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Super Mario

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  1. I can imagine how devastated you must be feeling. Take comfort in knowing that she has given others the gift of life through her donations. Please accept my deepest sympathy for the loss of your best friend.
  2. Good to see you back Johnnie. I would say that a visit to get your hearing tested would be a good place to start. I believe Specsavers do them. If everything is okay hearing wise, then I would advise a visit to your doctors to express your concerns. There are tests that can be done to ascertain if it is your memory. Dare I say it, as we age our memories do tend, on the whole, to get a little worse. As has been said before, it is too easy to blame SAH for every ensuing problem when in fact it may have nothing at all to do with it. Not really helpful, I know but please come back and let us know any outcome.
  3. Welcome back John. How lovely to hear from you after all these years. Congratulations on 14 years and enjoy your retirement. Freedom from the daily grind.
  4. Mike, at least you have a sensible GP. You now have a diagnosis that is being acted upon. Please keep us updated of the outcome.
  5. Welcome to BTG. You will mean hydrocephalus. I was and still am after 19 years plus still suffering from dizziness and balance problems. It has a name, ataxia. That is not to say that yours will not improve and get better over time. I would request physiotherapy as soon as possible which can help. My physio referral was left far too late for it to help me. In the meantime do not discount the use of a stick to help with your balance, it may only for a short term. You are in the very early stage of recovery at 3 months. Take baby steps in everything you do or you may well find yourself going backwards. Wishing you well for your future recovery.
  6. Now that is an interesting question. Although it appears there is no rhyme or reason for NASAH it does make one wonder.
  7. Mike, welcome to BTG. As we are not medically qualified, we are unable to give medical advice. Have you ever thought that the problem with your right arm could be an effect of your NASAH, after all it is a type of stroke. It would be well worth a visit to your GP as physio could possibly help with you regaining the strength in that arm. The sooner you get treatment, the better the chance of regaining full use of that arm. Have you a follow up appointment with your neurologist? You should have, it may be wise to discuss your issues with him/her as they are the experts. GPs are fine but SAH of any type are pretty rare and it is likely that your GP has never had a patient who has suffered one. In fact, despite the rash not being there anymore, you should talk to your GP about it. It may have nothing at all to do with the NASAH but just coincidence. It is so easy to blame the NASAH for other things especially when they appear quite soon after a bleed. We wish you well and would appreciate it if you come back to us with any answers you may get as they could help others
  8. Janey, so sorry to hear about your ensuing problem of possible ADHD. As you may realise, we cannot give medical advice. You are taking the correct route by seeing your GP. Before you go make a list of questions that you want to ask and take it with you. I wish you well and please come back and tell us the outcome of your GP's visit as it may well help someone in the future.
  9. I do wonder if frequent breaks away from the screen would help. Having not had this problem myself the above is just a thought.
  10. Karin, many congratulations on your marriage. So pleased to hear that you coped extremely well.
  11. Hello all Meet Chippie a 73-year male pain in the backside from East Anglia UK. Why a pain in the backside I do not meekly accept what the medic’s tell me and they hate questions, or my doing what they say my condition will not allow. I wish I had found this site earlier as it would have relieved a lot of my initial anxiety and concerns; This site has given more support in the short time of finding it then any medical establishment I am grateful to find this site. Brief resume’ July 2019 suspected TIA 30th November 2019 day one as per the norm thunderclap headache, sweating, vomiting. To A&E CT scan clear being prepared for discharge 6 hours later conclusion “Migraine” . Further bout of symptoms accompanied by loss of speech admitted to a ward, late PM Day two discharged 08.00 hrs Migraine Day 6 GP consultation; 999 to local hospital, CT scan clear, discharged Migraine Day 20 self-referred by 999 to local Hospital, CT scan clear prepped for discharge Migraine; when a repeat of severe onset symptoms, admitted to ward. Day 21 Lumber Puncture confirmed presence of blood products Day 30 Blue light to Addenbrookes Day 31 Coils and Stent inserted Day 31 Takotsubo Heart attack Day 35 due to covid I was discharged back to GP. No rehab or any other back up, not even a pamphlet. I did not see, nor was I able to speak to any medical professional (Dysphasia, Aphasia Phone consultations only!!!!) for eight months. This was when anxiety reared its ugly head. I had no substantial interaction with GP at any time. Life saver was the Speech Therapist who first visited one year after the SAH. I am grateful to her as she informed the establishment departments to provide the assistance I should have received on Hospital discharge, also the local Volunteer support groups Today Weak left side, dysphasia, some aphasia constant headache and constant fatigue. Pins and needles Most important hard work is bringing improvement For my family and I: a change of outlook, speech comedic on a very bad day. Exhausting on a reasonable day But every day we make a fun day This missive only took two hours in total (before correction totoal), One to write it, one to correct errors I do not count the time to think about it. That’s the background I will write about the highs and the bigger highs later
