Guest suse Posted May 7, 2009 Share Posted May 7, 2009 Anyone with ATAXIA as a result of their SAH?? tx, suse ((((hug)))) Quote Link to comment Share on other sites More sharing options...
Janet Posted May 7, 2009 Share Posted May 7, 2009 Hi Suse Had to google Ataxia to find out what it is and no I don't suffer with it as a side effect of SAH. It sounds a very debilitating illness though. http://www.nhs.uk/Conditions/Ataxia/Pages/Symptoms.aspx Janet x Quote Link to comment Share on other sites More sharing options...
Karen Posted May 7, 2009 Share Posted May 7, 2009 Hi Susan, I've never been diagnosed with having ataxia ..... but had problems with swallowing, balance and tremors after the SAH. Still suffer with all three to a degree, but the tremors have improved enormously and I only get them when I'm tired. Swallowing can still be quite scary sometimes, but again, it has improved ..... In the early months, I would often choke on food, as I couldn't seem to swallow "on time" ..... didn't matter whether the food was liquid, soft or needed chewing, I was out of sync. I put a lot of it, down to the side effects of the anti epilepsy drugs that I was on and things did improve a lot, when I came off them. It's an interesting subject Susan and I don't think that it's been discussed on here before.... Love Karen x Quote Link to comment Share on other sites More sharing options...
MUTTI Posted May 7, 2009 Share Posted May 7, 2009 HI SUSAN I WAS NOT DIAGNOSED WITH ATAXIA EITHER BUT, LIKE KAREN HAVE HAD DIFFICULTIES IN SWALLOWING TREMORS AND BALANCE AS WELL, AND STILL DO AT TIMES. BUT IT HAS IMPROVED FOR ME TOO. TAKE CARE EVELYN Quote Link to comment Share on other sites More sharing options...
tennissmithy Posted May 7, 2009 Share Posted May 7, 2009 Hi Susan No I've never suffered with it either. Thanks Janet for the link I've just had a look to see what it is Take care Laura xx Quote Link to comment Share on other sites More sharing options...
perrycornish Posted May 7, 2009 Share Posted May 7, 2009 Hiya Suse, and welcome home No diagnosis of Ataxia as such here either but yesquite a lot of the symptoms but they definitely do improve as time goes by, although I too find swallowing difficult and like Karen at first it was a lot of the time, but now only sometimes and particularly if I'm tired, I have so often been left with tablets still dissolving in my mouth ( Yuk!) and the water I use to help me take them, has gone happily down Tremors also again worse when I'm tired. so it looks as though none of us are alone with the afflictions good to know they do improve I assume you arehaving ataxic problems too? Quote Link to comment Share on other sites More sharing options...
michelle C Posted August 1, 2010 Share Posted August 1, 2010 Hi Suse I have PM you although i have just seen this thread ???? Anyhow YES i have Ataxia due to my balance/gait the rest is in my pm to you., Love Michelle x Quote Link to comment Share on other sites More sharing options...
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