Tina

Hi Marie

A warm welcome to you, my SAH happened 3 dec 2008, I am still in early stages like you. Everything you wrote about how you feel is how I have felt, and all the lovely people here have told me it is normal and will get better. I had a very tearful anxious time a few weeks back, after being so positive it just hit me from nowhere. But I am glad to say I feel alot better, alot to do with the support and kind words from everyone here, and knowing that I was not going mad!!

I too have problems with my eyes, balance and noise sensitivity. I have double vision and blurriness, which effects my balance and gives me major headaches, just trying to concentrate.Also the dreaded short term memory, that just drives my insane!! Have learnt not to run before I can walk, as over doing it just sets you back and makes you feel awful. I had terrible nerve pain with my eyes, Karen helped me alot with her advise. There is always someone that can help, it is wonderful.

Marie , take care rest alot and listen to your body, things can only get better

Like you I more or less look back to normal and people say the same, you look well, but they cant see the mending that is going on inside. Thats why this site is so wonderful, it lifts your spirit and helps you cope.

Have a great weekend

Love Tinaxx

Hi Louise

Thank you, and here is to let the healing get on with the job!

Your a star!

Take care

Love

Tinax

Hi Louise

You are a great inspiration! I know it is silly getting frustrated, I am realising now that it does not help. Like you I am a fighter and determind to get my life back on track. And as you say we are here and survived! One step at a time

Take care

Lots of love

Tinax

Hi Cyberhorse Mel

A warm welcome to you. You are in the very early stages at 6 weeks,things can be very hard. I have found this site so friendly and helpful, it has helped me so much.

Things do get better, slowly but surely, sometimes going backwards a bit. Everyone has told me to take my time, rest alot and listen to my body, and it is all true!

My SAH happened nearly 5months ago, I am on the mend, still problems with sight, balance and headaches. A few weeks ago I went from being really positive and up beat, to feeling low tearful and anxious. The wonderful people on this site, told me this is quite normal and made me feel human again! Any questions you only have to ask and someone will have an answer!!!

Take care, look after yourself

Tinaxx

Hi Karen

Thanks for advice, I will do as you advise and alternate eye patch , because now my good eye is nearly as painful as bad one!! Will keep using eye drops , Like you I am not blinking properly and wont shut properly.

Had really bad afternoon eve yesterday, took 2 piriton last night as well as pain killers, I actually got a bit of sleep. Dont think will hurt to do occasionally when bad. Well it helped!! Till the pain woke me up again. More pain killers!! Never liked taking them but have to at moment.

Thanks Karen, hope you are feeling better. Onwards upwards things can only get better

Louise, things must have been just awful for you,dealing with everything and menigitis, I went to Dr and he said I am trying to do too much, causing more problems. So resting up but find really hard and frustrating. Tiredness causes more eye pain so thats what it must be .

How you managed all that time without the support of this wonderful web site I dont know. You are obviously very stronge and a fighter.

Ellen, I hope you feel better really soon, it is scarey when you come out of hospital, because many of us do not get told anything, I have found this site very helpful, there is always someone that can help or give advice from personnal experience. Gives an insight to what is or can happen and help us to cope better.

Take care everyone

Love Tinaxx

Hi Leo

Nothing wrong with that!! Roll on summer, the sunshine always makes things better, and might be able to get in the garden without being rained, hail stoned, or thunder stormed on

Take care

Tinaxx

Hi Leo

My scar is a bit lumpy, but I have a metal plate and srews there also, so could be why it feels strange. I am lucky because it is from the top of my right side of my head, finishing in front of the bottom of my ear. My hair covers most of it.

I am glad you have an appointment to check this out, hope it will all be sorted for you.

I remember when I first went out, it is a very weird feeling, I still cant hold the phone to my ear for long, use loud speaker!

Things can only get better

Take care

Tinaxx

Hi Leo

Welcome That wasnt much fun New Years Eve!!! So glad you made it through.

