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Super Mario

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Everything posted by Super Mario

  1. Is there a nurse specialist at the hospital you were treated at. They will be in a much better position to advise you about when to fly than your GP. GP's very often have little experience of SAH, sometimes never having had a patient who has had one.
  2. I first flew 12 months after my SAH but that was after taking advice from the doctors. Everyone's circumstances are different therefore you must get medical advice. As a side note you will have to declare it for travel insurance purposes.
  3. I would presume that this diet is only available through doctors. Is that correct? Anyone interested in trying it or any other diet MUST take medical advice before making any moves.
  4. Sarah, to the best of my knowledge the consultants only meet every month or so for discussions on patient care so the meeting that will discuss you diagnosis may well not have taken place yet, hence the reason for no more information at this point. You may well get more information and/or an appointment to see the neurologist/radiologist in the near future. As your medicine review is only 5 weeks away your GP may well be able to give you an update before you hear anything. Are you registered for online access to your medical records through your GP practice? I have found this useful as I am able to see my records including any letters from other parties.
  5. If I were you I would contact DVLA to clarify your position. After all those years of the previous regulations I wonder what has made them change the driving criteria.
  6. Welcome to BTG. To help with the headaches make sure you are drinking plenty of water to keep yourself well hydrated. It really does help. They should ease over time. As for driving, have you notified DVLA, it is a notifiable condition? It is up to them when you can drive again depending on any medical reports they may ask for. We do have members with stents fitted, someone will pick this thread up at some point. In the meantime take it very slowly, baby step or you will find yourself impeding your recovery. Recovery is individual to each survivor, there are no hard fast rules. As for your outlook on life changing, that is a positive thing. I think most survivors have changed their outlook on life, in my opinion, for the better.
  7. Actually, thinking about it, I knew something was niggling when I put Age Concern, they have changed their name to Age UK. You are amongst many who are definitely not fit to work but actually found fit to work. If you have to go to Tribunal, most do as the decision is rarely overturned at MR, go in person which gives a more positive result. Everything you send to DWP keep a copy and mark every sheet with your name and National Insurance number. Also, if you ring them make a note of who you speak to as well as date and time. As this thread has gone off topic, my fault, I will put no more but if I can help you further on this matter just message me.
  8. Coralann, go for a mandatory reconsideration and if needs be onto appeal. Please note that those requests have to be put in within 30 days from the date on the decision letter. Get help for your mandatory consideration and if needed appeal against the decision from a Welfare Rights Officer. You can find them by doing a search for your area. Try and avoid CAB if at all possible. Headway may have them or if you are over 55 Age Concern should be able to help. If there is any delay in getting outside help just ring them and tell them you want a mandatory consideration and that further evidence will follow which will give you time to find help
  9. Hi Julian, I wonder if your consumption of water has decreased over time as your headaches diminished to the point where you are not drinking enough. It is quite easy to become complacent. May be worth a try to increase your intake to see if that helps as well as visiting your doctor.
  10. Just watching a screen is mentally tiring as much as physical work is physically tiring. It is your brain that has taken this assault. By breaks, I mean being able to go to a quiet area with no stimulation at all, not just sitting in front of a screen, to recharge your batteries. I do appreciate that it may not be possible but what about asking your employers and back it up with a letter of recommendation explaining your problems from your occupational therapist. As another thought, are you in a union? If so they may well be able to help negotiate some terms with your employer on your behalf.
  11. Is there any way that you could take frequent breaks during those long shifts? Employers are supposed to make reasonable adjustments and to me that would seem a reasonable adjustment. It is so very sad that you may well have to adjust your lifestyle so you can take a lower paid job. Possibly cut back on housing costs by moving to somewhere cheaper. Obviously we don't know your financial position and we certainly aren't going to intrude on that. Please do not take offence as none is intended, just trying to think of something that may help. At the end of the day your health comes first.
  12. Thank you all. On the very same day a friend of mine was in theatre for a mastectomy due to cancer. She is still well. There is no comparison as to living with the permanent fear of the big C returning in any shape or form. Apart from that she has an incurable liver disease that will need a transplant in the future. To my way of thinking, I am the fortunate one.
  13. It is15 years tomorrow since my life was changed. In fact it is so long ago now I tend to forget the date of the event, I have to look it up. So far back, the date has almost disappeared from my memory. Looking on the positive, my life has changed for the better once I recovered the best I could. No point in looking at the negatives, you can't change what has happened. Grasp what you have with both hands and move forward the best you can under the circumstances. May take ages just to make a little progress but determination will help. There is a future after SAH, maybe not the future that was planned but a different future. In my case I feel that my life now is much better than I envisaged pre SAH
  14. Hi Neil, so sorry to hear about the deficits Cassandra has been left with following the surgery. This is just a suggestion, it may be possible for her to use the computer using voice activated software. There are some on the market and I think Microsoft has one. It may help to stop her feeling isolated. If she used to like reading there is the option of talking books. All things that could be investigated.
  15. Clive, a warm welcome to BTG. Your experiences and how you have coped will be a help to others in the same or similar situation. Pop into the Green Room if you like and join in the banter or let off steam. Anything goes in there within reason. Just a tip though, bring your earplugs, our Win sings.
  16. My advice is, that if you are unsure about that treatment, to contact the neuro nurse specialist at the hospital where you were treated for their opinion. Failing that speak to your GP and dentist.
  17. Sue, have you heard of the Access to Work scheme run by the DWP https://www.gov.uk/access-to-work You could apply and alleviate your gruelling journeys. It seems to me that you would be eligible for the help.
  18. I'm afraid the DVLA rules are to be adhered to. My advice is to contact DVLA for clarification.
  19. Welcome to BTG. I have not had a tremor problem but coordination is not very good. Possibly someone may come along who has. As for the reaction you had to the angiogram it should be down in your notes and they should give you something to alleviate another one. Make sure you bring the fact of your reaction to their attention when you go for the next one, just in case it has not been noted. Meanwhile listen to your body and make sure you keep well hydrated, it really does help with the healing.
  20. I, too, have been accused of being drunk. Initially it made me angry but now I just laugh at the comments and say "I wish"
  21. Vicky, to be honest I don't remember anyone on this forum being diagnosed with it although I could be wrong. It would really help, possibly someone in the future, if you could post anything you find out about it from the neurologist but not medical advice. Wishing you well with your forthcoming appointments.
  22. 10 minute appointments here with GPs too. The hospital appointments are a different kettle of fish, no time limit on them.
  23. Welcome to BTG Vicky. Another idea is to contact the neuro nurse specialist at your treating hospital if they have one. They will be able to explain more fully and be able to possibly put your mind at rest. Give them a ring.
  24. Use something like Tiny Pics to resize and copy and paste their link for Forums. We cannot comment on the test results as we have no medical or ophthalmic training and so it would be unethical to even attempt it.
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