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Pat's Story


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Pat

I suffered a subarachnoid brain haemorrhage at the end of November last year, driving home from work on the M4, I blacked out without any warning whatsoever, no headache or feeling unwell or anything.

All I remember is getting in the car at 4pm and nothing else until a week and a half later. I lost a whole week and a half.

Thankfully my car rolled over to the left a few times and down the embankment only being stopped eventually by a tree having knocked down six fence panels. If I'd have gone to the right I'd have been killed and wiped the motorway out at tea time on a Friday evening.

Someone kindly reported it and I was airlifted to frenchay hospital and kept in for three weeks. On arrival it was touch and go for three days as to whether I would survive of not, so I've been lucky on both counts as I've been told one in three that have this don't even make it to hospital let alone whilst driving.

I had a coil fitted in my head and also suffered a fractured skull which thankfully has now healed. I wanted to come on this site just to see what other peoples recovery is like.

I'm still really tired and get strange pains in my head and most mornings wake up with a headache which sometimes lasts all day. I'm still taking aspirin each morning and paracetamol when needed.

I've had a follow up scan and everything seems in order and have been told that my symptoms are normal and I am doing well in my recovery for what I've been through.

I thought I would be feeling lots better by now as I'm experiencing the above and I'm still quite forgetful and muddled at times. Does anyone else out there feel this way? Would be nice to get feedback from fellow sufferers.

Pat

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Hi Pat. Wow that was your lucky day in many ways I suppose but such a hard time for you and family. Nine months in now , well done, i understand your frustration that things would be more back to normal by now but as Tina says the healing of the brain is a marvellous and miraculous thing but it takes an age and comes in it's own time and won't be rushed. I am two and a half years on and mostly have pretty steady and good days now, they are not at pace levels I used to have but without the amount of pain and twinges that were ever present in the first year. Be sure that life will gradually lead you to your new normal. Keep being kind to yourself, rest when you need to and drink plenty of water. Good luck

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Wow -Pat,

Welcome to BTG!  What an introduction!  Rolling over down an embankment sounds really scary and unlucky, but when you read the rest of your story, your jackpot lottery ticket just came in!

 

You survived and everything else you have said about headaches, comas, strange pains, aspirin and all of that is extremely normal for people who have been coiled!  And a fractured skull as well!  B-Blimey!  You should write a book!  Memory loss is also normal and again, over time your brain may re-wire itself a little and your memory may well get better but maybe not completely back to normal.  Everything that gets better is a bonus -be positive and be thankful for that!

 

Recovery from all of this will be slow but hey - you are still with us and every day now you will look at as a huge bonus and your perspective on life will have changed and you will, over time, re-assess your priorities in life! Sometimes things can be difficult to deal with but you will find a way even if it isn't the normal way you would have expected to! We're always here on this site and no doubt some others will re-count some of their experiences for you on here as well!  Enjoy your win in the lottery of life!  Have a look at some of the forum discussions on this site and you will see many things that will be familiar to you now!

 

Thanks for telling us your story - there are many similar - without the spectacular rolling over bits of course!

Have a great weekend!

Regards 

Macca

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Thanks Macca and Daffodil for your kind words and hope you are on the road to recovery too. I'm grateful for every day I wake and you're right I've been soooo lucky. It's nice to have found people I can chat to and get some feed back on their experiences too and hear that Im not on my own with these strange experiences as I was finding it all very frustrating not being right as I dont do poorly and always been fit and well. It just shows that you never know what's round the corner and have to make the most of life which I intend to do as best I can. Keep in touch Pat x

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Click your name, top right of the screen, page changes to your profile. Top right of the profile page there is a black band that says "Edit my Profile"  Click that band and it will take you to the page where you can change things.
Once you have changed what you need to scroll to the bottom of the page and click "Save Changes" in the back box.
Mission completed :)

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Hi don't know if anyone can assist I've given up work for the moment as it was all getting on top of me getting sick notes and constantly thinking that I have to be better for when the sick note ran out. Does anyone know if I'm entitled to any kind of benefit until I'm ready to go back to work?

Pat

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Go on to gov.uk.  There's lots of information on there.  Benefits seem to be a minefield at the moment there's so much change going on!  I would suggest keep getting the sick notes though as without them you would have to sign unemployed and be fit for work which you clearly are not.

Macca

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Hi Pat,

Can I suggest that you go to CItizens Advice Bureaux as they have been very supportive of me when I had no idea what I was entitled too, never having been ill before or unemployed, and trying to cope with my numerous HR meetings at work. I was completely unable to process or understand any information in relation to benefits etc due to my cognitive impairment, and they were fantastic at filling in forms and writing letters to ensure that I got what I was entitled too. Its a shame you had to resign, that may complicate things, but please give them a try. I have had to take ill health retirement and was successful in gaining my NHS pension. CAB are fab! Good luck Pat x

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Pat,

When things seem bad and we have been through a lot !!

Smile and sing a happy song when possible xx

Life seems so much better when you can smile xx

We will make it with BTG and all of us just positive

thinking xx Good luck, now sing and think happy

thoughts and look back in 4 weeks and see if you feel

better xx Good luck at CAB.

Now smile xx

Love

WinB143 xx

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Hi I'm struggling at the moment my head seems to have got worse instead of getting better. These last few days I've had a strange pain in the back of my head and felt a bit wobbly and sick :-( is this part of the process of recovery or do I need to ring the hospital. I do feel a little better today and am just resting?

Pat

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Good luck and I wish you well and if you need a chat

about anything even if it seems silly do not worry as

we are here to share our worries with each other.

Hope your headache clears up and you'll be okay.

Love

WinB143 xx Try the green room for general chit chat if needed

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