I am glad that you found this web site as helpful and friendly as I have, it is good to know we are not alone, and others understand how we feel, and we are not going mad.

I am learning to be patient and to listen to my body, plenty of rest.

Hope you are too!!!

Take care, be well, let me know how you are doing, thanks for replying.

Tinaxx

Hi Karen

No one told me either how painful nerve damage is. I had nerve damage to all

down side of face. Now it is just the ones connected to my eye. Have been using the drops, but dont seem to make any difference. My eye now wont close fully from not openeing at all!

I was mis diagnosed by my Dr as having a sick bug. If it was not for my friend rushing me to hospital who knows what would have happened.

It is only 4 and a half months since my difficult seven hour operation, so I know it is still early days. Dr told me not to patch up my eye as the brain needs to re callibrate eyes together, yet my eye specialist says my nerves have to re grow and re attach so who knows!!

I am sorry you are still suffering so long after it all happened. I send you a big hug

My balance is still dreadful, not sure if it is the double vision and blurriness or because they cut down through my ear. Had a lot of pain there, but has improved.

Time and rest is the healer i know, but we still have to get back to normal life.

My head is banging from trying to concentrate and type this, but determind to do it.

Take care and hope you will feel better very soon.

Lots of love

Tina

Hi Karen

I think you are amazing, If it was not for your selfless dedication and all the support you and everyone has given me,I would be alot worse off and worried about every ache and pain. The information I got and support when home was nil, if it was not for my husband and best friend I dont know what I would have done in the early stages . This website is has been a life line to me, so thank you from the bottom of my heart to you Karen and everyone who responded and supported me. THANK YOU . I have not been well, suffering the same as you Karen my eye pain is just awful at the moment and my headaches worse I think because of my eyes. My Dr says take paracetamol and ibprofen as required and see how I go , but does not touch it. Dr says it is nerve pain .Cant sleep at night driving me mad. I am going back to see him Monday. I can relate to your pain.

Hope everyone else is ok, hope to be back chatting in green room soon, just hurts mys eyes and head so much to use computer.

Lots of love

Tina xx

Hi Louise

Hope you are well, the sun has gone here today, rain rain rain, yuk!

Having lazy day today. All those eye tests play havoc with your eyes dont they!!!

Hope you have a good day,

Take care

Love Tinaxx

Hi Louise

Thanks, hey the sun is out today, not such a poser!!!

Might have to get glasses with normal glass with prisms[spelling?] to help my double vision, might be able to get light activated ones, worth asking.

Hope you have a lovely day,

Take care,

Tinaxx

Hi Sami

Thank you for replying and for the reasurance

It is still early days I suppose, but the emotional side has really hit me. I am feeling frustrated and guilty at the same time, feeling up one minute and down the next.

Time is a healer I know and I must rest and be patient and listen to my body as you have said.

It is great to know you are out there, and how I am feeling is normal!!!

Catch up soon

Take care

Love Tinaxx

Hi Louise

Thank you for the welcome, I bet you have to wear sunglasses like me alot, roll on summer and I wont feel such a poser!!!

Thanks for for encouragement, really appreciated.

Take care

Tinaxx

Hi Yasmin

Thank you

Yes you were right! I feel so much better, everyone has been lovely. So nice to know we are not alone and know how we are feeling and what we are going through.

Hope you have a great weekend,

Take care

Lots of love Tina xx

Hi Jess

You must have you hands full, I remember it well. Enjoy it , they grow up so quickly.

Both mine were fertility babies and both 6 weeks early. Tried 5 years before I fell with my son, went into early labour at 24 weeks but managed to hang on another 10 weeks when he was born. My daughter was more straight forward, but still wanted out early!! I had a 4lb 5ozs and 5lb.

Take care

Tinaxx

Hi Karen

Thanks, it is good to hear I am not going mad!!! I cant believe that so many people have suffered SAH. I just keep hearing more and more, I wonder if it is the stressful world we live in.

