jeanhelen Posted August 1, 2014 Share Posted August 1, 2014 I have not been on here for a very long time but am very glad to see the site is still being used effectively. Since my original craniotomy for a ruptured aneurysm in 2011, I have Secondary Epilepsy but have not been able to find information about others in this situation. Very few people develop this condition so I am willing to share my own experiences with anyone in a similar situation. The SAH operation was successful although I had a second operation in 2013 to re-clip the aneurysm because there was a residual aneurysm which was "filling" below the original clip . Fortunately, because this was planned and not emergency surgery, recovery was much, much easier than the first time. Personally, I loathe the term "fits" and prefer to use "seizures". I had several of them while I was in ICU after the first op but didn't have another until just over 3 months later although I was on phenytoin which is meant to prevent them. Since then, I have had several more, mostly 3-4 months apart but sometimes within a day or week of the previous one. Medication has been changed twice and the dosage increased but they still happen. This is difficult to live with, especially since I still have various cognitive difficulties. In summary, if epilepsy is the price of successful SAH treatment, I am glad I am still around to know about it and still physically able to live on my own though my son and my partner do give me a lot of emotional and practical support for things like shopping or travelling. DO remember that the risk of follow-on epilepsy is LOW. Jean Link to comment Share on other sites More sharing options...
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