Ann

I am in the early stages of recovery too and was about to post the identical post!! It is so good to hear we are totally normal to feel like this. I asked my neurologist and his less than helpful answer was that fatigue is a very complex issue and he really did not know why I felt like this or for how long it would persist. Ditto GP. I have had a very serious illness/surgery in the past and I thought the tiredness and weepiness after that was bad but the tiredness now is so much worse than that. Glad we can all share our woes and commiserate with and support each other! Sorry I can't help but you helped me feel a bit better just by posting your query, thanks. Ann

I too have a copy of CT, MRI and angiogram on CD. They view fine on home PC, not that I understand anything I see on them I hasten to add!!Very clear images but it is such a specialised field that even normal radiologists need to refer them to neuroradiologist for reporting so I have no chance as a lay person. Good to keep for further reference though. Ann

Sorry, half the link seems to have gone astray after I sent it!! the end bit was reprint01.STR.0000260093.49693.7av1.pdf Don't know if this can be put together to access the pdf document, I am not very good at IT, especially pdf documents, it won't let me copy and paste thee relevany bits either!! ANn

Hi Matthew I too had SAH with no aneurysm found and understand your feelings about not finding a cause. I had mine more recently, 3 months ago.Glad to hear you are recovering well.People in general seem to think because we have not had surgery we should get better quickly so it is nice to have this forum where people understand the problems. I was interested in your reference to Legal and General and being at increased risk of a further SAH when in our position we are tols that we are at no greater risk than anyone else in the population especially after a perimesencephalic SAH, not sure if that is what you had? There is a document which states that Insurance companies should not discriminate in these cases, see the final paragraph in the document from the link below. I hope the link works, you may have to copy and paste it, http://stroke.ahajournals.org/cgi/repri ... 3.7av1.pdf Hope it helps Ann

I realise this is a bit long winded, heavy and medical but I found it really useful to know the correct terminology etc and to have factual medical information from a reliable research source. My GP used bits of it when referring me to consultant as GP's knowledge of SAH was minimal but he was keen to learn. Ann

Thanks again to everyone who responded. My CT Angiogram was brought forward to today (phone call yesterday with a cancellation) so that is now done and dusted and the Consultant now wants to see me on 10th March so I am really pleased they have got their act together at last. The consultant has also accepted a copy of the CD with all my original images from scans etc from Spain and says he is having them reviewed by neuroradiologist at Royal Free so that is also reassuring. Hey, I am now in the system and actually exist on the NHS radar. My daughter (who qualifies as a doctor in less than 3 months time, scary stuff) keeps telling everyone "I can't believe it,Mum looks and acts really normally" which is also reassuring in a strange sort of way. I do realise what a lucky lady I am and know we are in the group with the best possible final outcome. I just initially felt that the system had abandoned me after textbook treatment in Spain.

Thank you everyone who has welcomed me, what a friendly bunch!! Good to know you are around if I need advice. Ann

Hi, just a bit about me as a new member. I had SAH on Jan 18th of this year whilst on holiday in Majorca. Spent 5 days in ICU and a further 9 days on normal ward in Palma. Had CT, Catheter angiogram, doppler,MRI etc but no cause for SAH seen on these. I understand that it is normal to have a further CT angiogram or similar at a later date (mine is on 10th March)as in approx 22% of SAH's initially diagnosed as having no cause a burst aneurysm is seen at this later date, lets hope I am not in this %! It was worrying flying home but once the hospital gave me my "fitness to fly certificate" 16 days after SAH I just wanted to get home straight away. Pretty frustrated as I have now been home 3 weeks and although I now have date for CT I still have not got an appointment to see neurologist despite letter fom Spanish hospital saying I should see someone within 2 to 3 days of returning home, he says he does not want to see me till after CT, that will mean at least 6 weeks rather than 2 to 3 days and meanwhile I am not under the care of anyone!!I feel rather abandoned as I had no idea what to expect re recovery etc until i found this site. Still extremely tired, emotional and get lots of headaches and strange noises in ears but from what I have read here that makes me totally normal, that is good to know!Thanks to everyone for posting their experiences. Really helpful.