Louise

Hi Varun Ah! So that’s why you were using all the Big words. You weren’t attached to the other people in the same way as you are with your Mum. Glad to hear your Mum is doing better, I have a shunt & my speech was affected but now its fine with a lot of hard work & help from my husband too. For me I was unaware what was going on but we talk about it even now because its part of my life wither I was aware of it or not, & I think it does my husband good to talk about it too it had as much of an impact on him as it did on me. Well take care & hope to hear how your Mum is progressing. Louise.

Hi there I read about people quoting diameter depths, sizes of their annis like you Karen I don’t have a clue what mines was I had no idea that there were sizes. I know what you mean about Incapacity Benefit I do get that but I’m not entitled to anything else because Ronnie works (wait for it) more than 24hours in one week!!!! The first form had 43 pages which Ronnie had to fill in I wasn’t able at the time forms still aren’t my thing now, I find it really hard when I think what I did before all this. Well must go too Take care Louise.

Hi Varun. Sorry to hear about your Mum this must be a very worrying time for you all, I think we all hate the thought of something like this happening to someone especially your Mum. I don’t think they know what sets things like this off, the only way I can think of to aid in her recovery is you be as normal as you can be & strong, everyone I know has different ways of dealing with it so I can’t tell you what to expect, you just have to be strong my husband would tell you that strength is something that you do need lots of… I don’t know if any of that helps or not except to say I’ve been through it too, If you need to moan this site is a good place for it, I only found it last week and already I’ve had therapy you might say. Take care Louise.

Hi again Sami: my husband watched a programme on ch4 every week for 5 weeks about people that were getting ops on their brains for one thing or another me I couldnt watch it, brought everything so close to home for me however when they showed the angiogram being done I was able to watch that & he was able to see what goes on so in some ways thats good. When I started going out with Ronnie (now my husband) he was a biker, hes actually talking about getting a bike again, if we move house where he works there are no parking spaces for cars there are for bikes!! Karen: you must be needing the sugar kick I still get days like that when only sweet things will do & I dont argue with it. Cant put any input into driving thing never have done, though for me sitting in the passenger seat never bothered me before but now I think Wow that bus is too close or never going to make it through that space (&- we do ) never been like that before so maybe as well I didn’t drive before anyway my reactions are too, too slow now for that. Gotta go meeting hubby at his work. Louise.

Hello there Mind if I join your conversation: 1. I am 6 years down the line & doubt if I could watch that coiling video, however I dare say my husband would like to see it, he’s been very interested in it all since this happened to me. 2. Funny my weekdays tend to be worse than my weekends maybe its because I’m in the house on my own during the week & week ends my husbands here, but I do know what you both mean The biggest hurdle for me wanting to get back to normal being very impatient it just couldn’t come fast enough for me, but it all took time. Sorry to hear about your Mum, Karen I know what you mean about feeling your emotions have been stripped bare, a year into my SAH my Dad was diagnosed with Leukaemia my situation was different to yours though & I knew that I could have just stuck my head in the sand & hoped that it would go away but I had to face it & from somewhere I found the strength to do it, I know that makes me sound so in control actually you couldn't be further from the truth, so long as these things don't make you too stressed (which I know they do) you have to limit that I think for me it was a tough one. Ask your consultant the next time you âre at the hospital or the GP if you may need your coiling re-done they told me mines there for life now but I was worried just like you so I spoke to the GP who put my mind as ease. Well rattled enough thats what my Brain Haemorrhage has done for me before I had it I was quiet & very shy in those things I can honestly say in many ways it was the best thing that happened to me. Take care Louise.

Hi Karen My husband said I should send in something that tells what happened to me & that it just takes a long time, everyone is different, time is the healer, the brain is such a complex piece of machinery. I missed the boring bits out, & it wouldn’t get an A or a B in English for it but he said it’s from the heart & that’s what matters. I think what you’re doing is brilliant, it must take up a lot of time & energy to do it. Who cares if you get stared at with your patch on you know its for a good reason, I find since this happened to me people are so ignorant about things but there are exceptions though: I was on the bus not long after I was out of hospital the second time my first outing on my own I’d fibbed to my Dad said I was tired & sent him home, I’d arranged to meet Ronnie at his work so I could try a bus journey on my own anyway I was sitting in front of this woman with her young son ‘ewe Mummy look at that ladies head its got scabby bit in it’ ha ha!! It was where they’d taken the staples out but I had to laugh at his honesty. I pick up bugs easily now very easily. Well have to go & get things organized for college, two classes this week then its Mid term break we only went back at the start of September. Take care Louise.

Hi Karen Yes it’s nice to get out into the country side the space the green it’s just so nice isn’t, we live in the heart of Edinburgh where there’s lots & lots of people, noise hustle & bustle, since I had the brain haemorrhage I’m not all that keen on the crowded area’s. That’s our aim if we ever move house to get a garden my husband would love to grow his own veggies & me well I’m into herbs herb’s that are good for you that is. I’ve just asked my husband how much improvement he thinks I’ve made in the 6 years his answer amazed me 95% because I don’t see that. Yes I was like that the improvements were so slow at 14 months that I didn’t notice it, but slowly it strength grew, fatigue for me was a huge part & still is but that’s how I am it’s the type of brain haemorrhage that I’ve had, my optic nerve was damaged I now have eyes that are very light sensitive. If you’re anything like me at this stage you can still expect loads & loads of recovery still waiting to happen. Well all for now need to go & dry the dishes it never ends. Take care Louise.

Hi Karen Yes beans on toast not been the first time I have settled down to that by the time it comes to cooking at the end of the day I'm to knackered sometimes to do anything much else. I learned about tomorrow being another day within the first year I think it was but when I'm really tired I seem to forget it somehow. nice speaking to you too Take care Louise.

Hi Karen No your not being nosy I’m 47 now I had the brain haemorrhage 3 months to the day after my 40th birthday, they say life begins at 40 well mine certainly changed that’s for sure, I’m married but don’t have a family. I don’t like de-caff either that’s why I just have the one cup in the morning my kick start I find water a bit tasteless my taste buds were affected so I do drink water but normally I drink Ribena the sweetness keeps me alert know that might sound strange to some but its true. I know that feeling of not getting motivated it happens most days to me I always just think tomorrow will be better. Take care Louise.