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About DigglyDog

  • Birthday 01/11/1950

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    Milton Keynes UK

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  1. Hi and welcome. Sorry to learn about someone so young having post SAH issues. My sah was in late 2018 so now almost three years in, I'm (considerably....)older than you but have similar hearing issues. It's a bit more complicated in my case as I needed a programmable VP shunt implanted in the skull behind my left ear and current UK advise seems to be to avoid anything with even a small magnetic field being in contact. This means that most hearing aids are to be avoided too. I've found that my underwater moments like Jess happen when the air pressure is low. I keep an informal watch on barometric pressure now and have noticed that I struggle more when the air pressure drops so enjoy my music more when it's fine but that's probably more to do with listening to Bob Marley in the sunshine.... Hope it all works out for you.
  2. Hi Monique, You'll get loads of good advice here from those much more experienced than me - only just over two years in for me - but I can fully empathise with the frustration of not being the 'old you'. It's hard to accept that things that were second nature now seem so difficult, but it does get easier, just takes a while. You might find it useful to search this site for stuff on mindfulness. I confess to be being a bit cynical about the touchy feely stuff initially but I've found that using some of the meditation techniques have helped me get thought the really tough times and helped break the downward spiral of fatigue and frustration. I was fortunate in having a relative who helped me with it, but have a read through and give it a try.
  3. Welcome Compostc, you're in the right place now !! I'm just over 2 years into my recovery, so I totally get the trying too much. Good luck with the technology...and I'll repeat Jean's 'Happy you found us' Keep safe DD
  4. Hi Cw64, welcome. You're very early in your recovery at 3 months and I've found that coming to terms with an 18 month to 2 year recovery period is hard to accept. I would only echo other people's posts here, stay hydrated, stay stress free if possible and manage your expectations of time to get back to anything resembling your old normal. If you can and weather allows, get out and enjoy the beautiful Shropshire countryside. If you're physically up to it, walking is great therapy, an excellent way to relax and gives you time to think outside of your normal environment. All best wishes from Buckinghamshire..
  5. Hi John, sorry to hear about your problems but good news that you're recovering well. My own experience getting back my licence after voluntarily handing it in was a bit similar with delays and excuses. I think that in the main DLVA use external medical consultants and these meet only sporadically so decisions are a long time coming. I was relatively lucky only waiting for 3 months after re-applying for return of the licence and at the time I was getting quite annoyed. Looking back, I now believe that they were right to keep me waiting as although I don't think my driving is impaired, I found I tired very quickly and had to take more stops than before. Although it might seem harsh and frustrating now, in a few months time you might well reflect that it's not so bad after all. Good Luck with your negotiations John (another one...)
  6. Please, please please be aware that being fit to drive medically can change instantly when fatigue is a constant companion. I have had times when I've driven somewhere but can't face the drive back because of the mental torture of dealing with everyday traffic. Sometimes it's good to push yourself through tiredness and fatigue, but not when you're behind a wheel. I'm sure you won't put yourself at risk after surviving SAH and being on the road to recovery. I think that you'll find at 65 weeks it all looks different from 65 days... Keep up the good work.
  7. Hi DD and thanks for the welcome. I was very lucky with the French health system, prompt action by the A&E guys to get me helicoptered to a specialist hospital and treated immediately saved my life. Sadly because my initial treatment was abroad and all my case notes are in French...I sort of fall down the gap with local specialists, although I have had some support from psychologists in the stroke unit. My main problem is with hearing difficulties as there seems to be conflicting advice about the proximity of magnetic fields, even those generated by standard behind the ear devices, being problematic with magnetically programmeable shunts which I have. For now, I just have a medical alert wristband with all the details of the shunt, and use a single hearing aid away from the shunt location. I suspect that I'm being too careful, but I'd sooner make people laugh with my mishearing stuff than take any chances. Keep well Diggly
  8. Apologies for the inappropriate smileys.....I'm still learning my way around the forum.. 🙂
  9. I've just found this forum site and have spent the last couple of hours looking through some of your experiences. Nothing unusual in my story. We were on an extended tour of Europe in our motorhome and slowly making our way back from Albania, decided to go back via Brittany and just wombling up the Atlantic coast. A sudden headache, and stopping to get some sleep seemed the best bet. I woke up 2 months later, back home in Milton Keynes having spent the time recovering from the initial bleed, subsequent bacterial meningitis, then hydrocephalus and a VP shunt installation. This was in October 2018 in France and I was repatriated on Christmas eve, but my first memory of being home is from early February 2019. I fortunately have no memory whatever of anything after laying down in the motorhome although I have strong recollection of the nine previous weeks when we were travelling. In fact it was a further two weeks in Milton Keynes University Hospital before I could understand what was happening. I was initially in a dementia ward because of my hallucinations and 'difficult' behaviour, not like me at all, and this didn't help my confused state of mind. My biggest surprise was looking in the mirror and seeing a gaunt stranger staring back. It's been a slow old recovery process and now nearly two years on I still suffer from mental fatigue and mood swings although I have regained some of my physical fitness. I can fully empathise with the comments on this forum about being far from well and references to the hidden disability. I've found it very helpful to write down the limited memories I have of my ramblings, dreams and hallucinations and to try to make some sense of it but I'll try not to ramble too much here.... It's great to find a forum that is so positive. Keep well everyone in these uncertain times..
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