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Posts posted by Super Mario
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I have no creases on my earlobes , checked this morning after reading the post but have both the named conditions
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So pleased for you and enjoy the wedding when the time comes.
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Tori. I think the majority of us, in the very early days, had confusion and talked nonsense. I knew I was in hospital but thought I was in the one where I worked in my late teens according to my family.
I even accused them of trying to poison me.
Short term memory problems are also a common result of a SAH. In the main a modicum of normality does return over time, maybe not to the same level as pre SAH. I am 13 years on and still come out with the wrong words or I lose words and get very frustrated when I know what I want to say but cannot recall the correct one.
All in all it sounds as if your mum is making progress, slow but sure. Nothing in the recovery is fast, it can take goodness knows how long.
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Welcome to BTG although I am sure that you wish you didn't need to be here.
I'm sure you realise that we cannot give medical advice. Because of what you describe it would be in his best interests to go back to the hospital because after an SAH there can be a fluid build up in the brain. The lumber puncture will have relieved the pressure but who is to say that it isn't building up again causing headaches which he is not admitting to.
Please try and persuade him to seek medical attention, even if it is only a visit to his GP who should then take the necessary action.
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It has been said before time and time again that it is easy to blame ensuing health problems on the SAH and in some cases that is not the case. I would suggest that you get medical advice and a thorough health check.
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Spain is often excluded from some insurances unless you take out the more expensive cover. You have to be careful as insurance goes in zones. Don't know why that is. I have found All Clear will cover me at a price. It is better to ring up for a quote than to do it online.
I find that many throw their hands up when I say I have a shunt for hydrocephalus, don't know why as I have never had a problem with it.
If it is only your shunt and nothing else try The Post Office in the first instance because they are quite reasonable.
They used to cover me but altered their criteria which excludes my other conditions.
You must declare everything, and I mean everything, or if you are unfortunate to have to make a claim they will use undeclared conditions to wriggle out of paying up.
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Aandrea, calm down please although I know that is not easy. You don't want it cancelled again but it will be if you make yourself ill.
Try and distract yourself by making yourself as busy as you can possibly manage
After all you have been through previously it is nothing.
Listen to other members who have had the same procedure.
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Are you sure it is caused by not eating? It could be caused by not keeping very well hydrated, try drinking lots of water and see if that alleviates the symptoms. Solid food does contain water so that could make you feel better.
Failing that working it would be wise to discuss your concerns with your doctor
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I am another one who has flown frequently after my SAH with no side effects at all.
As Macca says, just make sure you have declared it for travel insurance.
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I ended up with Tersons Syndrome after my SAH. The blood had forced its way down my left optic nerve and when the blood cleared it left debris in the back of my eye. I was almost blind in that eye, it was like looking through water only worse.
The eye was operated on and the debris cleared giving me back my vision.
It may well be worth asking about that syndrome.
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Xmartz, if this member does share what their neuro team have said regards diving you must remember that it will not be relevant to you as each person's case is different.
If you wish to pursue those activities then you must take the advice of your own doctors.
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I would strongly advise that your husband seeks medical attention. Better for him to be checked out.
We are not medically qualified so cannot give medical advice.
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Yoyo, if I were you I would finish the NHS sessions and then see how you feel before going to a private therapist. The time to do that is if you feel you would benefit from more counselling.
Recovery is a very slow process and you may not think that you have made any, but you will have, the progress will be so minute that you can't recognise it yourself.
It has been suggested at times on here that you keep a day to day diary then you will be able to see what progress you have made in reality.
As for making no sense, you do make sense to us and for you to be able to spill out your concerns on here can only help as it is an outlet.
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Those are questions that you need to be asking of your neurologist or doctor. They may or may not tell you to refrain from those activities.
You must listen to their advice and not take it upon yourself to do them without medical advice.
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Thank you Clare, I am going to ask but in my case I suspect the benefit outweighs the risk as I have tried others that either do not work or give me horrendous side effects. Trying the new injection is being talked about now because it has now been approved by NICE. Goodness knows how much that will cost.
