Super Mario

Claudette, please do not try to worry, we have members who have had coils added and all have been fine.

I know you are assuming but until they tell you what is what you are totally in the dark.

I think it was a bit naughty of the to mention anything to you until a decision was made on further treatment, then they could have given you the full picture not half of one causing this worry.

It is only natural to be frightened, anyone would be. As to a decision, only you can make that after discussion with the medics.

Sarah, sometimes painkillers themselves can cause headaches. Possibly that was what was happening to you. Hope today is as good as yesterday and keep up the fluid intake which will help.

Congratulations Daff, you have come so far and you are a true inspiration.

You are in a stressful job at the best of times. You are early on the road to recovery and maybe you have tried to go back to work too soon. Many have had to take 12 months off before starting a phased return.

Welcome to BTG.

There could be many reasons for the headaches to have come back, not necessarily anything to do with the SAH. 

Raised blood pressure can cause headaches as can anxiety. Have you had your BP taken by a medical professional or have you just done it yourself?

As we are unable to give any sort of medical advice I suggest that you see your doctor with your symptoms.

If nothing else it will give you some reassurance.

Hi, just about everybody has the fear of a re-bleed initially but your fear has gone beyond that. I would say a visit to your doctors is called for with the view of asking to be referred for counselling to help you come to terms with what has happened.

 I can use all the household toys except irons .Never could find the on switch & stopped looking years ago

Now you can ask SZ to guide you in that direction, he is the expert.

Welcome to BTG, lots of support on here.

Congratulations Clare, you have achieved so much in the year and a new job as well.

I wear a hat in winter because the cold freezes my shunt so much it seems to burn through my skull. Same in summer when it gets heated by the sun for the same reason. 

Luckily I do not seem to have a barometer head.

You lot are making me blush 

Believe you me, I didn't have that attitude in the early days. As time passed I thought to myself, this is stupid, make the most of what you have got. Luckily I am the type of person that has a strong mind set possibly because of all the ups and downs I experienced in my earlier years. I dragged myself out of the mire many times.

I now look on the fact that the SAH did me a favour in many respects. Early retirement, decent pension which enables me to do most of the things that previously I could only dream about, albeit in many cases in a different way to how I would have done them prior to it.

Yes, I use a walking frame, yes, mobility is a struggle but I have learnt to adapt. I have no embarrassment now when I fall whilst out, just hope for a hunky young fellow to come to my rescue and pick me up.

Life can teach us a hard lesson but there is no point in moping about it. Pick yourself up and carry on.

Not celebrating, still have that bug.

SZ, my favourite places are a small village in Turkey where I go yearly if possible and the very tiny Greek islands that are only accessible by ferry, places that are frequented by the Greeks.

Another favourite is Lopud Island, Croatia but it is too expensive now. I actually arrived there by speedboat. All beach type holidays.

Most impressive place I have visited is Petra in Jordan as well as the Egyptian Museum in Cairo where King Tut's treasures are on show, all that gold and the mask is breath taking. The temples along the Nile are awe inspiring.

Nearly forgot, although pre SAH, the Pope's Easter Mass in Vatican City, Easter 2000. Something that will stay with me forever.

12 years ago today my life and that of my family's changed in a split second. After recovery I had to cope with disability which also affected those around me.

I now look on the SAH positively in one respect, no point in brooding, it happened and you can't turn the clock back. A teenage girl once said to me that I have made a new life. How true that is.

The SAH afforded me to live my life as I wanted, without any work constraints doing what I want when I want. That is the bonus.

Because I was no longer able to continue in my job I was retired early, leaving me with the opportunity to continue my love of travel without being restrained by holiday entitlements. Travel I have done, to places I could never have thought I would visit mainly due to high prices. Now I can pick and choose the most affordable.

My whole attitude to life changed 12 years ago, there is more to life than work, work and more work. My motto now is "Live life to the full to the best of your ability, blow tomorrow, it may never happen"

Regarding noise, 12 years down the line I still cannot tolerate any noise at all other than the quietist. I do not have a radio on, even though I tried it on very low to try to train my brain to accept the continual sound. That didn't work, I don't even watch tv now as the noise and movement makes me feel ill, besides which I cannot remember what has gone before.

