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Everything posted by Bri

  1. Hi Rory, It does seem to be a common denominator. I was doing a few bicep curls when my SAH occurred. I suppose whatever weakness was there, just needs a reason to finally pop. As you will know from your own research and from the posts on this, very useful forum, once you have had a bleed the risk of another is the same as anyone else in the population, i.e minuscule. Hope you have got your confidence back, to get in with the things you enjoy. I now exercise the same as I did before, well I am 2 years older, so the old bones need longer rest between runs. "Funny heads" and bouts of tiredness are something I now accept as likely to be with me for ever. I also have accepted that multi tasking is to be avoided if possible. I can focus well on linear tasks but keeping a number of balls in the air at the same time is tiring and stressful. Hope you have a speedy and full recovery. Bri..
  2. Hi llse, Hope your recovery is going well. I was interested that you mentioned your history of migraine. I had weekly migraines through my teens until my early twenties. They then stopped until about ten years ago, they then started again but instead of horrible headaches and sickness, they were visual disturbances and feeling of being washed out. These got more frequent during the year before my SAH. In the two years since the bleed I haven't had any further incidents. A small bonus from the SAH. Keep on being positive and you will soon be back to doing all the things you enjoyed before. Regards Bri.
  3. Hi Keyo, I had exactly the same concerns as you post bleed. I was advised on here to wait until I had my 6 week neurology consultation. Prior to that I was walking/jogging about a mile, a couple of times a week. After the neurologist told me there was no reason to not get back to my previous levels of exercise, I built up my exercise levels at a steady rate. As mentioned on here , your body will quickly let you know your limits. You must keep hydrated, it's so important post SAH, headaches and tiredness are going to be part of your life for a period of time(still with me after two years) it is worse when you haven't drunk enough fluids. You will find your own limits. I find that Looking up for extended periods e.g painting a ceiling, or bending over for a long time, e.g gardening. Leave me feeling washed out and a bit thick headed. Keep up the positive outlook, summer is nearly here. Enjoy!
  4. Great advice Chris. It stopped me being paranoid about it happening again and really helped me in my early days of recovery. Brian.
  5. Hi, It's now almost nine months since my bleed. Physically I am just about back where I was before it happened. Running between 3 and 6 miles twice a week, even doing a bit if weight training again. Tiredness is no longer a daily issue and I am no longer suffering from the constant mild headache. Still get headaches if straining or bending down or even getting up quickly. I did wonder why the headaches and occasional light headednedd were present for so long. Until, that is, I got copies of the results from the various scans I have had. I got these from the DVLA when I had my license given back last month. Apparently I presented with a Grade V Wfns SAH. And had an Evd fitted due to hydrocephalus. The ensuing vasospasm on day 4 caused an acute infarct? In the left insula. At the final MRI in Sept, apparently most of the subarachnoid blood had not resolved and there was " marked cerebellar atrophy" And dilated ventricular system. Harrowing reading but it made me more aware of the damage suffered by the old brain. No wonder the recovery takes so long. I feel I am still here due to the medical intervention of Cardiff neurology department and am aware how lucky I am to only have relatively mild symptoms. We have all had similar trauma in our heads, and we are all survivers. It's good to read people's stories and it is great to be able to empathise with most of the posts on this site. Thanks for reading. Bri..
  6. Hi Tim. I believe the fear of rebleed is universal among SAH survivors. I am nearly 9 months post bleed and feeling more like my old self. I asked my Neurosurgeon at my final check up back in September, about likely hood of rebleed. She said that in her 16 years as a practicing Neurosurgeon she had seen one patient with a rebleed. Good odds that I am happy to take. All the best for your recovery. Rest, exercise and plenty of fluids were the best advice given to me. Regards Bri.
  7. A quick update. Having had the field of vision test last week. I rang the dvla yesterday for an update. I was told the usual, nothing to report. But when I checked on the dvla license check site today. Full driving licence as of today! It's been a long 7 months living in the middle of nowhere without a license. So anyone out there still waiting for their license. Keep ringing, act immediately on any letter or requirement from them, and finally in their own glacial time you will get your license back. Bri.
  8. Hi Daffodil. Thanks for your response. Sounds like you were put through the mill. I will chase up my specialist for a copy of the report, just to see if there are any other possible issues that might arrive from the DVLA. Unless she has suggested there is a problem with my field if vision(which she checked in her office to her satisfaction) I don't understand why they are insisting on this extra test. It does seem that there is little actual, careful consideration made to an individuals situation. More of a general tendency to err on the side if caution. I will sit and wait for the DVLA to move at their glacial pace to the next chapter of this saga. Bri.
