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Macca

Super Moderators
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Macca last won the day on October 26

Macca had the most liked content!

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About Macca

  • Rank
    Super Moderator

Profile Information

  • Gender
    Male

Converted

  • Biography
    60 yrs old. Two grown up sons, three grandchildren, two boys and a girl. Got married in September 12 to Sandra. Played for Oldham Athletic in early 1970s. Thankful to have found this site. Visited Hawaii and Pearl Harbor in 2003 to fulfil one off my wish list.
  • Location
    City of Salford UK nr Manchester
  • Interests
    Football (soccer), reading, finding out about SAH, Spitfires, sailing ships
  • Occupation
    retired 11/4/2014
  • SAH/Stroke Date
    1/9/2010 L Ant comm- coiled

Recent Profile Visitors

1,453 profile views
  1. You're welcome Margaret. Even if you need to work, there are still adjustments you can make to improve your work/life balance, ie changing jobs, changing work patterns, reducing hours, delegating etc I wish you well whatever you decide! Macca
  2. Hi Margaret, I am not and never was a health professional. However I did work in a large Government department. I went back to work on a phased return after 6 months. It was unbelievably hard and involved me looking after up to 20 staff and travelling the length and breadth of the UK. I was utterly sick of the M1 and the M6. I managed to hang on in there for the next four years and then I took early retirement at 58. The vast, vast majority of my colleagues were great. That said I left with my head held high, my dignity in tact and can say it was the best decision I ever made. I paid off my mortgage. Making a few lifestyle changes and not having to pay out for travel and parking, meals and so on meant I hardly noticed the difference in my income and my life now is infinitely better than when I was in work. I still have a number of friends from work with whom I am still in touch and meet up with and some of them are retired now also. I've been gone 5 years now. What I am trying to say is 'there is life after work' and it's great - I wish I had done it earlier. Good luck - whatever you decide, I wish you well. Macca
  3. Ditto what Sami has said. Lots of things can happen to us and they're not all SAH linked, even though it seems logical to us because of what and when it happens. Go and see your doctor and put your mind at rest. If there is a problem then they'll know how to resolve it. Good luck , Macca
  4. Hi Lori, Welcome to BTG! You are right - you have got a second chance at life, we all have on this site. We are all very lucky to be here through a combination of factors. These range from being found early enough to be transported to hospital, by correct diagnosis at hospital, and so on. We all have the opportunity to take stock and re-evaluate our lives as to what is important - not money - but health happiness, family and friends and a quality lifestyle. So view this time as an opportunity to learn more about yourself, and those around you, about the demands made of you and how you can improve them by truly asking yourself what is essential, what is nice to have but not vital, and what you can get rid of or delegate and cut stress. If you feel any negatives, turn the subject round and say what will make this negative a positive. Is it by changing the way you do things, getting someone else to do it or by cutting it out of your life altogether? Sounds like you have a superb bloke by your side. You are a team - that's what marriage is - teamwork. SO face it together, talk about what happened to you often, re-appraise often and work out the best ways forward as you face each situation. You will be amazed at the many different answers you come up with! It will also probably draw you closer together. There isn't a great deal of information about SAH out there so educate those around you to make a difference. You can't see a SAH so you have to communicate to get your message across. I wish you well in your recovery and hats off to your chap - you sound like a great team! Good luck, Macca
  5. Hi Welcome to BTG. I am left handed too but fortunately am able to use it. Good that you are driving again and learning to adapt to your current circumstances. Keep battling away and hopefully you will slowly improve - it takes time as I'm sure you are aware by now. Well done on your progress so far!
  6. Hi Kathy, Firstly - well done on raising two special needs children. That's no easy task I know! My experiences of the things you describe are as follows:- Barometric pressure - yes,, I suffer headaches when there is a sudden change or when the pressure goes low. They're not always severe but bad enough to let you know they're there and to adjust what you do that day. Having small but regular drinks throughout the day seems to help me but that's no guarantee it will help you, so see your medical team. Stress - this has long been a suspect for contributing to SAH but there is no definitive proof because you cannot measure stress - it is different in everyone and I guess it is related to blood pressure issues that can be affected by so many other external factors too. Again - see your medics. I try to avoid stress wherever and when ever I can. With the issues you describe, I can well imagine that you are grieving still, and that with two special needs children and your husband away a lot, then it is no surprise that you feel dumped on somewhat, and