Louise

Aw! thanks for that Sami I know I cut to the chase because I forget otherwise. Yep being on here nattering has really done me the power of good even after all this time I'm still learning what I can & cant do even now. Karen you have made it possible for me to be able to do it thank-you so much for this site take care

Hi Yes I said to people that if nothing else its brought Ronnie & I closer together, they laughed but its true its like I'd fell in love with him again but with a differnt out look on it, sorry not so good at explaining things words arent one of my things, if you've not already realized that.... Louise.xx

Hi again I cant believe that you said that Sami because that’s exactly what Ronnie said he cant possibly begin to imagine what I’m going through he can only be here to hold me when I need to be comforted, & that’s all I need too…. Someone said that was weird I’m so glad you said that. As I said Ronnie’s the first to admit that he can’t imagine what it’s like I think we’ve all been blessed with some terrific guys good on them….. Louise.x

Hi I know, since finding this site its been like a huge weight's been lifted in a way, there wasnt a group where I am & if there was I wouldnt have been able to go. Apart from going to OT its been down to me. Take care Louise.X

Hi Jen Wow where do I start? I totally agree with everything everyone has said. I too used to like the house to be tidy, I used to have the juggling act down to a fine art..........not now life's too short I couldnt go back to work but I do go to college 2 afternoons a week & sometimes that too much when I think back to what I did in a week gosh!! it amazes me! Well all for now you dont need to be 'Superwoman' Hope this all made sense to you tired today. Take care bye just now Louise.x

Hi Jen Nice to hear from you, I used to walk into things too but it got better my optic nearve was damaged by the Brain Haemorrhage. Yes this is a fantastic web site its the first time I've come across people who find the same day to day struggles as me - wonderful we're not alone. Have I read right your back to work full time, wow that's great but maybe you should be taking it easy? & with 2 small kids that's a full time job in itself. I agree with Andy hope hubby is helping out, I found that mine was so benificial to my recovery. Take care bye for now Louise.x

Hi there I think it would have been good If I'd went to a support group, just to be able to say that what I was going through wasnt just me being silly. I found that people got fed up hearing about things so I stopped talking about it. bye just now Louise.x

Hi Karen Good idea, I’m good at waffling too Been busy the last few days so today is just a lot of nothing (I hope) things have a tendency to change though. Louise.x

Hi Sami Is it any wonder that people get confused (like ME). :? It’ll be interesting to see what the consultant says, Bye just now Louise.x

Hi there I’m now 47 Sub-arachnoid brain haemorrhage, with a shunt & a tube in my brain now. 6 years on I still get tired but usually know my limitations better now, but when I am getting tired my balance isn’t very good & my concentration is back to what it was in the beginning. Then I usually sit down with a large glass of Ribena which helps, (water doesn’t help at these times). Louise.

Hi there We/Ronnie stripped half the bedroom on Saturday then the rest yesterday Monday, he took today off today which was as well as I'm really tired today been out & got paper & paint, the works getting started next Monda. Sunday's meal out was lovely but that's why I was so done in yesterday with the bedroom being stripped & using so much energy up on Sunday night seeing people that I've not seen in a long time some not since before the Haemorrhage so that's real hard work for me. All for now Louise.x

Hi there Read your post’s yesterday but was too knackered to reply. Karen, I couldn’t agree more with your reply to Sami, it took me a long, long time to come to terms with what had happened to me & like you said mine wasn’t spiritual either I just got to the point where I got fed up fighting against it, it was part of me now it who I am, & that was the time when I moved on. My surgeon Brad had saved my life not once but twice how could I let him down by putting myself into a hole that I couldn’t get out off. There still even now are bad days, days when I think why? Why me? But they don’t last more than a day or two. Sami you just have to be positive, strong I think just listening to your posts you have that. Everyone is different you have already achieved so much by surviving there are so many who don’t. Well the ramblers rambled enough I think. Take care Louise.xx

Hi there Karen, I meant when Keith said that he was fully awake during all of this. & had not been given any sedative. They need you awake to be able to monitor how your doing. And I'm sure your not a big baby at all. Bye for now Louise.x

Hi Keith Glad to hear the angio went well, maybe your headache was maybe being tense & not eating I had that. Your description of it is very good. They dont give a sedative they need you fully alert. I had the warm/hot feeling & the flashing lights. Yep its hard to eat lying flat I found that I only had a couple of bites & waited till I was able to sit up. Glad to hear you feel fine today & I think that your description of it is brilliant I find thats something that I'm not able to do decribe with such Accuracy. Take care bye for now Louise.