  9. Thanks again Johnnie. It is frustrating to have to wait for a pointless test, and no doubt at some cost to the DVLA. My Neurosurgeon did a quick test in her office at my final check up. All fine, thankfully. I have asked for a copy of her report, to confirm that this test is needed based on its contents. I know we have no choice but to let the wheels of bureaucracy turn. But I feel that the system at DVLA is prehistoric, no emails or website access to update documents. I was told by a rather unhelpful chap there, when I asked for a likely time scale, that there are 3million medical licenses and I can't expect there to be 3million doctors to review each one. Rather daft and unhelpful answer. I will sit and wait, hopefully as you say, Specsavers will get onto it fairly quickly. It is the snail pace, and unhelpful attitude of the DVLA that causes me heartburn. Thanks again for your straightforward, and no doubt, useful comments. Regards Bri.
  10. Hi, The saga continues. Having just spoken to the DVLA medical department, hoping to be given some good news, as my application has been with the doctors panel, 3 weeks tomorrow. I have been told that a letter has been sent to Specsavers, asking them to arrange a field of vision test. The results of which will be sent back to the panel. I assume this will now add a number of weeks to the process. I had an eye test a few weeks ago, to confirm that my sight is still 20/20. I did explain to the lady I spoke to that my sight is good and that as per my legal duty I would inform them if I was aware of any issues that would make me unfit to drive. ( I am getting desperate to have ny license back). I even offered to go straight to specsavers to get a field of vision check done asap at my own expense, then fax the result to them. All to no avail. I appear to be getting drip fed info from them and would love to know if there are any likely "hiccups" on the way. I would love to hear the experiences of anyone else who has had a 6 month medical ban after having an EVD or shunt fitted. Regards Bri.
  11. Thanks Johnnie. I will try to be patient, as you suggest. It's coming up to three weeks since my application went to the medical panel for assessment. Fingers crossed that it re-appears soon. Regards Bri.
  12. Hi, Having recently gone through my 6 month post bleed "red letter day" in the calendar, I was hoping to celebrate by driving my wife to a planned celebration with friends. Unfortunately, although I sent of the appropriate forms and application, 8 weeks before the date my ban finished (24 Nov) There is still no sign of my license. I have been ringing every few days for an update. but it is rather pointless as the medical application help centre, will not give me a timescale, even a ball park estimate. Apparently the application has been "with the doctors" since 14th Nov. Having had the all clear from my Neurologist in September, with no outstanding medical issues, I naively assumed my six month ban would be simply and speedily honoured. (My licence was taken away speedily and efficiently) Can anyone who has been through the DVLA system give me an idea of what to expect from them? I am sure that there are other posts covering this topic, but I can't find them. I feel lucky to be as well as I am, but for mild headaches and occasional bouts of tiredness, I am almost back to my old self. Living in Rural Mid Wales, without being able to drive is becoming a real limiting factor in my return to normal life. Sorry for the whinge. Bri.
  13. Hi Terry, Just read your post. I had a similar NASAH experience to you, (without the collapsed lungs) Am now five months post bleed and generally feeling pretty good. I still seem to have a minor headache most days, with a surge when standing up quickly or bending down low. Same as you I believe. I am back to regular exercising without any problems, but I have accepted that if I physically over do things, I will suffer the consequences with A few days of funny heads and fatigue. Overdoing things can be concentrating at long meetings, or like last week, pulling out a tree trunk from the river that we live by. I am of the opinion that, although I am 95% back to normal, I may never get back to 100%. But will do as much as my physical condition allows me. You will find your own rhythm and learn your own limitations. Our brains have been through a hammering and getting through it all, is a day by day process. I hope you continue to heal as well as you appear to be doing, enjoy your time off work. You will be back in the cab before you know it. Regards Bri
  14. Hi, I just read your post. I hope you are well over your bleed and feeling strong. I also suffered a sah with no sign of a cause. Went to my 14 week check up with a new mri scan. Still no cause evident. Apparently it was more typical of an aneurysmal bleed pattern, with complications associated with a large sah. The Neurosurgeon had no answers to what could be the cause. Just for me to get my (perfectly normal) blood pressure checked regularly and to drink no more than the recommended units of alcohol. Like you I would like a better idea of what and why. It looks like the answers aren't out there. I take great solace from the fact that rebleeds from NASAH are very, very rare. My specialist said she had only seen 1 in sixteen years. The intend to carry on as normally as I can and try not to be held prisoner by what has happened. Stay fit, be healthy and get on with a full and enjoyable life.
