Louise

Hi Hannah It’s probably not your imagination your Mum will be showing signs of improvement all the time some you’ll notice some you’ll maybe not. I was meant to have a home visit that was when the OT came along to see how I would cope at home, I was worried because we’d got a new kitchen fitted when I had the SAH it worried me that I wouldn’t know where anything was & they wouldn’t let me out, they did it was ok. I got out from Xmas eve till the 6 Jan it was brilliant I certainly can say that being home helped me, to see things you recognize it was great therapy & a little scary too. Incontinence Mmm well I had a catheter for a while when they took that out I used to have to go to the loo a lot the trick is remembering to go to the loo!!! How long well as I improved so did it. Hope all goes well on the outings it will be great & have a lovely Christmas. Take care Louise.x

Hi there Yes they do the follow up Angio after all coilings shunts ect, I had mine around the year mark, they usually like to see how things have settled in & down, consultant told me this, in my case I had to have quite a few of them to keep an eye on it.... Take care Louise.x

Hi Jojo Nice to hear from you. After my SAH I found reading really difficult & I found it very hard to understand things too, very frustrating & extremely frustrating for the person who is the carer I can understand that NOW. Yes I hope your getting enough support & if not do ASK there's nothing wrong in asking I know how difficult WE SAH all can be. Take care of yourself Louise.xx

Hi there I've had a fair few angio's the first one that I can remember I was worried stick & found out there was no reason to be at all - silly me. There's nothing to it. It's the way they have of checking that the shunts coils are ok. Take care Louise.x

Hey Scott You put what I'm thinking brilliant. Yes we all have such a WIDE range of personal experiences for me its tiredness & bad memory amongst the many that gets me down sometimes & when that happens the tube that I have in my brain empty's Ugh! that really gets me down. We all have come so far & we all have one thing in common it biggest hurdle of all we've survived. Hope everyone is keeping warm, its been raining all day AGAIN at least the winds died down for now, that plays havoc with the head dull days oops moaning again - sorry. Louise.x

Well, I dont know off anyone in my family that's had an SAH I'm the first, I just like to be that little different away from the norm that's me.. You are a mine full of information Scott & words that I dont know polycystic kidney disease and Marfan syndrome!!! I'm kind of glad that I'm not into finding out too much of what happened Take care Louise.x

Hi there Welcome, och yer right Scotland the Brave I'll drink to that one Slan juh va.. Louise.

Hi Hannah Word search is a good thing for kids though yeh!! I know but it helped me...really you have to sort of step back a bit maybe! I was convinced that there was nothing wrong then the OT gave me one of those balls with the shapes out, (for a small child) I had to put the shapes into the spaces, Oh! please I thought don’t insult my intelligence, but I couldn’t do it I couldn’t fit the shapes into the holes that was a reality shock for me I can tell you. I can’t say she will find your humouring/patronising her you just have to I guess ‘go with the flow’ I’m going to ask my husband how he dealt with it see if I can answer your questions from the same angle maybe!! I know that my Dad had a very hard time getting his head around it he found it all very difficult. Kind of the other way around to you. The photo albums are a good idea however why not get a big frame & make a co-large with different pictures try to make sure your Mum’s in a lot of them dosnt have to be them all an event that she enjoyd. Maybe too tiring looking through a photo album. Ronnie & I laugh now at some of the things that happened when I was in the Re-hab hospital it all just takes time. Take care Louise.xx

Yep.

Hi JoJo A warm Welcome..... It's ok Keith I'm totally with you, or from where you know it.... Louise.x

Hi there Annie, yes it was quite dismal wasn't but I was very ill, it didn't make me work any harder at getting better I had no idea what was going on, I only found that out about 3years ago. But yes when I think of it I have done really well taking an 80/20 & turning it around I hope that inspirse people then I've done my bit....... Hannah, I guess it must be hard wanting all the information to be precise but really everyone is different, I'm talking about people that I actually know & have seen myself their improvements for myself. Hang in there, take care Louise.xx

Hi there No I cant say I've heard of the 6 month rule either, & I asked my husband too he said he hadn't either. They said I'd be around 80% disabled they didnt get it wrong its just that they dont actually know, sometimes they learn from us, my consultant told us that anyway. Take Care Louise.x

Hi Hannah Nice to hear from you - Wellcome Yes I understand I was like that I was sent to a re-hab hospital where I had to learn to do things again, its quite a thing when you have to do things that most people take for granted I was convinced that there was nothing wrong with me & the doctors didn’t know what they were talking about – how wrong I was. I think it’s so difficult for the families of SAH sufferers they have to see people they love totally change in front of their eyes. It’s takes a lot for the family members to be strong but I think they have to be because that’s what helps us to improve get better. They say time heals & that is so right, it’s a long slog but in time things do get better. Take care Louise.x

