MaryB

Ditto Lin~ glad you are looking for answers. Let me know what it is when you find it. Mary

NASAH is a bleed - so it still bleed but it is not caused by “aneurysm”, so they often do not have to be followed up as close later on as it is very unlikely to ever happen again. A NASAH is still as serious as a SAH- any bleeding in the brain is. NASAH can be from a hit in the head, drugs- such as cocaine or stimulants or Arteriovenous malformations a congenital disorder, you are born with it, or bad luck that a vessel ruptured for no apparent reason. The term subarachnoid hemorrhage (SAH) refers to extravasation of blood into the subarachnoid space between the pial and arachnoid membranes. Spontaneous non-aneurysmal subarachnoid hemorrhage (NASAH) instead of an aneurysm-caused subarachnoid hemorrhage. There are other words for NASAH but it is only 7:30 am and I cannot come up with them – Sandi knows them well. I had a NASAH that was very hard to find, I was ill for months prior but now looking back I am sure it was part chronic fatigue part something more. I had always had low side blood pressure but it was unstable and high to normal but never stable and the same for 6 months or more prior to my NASAH. I still have no answers which can drive me crazy as I felt I had a slow leak looking back at things now. I had to come home as I do post NASAH on my lunch hour and lay down for a nap I was so tired. I had many of the same side effects I have post SAH as I did prior. But I do not worry I will have another NASAH as that is very unlikely. I can at least let that worry go. But if you have berry aneurysms you I believe need to be followed more closely as you have a condition where more can come or they may know you have some and choose to operate or not. I was not operated on which was a very good things as my bleed was in a location I would have had some very bad brain damage. I think many NASAH bleeds stop on their own- you are monitored until they do? Not sure on that one. Hope this helps. mary

I had a NASAH and never heard of that before. Only told it was rare and not caused by Annies and won's happen again. There was a debate over me going home on channel blockers which I did not end up on until about 2 months ago for headaches.

This is not only true for us but others with medical conditions get headaches from not drinking enough. I hope my friend 5 years post cancer sees this. He has such a headache if he does not drink enough but he hates having to unrinate all the time.

You know you can train him Casey! I live in a really small town as well. I am pretty frank when I speak with him and some of my other doctors. PS he said that pain in my back is probably the shingles virus acting up since I am having so many problems with muscle twitching, spasms etc... Sandi is correct with scaling back your load. I hire a cleaning girl to work with me when I get too far behind= she does the floors and baseboards,I give up having a clean car all the time, etc.. My standards are getting pretty low right now- I wore mixed matched socks very similar to work the other day but they did not match and that use to drive me insane to not have everything match.Does not really bother much at all now. I also found that doing with less helps, I keep areas like spice cabinet and cupboards organized so I have less work in finding something. Also wore my scrub top inside out and was messed up I did not have pockets until I realized what I had done. Plus just saying "No" to things. My friend next door is always afraid she is missing something, I just don't care if I miss out on most of that stuff. maryb

Sorry CaseyR. You need to find a doctor you can trust. I never ever cry. Like it has been years. But when I see my GP I almost lose it when I start talking to him. I feel he really knows me and knows what I am going through. He gets it, maybe because his sister had lupus or whatever reason. He just gets me. He is maybe 14 years old and I have been going to him for 5 years. So he was really young when we started out together. He would say before SAH- "Oh Mary please make it an easy one for me today!"

I feel awful if I do not drink enough. I have a water cooler at home and at work and that helps. I often do not drink enough water in a day but I could not drink tap water- I would have to buy bottled water if I am out. If I am out and about I have a little cooler that I bring a jug in. I only drink water and beer! Not tea, coke etc.. I carry a bottle with me. I force myself to drink like 1/2 a bottle at a time if I am low. I feel sluggish, headaches etc... plus my mouth is always dry. That is why if I get to have beer I drink like a man now, I chug but I am often thirsty. My husband is a good reminder for me to drink as he drinks much water - he only has one kidney left and it is 2/3 functioning so he must drink a gallon a day. I am no way near that. maryb

