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Carolyn250

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  1. Hi there I’m based near Leeds in UK. I also had my bleed in covid times which was tough cos it means you’re alone in hospital - well done for getting through that 💪 i have found that different NHS areas have different levels of support and in my case it was non existent. I was SO relieved to find this forum. It’s so true, the bit where everyone says it’s early days - I thought I’d recover quicker but I didn’t. I’m 9 months in and tho significantly better I’m still fatigued, headachy and at times a bit low. I also still panic it might happen again but that is reduci
  2. In the UK some of us do and some of us don't get called back for a follow up angiogram. In some ways I wish I had, because I feel like it would put my mind at rest that nothing else had developed since I had my bleed. Go for it, take/ask for a sedative and maybe it will give you greater peace of mind afterwards x
  3. I spoke to Headway support person today. Really lovely and supportive and saying much as you are - “be patient. It will get easier”. It’s all about managing expectations. If they’d told me it’ll be a year in first place I’d prob be worrying less!! 🙄
  4. I’ve raised it with GP but standard - “well we can try but with COVID.......”
  5. Hi everyone I hope this finds you all well I am now 5 months post NASAH and with no one to talk to about this I'm just looking for a bit of reassurance on progress - or not! I am certainly improving compared to how I was 6 weeks in but improvements are incredibly slow and frustrating. Maybe I am expecting too much? I have headaches and neck aches/stifness as a daily constant. The buzzing/busy head is also pretty constant although when it isn't it's usually when I am more able to do things and feel more 'normal' The memory is pretty bad compared to bef
  6. Oh blimey worry not. I’ve driven 3 times so far and just locally and only when my brain feels clear and with a fall back plan in my head! I haven’t lost confidence in driving but I know I need to consider my head state each and every time. I’m a long way from being a “hop in the car whenever I need to” driver again!!! 👍👍
  7. Thank you so much for your continuing support. I have posted an update in 'Adjusting mentally' so won't re-do here However what I would say about having a NASAH in the time of Covid is that I think you are required to push that little bit more. Covid backlogs meant that I wasn't even on the list to get an appointment for a follow up, never mind have an appointment! So I searched for my consultant named on discharge notes to see if he practised privately. He did so having spoken to him I feel like I have had my follow up! He also had my notes with him which was helpful an
  8. Hi all and thanks very much for your wise words, advice and support. Really appreciated. I'm now day 65 and there are some changes. I managed to track down my consultant as follow up appt at 8 weeks was never going to happen because of covid. I decided it was better to pay to see him rather than wait. Too many unanswered questions. I had 30 mins with him on a video consult and he didn't charge me. Nice man. He said the chat we had was what he would have done at a follow up. So I felt re-assured. In summary My various symptoms ongoing were to be expected. He
  9. Thank you all so much for your replies. Your support is massively appreciated
  10. Also does anyone else get this. When someone comes to see you they say how much better you are looking and stay for a cuppa etc for an hour or more. I can most often chat fine with people and if I start to get tired they don’t always see it. Just remark how well I look. I feel they think I’m fine but inside my head is a different matter. It’s buzzing/tiring etc. I wonder if people think I’m putting it on because I look well. Inside vs outside??? How do I explain that?
  11. Thanks - I’ll see if there is anything like that for me. Covid has made things more tricky it seems. I’ve had next to no support apart from 3 x 10 min phone calls from a GP who’s never met me. Still no follow up from hospital
  12. Thank you all for your replies. It’s always very reassuring to hear from people further on than me. Did anyone get any mental support and if so what? NHS or private and did it help a little or a lot? onward and upward
  13. Hi it’s me again - sorry to bombard you all with questions! I’m now 6.5 weeks (not that I’m counting lol) post a NASAH. I have no side effects physically so feeling very lucky. I am finding the speed of recovery a bit challenging as I’m a get up and do person and sitting around isn’t really me. I have however become best friends with daytime TV (arghhhh!) as I simply can’t sit and do nothing. My question today is how you managed with this whole thing mentally. I don’t mean the anxiety attacks that wash over me unexpectedly but the whole thing about what just happened to
  14. Thanks Skippy i fully plan to live freely - I’ve no intention of being defined by this but I guess it’s early days although tbh I thought I’d be back to normal by now!!! Lol silly me! thanks for the inspiration and wise words x
  15. Oh no not harsh. Sound advice im not driving either!!
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