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Macca last won the day on May 29

Macca had the most liked content!

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About Macca

  • Rank
    Super Moderator

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  • Biography
    60 yrs old. Two grown up sons, three grandchildren, two boys and a girl. Got married in September 12 to Sandra. Played for Oldham Athletic in early 1970s. Thankful to have found this site. Visited Hawaii and Pearl Harbor in 2003 to fulfil one off my wish list.
  • Location
    City of Salford UK nr Manchester
  • Interests
    Football (soccer), reading, finding out about SAH, Spitfires, sailing ships
  • Occupation
    retired 11/4/2014
  • SAH/Stroke Date
    1/9/2010 L Ant comm- coiled

Recent Profile Visitors

1,364 profile views
  1. Michelle, many congratulations on reaching this milestone! Here's to the next five!👌
  2. Hi, I think those comments are a defensive mechanism on their part. They don't know how to handle what has happened to you and so they try to 'normalise' your condition by making light of it. I don't think it is malicious at all. They are frightened by something that has happened to you, that is so close to home, and are worried it might happen to them. So talk to them about it. Bring it up in normal conversation and you normalise it - but with facts and the truth! People are less afraid when they understand it. Keep on talking about it, in little chunks maybe, but keep it near the top of your topic list. As Skippy says, it is a brain injury, not just tiredness. People still talk to me about their memories not being what they used to be when they can't remember where they put their keys or phone. My short term memory is improving and is not nearly as bad as it once was. I am nine years out, nearly! Sometimes not only can I not remember what was said, I can't even remember having the conversation! But I've leaned to live with it now and I write things down if I think I need to remember because it may have some importance! C'est la vie!
  3. Well done Mike, you sound very positive. A lot of the things you describe are what is often considered 'normal.' Maybe it's just you have a heightened awareness of them now because of what happened to you and how you recovered from it. So well done for that. Just get on and keep on enjoying things, bearing in mind that some things are just different to what you may have done before, not better or worse, just different. Change happens to all of us, and at different rates, it's how you deal with it that counts! It sounds like you are doing just great! Good man!.
  4. Hi AMI, You don't say what you do for a living but I have some points in addition to the ones made above which are very valid in my opinion. Your first duty is to yourself, your health and your family. Second, four and a half months out is no time at all in terms of recovery from a brain injury. In fact, you are only just starting. If you overdo it your body will lose no time in telling you. Third, just because you look well, it doesn't mean you are well. A car with no engine in it looks well from the outside. Only when you try to start it up do you realise it's not what it looks like! Fourth, get a letter from your doctor telling you that whilst some work is beneficial to your recovery, too much is directly harmful and may well set you back. Fifth, if your job involves anything that may pose a danger to yourself, your colleagues or the public, then there is a responsibility for you, and the company, not to make mistakes that may endanger them. If your role does that and the company insists on you doing this extra work then they may be held responsible for any mishaps, not you if you have informed the m beforehand of your concerns (so keep a record of that and time and date it). Sixth, if they are already short-staffed, can they really afford to lose another experienced member of staff like you? it is in their interests to keep your skills. If they are to take on new people could you become a trainer for instance - thus putting your skills to good use and giving you day to day involvement, but not directly in the front line? Keep communicating with your colleagues and tell them how you are affected, especially when you are off duty. I suspect from the way you have written that you have not done this in case it shows weakness. It doesn't. In fact, the reverse is true. It shows strength, courage and responsibility. Get your chin up, you are doing remarkably well and have nothing to reproach yourself for? How many of your colleagues could do what you have done in such a short space of time? Being teary, and emotional is a part of your recovery. I remember being like that for quite long periods, but in between there will be periods where you will feel you are making real progress, although it may or may not get back to where you were pre-SAH. However, I would say at this point too, that you can only control what you can control! So, see if you can manage what you do in a better, or at least a different way. Can you delegate, can you take more breaks? Can you organise your time in abetter fashion etc? Good luck, and keep on letting us know how you're getting on. Venting is good, it means you aren't bottling it all up! I wish you well. Macca
  5. Ah Melissa, Fatigue and memory issues (particularly short term memory). these are old favourites of SAH consequences that take a lot of explaining to others, the main problem being that others cannot see the problem therefore they think it doesn't exist! it's like looking at a car, trying to get in and start the engine and then realising it's broken down because there's something wrong with the engine! There is no one easy answer to this. It all takes time, time and more time. it will possibly get better but will not likely recover to its pre-SAH best. I find keeping a diary helps - just bullet points, to help you remember. Take regular breaks, even if only for ten minutes to clear your head, stay hydrated and do what you can - not necessarily what others want you to do. When you feel up to it, sit down with pen and paper and write down the things you do in your job. Consider the following: Can you organise yourself better? Can you organise your job, and individual tasks, better? Ie what you have to do (mandatory), what you could do (necessary but not urgent), what you want to do (luxury, dressing items that would be nice to do but are not essential) Can you delegate anything to others? Can you change the timing of any tasks to when you feel better able to deal with them? (ie in the morning when concentration is best, or when a specialist is in the building that you can ask questions of if needed) Can you make use of a 'dictaphone' to record things you need to do later or remind yourself of? Can you get a PA to help you at all? Not an exhaustive list, but just pointers to help you. As for mood swings they will be helped by feeling more under control of the things that you can influence. Strain comes from things you cannot influence, so concentrate on the former. That is the benefit of what I have just outlined above for you. It might not be the whole answer but I am sure it will help to a degree. Don't bottle things up, talk to people and keep reminding them that though you are improving there are still hurdles to overcome. Keep communicating with people. problems are best nipped in the bud, not when they become too big to handle. what you must guard against at work though is that you don't overdo it to the point where they think you aren't coping at all. What you will demonstrate by doing some of the things I outline is that you are doing your best to help yourself and that you are managing things as well as you can. Managers are always prepared to help those who are seen to be doing their best and are not just waiting for the benefactor's hand to lift them. Good luck! Macca
