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Posts posted by Super Mario
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Andrea, you need to get that checked out by your GP.
It may or may not be anything to do with your SAH.
It is too easy to blame all ensuing problems on that when in fact it isn't at times.
I think we have all done it in the past until learning better.
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17 minutes ago, Aandrea said:
Thank you all of you I have so many question to ask one I have left side weaknesses and it feels really heavy is this normal and will it get better x
No one can predict any recovery. As we are not medically qualified I would suggest that those are questions you should be asking your doctors although there may be others on here who have experienced the same. Just remember that everyone is different.
Have you had any physiotherapy? If not it may be wise to explore that option if it is recommended by your doctors
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Andrea, welcome to BTG.
What you are feeling is quite normal. Yes you will be happy again and you will feel you have control of your life.
It just takes time to come to terms with he event.
Possibly a visit to your doctor to explain how you are feeling and to request some counselling to help you along the path of acceptance.
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2 minutes ago, Topsy said:
Thank You Mario for your Advice. ......... I am hopeless at the moment worrying about every single ache and pain
I think that is a natural reaction to aches and pains after a SAH. Many of us were exactly the same in our early days of recovery.
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Take it very slowly, your brain needs lots of time to heal. You cannot run before you can walk. If you do you will find yourself taking backward steps in your recovery.
As for returning to work, 2 1/2 months after a SAH is very early in most cases. You appear to have a very stressful and busy occupation so if you do return don't be surprised if you can't cope. If you must return to work make sure it is done on a very slow phased return basis and preferably some of the responsibility taken off your shoulders for the moment.
Does your employer realise the implications of a SAH?
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Hi Topsy, the short answer is to take advice from your doctor, neurologist or dentist. You must get it sorted one way or another, pain is not good for you.
It counts as medical advice which none of us can give as we are not medically qualified.
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For the above forum you don't have to be disabled to get advice.
You would be advised to contact your local Citizens Advice Bureau, Welfare Rights Dept at your local council or county council or even an Unemployed Workers Centre for a full Benefits check.
Disability is more a functional or mental deficit.
Get onto it asap as benefits now take quite a while to sort out.
The last place you want to ask Is at the Job Centre or the DWP help line as they very often give wrong advice and information so try and avoid them
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Welcome to BTG.
You are still in the early days of recovery in the case of a SAH, so yes it is normal in most cases.
You have to take things slowly, baby steps, because if you don't you will end up taking backward steps.
Fatigue may get better, only time will tell. Everyone's recovery is different, there are no hard. fast rules.
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Jenni, as Sarah has said get to work on what benefits you are entitled to. There may be rent/ council tax reductions you can claim as well. As he is employed his employer should be paying Statuary Sick Pay.
If no CAB try an Unemployed Workers Centre or your local council may have Welfare Rights Advisors. The sooner you do this the better as claims can only be backdated from the date of application.
I wish you both well.
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When is individual, everybody is different in their recovery. I would presume physio will do exercises on the legs to encourage movement and to build up muscles that will have wasted away due to non use. How they do it will depend on the patient's ability. As I have said, no two people are alike..
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Hi Kim, so many of us experienced the same thing, no after care and were left pretty much alone other than possibly one follow up appointment. Seems to be a common denominator in the main.
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Steve, welcome to BTG and thank you for sharing your experience. We are pleased that BTG has been helpful to you. It is a fantastic support group for survivors
Just because you feel your strength is returning do not feel tempted to rush your recovery or you may find yourself taking a step backwards. We always say baby steps are the best way forward.
If you feel like it you are welcome to join in the banter in The Green Room or even share any frustrations in there.
We also have a Games Forum which can be fun, if you wish to join in, don't be shy.
Please keep us updated to your progress if possible. It can help others in your position.
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Palhuc, this is just a thought, could your insurance company have a say in where your hubby needs to go, ie rehab.
At the end of the day it is they who are picking up the bills so surely it would be to their advantage to see him treated as soon as possible for the best outcome.