MaryCharisa, I am not happy you have that numb tender head but I am glad I am not alone with that one. The back of my head - not so much anymore was so tender and sore I could not lay on a pillow it was not soft enough. I tried everything and every way to rest without the back of my head on that pillow. It is much better now. It was constant for a long time but now only if I over do it. Macca, I agree we are here for a reason. I am in a spot right now that makes me just want to move on, but my CFS/ME and fibro are so bad that I cannot. My pain and fatigue cycle has been non stop. I wonder if someone could give me a hint of answer to what I am suppose to learn so I can move forward. Just let me peak at the answer ok? I am tired and just would like a couple of good days. I have to say that even though my GP had no answers for me the other day and said I was doing very well considering, it was great and a boost just to hear that. I mean that neurologist that never opened my chart was making me really crazy!! I think being validated just often helps. It is like I have stepped in to another level of pain and I can deal with it as long as I have support. I know this is SAH site but I am a cluster of what is worse with me right now. I hate being in this situation. It is hard when you do what the books, research, doctors etc say and it is not enough. But again I am thankful for my GP who knows and understands me! Without him and you guys I really would be in a funk! Maryb

I have a thing called NECK EASE. It takes the pressure off the neck while laying down. It also for me does not hurt my head when the back of my head gets sore and too tender to lay down. It seems to just align the neck & take pressure off. It was welll worth the investment. Almost a perfect way for my neck and head to be take tension away. I have always as I have said stiff- sore neck, shoulder etc ..........moves to head issues and this is the one thing that works the best. Maryb

Teecher, I am there right with you, pretty much mad at the world and the future makes me mad when I know I have to make some choices. The choices are not going to be easy as I need advocate to fight my battles anymore as I cannot & will not exhaust myself over it. I am great ( reallY I am ) at my job and even with the new me I still am the best there but I cannot do it much longer. I get frustrated or thrown by little things. I wont give you a lecture or advice. Just wanted to know I vented about a book worth of grips yesterday, and last night I slept terrible and I never have a bad nights sleep.............augh..... Hang in htere sister!! Maryb

Hi Sarah G. Welcome, as the other Sarah stated try to take it slow. The lack of concern from your doctors is normal. I wonder if a head doctor had a SAH if he would be concerned about himself??? HUM?? Pretty typical. Where do you live? I would call the office often and ask questions as than maybe they will start sending people home with some instructions and what to expect. Just try to rest as much as possible and thinking back I was in a daze for months I think a fantasy land so I am not much help. I do recall it taking me forever to pick out a pair of socks & sleeping all the time. Good Luck, MaryB

Great news......slow it down a bit now speedy gonzales!

Thinking of you today daffodil, Hope it all is ok and you are feeling better very soon. I know last December when the surgeon said he could take out my brain tumor I was so freaked that I would have to start all over and frankly with only you guys that understand what it takes I was mortified. Ihope you get great news today. maryb big hugs

Welcome Brian, It sounds as if you are doing very well mentally and have heard the big lesson that it is going to take time to heal. Wow May 8th, that was like yesterday! It helps to have to have a good support system in place. It also helps to have people that really want to help and understand what happened to your brain. It took me a very long time to grasp that. I heard it but never GOT it. I just recently realized that I did not know where exactly my bleed was. I knew I had damaged from the strokes and this and that but it NEVER dawned on me to ask where that unsual spot was that they had a hard time finding. I do not worry too much about it happening again. I was careful for my 3 months but I have the belief what will be will be. Not meaning I abuse my life I just cannot be controlled by worry. Good luck to you and follow the wise advise people have given you! maryb

Hi Sarah Beth! Welcome, I am 54 and have no kids at home and my house work is hit or miss. Today I actually swept AND gardened but I will pay for that little adventure later. House work is not as important as we think it is unless you are a hoarder, I will take it back. My mom kept a spotless house and really that is all I can say about my mom. Her house was always clean. I go in spurts. You have a little one and are really very early in your recovery. I hired someone once every couple of months ( a young gal I know) to help me clean so I did not feel so out of control by it. It is well worth the couple of hours of pay. Fatigue is the biggie for everyone, pacing is key or at least it helps some. I read articles on every brain diseases and injury to gain insight on how to function better. I have fibro and that network has loads of information- today facebook post was on "sensory overload". So your information may not come from SAH sites it comes from many sites. I also look at MS, CFS and a couple of others that have ways to cope along with some added advice. I believe so much is interwoven. Water is highly important as well as resting before you hit the wall. It is really, REALLY ok to do nothing but sit and watch your little one. I mean it. I lay on the sofa most of the time I am not working - ok at least 50% or more of the time. I started with a therapist at about 1 1/2 years and it helped as well. I just need to validate my feeling and know I was normal for a brain injury as the Neurologist is useless for making me feel normal or even OK. I felt so overwhelmed with my limits that I had to really sit down and look at life differently. Hope everything continues onward and upwards for you!! Good Luck! Maryb

