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Jimble

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  1. Just thought I’d post an update - was looking on hear again to see if anybody had commented on pillows to help with sleep and saw my thread. I still get the odd strange sensation nothing anywhere as severe - I stopped taking my medication as it was causing me angst - am I feeling funny because of the meds or am I having issues in my head - questions we all ask ourselves I’m sure - anyways the last time I spoke to neurologist she was happy to discharge me - she never ruled out seizures but agreed could be anxiety . A good pillow helped with my stiff neck ! For 12 months anyway - struggling a little again with stiff neck so on the look out ! Hope everyone is as well as they can be.
  2. Thank you everyone. @CharlieD yes I was loading a large object into my car it felt as though somebody tapped on my forehead - then a great fizzing sensation in my neck. Although I didn’t expect it to be another bleed - but I new something wasn’t right so I went to the hospital. Since I last posted I’ve had some results back from cognitive testing although my intelligence remains in tact - all problem solving is very slow - if there are any distractions my ability to function goes way way down - and recollection of anything past 3 items is hard - mri done for micro bleeds but awaiting results
  3. It goes in your favour that your haven’t lost consciousness (did for me ) if a doctor deems you got to drive DVla will allow you to drive ( advice given to me anyway ) but all the bleeds are different so as somebody said ring DVla they are very good
  4. @CharlieD as both bleeds have been minor I’ve returned to a pretty normal life - the doctors are diagnosing seizures - I have started on kepra - must admit after 2nd bleed it’s bin hard to feel totally comfortable even as I write this has a bad week of mild headaches and stiff necks ( and I’m 2 years on ) which have been unusual - the rush sensation usually stems from my stomach but they do sound similar. Look up focal aware seizures on the net that’s what mine are identified as fingers crossed kepra sorts it - all mri scans and eeg scan were normal - neuro surgeon wants to do an in-depth mri scan now to see if I’m having micro bleeds - as would like an answer to why I’ve had 2 bleeds hope all goes well with you
  5. I had a bleed in 2012 - in 2016 I had a wierd rushing sensation and strange sensation in my legs and stomach - 2 weeks later I had another bleed - those rushing attacks became more frequent it was mentioned then that they may be a type of seizure - 2 years later although not as frequent a neurologist has diagnosed seizures and put me on kepra - my seizures are called vocal aware - I don’t lose consciousness and can speak/behave as normal throughout the minute or so event. Still under investigation
  6. I'm 6 years after my first bleed - 2 years after my 2nd. But 2 weeks before my 2nd bleed i had a strange attack a rushing sensation. Just being diagnosed (2 years on!!) that these attacks are more than likely a form of seizures. Just wondered if anyone else had any side effects like this after a bleed and how they coped. thanks
  7. I’m 2 years on from my 2nd bleed and have tinnitus now - mostly noticeable at night - I too get the whooshing sounds and the changes in sounds - it scares the hell out of me I’ll be honest - often the change in sounds sets off a sensation in my head and a rushing type senstation! Doctors have never properly diagnosed this some say it’s anxiety it has hard to deal with but it always goes away
  8. Woke in the morning after a night out before (not excessive drink but enough ) eating cereal and then all of a sudden felt like I was going to throw up or pass out. Rushed for the bed and got in foetal position - then every time I moved head throbbed like a cartoon generator - presumed it was a bad hangover. Couldn't move without getting electric shocks in my neck. Wife was concerned wanted me to go to a& e but I just said they would send me home. Managed to get up and about - went to kiss my daughter good night then got what felt like s whack across the front of my head and electric shock went to bed.. Next morning went to a & e - they did a ct scan but doctor said couldn't see anything and sent me home as he said you are mobile and can communicate etc. Got a phone call next morning to say another doctor had looked at scan and to go back to hospital. An angiogram the next day and released after a week.