  15. Just a quick update. I saw the neurologist yesterday at my (nearly 4 months) post bleed check up. She showed me the original mri scans of my brain against the ones taken last week. Apparently it was a large SAH that was typical of an Aneurysm rupture. But because they couldn't find the cause, after two angiogram, 2 CT and 2 mri scans, it is classed as a Non aneurysmal SAH. There appears to be a bit of staining on the front left side of my brain as a result of the bleed. My neurologist seemed very pleased with my overall recovery,. She told me that I can build up my exercise regime to my previous levels. I asked about the chance of a future rebleed. She said that only 15% of SAH patients are classed as Non aneurysmal and in the 16 years she had been a neurologist, she had only had one of these patients have a rebleed. Good enough for me! I intend to get back on my bike and hit the road ASAP, might even get back to the gym. Mild Headaches and periods of tiredness will no doubt be a new part of my immediate future, but I intend to live a long and full life, without dwelling on what has happened and whether it could happen again. Regards Brian.
  16. Hi Ben. I had a similar effect on my taste. It lasted a couple of months before I could appreciate the full range of flavours of the food I eat. It got better as time went on. Water still has a slight, bitter taste, although it's a lot better than before. It's been just over three months since my SAH, recovery is definitely frustrating, good weeks followed by bad weeks. The bad weeks usually follow a period of me overdoing it. Expect tiredness and "funny heads" And as everyone says, listen to your body. Regards Bri.
  17. Hi, It's been 3 months since my SAH and am almost back to my old self. I recently appealed to the DVLA regarding the automatic 6 month driving ban after having had a temporary Evd for 8 days, during my stay in hospital. The response from them was, that having had an Evd, increased the likelihood of a Seizure. After 6 months, apparently the risk disappears. When I left hospital, there was no mention of seizure or any other side effect of having had an Evd. I am curious as to how likely it is for, post Evd seizures. Surely the risks associated with a drain, are around infection and potential damage during insertion or removal. Any ideas, thoughts or personal experience would be good to hear. Bri.
  18. Thanks Dave, Very useful and practical input. I am feeling stronger as each week passes. I have started doing exercises that keep my core strength up and will go out walking at a fair lick, without pushing it. Aware that a headache is always waiting. We are away to Spain for two weeks camping in 12 days. It will be a challenge not to do my normal hill walking and evening run, before enjoying the local Rioja. It's great to hear how other people are dealing with their own recovery, and quite uplifting to know that there is every chance I will be back to my old self in a few months. Bri.
  19. Thanks Chris. That's just what I wanted to hear. It's good that you have put it behind you and got back to where you were. I look forward to getting fit again. My bleed happened while doing some weight training. Perhaps one day I will be able to look at weights without a bit of fear that it could happen again. Regards Brian
  20. Hi Macca, Thanks for the input. No doubt you are right. I will stick to taking the dog out for his daily walk until I have had the scan, and seen the neurologist in September. My wife is on my case if she thinks I have over done things. Bri.
  21. Hi Claire, Thanks for sharing your experience. I am having an Mri in September and seeing the neurologist a week later. I will try and take your advise and keep the trainers locked up until then. It is strange condition to deal with, having no outward signs of illness and being, almost back to my old self. I hope that the headaches, tired days and the associated disconnection between brain and mouth that seems to occur sometimes, will be gone soon but that might be wishful thinking. At least there are dozens of posts on this site from people like yourself, who are further down the road, to read and gain some understanding of this strange condition. Bri.
  22. Hello there, I am very pleased to have found this forum, specifically for those who suffered a non aneurysmal bleed. I am 58 years old and had my bleed back in May (24th). A total of 3 weeks in hospital, an Evd fitted for 8 days, with one episode of vasospasm on day 4 post bleed. CT, MRI and two angiograms couldn't find the cause of the SAH. Upon release, I was told that I should go home and, get back to doing what I did before. Since coming home, I have gained all the weight I lost in hospital and I am capable of doing most jobs around the house. Although I still suffer mild headaches after too much exertion or if I stand up quickly. What I want to do is start running again, I am missing the physical release and de stressing benefits of a decent jog. It is now two months since the bleed and would be interested to hear other people's opinion on when to get back doing exercise.
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