rampmama

I run a home based toy business. And I raise 3 children. And I can't imagine how you can stay awake during school hours with 16 children all needing you. I am very fortunate that my business allows me to earn an income while I stay home. I only leave my house for about 5 hours a week to earn income outside the house. I wish I could offer it to you because school teachers do wonderfully at what I do, but I can only offer the business toother Canadians. But if there are any US citizens who want some info on what I do, I could refer you to some great peopl in the US. Check out my website at http://www.lindathetoylady.com I am so fortunate that my friends with Discovery Toys are here. I had my SAH two days after returning from Brazil. My girlfreinds took my daytimer and did all my work for me for two months while I was laid up. They kept my income up for two months so I could have an income. I don't have any disability plan with my insurance and I couldn't have done it without them. So lucky. Linda

So I am thinking of what I will be doing on Mar 13 to celebrate my 1 year post SAH. Kinda of a birthday don't ya think? I was thinking of getting a tatoo and of course having sex with my hubby. (Since that was what brought it on in the first place.) What did you do?

For so long I felt disaapointed in myself for having c -sections with all my children. When I was discharged after my SAH, I had a follow-up appointment with my obi-gyn. He was shocked to here about my SAH but expressed how thankful he was that I had not tried for a vaginal birth with my daughter. God was looking after me!

Well I went back to my doc yesterday still complaining of my head pain and he is sending me for an MRI. Not sure what too expect since I still have one piece of my annie left in my head. Although I am sure it is not the same pain as my bleed was. I will keep you posted of results which I am sure will be fine. Just make the pain stop. And no, he didn't give me anything. I have some Tylenol and T3s left over from my surgery. I know we aren't supposed to chat about drugs, but I will be speaking with my doc. Any guidance on what you have taken that works would be great. I am also curious about any side effects. The SAH is just as new to my doc as it is me. Remember most of his patients with SAH don't live to ask for pain meds. Linda

Well I had my SAH in Mar 07 and my headaches had disappeared totally by summer. I know I am blessed. But for the past two weeks I have had a headache and terrible fatigue. It is so bad that I am napping a couple of hours everyday and dug out my Tylenol 3s. My family doc just says that it is the way it will be but I am a little surprised that I didn't have headaches for so many months and now they are back. Anyone have any ideas? Linda

I just wanted to share something with evryone. I have been seeing a shrink for my emotions post SAH. So much to deal with and we have stumbled onto something I never knew about me. I have always been someone who strives for the best. I was a high performance athlete, I was always the top of my company and I am genrally someone who likes to get things done. Well now, I am less able to "do" things and I am having a very hard time accepting that I might be average. I never realised that my worth can't be measured by the things I do. I just am worthy. Does that make sense to you? My shrink put it this way. If a bar of gold walked into his office and starting crying about all the things worng in his live, my shrink would say" Dude, you are a bar of gold." We are all bars of gold. Some of us have a few dings and scratches, but we are all bars of gold with an incredible value! Have a great day! Linda

Hi Petra, I had my SAH in Mar 07 and I have just noticed my sex drive returning to normal this month. I think when some suffers an SAh, so many things are happening at once. So many emotions to deal with. Many you don't even know you have. Even last month I had a panic attack during sex because I thought it was going to happen again. (My SAH was during the act.) So I hope it all returns to a normal state for you two, but be patient because rushing you SO can make things very complicated. Good Luck. Linda

I too have had some lax treatment from my docs. I chaulk it all up to being a quick recoverer. I am young (35) and healthy, appart from the bleed that happened in my head. And post SAH I also have been having palpitations. Now I have always had them and was tested in 2004. They found that 3 of 4 of my heart valves leak. My docs answer... "Almost everyone has this problem", but when I talk to others, they ave never heard of this and they don't have palpitations. I too told my neurosurgeon about this problem because it hit me very bad after an angiogram and he said it was unrelated. Now I have demanded a visit with a cardiologist becasue people with heart valve problems need to be on antibiotics when they visit a dentist. So my guess is that when I got an infections after my craniotomy, some of it was carried by my blood to my heart, make my valves the worse. Of course i don't have a medical degree so my docs don't care much for my theory, but it seems reasonable to me. If a dentist can worsen my valves, why couldn;t and angiogram? Stand you ground with your docs and don't be afraid to be a *****.

I too have had problems that needed attention since my discharge and have concluded the only way to get the help I need is to call an ambulance. It seems to be the only way to be taken seriously. I also visited the ER as a walk in, but waited for 12 hours and was then sent home without the right paperwork for my follow up testing. It ended up being a nightmare of consultant appointments and specialist follow-ups. All would have been accomplished in a couple days if they had taken me more seriously in the ER. Instead it took months. You have undergone something very serious. Don't be afraid to let the system know how serious you think this is. Call an ambulance if you are feeling bad. .

