Hi Skippy What is a V pillow? 🥴Pat

Hey Gillian, Hope you are feeling better, and isn’t it peculiar that we only seem to feel these weird head sensations at night. I wonder if it has to do with being horizontal !???!

Hi Charlie Our brains are so interesting, and so weird. It fascinates me that we pretty much all had the same medical emergency, yet we’re all left with different after effects. Your sensation sounds a lot like mine, except I don’t get a burning sensation. I do however get that feeling in my tummy. I’m not wiped out afterwards, and end up getting out of bed because I feel anxious. A couple Gravol settle the tummy and have bonus effect of making me drowsy. You are right, it is good to know that other people experience the same things we do. Sometimes I wonder if I’m going nuts🤪I just had My 3 year anniversary since my bleed happened and I am so thankful to be able to say that! Good luck in your recovery, you’re still pretty early in your recovery....get the rest you need and take care of yourself!

Hi i knew I would get some answers here. Daffodil you are lucky you get annual scans. I live in Canada, and even though my hospital care was superb, the after care was non existent. I saw my neurologist 2 weeks after discharge, again after 6 mos. and had a CTScan. That was the last of it. I will check to see if, like you I see some improvement after these weird episodes. I do look at the bright side though, I’m here to complain about it😉😂😂. thank you Subzero, for the references, that did help. Hugs everyone Pat

Hello everyone! I’m coming up 3 years post bleed at the end of the month. Other than the usual fatigue, forgetfulness and anxiety - I’m doing pretty good. i’ve made necessary changes in my work life to accommodate my new reality, and I’m good with that! I know we all have different experiences post bleed, but I’m curious if anybody else has had this particular one. Every once in a while, I get this feeling in my head, like there is water pouring over it. There is no pain, just a weird sensation, and it has always happened in the middle of the night. If you are a woman, it almost feels like a hot flush. It only last a few minutes, but then I get the “butterflies” in the tummy and I usually get up for a bit as I’m too anxious to get back to sleep. This isn’t a regular occurrence, in the last 6 mos, it’s happened maybe 3-4 times. My doctor doesn’t seem too concerned about it and I was just wondering if anybody else has had this “feeling”. I decided to keep track of it, just to see how often it happens. Once again, this web site has been a life saver. Happy weekend everyone! Hugs, Pat

Hi, and welcome! This is quite the journey you have embarked on! You are on the right track. I had my « episode » like I like to call it, almost 3 years ago. Still dealing with head fuzziness, memory problems and word retrieval. It can be frustrating at times, but like previously mentioned, these things happen more frequently when I am tired. I am lucky that I don’t have the terrible headaches people talk about. As a matter of fact, I can’t remember having the « thunderclap » headache 🤕 Let us know how you are getting along. Remember this is a community filled with helpful people, ready and willing to listen.. You are not alone!!! Best Wishes, Pat

Welcome Jo-Anne, from another Canadian! I live in the West Coast, Vancouver area. My journey started almost 3 years ago (Oct 28, 2016). Recovery is a long road, be gentle with yourself. I am still feeling the effects of my brain bleed, and just realize that this is my new reality. I am lucky, in that I don’t suffer from the bad headaches that people comment on, but I certainly get « brain fog », difficult time with my short term memory and the ever present fatigue. No use fighting it, when I’m tired, I nap🤪. I needed to modify my career, but you know the saying « when a door closes..... » I’m just thankful to still be able to walk through those doors 😊 You will find some much needed support here, I find myself returning to this web site when I need that bit of confidence and encouragement. Good luck in your recovery, be kind to yourself, and remember to listen to what your body is telling you it needs! Miles of smiles, Pat

Hi Diane, I’m 2.5 years post bleed, and I still deal with the fatigue. You are right, it is difficult, at times, for others to understand that our lives have changed. We need to make accommodations for our new reality. It takes a very long time for our brain to heal, and honestly it heals but in that healing, we change. I was in the hospital for one month ( 29 days). I had a couple small bleeds, but also had vasospasms. I was home for another 4 months before I was able to return to work, and then I was on a reduced schedule. I am an Early Childhood Educator, in the field for 35 years. I now work 14-16 hours a week, and it is perfect. There are some days ( though less now) where I feel like I’ve hit a brick wall and need to nap. That’s OK, I am stronger than I was a year ago, I feel lucky to be here. This is is a wonderful place to ask questions, vent, realize you are not going crazy, that there are other people who feel the same as you do! Keep popping in, and learn from all of us. Take care, and be kind to yourself! Smiles and hugs, Pat

