Annie

I loved your post too, Andy. I especially loved the analogy of love becoming fluid in your life. I know exactly what you mean. It's part of our appreciation for life that is enhanced by this whole experience. I told Jack about your post and he was impressed too.

Oh these HOSPITAL PEOPLE!!! That makes me so angry. I'm sorry that they led you on a goose chase. My positive energies are flowing to you all weekend and I will pray for HELPFUL results on Monday, whatever they may be. hugs, Annie

Oh Karen, I'm so sorry about your trauma. I had several thoughts while I was reading your last post. First of all, what a GIFT that you have set up this gorgeous website and isn't it ironic that you might be reaping the most benefit from it for a while? Lauren, be sure to check in for Mom here daily and take messages from her to us if she wants. I also thought that in a way it will be a good thing if they do find a leak, Karen. At least that would explain why you've had such a hard time getting to fuller recovery. If it were me, I'd be glad that there is something for them to look at, check out, and maybe attend to. I would find that a hopeful thing. Maybe I'm weird, but there's something about being in the hospital that I find comforting. At home I feel like it's all up to me and Jack to make things better. In the hospital, I feel like it's THEIR responsibility and it's just ours to cooperate. So let them carry the burden for a while. You just lie back and have them go at it, ok? You need to LET GO of the house and family worries for a little while and just float along, letting everyone else do the work for a while. Let God (or the "gods" or the "universe" or buddha!!!) handle things for a while. Watch the proceedings like it's a TV show and wait for the outcome. I'm sure there are some trust issues since you had such a horrible experience with your first doctor. But you and yours know now how to demand help. And now you're getting it. So you've done your part. Breathe. Trust. Let go. Rest. We are all with you. Love, Annie

Hi Lauren, I wish I had a daughter like you. Bless your heart. I will ask my husband to add a few thoughts here soon. I know this whole experience has been startling for him too. He's been wonderful. The best of nurses and guardians. Annie ps... music? art? chocolate? we have so much in common!

Dearest Karen, I am so sorry to hear of your recent hard time. Please know that I am thinking of you, and I pray for more improvement for you. I think Andy's advice is good.... to look at how far you HAVE come. Look at the progress you've made. Nevertheless it is so discouraging to be feeling bad a year later, I know. Here's a hug (( )) I do wonder if perhaps what you experienced was a migraine like you had prior to your SAH and not actually caused by SAH damage? And remember, at "our age" the migraines can be more of a problem. I love the idea of a pamper day!! What a great gift. Hope it's wonderful.