Hi Jeanette, I too was like that with the computer it all took time a patience for me. I find long answers hard too with my memory on saying that I tend to be a rambler Anyway I'll stop there, nice to hear from you Take care Louise.x

Hi there There’s no chance of me working too hard Ronnie wont let me, I’m normally the go-for now. We looked after my cousin’s dog for 2 weeks while she was on holiday a few years ago now I found it really difficult when I had him out with my balance problem, but yes it’s nice to get some fresh air, I’ve done enough for today so away to put my feet up Have a great weekend. Louise.x

Hi there Thanks & you have a nice weekend too. I have to say I don’t know quite where this week has gone for me anyway doesn’t seem all that long since last Friday. People say I must be bored not working, I don’t seem to have the time for that!!! And I guess the weekend will fly in too, stripping the bedroom walls going for paper & paint, & on Sunday going out for a meal. The weathers changed here its dull & wet again Ugh!! Still got things done while it was nice, that’s the way I do things here. All for now Bye Louise.x

Hi, Morning Weather a bit better, so head a bit better. I got a nice surprise last night, Ronnie was in at dinner time so I wasnt on my own which yesterday was nice. He was in till about 9pm so that made me feel better with how I was yesterday. Sami, I think Ronnie works too hard too, & I feel very guilty about that often, although he tells me not to. I hated being on my own after this happened it was forever at the back of my mind but I've just had to get used to it, time is the best healer. bye for now Louise.x

Hi Sami Never say you 'cant do anymore' You cant do them at the moment it wont always be like that. I hate when Ronnie's working late but there's nothing I can do about it someone's got to bring the pennies in eh!! Tomorrow's another day. Take care Louise.x

Hi Karen No, I don’t mind at all you asking about it a lot of people I meet don’t ask then they wonder. Thanks Karen I thought I'd rambled 'again' Sometimes Ronnie will mention something that I’ve forgotten & we’ll talk about when I was in hospital its as if I’m hearing it for the first time even now, it reminds us both of what happened its part of who I am. Glad to hear you’ve had a better afternoon, I’ve got dinner on for me chicken & pasta, Ronnie’s working tonight, he had dinner at work today so its bacon sanies whenever he gets home. Have a relaxing evening Louise.x

Afternoon Just been out and lucky I just got back before the rain started again, its still really dark light going on early tonight I think. Karen, it’s a difficult one that to explain my tube & I know I will ramble but: As I may have said I have a shunt when I got meningitis the shunt didn’t really do the job so they put in a tube too, my brain produces too many vitamins it’s kind of like an overspill for the shunt. It’s on my right hand side of the head (there’s probably a technical name for that!) it goes down my neck, down the side of my body & drains into my stomach then goes away (with the flow of nature oh joy sometimes) this is all inside me not on the outside by the way. When I was in hospital I couldn’t figure out why I got a scar on my stomach with 6 staples & a scar on my head with 9 staples they said it was them pulling the tube through ugh! But, when the weather is dull, overcast, humid this seems to be when I feel it, the best way to describe that is if you take a straw bend it then slowly let it go it flexes back into shape sometimes I can feel flexing a weird feeling. Sometimes it kind of pulsates & flexes it’s just something that I’m not really go at explaining even with verbal words. Sami Glad to hear the session went well yesterday yes I've heard other people say that. Havent had a bounty for years. Take care Louise.x

Hi there I think it’s going to be the order of the TV & rest for both of us today its really dark now & the rains tipping down, I’ve got to go out too ugh but after that not doing much, except computer work. Karen, I’m always tired now but when the weathers rotten my head, & tube are a nightmare still its just something that I moan about but get on with. You’ll be glad when the dryers sorted that wont be helping your head even if you don’t feel stressed with it, your subconscious might. Listen to me you’d think I’d be able to guess that when it’s me – & I don’t. Well bye for now Louise.x

Hi Karen Morning Yep something else off the long list I seem to have given myself!!!! How’s the head today? I hope your early night worked for you, I know there’s nothing worse. But I do find that it’s the body’s way of saying chill out!!! Although when you have more good days than bad I find you don’t want to miss out on them you want to do stuff, well that’s me anyway. Beans on toast or toasties always a good idea when you don’t have energy for anything else I do that often especially if Ronnie’s out working. Ronnie seems to work so hard I feel guilty about that but have to give my self a talking too. Well it’s dull & horrible here, & after yesterday not in the mood but have to ah well….. Bye for now Louise.x

Hi there Been out got a lovely frame & a bottle of bubbly, so I'm shattered now it quite warm out & we walked home. It took me a long time before I would accept that the (as I used to say it:) 'the old Louise was gone' I used to say things like the old Louise wouldnt do this, or that, the New Louise was so different. When I accepted that that was my first step forward. So your by no means alone believe me. Karen hope the heads better sometimes when you over do it, its a way to tell you slow down, drink plenty liquid. Take car Louise.x

Yep counselling session are good I think you talk to someone that's qualified. Yes its hard getting your head around what has happened I know that only too well sometimes I still have a bubble about it all it get too much but hey the biggest hurdle has already been managed........... Take care Louise.x