need some assistance and relief to get through this. I hope just letting off steam on here has helped you a little bit but really you need to find the time to sit down with those around you to ask them to pull their weight a bit more. One more thing - learn to say 'no' a bit more. Fatigue and depression are common themes in post SAH times and those around you need to understand that because they can't see a plaster cast or a scar doesn't mean there's nothing wrong. So you have to tell them and keep on telling them until they get the message. What happened to you was severe, and more serious than those around you realise, and you need to get help to deal with the things you describe. It's not alright to let the others carry on as though nothing has happened and is now back to normal. It isn't, and they need to understand that. Seek that help, let them know, and life will be much better when you know that they know, and that they are happy to rally round. Good luck Kathy Best wishes Macca
  7. Hi Carolyn, When you come onto the site, on the front page, scroll down to the bottom and you will see a whole forum devoted to driving issues after SAH. Just click on it. There's lots of stuff in there including good practical advice and people's experiences about getting their licences back. Best wishes Macca
  8. Hi Terry, Headaches and fatigue are an 'occupational hazard' after SAH. What your body is telling you is that you've overdone it a bit and you need to rest and stay hydrated. Everybody's timeline is different so there is no rule to it other than listen to your body, exercise well and rest well, keep taking on liquids at regular intervals - just like marathon runners do. Take regular short breaks and stretch your legs for a few minutes and take a drink! Good luck mate! Macca
  9. Thanks Sarah, I think if there is anything urgent they'll get in touch quickly! So as you say, a bit of breathing space for you now. It takes the pressure off you and will allow more thinking and research time for you without the emotion playing a part. That can only be good! Best wishes, Macca
  10. Well done Sarah -you got through it. If he changes his mind you need to go through it thoroughly. Why did he have his original thoughts?, what changed his mind?, how complicated is it?, what are the risk factors now? and what are their percentages? and how reliable are they? etc etc. Goodness your mind must have been in turmoil. I think you can relax for the time being. I also think that if they are changing their minds then they aren't sure themselves and you don't want to be a guinea pig so I might shy away. Only if they are definite would I go ahead with it, if the risks are as minimal as they can be. Any operation has risk attached to it and 95% in favour is probably as good as it gets but no risk by not having it done might be better. It's a tough one but make sure that they are sure before you agree to it. I doff my cap to you young lady! Once again well done! Macca
  11. Thank you Jean - it's just the voice of experience really. I've been there and in the early days especially it's difficult to come to terms with the 'new me.' Only with time do you develop new ways of doing things and new thinking - usually because there is no other real choice. As in all walks of life you make the best of what you have, concentrate on getting better and being a positive rather than a negative influence on your nearest and dearest. The payback from them will reward you tenfold at least. Good luck Jean, keep plugging away - you'll get there! Macca
  12. Limitations and changes are in your life whatever your state of health. In the case of SAH though, they become more acute and are imposed suddenly when you aren't expecting any. Change happens to us all but usually slowly through the ageing process and that makes us more able and willing to deal with them as an accepted practice. However, when we have a SAH that change happens abruptly when we are less willing to accept it and we somehow feel cheated of our 'normality,' whatever that is or may mean. Change happens to all of us. It's how you handle it that counts. It can be a mental change or a physical change and in some cases, both. If you have an accident you accept it has happened and take steps to rectify it ie, put antiseptic and a plaster on your leg, or go to hospital or the dentist for treatment. You may end up with a small scar but that doesn't stop you doing what you always did after a period of healing. If the injury is more severe, you may end up with a limp and you adapt to the new you. You can't run like you used to so you walk more or you find a means of transport that suits your needs. With SAH, your brain has been injured and it needs time to recover just like any other part of your body. Usually it will take more time and you go on a voyage of discovery about what you can and can't do. The thing is, you will find other things to do, perhaps not what you did before, or maybe not to the same degree, or you will do what you did but in an adapted fashion. The difficult bit is to find, within yourself, acceptance that this has happened to you, that you can't turn back the clock, and that with a few changes to attitude, adaptations to the physicalities of what you did, and do now, you can overcome and go on to lead a fantastic life. Obviously, it can be more difficult in some cases than others, but with the help of those around you, that indomitable human spirit can overcome and/or adapt to many things. I myself have short term memory problems and I was told to avoid contact sports or things that would greatly increase my blood pressure, like stress for instance. I am nine years out and still lead a worthwhile life, grateful for the second chance I got - repayment to the wonderful surgeon and doctors, nurses and other staff who did not write me off, and helped me get back on my feet. I look on it as a duty almost, to lead a fulfilled life. I'm having a great time, see my grandchildren grow up. Wow, it takes my breath away when i think about it. It's not all great, and it can be difficult at times, but I'm still here. It's been a long road, but the journey was well worth the end results. I hope you find that peace too. Best wishes Good luck. Macca
