Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

98 Excellent

About Patc

  • Rank
    Advanced Member
  • Birthday 26/05/1959

Profile Information

  • Gender
  • Location
    Langley, British Columbia, Canada
  • Interests
    Love Cardmaking/scrapbooking , reading .

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Hi Pascal! Welcome! I don’t exaggerate when I say that this group has been a Godsend to me- especially the first year of my brain bleed. I’m coming up 5 years, and someone in this group wrote something that has always stayed with me. Let me share it, and I hope it will be as encouraging to you as it was to me. We tend to compare ourselves to what we were like prior to our bleed. The reality is our brain has gone through a change, and the comparison should really be between what we were like right after our bleed and what we are like now. I’m not like I was before my blee
  2. WoW Weedrea! Once this crazy world is back on its feet, you should make the trip out here. It is a beautiful province💜
  3. Hi Deborah Happy New Year! Can’t say I’ll be sad to see 2020 gone. Like you, I also had a small bleed, actually 2 small bleeds and no aneurysm. I didn’t pass out, don’t remember having the thunderclap headache but I did have vasospasms afterwards. I live in BC Canada, and my stay in the hospital was 28 days. The meds I was on for 21 days was to stop any seizures from happening. During 25 of those days I was in a « quiet room ». Absolutely no stimuli. i wasn’t allowed to get out of bed for the first two weeks ( that was pleasant!). My experience sounds worse than
  4. Hello everyone! it’s been awhile since I posted, but I can’t let an anniversary pass without checking in. My anniversary date is actually tomorrow, October 26, but I wanted to post today as the opportunity presented itself. October 26, 2016 is the day that defines my life as before the bleed and after the bleed. I have been one of the lucky ones because other than the occasional headache, « fuzzy brain » and some fatigue, I’ve done pretty well. I am an Early Childhood Educator (30+ years) and I had to leave the classroom, as it was too chaotic for my brain
  5. Hi Rajdeep i do hope you are feeling better. I know you posted last month, but I saw this thread and was curious as to what is happening in your life. Have you been able to go back home? i had my bleed 3.5 years ago, and felt all the feelings you were describing. I was hospitalized for one month, but other than slight headache and fatigue, I wasn’t feeling sick, but my brain was. I had vasospasms and put on medication that corrected the problem. My memories of what happened during that time, and before hand are vague to non- existent. At first that bothered me,
  6. Hi and welcome to BTG! Like everyone before me has commented, this is a great place to be for support, asking questions and in general feeling connected to people who “get it”. I had my bleed 3.5 yrs ago, and even though I had a good recovery physically, my mental well-being went through a battle of it own. I was in the hospital for one month mainly because I was having Vasospasms. Honestly at the time I had no idea what this all meant and it wasn’t until I was home recovering that I did my own research and fell into the “google” rabbit hole. I have alw
  7. Hey Gillian, Hope you are feeling better, and isn’t it peculiar that we only seem to feel these weird head sensations at night. I wonder if it has to do with being horizontal !???!
  8. Hi Charlie Our brains are so interesting, and so weird. It fascinates me that we pretty much all had the same medical emergency, yet we’re all left with different after effects. Your sensation sounds a lot like mine, except I don’t get a burning sensation. I do however get that feeling in my tummy. I’m not wiped out afterwards, and end up getting out of bed because I feel anxious. A couple Gravol settle the tummy and have bonus effect of making me drowsy. You are right, it is good to know that other people experience the same things we do. Sometime
  9. Hi i knew I would get some answers here. Daffodil you are lucky you get annual scans. I live in Canada, and even though my hospital care was superb, the after care was non existent. I saw my neurologist 2 weeks after discharge, again after 6 mos. and had a CTScan. That was the last of it. I will check to see if, like you I see some improvement after these weird episodes. I do look at the bright side though, I’m here to complain about it😉😂😂. thank you Subzero, for the references, that did help. Hugs everyone Pat
  10. Hello everyone! I’m coming up 3 years post bleed at the end of the month. Other than the usual fatigue, forgetfulness and anxiety - I’m doing pretty good. i’ve made necessary changes in my work life to accommodate my new reality, and I’m good with that! I know we all have different experiences post bleed, but I’m curious if anybody else has had this particular one. Every once in a while, I get this feeling in my head, like there is water pouring over it. There is no pain, just a weird sensation, and it has always happened in the middle of the night. If you are a wo
  11. Hi, and welcome! This is quite the journey you have embarked on! You are on the right track. I had my « episode » like I like to call it, almost 3 years ago. Still dealing with head fuzziness, memory problems and word retrieval. It can be frustrating at times, but like previously mentioned, these things happen more frequently when I am tired. I am lucky that I don’t have the terrible headaches people talk about. As a matter of fact, I can’t remember having the « thunderclap » headache 🤕 Let us know how you are getting along. Remember this is a communi
  12. Welcome Jo-Anne, from another Canadian! I live in the West Coast, Vancouver area. My journey started almost 3 years ago (Oct 28, 2016). Recovery is a long road, be gentle with yourself. I am still feeling the effects of my brain bleed, and just realize that this is my new reality. I am lucky, in that I don’t suffer from the bad headaches that people comment on, but I certainly get « brain fog », difficult time with my short term memory and the ever present fatigue. No use fighting it, when I’m tired, I nap🤪. I needed to modify my career, but you know the saying « w
  13. Hi Diane, I’m 2.5 years post bleed, and I still deal with the fatigue. You are right, it is difficult, at times, for others to understand that our lives have changed. We need to make accommodations for our new reality. It takes a very long time for our brain to heal, and honestly it heals but in that healing, we change. I was in the hospital for one month ( 29 days). I had a couple small bleeds, but also had vasospasms. I was home for another 4 months before I was able to return to work, and then I was on a reduced schedule. I am an Early Childhood Educator, in the fiel
  14. Hi and welcome! It’s been 2.5 years since I had my bleed, and though I am doing well, I have had to adjust my life. You will find this group a great help and wonderful place to share your feelings. The hardest aspect of recovery for me has been my mental health. Anxiety and fear seem to lurk in my psyche. Time, friends, family and this community, have been a big part of my recovery. You are still fairly early in your journey to recovery and it is very normal to feel anxious. I honestly think that along with the physical help to recovery we receive, we should be able to recei
  • Create New...