Welcome Kim, I am in Indiana, is that St. louis University? Welcome to our site, most of find this place a real home. Somewhere where everyone understands each other and that it is so wonderful that you found this site so early on. Maryb

Welcome Elaine, Well I am glad you decided to join the conversation! I am hoping things are much better for you now. Please expand on how you found this site, what you have learned, where you are at now, support system, work etc... I hope you are coping so much better now. We need to have daily reminders that say " It's a brain not a broken arm!" Maryb

Wem, Stress is my biggest sucker of energy ........If it is someone being drama queen at work, the boss looking at shoes on computer and not doing appointments when I page her, or me putting it on myself. It all sucks the energy out of me. It takes only a few seconds to drain me I swear. I always felt I could fly by the seat of my pants, still can but not as easy. I must do this at home more- I feel good- well maybe I will take that shopping trip out of town, I feel lousy- I will piddle around house and rest. If I shop I get what I need and get out. I really prefer to be alone as talking drains me - or shall I say listening drains me!! Funny how company or being at a dinner with old friends or relatives takes so much out of me. I do read daily affirmations that do uplift me and change my thinking. I work hard on not letting those negative thoughts ( I was raise with nothing positive!) It is hard to change the process of your thoughts but I do not let that constant voice in my head talk to me anymore. I think I started telling it to "SHUT UP" when I quit smoking 2o years ago. I also used so say things to that "voice" like "later" to trick it. Sounds silly to some but it is a good thing to stop that spinning of negative thoughts. When I drove into Chicago I last week I would get a wave of panic and I was so fast at saying SHUT UP it almost cracked me up. I was like shut up can't you see I am driving in the city - do not let me lose my confidence NOW! One other thing is I witness daily a person that lets those negative self doubts thoughts control her life. It really is life changing to watch someone who should be so thankful her family and self ARE as healthy as they are, her husband beat melanoma cancer now 5 years on his neck, she nags her kids to death - who carry a disease that is not good but she give them no confidence what so ever, she self doubts herself even after 30 years on the job to the point that she is unable to do her job. I want to shake her and tell her so much - which she needs to stop being the victim (not saying you are WEM!) and start being a survivor, living, being thankful for what IS good in her life. We are the same age mid 50’s and life is getting shorter and shorter, our families have dodged the bullets more than once and we should be thankful for that. She honestly talks herself into the worst case scenario with everything and it waste so much of her life. It has been a real game changer for me to witness. Makes me want to shove the anti D's her doctor prescribes for her down her throat everyday!! LOL Sorry to babble so much, maryb

Wow, Daff how inspiring!

Good news Daff, I am so happy for you. I do recall when I worked for peditriacn that any pain that wakes you up is more serious is their eyes. Glad your news is good, onward and upwards...I confuse medicate and meditate and LOL at that too - sort of the same for me. Maryb

