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CharlieD

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  1. Hi Dave, I'm glad you are recovering so well. 8 months now for me and am not sure I am where u r but hopefully one day. Hi Bev, I know what you mean. I feel like I go through phases where improvement stops then i see a small change. I felt that a few wks ago. Its like a rollercoaster. I have times when I am feeling better but I do suffer quite badly with head pain and fatigue. It is such a change from how life used to be but my favourite line these days 'it is what it is'. I still think accepting what's happened and coping with anxiety is still one of the hardest parts. We must have had ours quite close together I was in Queens Romford, how about you?
  2. CharlieD

    Did a stupid thing

    Hi Vicky, I have suffered badly with head pain since my NASAH last May. I rarely have a day without pain. The GPs have not been able to help really I have needed a neurologist to make any real difference. Have you been referred? I feel on my new mix of meds I am going in the right direction but I am constantly being told it takes time. I find a warm flannel on my head and a warmed lavender neck bag (you know the ones that go in the microwave). I completely understand how frightening every headache is. I also do deep breathing when the pain is bad. I know they will not fix it but just a couple of little things that help me.
  3. Hi Bev I hope your presentation went well. I know exactly what you mean with the feeling tired after the head pain. It is strange how the brain can do such crazy things after a bleed and not knowing what is normal and what isn't. Sounds like you are making great progress. Do you mind me asking if yours was an NASAH or an aneurysm? I do have to keep reminding myself to drink more water, it's so easy to forget. All the best Charlotte
  4. Hi Jimble, I have had a number of strange sensations but one that does feel like a rushing or wave from my head to the bottom of my spine. I have been to the doctor about them but don't see my neurologist until Jan and GP just say see him. I thought they were a form of seizure but everything I read said not and will not know until Jan. I am on Gabapentin for the head pain and strange stuff so wonder if that's suppressing things somewhat. What do yours feel like? I read previously that you have had two. I don't know how you stay sane. Sorry to hear you are now dealing with this hopefully diagnosis will make life easier.
  5. Thanks Patc it is nice to hear you are pretty much back to your old self. I can't wait for the sudden weird head stuff to stop. I find that massively impacts my anxiety levels, obviously. Sounds like after 30 years in a class room you have earned the break! Thanks for the advice. I will listen to it all from every one.
  6. Thanks Win I completely know what you mean about seeing people on here and thinking they seem to have a life still. I will do my best to take all your advice and try not to worry. Not sure I am there yet though. I will however be sure to pay attention to the part about listening to my body. To be honest it is good to know I might be 5 months in but I have a way to go, at least I have something to look forward to but I think I know that things will be different. I hope in time different may not mean bad, maybe just slower.
  7. Thanks Clare and Sami. That is really good to know that you had substantial recovery after this stage. I know it does not mean I or anyone else will recover at the same time but hopefully means I still have a lot of recovery to go and therefore a lot of improvement. Sami I am glad you specifically mention your headaches and anxiety improved. I actually read some of your earlier posts after your reply. You mentioned waking every day with the feeling in the pit of your stomach and the head pain, sounds like that has gone for you. Hopefully they will for me too. It also made me stumble across some other posts which mention some of the weird head stuff I have which again is reassuring not be the first to not know what the hell is happening in my head! Clare I too am phasing back to work and at the moment it takes all my energy to do that. I do like my job but I think I will find out over the next 6 months as I do more if it is realistic for me. Luckily I was part time anyway so I hope so, I really like it but I will put my health first. I am glad you found what worked for you. This is such a great site, thankfully I found it early on in my recovery and I think it makes a real difference when there is so little knowledge out there about SAH's unless you are talking to specialists. I rest quite a lot still and will make sure I drink plenty.
  8. Hi everyone, So I am 5 and a half months in to my recovery and still feel there is such a long way to go. I still have very strange episodes with sudden head pain and I tell friends I feel like a my brain is a constant snow globe, feeling shook up. Obviously there is the fear which I know you all know well. I just wanted to see what stage other people were at this point? Did you have a lot of recovery to do? I do worry I have recovered the amount I am going to and the rest will just be little bits. I would really like to hear other people's experience. I know people mention the headaches on here but I wonder at the times in between headaches do you have a clear head and if so was it clear at 5 and half months? I know there is no set time on anything and we are all different but I see there are often similarities on here. Thanks everyone.
  9. CharlieD

    New here - Samantha

    Hi Samantha I am really sorry to hear all you have been and are going through. I am 18 weeks post bleed and have 2 kids at home so I constantly feel guilty if other people are doing the things I should be doing. My 11 year is old is very grown up and sometimes says things that make me awful she is having to live this at the same time. I too have and am still suffering with the fear and the anxiety and wanting to keep myself away from other people. I can't imagine the added layer of turmoil losing your Dad adds to that so I will just tell you what I have been doing to at least cope and get through the days I started counselling with Headway and I have been watching mindfulness videos on you tube, a few weeks ago I felt well enough to start a yoga and mindfulness class. Two of the biggest things to help have been reading and writing on this forum and making some friends who have been through the same thing who I chat to on messenger. It makes you feel less alone. I hope your surgery is over with soon so you can start on your road to recovery. PS Kids love takeaways am sure he is quite happy?
  10. I just wanted to say Macca I found your advice on this really helpful. A really positive look and practical approach and even though it wasn't for me in this instance something that I needed to read today. I think we all probably at the beginning dwell on not being able to rewind the clock and I think for me it is time I learn to accept that. I have been going to counselling. I suffer with awful headaches every day for the 4 months since it happened but when they do go eventually or at least ease I want to be mentally as prepared as possible to move on with my life. Michelle for me I am on a mix of medication but nothing gets rid of them, if they are especially bad I use a flannel on my head and just lay as still as possible while doing breathing exercises listening to my Calm app.
  11. Hi Michelle I am glad you found the site so you can be reassured that it takes time and it is very early days for you. I am so surprised your doctors have suggested such a quick return. I saw my neurologist on Friday and he said at 3 months I was rushing things. I think you are the only other person I know of to have a meningioma and an NASAH. I thought I was alone in that group What an awful person this HR rep sounds.
  12. CharlieD

    Headaches and NASAH

    Thanks it is very difficult knowing what is for the best and if the drugs are part of the problem. I am seeing my neurologist again next week so I guess I will try to figure it out. I am sure anxiety does not help so I hope that improves with time and counselling and then my headache ease as a result. Sometimes navigating the aftercare feels such a stress itself. Is it best to use drugs or natural? Should we try homeopathic? Should we see a neuro psychologist or a counsellor? I wish they gave better guidance when we are discharged
  13. CharlieD

    Vascular surgeon

    I had my follow up with neurosurgeon but he assured me he had looked over my scans with a vascular surgeon.
  14. CharlieD

    Headaches and NASAH

    Hi Sarah I bet you are sick of the headaches! 8 months is a long time without a day off. I know exactly what you mean about the too tight hat, I feel like I always have one on. I have days when there is light at the end of the tunnel but the headaches soon make it forgotten. I have been working on mindfulness and use the Calm app as a way to distract myself from my head pain. Not sure if you have tried it but its really kept me nearly sane. Thanks Charlotte
  15. CharlieD

    Headaches and NASAH

    Thanks Subs yes drinking lots of water and getting lots of rest. Have been incredibly lucky with family and work support. I was just curious as I notice a lot of those who refer to headaches mention having had coils. Thanks Chris it's good to hear from others with NASAH what their experiences with this is before seeing my neurologist again.
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