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I take max atorvastatin as simvastatin doesn't do anything for me nothing was mentioned to me about the risk I am going to investigate from further when I see the consultant
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I have taken statins on the highest dosage since they first came out about 30 years ago and nobody in the medical world has said for me not to take them since my SAH. To be honest, if I didn't take them I would be in real trouble, already had severe blocked arteries before my SAH and 4 years ago had a heart attack in spite of taking them. My cholesterol is extremely high, a genetic defect.
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Hi CJ, if I were you I would contact your doctor's surgery and ask them to chase it up as they will carry more weight than yourself. I have found that has worked in the past for me.
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Andrea, to be honest that score does not indicate how you will recover, it is how you were at the time of the SAH. Recovery is dependant on which part of the brain was affected, many folk make an almost full recovery, but not quite like they were prior to the event. A new me as such.
The best advice I can give you is to have a positive attitude to your recovery, do not harp on what has happened, you can't turn the clock back. Look forward with that sort of attitude and determination, it will help.
Now I know that is easier said than done but it can be done.
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There is some information here.
http://www.brainline.org/content/2010/10/what-is-the-glasgow-coma-scale.html
Seems like the higher the number the less severe it is, the opposite to what you may think. That is not to trivialise any sort of brain injury.
Mine was a 5 and although I have balance and memory problems amongst other problems I am still here and making the most of my life and enjoying it.
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Welcome to BTG Sairah. You will find that very few of us were given any information on discharge, seems to be an international failing. That is why this site is very good for support. Although we cannot give medical advice as none of us are medically trained, members are willing to share their experiences.
If you do a search there are members who have had the same feelings as yourself and no doubt some will reply to you at some point.
No-one's recovery is the same, there are no hard fast rules of what to expect. Make sure you are drinking lots of water to keep well hydrated. For some reason that helps with the headaches and helps your brain to heal.
I, for one, can't watch tv anymore because the movement makes me feel ill and no way can I cope with flashing images or bright lights, even loud noise and I am 13 years post SAH. I would suggest that until you are further on in your recovery you avoid those sort of images if you possibly can.
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Headaches are common after a SAH regardless of where the bleed occurred.
If you read around the site you will find members reporting head sensations.
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Are you keeping hydrated? Drink plenty of water, it helps with the headaches but I don't know about the dizziness. Well worth a try.
Dizziness is the pits, mine didn't go away, 13 years later I still suffer and have to use walking aids. I have learnt to cope with it by developing strategies. Don't take this as a negative, I was just unlucky, in most cases it does eventually go.
As I suggested use a stick to stabilise yourself in the meantime.
Why not visit you doctor and ask if there is anything he can give you for it in the short term.
You know the saying "Patience is a virtue" well in terms of recovery from a SAH it certainly is.
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Welcome to BTG Ricky.
You are in the very early stages of recovery.
As for your question, there are no hard, fast rules regarding recovery, each and every one is different. It takes time and in most cases lots of time.
For the dizziness it may be prudent to use a walking stick or other walking aid to lessen the risk of falls.
All you can do is listen to your body and sleep when you need to, your brain has been assaulted and needs time to heal.
Don't push it, slowly and surely is the way to go, or you will find yourself taking backward steps in your recovery.
You ask how long it will be before you start to feel "normal". In many cases, not all, there will be a new "normal" which has to be accepted.
It is not all doom and gloom, there is a life after SAH, might be a slightly different life as many have found, but there to be enjoyed.
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Post NASAH - head pain, arm cramps ...and diabetes and high BP - anyone else?
in Subarachnoid Haemorrhage Discussion
Posted
My heart tests were fine when at rest could you request a stress test when you are wired up and go on a tread mill. For me that was the only thing that showed up a problem. One of those may put your mind at rest. Diabetes could also be the root of your problems. Keep pestering the medics.