Happydawn
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Hi I didn't like a lot of thing after the SAH. I hated tea and coffee. It took weeks of keep trying it before I enjoyed it again. i have never liked the taste of wine since, but it saved me some money.lol Also i like walnuts and I never liked them before, strange the little things that can change. Hope it not bothering you too much. Take care Dawn
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HI Everyone is different and only go can say how you are feeling. I took months to go back to work and had lots of pain in my head and leg. It took time for this pain to go. So just take each day as it comes and your not a wimp. Take care DAwn
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I do suffer fatigue,but has got better with time. 5 years post SAH
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Aneurysm size and how many?
Happydawn replied to donnamarie's topic in Subarachnoid Haemorrhage Discussion
I have two also. one on left which is small and one on the right half coiled. Not sure of sizes -
MRA Scan 8/3/10-Hydrocoil Study
Happydawn replied to Karen's topic in Subarachnoid Haemorrhage Discussion
Hope it goes well. I'm in some international study and it will be another 3 years before I go for the MRI again. It is always nerve racking as you want good results. -
When I have attended meetings with Consultants in Neuro, they seem to believe there is a link with b/p. I have a b/p monitor and find it good to check for myself. My GP check it every six months as recommended. I never suffered with b/p before the SAH it was always good when it was checked. My b/p was higher after the SAH and I required b/p tablets for years until know when its about back to what it was before the b/h. Hope that helps
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Hi I know exactly how you are feeling as I went through the same thing a few years ago. I had strange headaches and then my voice would go. I went to a Neurologist as my consultant thought it was a form of epilepsy. I then went for a EEG at the hospital and was later diagnosed with complex partial epilepsy. The EEG is a cap with electrodes on it and measures your brain activities as far as I know. It doesnt hurt. It sound like you have absenses as well. Prepare yourself as you could well lose you licence for a while. You can try some of the drugs available to correct this. I'm able to drive again and I don't seem to have episodes at the moment. I don't work though and I also try to keep my stress levels in check. I hope it goes well and will be think of you Dawn
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Personal Accident insurance
Happydawn replied to adam's topic in Advice & Tips/Healthy Living/Benefits
Hi I have claimed a critcal illness insurance and I also work for the NHS at the time. Do you think that it would only cover me if it happened at work? Thanks Dawn:shock: -
The problem with this condition is there is nothing visually to see and that what people go on, that you look alright. I think you get better each day and everybodies recovery is different, it depends on how bad your SAH was. These stupid tests they do have nothing to do with your emotional state and at the end of the day its' not like breaking a limb. I was advised to have the happy pills as well and I refused. I didn't get counselling either. Just enjoy every day.
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HI Social security dept are ridiculous!! They make you do all these physical moves but they don't ask you about your emotiional state, or your memory. When most people struggle remembering things and I would think that, to work you need to be able to know what your doing. This does not seem to matter to them and theres too many people with emotional problems after SAH not being addressed at all. It make me so sad that people are put under so much unnecesssary pressure. Hope you get sorted soon:frown:
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HI I think your right about fatigue, no-one warns you that it goes on for years to come. You can become more able as time goes by, but you still have to pace yourself as it creaps up on you. I had a headache non stop for 5 months and it took two days to realise it had gone. I only drink de-caff drinks and I rarely have headache know. Just take your time it's early days
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I.m a SAH survivor for five years. My husband found it very difficult at the begin and I would text him regular throughout the day to reassure him I was fine. He still worries but not as much these days, but it still remains at the back of his mind. I can understand that he feels like that and maybe its a natural reaction to a terrible event. Just take one day at a time and enjoy being together. Take is a great healer. I think your wife is recovering really well.
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When I first went back to work I was shocked as to how much work I did. Getting back into doing all these tasks was difficult. Keeping focused on things was difficult and when the phone rang I would say the first thing that came into my head. I would answer the call and mention the wrong depot. Then apologise and remember were I worked.lol I struggled with lights and then epilepsy. I was finished on ill-health about a year from starting back. I'm glad that I was as I just couldn't keep doing this job everyday as so tired. I love my voluntary work with the EPP through the NHS and the Health Peer Mentoring with NHS So don't beat yourself up like I used to do. It's only a job after all. Take care
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HI, its great to hear that you will be getting help. Use the help as much as you can and don't over do it at first. There are a lot of people who have been able to get back into work, but most are really tired at the end of the day. Pace yourself and get as much sleep as you can before going back. You will enjoy getting back with friends. I wish you well. Let me know how things go.
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HI I had a lot of problems with the colleages I worked with. I thought they would be a little more acommodating, but no they just sniped all the time. I struggled with the flourescent lights and I would ask if we could switch them off as we had a lot of natural light from the window. As soon as I left the room to do something they switched them back on and moan. I also struggled to walk and they reported me for taking my time at going to occup health for a blood pressure check. People are unbelievable. They continued bullying until I left as the stress and my health were struggling.I feel sorry for them as the are going nowhere stuck doing the same thing. I'm enjoying doing my voluntry work as a EPP tutor and now Health Peer Mentor. I have meet some wonderful people that have encouraged me to do more and I would not have met them if I had struggled on with work. I'm enjoying seeing people come back to life and they have been on the Expert Patient programme by NHS Take Care
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I went back to work part time five months after my SAH.It wasn't a good idea as mentally i was not strong enough to put up with other people and there misconseptions. i found it much to stress full. i was finished on ill health as i was in and out of hospital with further problems. i not bother about work as much as im enjoying my volunteering. You do get stronger with time.
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Not heard about ESA. I know it was difficult at first to receive payments. I have had to go back at times to be re-accessed, but I had more health problems later so I think they just gave up. I got partial epilepsy later,then can't manage to treat.photophobia which makes me struggle in building with strong lights and I can't stay on a computer for long. I have glasses to help me cope better with lights but it still hurts. Keep plugging away at them and also your GP for support. Hope you can get a positive results soon, No one needs that stress as well
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