  6. Hi Kerry, Welcome to BTG. A thunderclap headache is very serious and it should be taken as such. It is dangerous. How do you know you have had one? Well, it's like no other headache you have ever had. It's sudden, it's very severe, sweating and problems with the light affecting your vision are just some of the symptoms I experienced. You demand answers when you get to the hospital, don't just ask for them. Describe your symptoms and hopefully your scan will show what it is. You should have gone to hospital by ambulance, not just up to bed. I am appalled that they were so dismissive of you when what you describe are all classic signs of what we on this site all have survived. You have been very lucky so far but you cannot trust to luck, you need proper assessment and treatment as far as I can see. Make sure you get it. Let us know how you get on.
  7. Hi welcome to BTG. I think the first thing to say is that occupational health is about helping you to help yourself and the company, it isn't about finding an excuse to get rid of you as some people think. They might suggest various things, but ensure your boss who knows you well is an ally in this. Make sure she knows your fears so she can best help you. Also, your new company is showing you some compassion here and responsibility for your welfare. As they have just taken over, it is their business to know what and who their assets are. It may be that they will see you as an asset, just as your current boss does. It is difficult to get people with the right experience and skills that you possess. May be they might see you in a training capacity instead of on the front line. When you see them, make sure you focus on what you can do rather than what you can't. Why don't you invest in your future by paying for a hotel room the night before your interview, so that you arrive in the best condition you can be. It will be money well spent if you present yourself as well as you can instead of stressed and tired from driving and finding somewhere to park. To answer your question, my employer was great and I saw the HR people who also were very good and patient with me. In the end they got a great employee with a lot of experience back, albeit with a few adjustments to working practices. Four years after that I took early retirement at 58. Hope this helps
  8. Hi Kim, Welcome to BTG. If you have questions, ask away, we'll do our best but as has already been said we cannot give medical advice for a very good reason. We aren't qualified, and different things affect people in different ways - OK that's two reasons but you get my drift. There's lots of information already available and by clicking on each thread title on the FORUMS page lots of differing themes will come up for you to explore. However, feel free to ask what you want to and we'll try our best or at least point you in the right direction. Macca
  9. Congratulations Paula, Glad you are doing well and have a positive attitude. I'm just eight and a half years out from my SAH and I have a yearly MOT at the hospital. They've been brilliant with me and I can't thank them enough. Best wishes to you! Macca
  10. Hope you find the answers you are looking for!
  11. Hi, I think you hit the nail on the head when you said there isn't much research out there. Talk to your doctors, ie someone who knows, as Catwoman says above. Either way, it can't be as good as not doing it at all. There isn't a lot of research and even less, if any at all, on whether it would affect us a SAH survivors. With all sorts of chemicals possibly in vaping, are you substituting one peril for another? Speak to the professionals rather than us. Any information you get about this here would only be hearsay and probably very unreliable at that. Sorry not to be of more help, but I think we are the wrong audience for this question. Good luck.
  12. Hi Mike, I'm not laughing - your advice is inspirational to others - we all have to adapt in our own ways, dependent upon how SAH affects us and to what degree. Brilliant advice, and put across in such a positive way. Thank you. Change happens - it's how one deals with it that counts. Well done indeed! I do similar things to help my short term memory. I also find repeated repetition helpful. Best wishes, Macca
  13. Hi, I will give you a slightly different look from the outside at what you have written, laced with a little irreverence, humour and a lot of love! Your credits, not your deficits, your positive changes and increased sense of who you now are, thanks to your nurses and your reflection! I take your points one at a time in the order you made them! 1) Your perception has changed and made you reflect on what is important in life - well done, you made the right choices with regards to work life balance, 2) Keep trying the salsa steps, it will sink in when you are in the right mood and frame of mind - get to work in parrallel with someone who knows the steps and do them at a slower pace until it sticks. Instead of Salsa steps call them Spanish steps - if Spanish is going in call them Spanish! Worth a try! 3) This is part of your brain telling you it recognises things in their familiar place. If it works for you then keep doing it! Your parking space can be called the Spanish spot! 4) This is good - you have their attention! 5) These emotions display a level of honesty, just be mindful that perhaps a little more tact is called for, not a change of opinion. People often blame others when they want to deflect fault from their own actions to yours. They know your weak spot - do you know theirs? 6) We all do that, it's just you are more aware of it now. You remember the important ones but not the ones that are less significant to you. You can't remember everyone, don't beat yourself up about it. If needs be, write their names down and why you need to remember them. If there's no reason, then there's no point to remembering them - therefore no worries so go back to point 1 - laidback! 7)Nothing wrong with that - repetition transfers short term to long term memory thus eradicating the problem at issue! Great! Laugh - because it's a comedy - it's good to laugh! 9) Another good point - why keep up with toxics - getting rid was a good decision - well done! 10) With regards to your Spanish again - buy a Spanish car and then maybe you'll remember where you left it - (in Spanish of course!) Lateral thinking! What's Spanish for "Credits not Deficits?" It's just a different way - and hopefully more positive way of looking at things! Good luck Macca
  14. Macca

