ClareM

Jane I would imagine that stopping the prednisolone could cause the symptoms but you really need to speak to your gp. The reduction you described is fairly standard ( I am a pharmacy technician) but the side effects shouldn't be so bad on stopping. My SAH was on the same day as yours and I seem to be suffering from more headaches now and the fatigue just goes on and on! As for muscle pain, well I wonder if it's because I sit down so much that my bottom aches but talking to my sister she sits down all day every day at work and her bottom is ok! Speak to your gp, you shouldn't be on steroids long term so it may be a case of wait and see - typical bank holiday coming up though! good luck Clare

Hi Janey DVLA replied pretty quickly, only a couple of weeks. Probably a lot quicker to revoke than to reinstate. I have been told by the hospital to apply 3 months before due to start again not the 8 weeks the DVLA recommend as they take so long. Also my surgery was on 11 Feb but I have been told to stop driving from 6 months from 24 March, something I need to take up with them. Apparently one of my sisters clients - she is a social worker - got as far as Devon from Portsmouth on a bus pass. Not sure how long it took her but I did wonder how far I could get! lol!

Welcome Roy, Hope you find BTG helpful. Lots of friendly people here with lots of advice and more important understanding. Clare

Just thought I would let you know about a freebie fellow SAH sufferers maybe entitled to depending on your local council. Got my letter from the DVLA a few days ago advising me that I couldn't drive for 6 months However on reading the letter I noticed that I may be entitled to help with travel costs from my local council. Well for once I had a result! I contacted the council and they agree I am entitled to a free bus pass for the period of non driving. It's a concessionary pass for persons disallowed from driving for health reasons. Can't travel until after 9.30 in the morning but seeing as I can't even contemplate getting out of bed till 9am that isn't a problem. Apparently I can travel on any bus in the country so now am busy planning a route to see how far I can go! Only joking but it will give me some freedom, hope others find this useful. Clare

Hi Welcome to BTG, we share the date of our SAH though mine does not seem as dramatic as yours. Must have been pretty scary being on the ski slopes. We had not long been back from skiing in Bulgaria when I had mine and my husband is very thankful it didn't happen while we were there. Good luck with your recovery, I can't comment on your untreated aneurysm as mine was a NASAH. Do you have any memory problems? Keep drinking plenty and rest, I look forward to talking to you in the future Clare x

Hi welcome to BTG. I too suffered an NASAH on 10 Feb 2015 so am about a month ahead of you. Did you have any drains put in or any other side effects. I had hydrocephalus and and EVD and am not sure if that is why this seems to have affected me more than other people with a non-anuerysmal SAH. I expect you are suffering from the dreaded fatigue, rest plenty and drink water! Look forward to hearing from you re your recovery. Clare

Hi Mandy Well done for your first 2 days back at work. Did you enjoy it? Your back to work plan was very interesting, I think I will have to work a similar pattern and need to see if we even have an Occupational Health person! Luckily my boss is one of my best friends and was with me when I had my SAH, she has said no way am I to go back until I am ready. Been walking the last 3 days with the dog trying to build stamina up. Still absolutely dead each morning though but spoke to the hospital who seems to think everything is normal. Clare

Hi Mandy That all sounds great, glad it went ok. What type of hours are you phasing back on, will be interested to know so I know what I can suggest to my boss when the time arrives. On a personal level I managed a walk with my dog yesterday - followed by a nap- so hopefully am making progress. Take care Clare

Good Luck Mandy, hope it goes well just remember to have a rest when you get home! xx

Thanks to everyone for all your comments and advice. I know I have to take it easy but I find it so hard just sitting most of the day. Is this normal or should I be doing more? I try and do at least one thing a day and so far have achieved that but wonder if maybe I should be doing more and not spending so much time on the sofa.At what stage did most people start living a more 'normal' life? It sounds like I have been lucky compared to some of you so I must stop moaning and thank my lucky stars for what I have got. Maybe I will have to start singing like Win - I was always known a work for my terrible singing voice (which they say they miss!!) lol! Thanks everyone Clare

Well here we go with my introduction. My name is Clare I am 55 and live in Portsmouth UK. I work as an Accuracy Checking Pharmacy Technician and I had a NASAH on 10 Feb 2015. I was out running with a local group when I felt a headache come on (and I never get headaches), it got worse and moved round to my neck. I was with my sister and a friend and when we got to the 2 mile mark I said one of them would have to ring my husband and tell him to come and get me. That never happened as I then started vomiting and collapsed on the ground. To cut a long story short I was taken to QA hospital Portsmouth where it was discovered I had had a SAH. This happened about 8pm, I was told I needed to go to Wessex Neuro in Southampton but they did not have a bed so I had to wait. I was then moved into a side room as an RTA came in and they needed the space. I don't remember anything of all this except being given morphine and telling them it was '######' and that it didn't work! (That's a pharmacy technician talking!). Around 4.30am my husband started asking why I hadn't been moved, that's when all of a sudden things happened and I was transferred. Apparently when I got to Southampton I had an intraventricular haemorrhage and hydrocephalus and had to have an EVD inserted. All a bit scary for my husband and sons who were with me. I don't remember much of anything of my first week at Wessex neuro, apparently I was awake and chatting but mainly rubbish. I was constantly asked by the nursing staff the usual memory questions which I sometimes got right and often wrong! Apparently I told them that the President of America was Barack Obama - well done correct!- then spoiled it by saying he had been to visit me the day before! I was discharged home 2 weeks after arriving at Wessex told to take it easy, no work for 3 months and no driving until DVLA agreed ok. I have been at home now for coming up 3 weeks, my short term memory is still pretty bad but my husband says it is improving. I spend a lot of time just sitting staring which I find annoying as before the event I was a very active person. I regularly got up at 6.30am and did a 2 mile run with my dog and worked 41 hours a week - long hours - but in a job I love. Today has been better, not so tired but still with that cotton wool feeling and wondering if I will ever be the same. I have been lucky as I have not had many headaches since being home but my worry is the fatigue, will it ever get to a point that I will be able to work? I am hoping to get help and advice from this site, I have read a lot of the postings and they have been helpful so far. I would particularly like to hear from people who had a NASAH and how their recovery has been. Anyway, bit tired now - surprise surprise - so will look forward to hearing from some of you soon. Thanks for reading. Clare