  12. You are wise to take baby steps. Listen to your body, it will tell you when/if you are able to progress.
  13. Gareth, welcome to BTG. Please do not rush back to work, your brain has taken a massive knock and takes a good time to heal. If you do too much then you will send your recovery backwards which is what you don't want. The same with getting back to your previous activities. To help with the headaches, make sure that you keep well hydrated, it really does help.
  14. I filled my time by doing voluntary work. I did youth mentoring and went onto doing adult mentoring with local organisations. The beauty of volunteering is that I could fit it in as to how I was feeling able to cope. As much or as little and as and when I could.
  15. I haven't but the reason for the stiff neck could be completely unrelated to your SAH. Continue with the physio and it should help. Note I only said "could" What does your physio think the reason for the stiff neck is? If you haven't asked then please do so.
  16. Jo, there are 2 types of strokes, the common one is an ischaemic stroke , the other one is haemorrhagic stroke. They affect the brain in different ways and can have different causes. From the NHS website. https://www.nhs.uk/conditions/stroke/causes/#:~:text=There are 2 main types,and can have different causes.
  17. Have you seen your GP and if so, what was their verdict? Does the hospital where you were treated have a specialist nurse who you could contact to voice your concerns? They should be your first port of call. Would your GP refer you back to neurology? At the end of the day the symptoms you are presenting may be nothing at all to do with your SAH but coincidental, who knows. I have never had a private consultation about my SAH but if all else has failed for you then a private consultation could give you peace of mind. Please bear in mind that a private consultation could lead to investigations being done that may have to be paid for unless the consultant is prepared to refer you back to the NHS.
  18. 19 years ago today, where have all those years gone? This last year hasn't been a good one for me. I lost my darling husband suddenly last June. He was my prop after the SAH left me disabled. Life has to go on and I am slowly getting back to some sort of normality for me. I hope to start travelling again this summer to hunt out the sunshine and heat.
  19. I still have horrendous dizziness after almost 19 years. So much so, I have to use a walking frame that plays havoc with my shoulders, elbows and wrists through having to hold myself upright. In the house I use a stick and furniture and have been known to fall. Me and the floor are very good friends. That is not to say that everyone will have the same after effects.
  20. Carmen, I worked in a secondary school for years but because I lost my sense of balance and wouldn't have been able to continue with my job safely, I got early retirement, and I was only 53. My pension was enhanced by the number of years to my retirement age. I got the option of a large lump sum and a lower monthly pension or a lower lump sum and a higher monthly pension. Taking the difference between the two lump sums, higher minus lower it would only take two years to make up the difference between the two with the higher monthly payments. I took the lower lump sum and higher monthly payments, that was 18 years ago so I am quids in. Of course that was a gamble, I may not have lived for 2 years. Once I felt able to actually do something, about a year after my SAH, I volunteered with my County Council and did Youth Mentoring and helped out in a local infant's school. That I could tailor to as and when I felt able and no commitment to hours. I did manage to fill my time. At first, I did wonder how to fill my days as I was used to never being still.
  21. Carmen, it may be worth looking into early retirement through ill health if you can't manage returning to work and are in the pension scheme. If you are in a union they could possibly help you with an application.
  22. She will need legal advice on that one. Tell her to contact a solicitor who can give 30 mins free advice. Andrea should have some paperwork about it. I have POA for myself so the appointed person can take over my finances and health and wellbeing should I not be capable of it myself and I have the paperwork. As to the question, can it be done without her consent, yes it can but it is very expensive to get POA that way. The only way to get POA in that case is if the person does not have the mental capacity to make decisions.
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