I was trying to find a local support group, but there is not one at the moment which is a shame. Really glad my husband Mike found your web site.

Hope you have a lovely weekend, take care

Tinaxx

Hi Jess

Thanks for replying. I too have two children,but grown up, Christopher, he is 20 and Sammy she is 18 !

I missed my daughters 18th because i was in hospital, never mind her 21st will come round soon enough. How old are your two?

Mine both work, time just flies. My husband Mike has four kids, also quite grown up. Emma 21, David 19 Rachel 16 and last but not least Kathryn 12.

When we all get together it is a mad house but really nice as the kids all get on well.

A neighbour is having a 40th bash this saturday, and as it is only over the road thought we might pop over, can have a nap in the afternoon to re charge batteries!

Hope you have good weekend

Take care

Tinaxx

Hi Keith

You just said exactly how I feel. Because now I more or less look back to normal, my right eye sometimes looks a bit starey , but people think Im back to normal. They dont realize I have double vision, balance problems and bad headaches and of course the fatigue. I put on a brave face always positive, when anyone says 'how are you?' I reply I am fine thanks and smile.

They dont want to hear 'Actually I feel quite down and tearful and dont know why' I dont mean to bore you either, but nice to get off my chest. Do you think my emotions are like this as someone else said because it is now all hitting me, or just brain trauma?

I can be quite hard on myself, I get cross I cant do things for myself. I have always been independant,driven and organised, now I crumble if I have to try and fill out a form and need help. Maybe I dont like having to ask for help all the time, actually I know I  dont !!!

Things will get better I know, just reading what you and others are and have gone through helps so much.

Thank you for taking the time to reply.

Take care

Tina xx

Hi Vivien

Thank you for replying, I have trouble with my short term memory too!! Really frustrating.

The web site is wonderful! Hope to hear from you again soon.

Take care

Tinax

Hi Keith

Thankyou for replying.I know I cant rush back to work and really appreciate your words. Get so exhausted doing the smallest of things! Just feel guilty even though I could do nothing to stop it from happening. My husband Mike has been wonderful, so supportive I am very lucky.

Hope to hear from you again soon,

Tinax

Hi Holly,

Really good to hear from you thanks for your kind words. Fantastic you are back to work, well done you . I will take on board your advice and take it slowly. I do need to get back to work for financial reasons, but know i cant rush it which i do find very frustrating. I will pop in as you do for a chat.

Really nice to know you are there, take care hope to talk soon.

Tina xx

Hi Karen

How nice to share with others that are experiencing the same.

I am very light sensitive, my balance is effected by motion and double vision as you know is very strange.

I am adapting and keeping positive, just been low and tearful this last month, dont know why, think everything hitting home, frustration coming out, because I know I have to be patient.

Good thing is it takes ages to type this and with many mistakes!!! But I am smiling today, because of you and others that have replied to me.

Thank you for being there and caring.

Take care

Hope to chat again soon

Tinaxx

Hi Janet

Thank you for replying, It has made me feel better already to know it is normal the way i am feeling! Like you say i think what happened to me is only just sinking in. I am 45 work for myself and have always been healthy and rushing around like a headless chicken,just dont know where it came from, but has made me stop and re stock my life.

Cant tell you how grateful i am to still be here as it was very touch and go in hospital. My consultant was amazing, as were the nursing staff Atkinson Morley Tooting.

Find things frustrating, because normally i am very organised and in control, now i cant remember one thing one minute to the next! The severe tiredness and headaches and double vision i know are nothing for my life, but hard trying to deal just with everyday life. Hope to hear from you again soon.

Take care,

Tinaxx

Hi Laura

Mike has been amazing, very supportive in every way, we are very lucky having such good men in our lives .

I am off to bed now, well past my bedtime these days!!!

Would love to talk again soon.

Take care

TinaX