caz

Hi Louise, I agree with Paul, i know many people who have had a shower put in place of bath or a different bath put in so keep battling i know you can do it!!! love caz x

Hi Ali Welcome to this friendly site, You will find so much help love and support here. Hope John starts improving again soon now. we look forward to both of you posting on here. Get plenty of rest yourself as you will need to be strong when he gets home. My hubby did the sameas you and travelled back and fro and tried to keep a job going too then was poorly when i came out of oxford which was hard for us both, so rest for you too is very important. sending you love and prayers god bless caz x

hi, Think it must be the same 4 me. had two angios and now going onto mri/mra. They are monitoring one aneurysm and checking out swelling????? beside the aneurysm clipped in may. Hope all on here are ok love to you all caz x

thanks to you all for reassuring me about the coils. spoke to surgeons secretary this morning and they are going to sort out apt for me soon. May be MRA instead of MRI but feel happier about it all now since hearing from alln here. Hope everyone had a good weekend love caz x

thanks Tina and caroline, its great to come on here and get the answers so easily. much appreciated. Hppe you are both ok love caz xx

Hi all, just had a letter which was a copy from my surgeon to a neuro radiologist saying it will be ok to give me a mri instead of angio as all clips now are safe to use with scanner, but how about coils? are they ok as i have 8 at present and am worried. will try to get hold of radiologist or surgeon again monday but been trying for a week with no reply from anywhere. cant even get hold of secretarys and have left messages. feel in the dark. anyone help please?? hope you are all having a good weekend. love to you all caz xx

hi paris and welcome, sorry to hear your news but everything tina says is correct. We all get anxious and worried at times as it has been a big event in our lives. I had coiling in march last yr and then clipping in May this yr. I am hopng to go back to work soon but it is is very frightening as you dont feel like your the same person anymore. lots of gentle support and hubby will get there. look after yourself too both of you can make the most of this time and have a little nap in the afternoon as you wont get it when baby comes along lol. a new life in your lives will probably be a great healer and something to focus on for hubby, so tryand relax and look forward to the wonderful time ahead of you both love caz x

wonderful to hear your news bessie.long may the improvement continue with mum lots of lve and best wishes carolx

hi phil, well done you on getting back on track. wishing you lots of luck in your job search and enjoying life again. keep posting messages to let us know when you find something new best wishes carol

hi louise, never heard about the sheena mcdonald thing before is there any way of getting that on i player bbc or anywhere else? i read a fantastic book that i would reccomend by jane lapotaire called time out of mind. she is an actress who had a sah and has written about her feelings. i leant the book to my boss at work and she has now some understanding of what this is like. I like to soak up any info i can get hold of that will help and that i can show friends and family to help them understand what this is like. Talking of which i phoned headway to ask if there is any way they could offer me some support and they can for 48 pounds a day...no way i can afford that on statutary sick pay so another dead end i think. keep trying and i will get help somewhere or somehow. Hope everyone here is ok and had a good day best wishes carol

Hi Nora, welcome to this wonderful site. i have only been here a week or so also and have found great support. I had 2 annies and one was coiled last year and the other clipped this yr in may. we all have good days and bad and so just enjoy the good ones and it will get better. Take care of yourself and we will speak again soon best wishes carol

hi all, its great to hear from you and you will be glad to hear the family got food without charcoal yesterday lol....had two sleeps during the day though as its such hard work buying a newspaper and walking home lol.....im going to try and read and take in my work magazines today. have got a pile to go through as they might as well have been in chinese for the last couple of months! i have worked in pharmacy for 30 yrs making up the drugs and giving advice and at the moment im only on the recieving end. not sure how long until im ready to go back and try to start again as it takes a lot of concentration. but hey ho im sure it will happen but maybe only part time instead of full time. have a good day everyone and take care carol

wow! thank you all for replying to my story it was lovely to feel a part of something with people who have been through it too. just been for a little walk on my own so been a bit dizzy and done in lol. will keep coming back to this site and hope to be able to help someone one day the way you have all helped me by welcoming me in. have been told now that my consultant is going to refer me to neuro psychologist to help with anxiety/noises in head anyone else had help with this? love and best wishes to you all and thank you again carol x ps ruined two saucepans last night as i forgot i had put dinner on... ooops!would normally put timer on but forgot that too........oohh a memory would be good. x

Hi all, my name is carol and i come from wiltshire. I had an sah on 30th march 2008. A few days leading up to it i had a bad headache and put it down to pressure at work. on the morning it ll happened i had been for a swim,shopping in town and done some lunch and then bang! the next few hours were frightening in one way and peaceful in others. my husband phoned the local hospital who thought it was migraine and told me to sleep it off (not too hard when you are in and out of conciousness) eventually after an hour of sickness, slurring words not being with it at all and losing my sight my husband spoke to hospital again and they said to bring me in. first thought was meningitis but they did ct scan and then realised what had happened and sent me off by ambulance to oxford. they were fantastic there and coiled the sah and also found a larger aneurysm which they coiled also. i went back to work mid june 2008 although looking back it was stupid as i couldnt cope or manage well but i had always been super woman and thought i could do anything. after 6 months went for angio and the larger aneurysm needed clipping as coils were not holding. the neck was widening. after a few cancellations i eventually went in may 4th 2009 for craniotomy. again drs and nurses were wonderful and i managed to come home after a week although pain sent me back in by ambulance 2 days later. occupational therapy and physio were then put into place and i came home the next day with a lot of support. But who am i now? dizziness headaches tiredness confusion memory is awful and cant stand lots of noise. where do you get the answers? i was hoping to go back to work after 8 weeks but that hasnt happened and i dont know when it will. I saw consultant last week and thankfully he is pleased with op and so all should be ok now for a while although he said it is possible the original one may need clipping or recoiling one day. where do you go from here? everyone says i look well but its not how i feel in my head. i think even friends are probably getting fed up with hearing it all, and family do their best to help but cant understand it all. Im hoping from this site i can gather information and support from others who have the same feelings as myself. I thank god i survived every day but who am i now? thank you to whoever has read this outpouring but it has been quite therapeutic. hope to get some replies take care and god bless you all carol

Hi Ann' this is my first time on here but all i can say is i understand completely.I went back to work slowly after 3 months sah everyone said it was too soon but ie never been one to listen (very stubborn ) i was in and out of my place of work for months. go in and then get sent home feeling dreadful. in may this yr i went back in to hospital for more surgery clipping this time with craniotomy and ive learnt my lesson im taking my time going back as i get two good days one bad etc very frustrating and everyone telling you you look so well makes you feel like a fraud. Take one day at a timeand i think we need to be grateful for the good days and accept the bad. Hope you are getting a few more good days soon all the best caz x