  13. Hi Zach, Feeling down is common after this event and it can take a long time to get back up again. You say you feel like you didn't get a chance to live fully Yes you have, you survived and you have a second chance. You haven't lived your life fully because you are still with us. All that's changed is that your circumstances have altered a little and you might need to make some alterations to the content of your life. Try looking at your life a little differently. Instead of lamenting what has happened to you, look upon it as an opportunity. An opportunity to reappraise what you do and how you move forwards. You just had an abrupt change forced upon you, like the rest of us, but now it's time after having fallen down (like you did when you were a kid) to get back up, dust yourself down and carry on, just like you always did.. Might take a bit longer but you will do it! Short term memory can be an issue, again as it is for many of us, but there are ways around it, like making notes or keeping a diary for instance. You don't need to convince us Zach of the veracity of your story, but you do need to convince yourself that changing your mindset is a key to improving your lifestyle and frame of mind to positive effect. No - one says it's easy - it isn't - but you need to have hope and belief in yourself. A year out isn't that long in brain recovery terms and being a young man no doubt you'll be impatient to move on, but your body tells you when you've had enough. If there's one thing that a brain injury teaches you, it's to be patient. Dealing with negative thoughts? Well when you think one - ask yourself 'What about turning that around and looking at the flip side?' To every South there is a North, to every East there's a West. To every desperado looking at the negative, there's a John Wayne looking at the positive and taking on the world again! You need to be a John Wayne! So don't despair, things do get better over time. Good luck, my friend. Macca
  14. Hi Teri, All great advice above. Scary is natural, time is the healer. Learn to listen to your body, it tells you when you feel well and when to rest and its had enough. Good rest is as important as good exercise! Make a diary your best pal. Use it to remember things and to chart your progress. Learn to adapt to change the way you do things that you could do before but can't now. You'll be surprised at how creative you can be. It's a long road back but the sooner you start walking along it the sooner you'll get there! Good luck and we're always here to give you reassurance and advice and encouragement. Medical advice is out though because we're not doctors so you'll need to consult you medical team for that sort of stuff! Best wishes Macca
  15. Hey Greasly 23, Guess what? You have a new set of challenges to rise to now, not better or worse, just different. 1) Is to start looking at things in a more positive light - it's amazing what impetus a different outlook can give you 2) Is to start doing things and being proactive, however small and let people see you are trying. If they see you do this they should be more willing to start helping you themselves 3) Is to start getting better - doing things will help this. You've just fallen back a bit, now you must start climbing again. 4) Is to do a little tidying up and then sit down again - then do a little more. 5) Is to lay down some ground rules for the others in your house to chip in and do a bit - you can't do it all on your own anymore. 6) Is to get some dietary advice from your doctor and stick to it and try a little exercise - even if it is only going for a short walk in the beginning - even if it is with a stick or on a treadmill if you have one - do something. You are only 20 months out. I was over 24 months out before I could do a thing. Yes it is frustrating but I started to do little things and the little things became bigger things, and then bigger things still. On Saturday I am nine years out, but I am still not what I was but my quality of life is good. My outlook is positive and yours can be too, with a little grit and determination. Life is worth living and the rewards within myself are huge. I have seen my kids embark on their lives, my grandchildren grow up and I hope to see them married and in good jobs in due course too! Life changes - it's how you deal with it that counts! Remember the song ....."I get knocked down but I get up again"....? Keep digging in and making others astounded at your progress. Good luck Greasly 23, I really mean that. Listen to what Skippy says re therapy - it really can help to get you on that recovery route. One last thing - when you get frustrated - feel free to rant - it's why we are here - we've lived the nightmare too - but we all woke up to overcome it, Best wishes, Macca
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