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CharlieD

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  1. CharlieD

    New here - Samantha

    Hi Samantha I am really sorry to hear all you have been and are going through. I am 18 weeks post bleed and have 2 kids at home so I constantly feel guilty if other people are doing the things I should be doing. My 11 year is old is very grown up and sometimes says things that make me awful she is having to live this at the same time. I too have and am still suffering with the fear and the anxiety and wanting to keep myself away from other people. I can't imagine the added layer of turmoil losing your Dad adds to that so I will just tell you what I have been doing to at least cope and get through the days I started counselling with Headway and I have been watching mindfulness videos on you tube, a few weeks ago I felt well enough to start a yoga and mindfulness class. Two of the biggest things to help have been reading and writing on this forum and making some friends who have been through the same thing who I chat to on messenger. It makes you feel less alone. I hope your surgery is over with soon so you can start on your road to recovery. PS Kids love takeaways am sure he is quite happy😉
  2. I just wanted to say Macca I found your advice on this really helpful. A really positive look and practical approach and even though it wasn't for me in this instance something that I needed to read today. I think we all probably at the beginning dwell on not being able to rewind the clock and I think for me it is time I learn to accept that. I have been going to counselling. I suffer with awful headaches every day for the 4 months since it happened but when they do go eventually or at least ease I want to be mentally as prepared as possible to move on with my life. Michelle for me I am on a mix of medication but nothing gets rid of them, if they are especially bad I use a flannel on my head and just lay as still as possible while doing breathing exercises listening to my Calm app.
  3. Hi Michelle I am glad you found the site so you can be reassured that it takes time and it is very early days for you. I am so surprised your doctors have suggested such a quick return. I saw my neurologist on Friday and he said at 3 months I was rushing things. I think you are the only other person I know of to have a meningioma and an NASAH. I thought I was alone in that group What an awful person this HR rep sounds.
  4. CharlieD

    Headaches and NASAH

    Thanks it is very difficult knowing what is for the best and if the drugs are part of the problem. I am seeing my neurologist again next week so I guess I will try to figure it out. I am sure anxiety does not help so I hope that improves with time and counselling and then my headache ease as a result. Sometimes navigating the aftercare feels such a stress itself. Is it best to use drugs or natural? Should we try homeopathic? Should we see a neuro psychologist or a counsellor? I wish they gave better guidance when we are discharged
  5. CharlieD

    Vascular surgeon

    I had my follow up with neurosurgeon but he assured me he had looked over my scans with a vascular surgeon.
  6. CharlieD

    Headaches and NASAH

    Hi Sarah I bet you are sick of the headaches! 8 months is a long time without a day off. I know exactly what you mean about the too tight hat, I feel like I always have one on. I have days when there is light at the end of the tunnel but the headaches soon make it forgotten. I have been working on mindfulness and use the Calm app as a way to distract myself from my head pain. Not sure if you have tried it but its really kept me nearly sane. Thanks Charlotte
  7. CharlieD

    Headaches and NASAH

    Thanks Subs yes drinking lots of water and getting lots of rest. Have been incredibly lucky with family and work support. I was just curious as I notice a lot of those who refer to headaches mention having had coils. Thanks Chris it's good to hear from others with NASAH what their experiences with this is before seeing my neurologist again.
  8. Can I ask those of you who have experienced NASAH what your experience of headaches has been? I see many people say they suffer with headaches but lots seem to have coils or clips. I am 3 months today and still have terrible headaches most days and weird sensations. I had a CT scan a month ago as they were so bad and came on suddenly. It was ok. I know all brain injury leaves it's mark and that blood irritates the brain and even if it is gone it has to recover, I am just curious if other NASAH sufferers have had similar headaches and for what length of time?
  9. CharlieD

    Strange Turns

    Just an update on this. My doctor ended up sending me for a CT scan and after a very inexperienced doctor telling me I had a second bleed, the Neuro specialist hospital checked it and said no I hadn't. The young doctor was more traumatised than me in the end which was quite an achievement as I was bordering on hysterical at being told that. Anyway luckily I was seeing my Neuro surgeon a week later who went through every scan with me including the recent one. He gave me reassurance that it all looks really good and he will do an MRA in a year but I am still stuck with daily headaches in the back of my head that make me feel sick at times and the strange turns likes waves. I wonder did others have headaches this regular at 10 weeks ?
  10. CharlieD

    Kay - new member

    Congratulations, what a lovely thing to focus on now.
  11. CharlieD

    Strange Turns

    I spoke to the specialist nurse. She was very nice she does not think it is anything to worry about as I had numerous scans showing all ok. She said as there is no weakness or aneurysm the headache is either an after effect or hormonal. She said the best thing is to get a new pain 0lan with neurologist. Thanks for advice.
  12. CharlieD

    Strange Turns

    Thanks I will give some thought to my diet and supplements and talk it through with the nurse tomorrow, I hope she is happy to stay in touch as yours is, it would be a real relief to have someone to call.
  13. CharlieD

    Strange Turns

    Great I will do that first thing, I found her to be a huge support and other than the neuro surgeon the person i trusted most in the hospital. I was worried to call so I am glad i posted here. I don't want to be a burden or be the crazy person who is making too much fuss.
  14. CharlieD

    Strange Turns

    There was and she was great. I was not sure how long after I was discharged i am allowed to call her for? Do you think it is still ok? My sister thought it might be due me getting my time of the month. I had not had one since the SAH and so wondered if its hormones gone crazy. I will ask the nurse that too if not I might call GP tomorrow if the pain is not under control.
  15. CharlieD

    Strange Turns

    Thank you. The problem is I am always scared and in a panic it seems. It feels a bit more under control now. I have decided to keep taking pain killers and if it gets any worse I will go and get checked.
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