Sorry if this is not appropriate but I know nothing of health insurance over there.
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Faymuss, there are members on here who have had children after their SAH. Someone will be along in the near future to try to reassure you and tell you of their experience.
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I have flown numerous times since my SAH 13 years ago now, approx. 4 or 5 times a year, and I have never been told that there was a risk with flying and I have asked. Insurance is expensive though, not to declare the SAH will put your mum at risk of not being covered for anything at all.
All you can do is take advice from your mum's doctors.
I truly hope that your mum can attend your wedding.
As to the short term memory and fatigue issues, each and every one of us survivors have had different recovery times. There is no set timescale, each person is different. In the main recovery is a long slow process and often people do not fully regain their short term memory and still suffer with the fatigue years later.
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Hi Gemma, re your mum flying, the general consensus is that 3 months after any surgery it should be safe. You MUST take medical advice first though. Another thing is the problem of insurance, if the flights are already booked and insurance already in place on a doctor's say so the insurance may possibly still cover your mum. The company must be informed though.
I suspect, if insurance isn't in place, it will be difficult to obtain and very expensive if it can be got.
This is speaking from experience, I had a holiday booked and insurance in place when I had my SAH, because I had already got the insurance from the time of booking and the doctors said I could travel they still covered me.
Sorry to be the bearer of possibly not too good news.
I sincerely hope that all can be resolved and that you have the privilege of your mum at your wedding.
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My taste completely changed after my SAH although it did gradually return. All I was able to drink in the hot drink line was coffee, tea tasted foul. The only things that tasted alright were smoked fish, salad and mushrooms on toast. I lived on those for months.
Funnily enough, my taste changes, post SAH, were almost the same as in the 1st three months of pregnancy many years ago. I put it down to the SAH affecting my hormone production, rightly or wrongly, I don't know. Was possibly just presumption on my part.
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Rob, so pleased that you finally got your driving license back. It does make life a lot easier.
Thank you for the update.
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Missy67 and Susan, your posts are not relevant to the thread. If you need to carry on a conversation please do it by pm. . Posts deleted.
Please see the Forum Rules.
This is nothing against either of you and it is great that you have met personally but to go off subject detracts from the original thread.
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Graham, do you belong to a union? If you do a representative may be able to help you with your battle.
I vaguely remember someone else a good while ago having similar problems but I can't remember the outcome or if it was even posted. Do a site search for "insurance"
Sorry I haven't got time to search myself for you at the moment.
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Heather, thank you very much for coming back here to give us such a positive update. So many members just come and then go and we often wonder how they are faring.
The support your daughter is offering to others will be invaluable to them.
This post will give hope and encouragement to others that have suffered a SAH.
Well done Rebecca.
Heather, may your daughter continue to go from strength to strength and achieve all she wishes to achieve.
I wish her all the best for her future.
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Lindsey, this thread is 3 years old now so I doubt if you will get any answer, the original poster is not visiting anymore. I suggest you start a thread of your own with more detail if you would like to hear from others that possibly have the same problems as your dad.
Please be aware that we cannot give medical advice.
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Would be prudent for your mum seeing her GP again. Headway have nurse specialists that she could contact and speak to. They will be able to give your mum medical advice.
I can understand how worrying these headaches are for all of you, especially your mum, and worry by her could possibly make them worse.
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My children were offered MRI scans by my treating hospital as the consultant believed that there could be an hereditary link.
In fact I know/knew of someone who lost a parent and a couple of siblings to SAH, sadly they lost their life to one as well. This person's daughter also has an aneurysm that is being monitored and has been monitored for about 20 years and she is only 30 now.
It appears that aneurysms can be hereditary.
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Scared about my next op
in Subarachnoid Haemorrhage Discussion
Posted
There are members on here who have metal plates and as far as I recall they have had no problems at all.
Chin up, you will be fine although any surgery can be daunting so I can understand your apprehension, keep positive about it
Soonest done, soonest over.