Hi and welcome! It’s been 2.5 years since I had my bleed, and though I am doing well, I have had to adjust my life. You will find this group a great help and wonderful place to share your feelings. The hardest aspect of recovery for me has been my mental health. Anxiety and fear seem to lurk in my psyche. Time, friends, family and this community, have been a big part of my recovery. You are still fairly early in your journey to recovery and it is very normal to feel anxious. I honestly think that along with the physical help to recovery we receive, we should be able to receive some counselling for our mental well being. Even after this time has passed, I can still get caught up with the “what if’s”. I wish I would have discovered this group earlier in my recovery, I would have realized that my feelings were also shared by others. Visit here often, and don’t be afraid to share your feelings, especially if you are needing reassurance. Chances are somebody here has experienced what you are struggling with at the time. Take care of yourself, rest is your friend😊 Sending you healing thoughts. Pat💕

Hi Melissa, I had my bleed 2.5 years ago (Oct. 2016). I don’t remember much either, and it truly drives me crazy. I’m slowly learning to let it go, but it is hard🤪. I was in the hospital for one month- 26 of those days in a “quiet” room. No stimuli whatsoever ( no lights, no reading, t.v. and was only allowed to get up to go to the bathroom, after 2 weeks) I also ended up with vasospasms, but had no idea what that was. It wasn’t until I was at home and reflected on what could have happened to me, that the anxiety kicked in full force. That is when, by the grace of God, I stumbled on this site. I found out I wasn’t imagining my symptoms, and I wasn’t alone💕 I’m still having memory lapses, difficulty retrieving words, fatigue and I think that is my reality now.....but I am alive to experience these things. I have had to redefine my career ( preschool teacher/ special needs support worker-36 years) still working with preschoolers, but in a different capacity and less hours. At the end of the day, know that we all “get it”. There is immense support here, because we have all walked in each others’ shoes😉. I am looking for a therapist, to deal with some of this anxiety and I really feel that part of our medical treatment should have a mental health component to it. Sending you big hugs, Pat

Hi Trish i know how you feel. Some days are better than others. I also battle with anxiety and depression ( have for many years, but it’s a little more now). What I find most frustrating is that I don’t remember much of what lead to my bleeds, and how I was feeling at the time. My husband tells me that I was complain8ng of a bad headache, but I don’t remember any of that. A lot of that time has been erased from my memory. I tend to revisit that time in my head, but it’s blank and there goes my anxiety level. I have to learn to let it go.....easier said than done. Lol! I feel truly blessed to come out the other end of this fairly unscathed❤️ We do need to be stingy with our time, and listen to our bodies. If that means afternoon naps, then so be it!!!! Congratulations on your 2 year anniversary, and wishing you all the best. Hugs ♥️ Pat

Congratulations on your one year anniversary!!! I just had my second anniversary on October 26, and I still get overwhelmed with places that are too loud and busy. It is much better than it used to be, that is for sure. It will get better for you too, and slowly but surely your confidence will build up😊. Main thing is to listen to your body, and respond accordingly. Wishing you good good luck with the procedures you are waiting on. Don’t forget to let us know how you are doing. Sending you positive energy. hugs, Pat 🤗

Hi Jojo - Welcome! I am 2 years post SAH, and I’m still trying to piece things together. I wasn’t given much information when I was discharged after being in the hospital for 1 month. I developed vasospasms, and spent the month in a “quiet room” - basically no stimuli at all. Once i I began my recovery at home, I started questioning why? I began doing my own research, but still had many questions unanswered. I’m slowly working through some stuff, and decided to see a therapist. I am no longer under my neurologist’s care, and my GP can only do so much for my anxiety. I listen to my brain, when it lets me know I am tired, then I nap - or take time for myself. I am basically dealing with fatigue and some memory/processing issues. Nothing that anybody else would notice, but I know the difference. I returned to work 5 mos after my bleed, on a reduced schedule. I have since modified my work situation even more. You will find this site to be a god send. We have all “been there” and understand each other’s anxieties, fears, frustrations, but also the gratitude we have for recovering from our bleeds. Life may be altered somewhat, but we are here to enjoy it! Wishing you all the best in your recovery?

Thank you ladies, for your kind words and wishes! ♥️Pat

On this day 2 years ago, I had my “episode “ as I refer to it. Lol! I am feeling great, I am working, albeit in a different capacity and much less hours, but I decided a while ago that I need to do what is right for me! I have had wonderful support from friends and family. Having said all that, I still am not 100% of my old self. I still deal with fatigue, fuzzy head, anxiety and depression. This site has been a god send to me. Let me take this opportunity to say Thank You to all of you. We have all come out the other side of this, and for that I am thankful♥️ Hugs, Pat