    Janet's Story

    Hi Janet, Welcome to BTG. I hope I can give you some answers here but no miracle cures unfortunately! Firstly, two months out from a bleed is next to no time. Please don't underestimate what you have been through. It was a very serious event that happened to you. Yes, a bleed such as you describe is classed as a form of stroke and its classic sign is the thunderclap headache. Very often you won't have the classic stroke signs advertised in the NHS FAST adverts ie Face drooping on one side, Arms, can you lift them, Speech, is it slurred and Time - get you to the hospital asap. Sadly, they don't say H - headache of the thunderclap variety, get to hospital, bluelighted! In my opinion, they should because it is every bit as dangerous as any other kind of stroke. Another problem is that you can't see it - it is internal and you look normal to everyone else so they tend to underestimate it when you tell them! It's not like a broken leg where you can see the plastercast! So you have to communicate with everyone and tell them what's happened. It's like looking at a car without an engine - looks like a car, feels like a car, but it won't start because the engine is faulty! To answer your questions:- 1) How long does recovery take? Answer - it takes as long as it takes. Everyone is different, depending on how bad their bleed was, how strong you are, and how it affected you. Some recover very quickly and for others it can take months and years. In your case you've only just started to recover so don't beat yourself up about it. You could have a way to go yet. 2) Should you quit your P/T job? Only you could answer that in the fullness of time, but give yourself a chance to recover first. You've only just started. How about a phased return to see how you get on? Or a change of duties on a temporary basis whilst you get your strength back? 3) Hit the wall? That will happen, especially in the early days that you are now going through - that's your body telling you that you've had enough for one day - listen to it. You won't need anyone to tell you - your body, remarkably resilient though it is, will do it for you. Heed its advice and rest. If there is no improvement over time or if you are worried then see your doctors again. What you describe is not uncommon after a bleed - it's normal - we've mostly all been there. We know it isn't nice and can be frustrating but there's no quick path - you just have to be patient and listen to your body. Again, if you are worried, keep in contact with your doctors. 4) What caused it? We would all be rich if we knew the answer to that one! My surgeon told me to imagine I was riding a bike - one minute its all ok and then you suddenly, and unluckily, get a puncture. Some believe stress can play a part - but you can't measure that because its effects and causes are variable in everyone so it can't be measured - but avoid it where you can. One last piece of advice - because you can't see it - communicate, communicate, communicate. People can't help you if they don't know what's up with you - so tell them and keep on telling them. Good luck in your recovery! And be patient, the world will still be there when you are ready to face it! I've been there and got the T-shirt!
  15. Hi Joe, I used to sit at a screen a lot. My eyesight was ok, but I got tired after long periods at the screen. You should have a break every half hour, there are plenty of studies that back this up. However, one thing I did do was get my eyes tested and there are three possibilities I know of that will help. One is to see an optician and get them to make you a pair of glasses that are adjusted to your eyes (perfect or not) adjusted for your eyes in relation to the screen you sit at and which take the glare off the screen to make it easier on your eyes. Another is to buy an anti-glare screen that attaches to your VDU, again which takes the glare off and in some cases will increase the font size as well. These days you might be able to change the settings on your screen to do this, so go and see your office computer bloke/lady to see if this can be done for you. Best wishes, Macca
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