Oh you are making perfect sense to me. I did not go to the baseball game on Sunday as I did not want to be wiped out from it. So i rested as I was tired but I am still tired. I do this same thing everyday. Today I have not factored in that the dentist was going to wipe me out, the light shinning in my eyes or the head back for an hour wearing me out. Now it is noon and I have nothing really done today "productive". I am ready for a headache pill and a nap and hope to regroup later? I can pace to a certain extent but overall life gets in the way for planning everything. Double hard to work with it. AS I try to really not over do it at home if I have to work the next day- which I have done for years with the fibro anyway. But now the fatigue kicks my butt and I cannot think straight when I am tired. If I take the ritalin with this kind of tired it only makes my head worse. I have to weigh how tired I can be to take it. At some point the over load just calls for your body to rest. Think that is where I am today although I had high hopes as I should be well rested! But again I under estimated the dentist appointment??? Really? No one really gets how a dentist appointment can wipe you out for the day, not even me??? "I appear at times to go into an endless loop of fatigue v anxiety v loss of confidence which in turn leads to obsessively analysing my energy levels, then planning and re-planning my daily activities". I no longer lose confidence or have anxiety from it maybe because i have learned it is a waste of my precious energy? I need to always look at the postitive side of things or I will fall into that hole of depression. I cannot expect to much from myself. But I must say I do amazingly well for the most part compare to my non impaired friends that often just spin their wheels daily. Their house is not much if any cleaner than mine. I just do not think anyone can understand how much work it is to not plan but to "wing" it most days. I have a list to do which should take a day but it takes at least a week sometimes. I just cannot ever seem to get my mind and body in sync. When they are both clicking in harmony I am like a mad woman doing all I can!! Prioritizing your life is a tough task when you have to think about it daily. Most people take that kind of stuff for granted.

Bill, Let me throw you a rope. I have struggled with depression since I was about 13 years old. I have not had a bad slump for a long time now but it sure it dark when it comes. I hope you are doing ok?? I think back at my mother’s life and how depressed she was, my son was saying just today he had never ever seen her smile or be happy. I ditto’s that. I know it can be a struggle to keep your head above the water but know you are not alone. When I first had to admit I needed anti D's it was a struggle to get over the myths and the feeling I was weak. I must say I wish more of the folks I am around would take the medication they are prescribed as their life may just be more pleasant. A few people I know just need to take that edge off and it is really sad that they won't give it a try. I woudl do just about anything not to be miserable. Take care, maryb

Good luck Daff. I think it is so wise to get yourself checked out. Also you must realize you have jumped many hurdles recently and our bodies do not adjust as easily as they did before. Hoping it is just a dip for you. Good luck! Maryb

Daff, You my darling have done so much in so little time. I am amazed that you do not have this happen every other week. Honestly, I am surprise. Most of us are on a roller coaster ride and it is bad and forth. I am often delighted by my young co worker with a 2 & 3 year old - and she has not slept in years now- that she has many of the same slurring of speech etc. and does similar things because of her fatigue. I would mention it to your doctor but in my case I have just crashed and need to rest for several days. I cannot like you get my pacing down. I almost have to use it when I have it or it is a day I can get much done wasted. I worked too hard the past several days and several days last week. Yesterday I was mean, tired, I could not comprehend my husband’s medical issue as my memory of that was purged out of my brain at some point. I mean I was think I lost my memory on this giant issue and not sure I did not. I was really freaked and yesterday he sat me down to explain it to me and I still have no memory of going to the doctors with him knowing his only kidney is only 45% healthy. *&*(^)% think I would of known this? I think you are doing great. Also I asked the girls the other day if they ever have cold hands and feet. I swear I if I am tired they are freezing and I am wearing fleece socks right now. If I am colder than my thin fit husband I know it is me and I was seriously wishing I knew exactly where my mittens were last night while watching TV. If I had the energy I would of gotten up and looked for them. My life for years has been a roller coaster and it continues make me ask if this is normal? I think you have been a wonderful student of recovering from all of this. You seem to have done everything perfectly. It knocks you off your feet when you have a spell but I think it is normal. I think I would at least follow up with doctor just to have it recorded in chart for future if needed. Hope your day gets better today. Rest up today. XOXOX maryb

Thank you Lin for that reply I think I wrote a long one the other day and thought I sounded like an negative old woman! I had 2 babies that were large ( a million years ago b4 my SAH) and I just thought I would pop them out in 20 minutes like my mom did. Long labor, natural birth with complications to me. SO I was saying you never know what it is going to be. I have some younger friends with C sections and they really wanted natural births but when you have no idea how long your labor will be and my blood pressure was so high. I was saying to you just do the C SECTION!! Just do a c section!!!!! AND I do not say it lightly. But recovery from that is kinder than a long labor and your blood pressure being high etc... Just saying.......since you asked. Congrats & Good Luck Maryb There is another thread on pregancy here I think. PSS. Joke to me was that by the time I was in the middle of labor I decided I did not want kids anymore:lol:. I ended up 4 days in hospital after as well. That was unheard of back then. Where do you live?