  9. Hi - it takes time you are still very early days. 3 months and then evaluate yourself - I'm 9 months on from my 2nd bleed and for the best part I'm well recovered but still get wierd sensations - I can't overdo exercise - to be honest a day at work wipes me out - but 4 weeks after the bleed I thought I felt OK but when I look back I know I was ill - I feel like my brain turned to a block of ice, as its thawed out I can do tasks much easier and quicker. Hope all goes well for you.
  10. Hi Jennifer I had a nasah 4 years ago and the doctors said it was unlikely to happen again, that's it's extremely unlikely to happen again - I had more or less got my life back to normal did everything I wanted to do took the odd precaution regarding brain etc (mainly lifting excessively heavy things ) But 6th July last year I had another bleed similar place to - it has been a completely different experience this time - much longer off work - different in my head to recover from.- To put it into context though apparently I'm only the 2nd person in that hospitals history to have a 2nd bleed like I have had. Nasah is usually a 1 time event so believe that have faith in that - am I going to have another ......... Tomorrow is always a different day I'm comfortable ish - still get some sensations that I think ooh what's happening but still here and now back at work teaching. Hope all goes well for you.
  11. Hi hope all is going well with you - I've had 2 peremesephalic bleeds now - recovery after the first one I regularly used to get sensations like somebody was poking my brain - it massaging it. After this last one recovery seemed to be going extremely well but then I would get these attacks where my legs would go to jelly a pain in my arm then a sick feeling in my stomach then this intense rush right up my body through my head. These were happening 2 3 times a week. Then they just stopped - the neurologist had no explanation for them as MRI come back normal - psychologist had no explanation either - it's hard but keep plodding on
  12. After my SAH the pain was quite bad for 3 months or so - pain relief didn't remove all pain but dulled it - codeine didn't work - paracetamol unsure but ibuprofen did - and you can take ibuprofen and paracetamol together - after 3 months I went through periods where I had headaches with pain free periods the pain free periods increased in frequency. hope your brother makes good progress
  13. Ha yes the "where is my ... (Item) that you just had and now forgotten where it is " I do that lots - you mentioned on the phone - if I'm on the phone or talking to someone and there is a distraction or something else happening near me - I can't talk! I can't get the words out because I can't filter out background distractions. Thanks for the support!
  14. So I've posted a few times on here - it's great to see that other people get over many problems by the help of others. I had a SAH 4 years ago and recovered well - apart from poor memory (which as you all know people always say - that's just like me - it's because you are getting old !!! ) I got fit and healthy lost weight (2 stone ) and all was going well. The 6th July I had another bleed (felt the tingle in the neck ) I had a quick recovery in hospital - the angiogram they did was quite intense this time as they did a very detailed one due to the fact it was my 2nd bleed and people don't have 2nd bleeds. A week in hospital and when I left I felt OK - got home made good progress - then about 2 weeks after I suddenly got ( what I call episodes ) rushing sensations - pains in my neck and rushes and warm sensations all our my body and tinnitus ( which I suffered with before but is a lot more now) after I felt drained and unwell - I had a couple more episodes so went back to A&E where they scanned me again but negative result. The specialist nurse says its anxiety attacks - I get them almost every other day now. I don't know why some are extreme and some I get a warm glowing feeling - today has been a bad day and I have pain across my shoulders and have had feelings like I've been a bit out of it - I try to get on with things as best I can but today - sofa day! I find it hard as I feel ok and want to do stuff but then I get reminded that I'm not well enough to do all I want to do. I enjoy cycling - gave it a go but all my muscles and neck pain made me re think. I'm doing well and getting there and have been referred to psychologist to see if we can sort out the anxiety. Good luck to you all, just thought I'd share a few experiences.
  15. I've had 2 angiograms now - both awake with no sedatives. The entry site is numbed with local anaesthetic - bit of a strange pushing sensation ss they get the catheter in. No pain whilst they are in doing their thing in your head. The 2nd time as the contrast dye went in the sensation was different a hot/warm feeling, but it was over in seconds - for me the 4 hour bed rest is the worst - but I think the acknowledgement of what has just been done to you keeps you still and calm.
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