iola Posted June 19, 2013 Share Posted June 19, 2013 Hi everyone, I took Keppra for two months (twice a day) and after my last angiogram the Dr started weening me off. First week I took one every day and this week I started every other day. I have noticed my headaches are a little more intense (more stabbing pains and tension) and I have been very snappish and short with people. I am also on vacation, at the beach, and its my third day and had to leave the beach to go cry and then lay down. I have been doing quite a bit and with the weening as well, I'm thinking my brain and body are tired. What type of side affects, if any, did anyone have coming off Keppra? Thanks for any info. I Quote Link to comment Share on other sites More sharing options...
Winb143 Posted June 19, 2013 Share Posted June 19, 2013 I, Hope you are well soon, perhaps it's the stress of holidaying. Order from Win, get out there and enjoy yourself when possible. Passes I some headache pills and water. Good luck and try and enjoy the rest of hols xx Love WinB143 xx xx Quote Link to comment Share on other sites More sharing options...
iola Posted June 19, 2013 Author Share Posted June 19, 2013 Thanks Casey and Win, Definitely taking Tylenol and drinking more water today. Forgot to mention I helped my daughter make a sand castle, which meant a lot of bending and digging. Not such a good idea in retrospect but what ya gonna do when you have an 8 yr old? Quote Link to comment Share on other sites More sharing options...
iola Posted June 19, 2013 Author Share Posted June 19, 2013 I feel pretty good today. Just got back from fishing with my 9 year old grand daughter. When I'm off I will ask them to kiss my forehead. It feels good, and they seem to like being able to do something that helps. Of course I have the sweetest grandkids on Earth! Kids are so healing. Quote Link to comment Share on other sites More sharing options...
kpaggett Posted June 21, 2013 Share Posted June 21, 2013 One day at a time. It seems so trite, but it really is true. Each day, you'll notice some improvements. Some may be from weaning off drugs and some are do to your individual rate of recovery. It is always good sign when your doctor thinks you're ready to come off any drug, that means you're healing well. Think on this. ~Kris Quote Link to comment Share on other sites More sharing options...
iola Posted June 21, 2013 Author Share Posted June 21, 2013 (edited) Thanks Kris. Needed to hear this. I all of a sudden this morning started feeling very dizzy and some pressure, which always scares me and and to go lay down. 2 hours later I am a little better. Think I've just done too much. Iola Edited June 21, 2013 by iola Quote Link to comment Share on other sites More sharing options...
iola Posted June 22, 2013 Author Share Posted June 22, 2013 Iola, I think I am beginning to see some improvement. This is day 21 since my last dose of Keppra. I have been moderately active the last couple of days and while symptoms aren't gone, they are some improved. I went all day without a dizzy spell yesterday and no headache. My general sense of well being seems better too. Hang in there and expect things to get better! Thanks so much. I had terrible dizziness today but I think that was a combination of both coming off the keppra and doing so much. Today was my last dose so we shall see what the rest of the month brings. The dr said I could drive after a week of being completely off so I am hopeful. There is always hope. I Quote Link to comment Share on other sites More sharing options...
iola Posted June 26, 2013 Author Share Posted June 26, 2013 (edited) Good morning, Latest status. I am on my 5th day off keppra and I am doing okay. Headaches are a bit more intense and still a bit dizzy. Always tired but I still get up and do things. I find a shower makes me feel better all over. I swear my brain feels sore, which I suppose it is. Casey, how are you doing off keppra today? Edited June 26, 2013 by penny Altered Text talk Quote Link to comment Share on other sites More sharing options...
Winb143 Posted June 26, 2013 Share Posted June 26, 2013 "I" I am still on keppra and get dizzy, so be well and no Stress xx Whatsoever . I turned over in bed last night and I nearly fell outta bed. Got up at 3.30am and fell asleep in armchair. Never felt giddy there, weird Win lol. Be Well WinB143 xx Quote Link to comment Share on other sites More sharing options...
iola Posted June 26, 2013 Author Share Posted June 26, 2013 (edited) CaseyR Thanks for your update as well. So glad to hear your dizziness and fatigue are manageable. And most of all, the headaches are dissipating. All good news. Oh, I try not to bend down at the waist. It's a habbit I USED to have. I do go out and pull weeds and walk around the yard for some exercise. I get these darn headaches that start at the top of my head and feels like it migrates out to the sides. I get them througout the day. Hate'm. Sometimes they dart through my left eye, which I have an appt with an opthomologist next week. I used to laugh at my grandma when she and her girlfriends would get together and talk about all their aches and pains. And, whose were the WORST. Funny, I find myself doing that now and I'm only 47. Edited June 27, 2013 by penny Removed quote Quote Link to comment Share on other sites More sharing options...
iola Posted June 26, 2013 Author Share Posted June 26, 2013 (edited) Hi Win, Oh, I must sleep with my head propped up or else I am D I Z Z Y!!. I drop things all the time and trip over my feet. I just laugh. Will you have to remain on keppra, if you do not mind me asking? Some times the chair just feels better than the bed. I slept in our recliner for 6 weeks when I had my prior surgery way back when. I could not lay down flat for months. Hope you are sleeping well tonight. i Edited June 27, 2013 by penny Removed quote Quote Link to comment Share on other sites More sharing options...
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