help deal with my eyelid closure. Thanks fpr letting me tap this on here. I have had this on the back burner while I have been with my family in Sydney. Love Sonia xxxx

Welcome Paul, Nice to say hello along with all the other caring folks on this site. We all know the many emotions you are feeling and going through right now. Time is what is needed, as you do it in your way. Start slowly. I remember feeling so chuffed with myself just being able to have my first shower on my own. It takes all your energy just to do a small thing. Take your journey at your pace. Wish you well on your recovery. Take care both. Love Sonia xxxx PS One of the questions I asked before I left hospital after my coiled would I be ok going through the airports scanners. Yes they said!!!!