Hi there Bing Crosby & Nat king Cole used to ring out in my Mum & Dad's house at Christmas she loved all that. Bing Crosby & White Christmas I always need a box of tissues now, they had Christmas Carols in the re-hab hospital when I was in I wept the whole time. Louise.x

Hi John Got no idea who some of the people is your talking about except Eric Clapton, Bon Jovi. I had to tone my music likes down sadly after my SAH - sadly Nothing wrong with a police officer, my cousin in London is in the Transport Police, & my cousin in Perth, Australia is a Fediral Police Officer he is a body gaurd to a lot of well know people. Not a great lover of Christmas myself, but like every year it comes around its the people in the shops that get to me I feel like having a big sign on me too 'Balance problem & slow to respond' but they'd just laugh!!! Take care hear from you soon. Louise.

Hi Ninja I got my first angio a year after I was out of hospital, then one the following year then the following year, one of them was cancelled & re-scheduled though because they'd had an emergency which didn’t bother me because I was the emergency at one point. Think we’ve all went through that limbo stage but I agree its nice to have it over with & then you know where you are. Anyway its nice to hear from you & hope to hear again soon Take care Louise.

Hey me too, I wasnt a great singer but now terrible & dosnt help I cant remember words. Funny isn't!!!

Hi there That’s exactly the way I saw that Karen sorted!! People I know are amazed when I say ‘in some ways this was the best thing to happen to me’ before I was quiet, not saying I’m the total opposite but I will hold my own now. Sami that’s what I had to do really as I said to Ronnie in those early days ‘the old Louise is gone’ instead of fighting against it I accepted it that was when I moved on. Annie, I think that’s a good idea of yours getting your close friends to read some things on this site, I found that a lot of people distanced themselves from me in the early days, (well more like months rather than days) in-fact if I’m honest it wasn’t just friends family too, which is sad but I have some good friends that see me for being me. You should remind them that you aren’t the same person you were, people just need a little reminder from time to time. Rambled enough as normal Louise.xxx

Hi there Glad it wasnt just me that thought like that with that guy, I would be so pleased if he's just sliped back into his old life but I would be amazed if he had, I think like Sami that it would be good if they did a follow up programme because the way it is at the moment people dont know just what a harrowing experience it is. It was a long time before I was discharged from the hospital.... Bye just now, Louise.x

Hi guys Getting pretty stomy here again too forecast said 80 mile an hours winds oh joy!!! another rotten sleep ahead I think. About the first man that got out of the hospital on the documentry, I waked out of the hospital only to another hospital but on very shaky (very) shaky legs. What I thought about it though was other people would think well thats him home to recover, for some thats when all the hard work starts. But what a good programme thankfully for me its brought back no memories at all of that time. Louise.xx

Aw! Sami thank-you.. :? I never know if I'm explaining myself right or not - its my disability you know. I dont know about good advice 7 years experiance is what I've got, been there, done that...ect.... Yep when that gets fully charged well look out.......

Hi Karen Very wet & very windy here today & the winds susposed to get even worse tonight hate the wind. we've been to Blandford, we visited friends who were stationed in Blandford. Yes its nice to get out in the fresh air a bit too fresh just now for me, we went to a market but the rain started didnt even venture out the car had a nice drive in the country though lovely even in the rain. Hope your weekends been lovely.. Louisexx

Hi there About mobile phones yes I have one & I consider it a life line when I'm out in the begining it meant that I could call either my husband or someone if I didnt feel well. I never have had to do that but its always there, ear pieces no dont use them too noisy in my head I find for me anyway. Dont think you should use something to help you sleep trying to get into a routine of going to bed around the same time, I used to nap a lot during the day at one point I'd have slept all day but that was the meds I was on, but I found when I stoped naping so much in the day the nights sleep improved. However sleep is the best cure they say it helps the body repair its self I believe that. Gosh yes to your question on How ready's ready, my battery still goes onto stadby a lot of the time but in the begining it was like my: get up & go, got up & went (& forgot to come back) My appetite totally changed I dont eat as much now I rarely feel hungry & I eat things that I never used to eat, & some things I eat I dont like now, I think you just have to give it all time to settle down find out what is right for you what suits you. Dont forget its very early days for you. Hope all this rambeling helps. Take care Louise.x

Hi Karen Great to hear your back... look forward to our natters Louise.xx

Yeh I had to cut back on having a drink - not that I actually drank all that much before but now its less, sometimes I can feel like I have a hang over & its not its just how I've been left. :? But have to say I certainally dont like wine much now Red or White I used to drink Becks but find that just goes to my head, litarly!! Not really into daytime TV except when I'm having a snuggled up sort of a day, I like the cooking programms reminds me of what I COULD do, the chat shows like Jerry Springer & such my head cant see the sence in them, more than likely the way I look at things now, you do tend to see things differntly at least I do. Louise.xx