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CharlieD

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  1. Hi Marion, Sorry to hear you have had such a difficult time. I have many times throughout this journey where I have resented the change in me and tried to ignore it but unfortunately it just isn't possible. I can't offer any advice on the medical side but I can say listen to your body. If your body is saying you need more rest take it. I find when I over do things the next day will be very hard. This weekend I arranged to go to a Xmas Market in Germany with family( I currently live in Amsterdam). We drove all the way and spent a whole day there and then drove back. I powered through but knew it would probably be too much for me. Yesterday I couldn't think straight and had awful headache so spent the day in bed. TBH I would still do it again as I don't want to give up those days but I know it means recovery time and I try to plan for that. When the fatigue is too bad I struggle with words. I was someone who never stopped I filled my day's every day. I agree keep chasing the appointment. Perhaps call the hospital and speak to the department to ask about the waiting lists and put your name down for a cancellation. But in the mean time the best advice I got and took (from this forum) was listen to your body and be kind to yourself.
  2. Hi Debbie, I do suffer with headaches and the bad ones usually go after a day or 2 or at least ease but sometimes it will last 5 or 6 days. I get worried and say to my husband, have I ever had it for this long before and he always reminds me I have and not to panic. I think it's only natural we do but headaches seem to be very common post SAH. Jess, I loved reading your post, as a mother of young girls it was my first thought I just want to see them to adulthood and it's good to hear you thought the same and made it.
  3. I don't know who it was that told you you should be OK after a couple of weeks, but I have maybe heard of one person who had that kind of recovery, and I have read alot over the last few years so please don't feel there is anything unusual about not feeling recovered yet. I found a couple of really useful and reassuring documents on NHS sites but had to trawl through to find them. This one covers alot and gives a good outline. http://www.srft.nhs.uk/EasysiteWeb/getresource.axd?AssetID=53327&type=full&servicetype=Inline
  4. Hi @Esedlock I haven't been on here in a while but like to check back in as I always remember how incredibly hard those first months were and people on this site gave me help and support when I needed it so would like to do the same for others. I definitely found the new normal extremely difficult to accept. I am someone who has always pushed myself, for me I have never managed to get back to exercising at the gym but I cycle and walk alot and do yoga as they don't trigger headaches. I think it is very important to listen to your body in the early stages. Everyone kept telling me it's early days but until you are through those first 6 months or a year it is hard to see that. Take one day at a time. Anxiety was and to be honest remains a huge part of my life post bleed. I have had therapy that made a big difference. Night times were definitely worse. Post bleed I started listened to apps such as Calm at night that help and also podcasts as a nice distraction. Perhaps they could help you. Anyway I hope you continue to recover and any questions feel free to ask on here or PM me. Take care Charlotte
  5. I am very sorry for your loss. Whenever I read anything from Win I though she has such a positive attitude and was always trying to help others in their recovery . I was very sad to read this news indeed. xxx
  6. Thanks, found it. Donation all done. This is a great site and has certainly helped me through the tough times. I hope it continues to do the same for others.
  7. How do you make a donation to the site? I can't find a donate button. Might be because I am on mobile.
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