Ok this is a funy one. I had my SAH in MArch and have troubles with left side fine motoer and weekness. Since March I have been dragging my left foot a bit. Then suddenly it got much worse. Well it turns out that afterr a visit to my doc and a PT that I din't properly lace my new shoes so they were falling off! LOL I never thought to check that my shoes were on properly!!! Linda (Can you guess my hair colour?)

I never spent time in the rehab hospital but I ws so glad to finally go home. My spirit was lifted so much when I returned to my family and my things. I also loved being able decide what I would have for dinner. (Not much for choices in the hospital.) And the food is so much better with my family. I am sure your mom will love her move. It should also help her feel as though she is making progress too. Linda

Hello All, I was so excited to be able to post last week that I was getting "released from my nuerosurgery team but I had a follow up Angio yesterday and the doc found that I have a remnant that is filling again and they need to minitor it. I am so sad. I was really hoping this whole nightmare would be over. I realise that a tiny remnant is nothing to freak out about but I just wanted to be "fine" and forget this all happened. Oh well. Linda

Yesterday I had my 6 month follow-up with my nuerosurgeon and he said that after my angio on the 3rd, he will probably just end up releasing me from his care! Yippee. Could this chapter of my story be over soon. I will let you all know the results of my angio on the 3rd. Linda

I too have an angio scheduled right away. OCT 3. And I dread it. Last time they had to choke me to get the anuerysim to fill on the picture and it was terrible. My doc gave me a perscription for a sedative. He said lots of people take this one for tests like MRI if they are clausterphobic, etc. Good luck. Linda

So does anyone want to share a questions that they asked in follow up that you found invaluable. I know I have lots of questions, but because my brain is a little scramble, I can't remember them. I have been trying to write them down, but they don't make a ton of sense as to why I have written them down after I read them in a couple days. And I woke up today and felt the feeling of loving mylife. I haven't felt that in months. Yippee. Linda

Thank you. Your words mean so much. Linda

I just got back from Las Vegas and I too found take off and landing to involve a bit of pressure but the headache I got was more due to the late nights of staring at video gambling machines. But... I won myself several pairs of shoes and new clothes. Nice boost since I haven't really gone on a spending spree since getting out of the hospital! Linda

Well today is my anniversary. 6 months out and I am feeling good. I have been running and have been evaluated by a nuerophyscologist. I was disappointed in the results because as I suspected there are no problems that they are concerned about. I can feel the difference. I used to be in the 98percentile for my IQ. Post SAH I am in the 80th. I know it is very good but I can feel the differrence. But my doc just says I need to be thankful for where I am. But I want to be where I was. Does anyone have any tips for accepting your new self? I am thankful to be alive, but I want to do everything I used to do. Signed, whiner. Linda

Linzi. Once you pass the first orgasm hurdle, you won't even remember the anxiety you felt all those months. I had my first organsm about 4 months post SAH and I was scared. (It was with my hubby.) And I remember thinking," If I am going to go, there is no better way to go than during and orgasm." And I just let go. Since then I am no longer afraid to have sex. It has allowed me to completly trust my body again. I was more terrifeid to masterbate so I didn't. I thought that it would be too embarassing to be found in that position. I of course assumed, wrongly, that I would have another SAH but no one would be around to help me. Life is good post SAH. As they say, you want to get back on that horse when you get bucked off. So dare I say Ride Linzi Ride!! (Sorry, feeling gitty. Must need a nap.)

Hmmm. Good question. I certainly had to re-evaluate what was important and my goals for the year. I think overall it has taught me to be easier on myself and maybe not to always drive for so much. That my new self is a good one even if I can't do everything I could in February of this year. I have a much worse temper now, less patience but I am trying. So does that answer the question. Not really but I guess the people around me are better at judging.

Welcome to the boards. During my recovery I have found this place to be very comforting and full of advice. I am curious about your smaller bleeds. We all suffer from headaches and wonder if it's another SAH. Or at leadt I do. But yesterday I had a headache that reminded me so much of my SAH. Way less severe mind you, but I couldn't help but think it was happening again. What were your like? And what did you do? I will go to my family doc and bring this up. Linda

I just had to tell everyone that I am feeling pretty good these days. (I usually post my questions and sorry for myself feelings so I wanted to share a happy success story. It's not a long one so brace yourself... I just got back from a 5 km run. And despite the fact that I was prepared to colapse dead on the sidewalk... I didn't. Maybe next time I will leave my note to the paramedics at home.

When I am tired, I notice that I get weakness in my right leg, dizziness and vertigo. Oh and I just need to sleep. I find if I can get in bed before 10 pm and have an afternoon nap I am fine, but if I can't then I usually feel exhausted by 4 pm. Oh and did I mention iritated and bitchy?

Re: Remnant My discharge papers also talk about a remnant. In my case this was a bulge that remained or pop out from when they did the clipping. My nurse said it was like putting a barret on your finger. The clip won't seal the whole thing if it is too big and a part of it might bulge out. They ended up coiling my remnant so I have a clip and a coil on the same annie. Linda

I am sure that like most people here, my headache was far from little. I have 3 children and labour was a piece of cake compared to the headache i had.