Found the same story in The Scotsman which is wholly readable.http://www.scotsman.com/news/orkney-man-recovering-from-brain-aneurysm-in-thailand-1-4005944

Information about PRES

https://en.wikipedia.org/wiki/Posterior_reversible_encephalopathy_syndrome

Thanks for coming back and letting us know of your progress.

Best of luck with your new job.

Happy New Year to you too.

There is such a thing called Terson's Syndrome http://emedicine.medscape.com/article/1227921-overview

It may be worth getting the doctors to investigate for it.

I had it in one eye and it didn't clear up so had an operation and my eyesight is now back to what it was.

Debbie, welcome to BTG. You may get more replies if you start your own thread in "Introduce Yourself"

A letter from your brain
http://web.behindthegray.net/index.php?app=core&module=search&do=search&andor_type=&sid=df3bd081bc0a23f560fab803a0f0adec&&search_app_filters[ccs][pages][sortKey]=date&search_term=a+letter+from+my+brain&search_app=ccs&search_app_filters[ccs][searchInKey]=database_1

Any posts on here do not appear on facebook.

Greg, I think I am correct in saying, if you get contribution based ESA, which you should as you have been working, it will be added to any other income you have and the full amount of income is taxable, less your personnel allowance of course. You will have to inform the tax office and your tax code will be amended accordingly as tax will not be taken off ESA but your other income. 

If you don't inform the tax man then you will get a bill for a lump sum after the tax year ends.

Just makes life easier to pay as you get the money.

Just keep that in mind when you get the award or tell HMRC now if you are on the assessment rate.

It wasn't self diagnosed; if I gave that impression, it wasn't intended.

 

Susan

Thank you for clarifying that.

As an explanation, there are too many folk out there who are inclined to self diagnose from the internet. The internet is a wonderful tool but one can get false answers from it as not everyone's symptoms are exactly the same. One should see their doctor for anything causing concern, not depend on getting an answer online.

On another note It is far too easy to blame ensuing problems as being caused by a SAH, when in fact they are not related at all.

Sue, there may be other reasons why your bladder acts as it does. The SAH may just be coincidental.

Self diagnosis is not always a good thing. I suggest you see what your doctor says.

Thank you for the link anyway, as you say it may be helpful to others.

Greg, your Gp is correct in that if you fail to be awarded ESA then you can ask for a mandatory consideration and if you fail that you can go on to a tribunal.

Be aware though that it is not the person with whom you have the face to face interview who says if ESA is awarded or not, it is the Decision Maker at DWP and the assessors are notorious for putting the opposite to what you say. When you arrive at the assessment centre you will be watched all of the time, even from leaving your car. Just like Big Brother

It is advisable to take someone with you too.

Regarding the recording, you have to book it with the assessors in advance and their own equipment is used. Covert recordings are not allowed and should you be caught will invalidate the assessment. Covert recording cannot be used as evidence.

Look at the top of this forum and there are stickies with links to forums that will give you more information about this. One of them I strongly recommend you join for free http://www.youreable.com/forums/forum.php  where there is a wealth of knowledge. Have a look round that forum and feel free to ask any questions

myratas, not the same as hydrotherapy but similar. I go to an aqua fit class at a private swim school where the water is warmer than usual. The session is specifically designed for stroke survivors. Over the years I have seen very gradual improvements of movement in members.

If you can stick at it, it will more than likely help.

Win, I am not a guru of anything but thank you for your vote of confidence.

Sadly I know nothing about life insurance. The only thing I could suggest is to contact The Stroke Association and see if they can suggest a provider. 

The other option is to wait until the review and see what they say. You may be able to get it then but I suspect the premium will go up horrendously.

I have balance issues 11 years on. I can't remember the early days at all but seem to think that I was okish at first then a week or so after discharge I kept falling over. It is much worse when I am tired or fatigued and I can't stay on my feet at all then.

I use a walking frame all of the time now and still manage to fall.

I also have a shunt and often wonder if the original hydrocephalus was the cause of my balance issues rather than the SAH but nobody can answer that. It is unknown when the damage causing the problem was caused.